I am a 30 year old currently living in Daventry and getting treated at the Northampton General. I was diagnosed mid July and since then I’ve had two scans and two breast ops. I am awaiting my treatment plan and am looking for people in my area to share my thoughts and feelings so I don’t feel so isolated.
Please get in touch, especially if your a ‘younger’ person going through the same thing.
Hiya,
Just thought I would answer because I’m in the Daventry area.
Only just in the younger category - 45, also awaiting tests rather than diagnosed. I had a lump removed 2 years ago that proved harmless. My sister and mother have since had BC and I now have a nipple discharge - I am due to go to Northampton next Monday morning.
I just thought I would answer as no-one else has yet.
I was diagnosed in feb 2005 age 37, I live in Northants and had all my treatment in Northampton mast,chemo and rads, still on tamoxifen and now in good health.
I’m not too far away, in MK, but have been having most of my treatment at NGH. I had chemo, surgery & rads, plus herceptin … and am now just on tamoxifen.
I was diagnosed at 40, with two small children.
As there seem to be a few of us maybe we could have a coffee meet?
Vicky, my wife, is currently having treatment at NGH (6 cycles of Taxotere). She was diagnosed August 2005 with secondary mets in her spine, hips & pituitary gland. Vicky’s now 33 but although she’s probably asleep at the moment (4 cycle was on Friday just gone), she’s fighting back
Can I join you? I dont live in Daventry, but live just outside Coventry, off the A45.
There doesnt seem to be anyone from Cov on this site.
By the way I’m 57 this year so dont qualify as young either!
Julia
Hello lady from Coventry
I live in rugby and i know a few ladies of varying ages that have joined this BC commotion, we sometimes get together for coffees and stuff
Anna x x
I am half way between MK and Northampton. 41 now, so maybe not ‘young’ but try to cling desperately to my youth!
My treatment is in MK however as live in that postcode. But I have an incurable regional recurrance, so not a happy story I am afriad. Although am working through chemo which have been on continuously since Nov last year and generally not doing to bad at all all things considered.
Someone should definately organise a meeting - there is obviously a need for something in this area. I would offer but I am just an ‘interloper’ and hope to remain so (no offence)
Thanks for all the replies - as horrible as this all is I think its nice to know there are others nearby. I think an organised meet would be the way to go? I’m still pretty sore after my axillary node surgery so not too confident yet about driving, but I think I can rope a friend in to take me somewhere tee hee!
Don’t worry I wasn’t trying to be ageist when i posted this - its just I keep getting told how young I am to have it but it seems more common than I thought. So any pearls of wisdom and support is shared all around. i think that is what keeps me going.
At the moment I’m very scared as i haven’t had my scan results back yet, and go to see the oncologist Thursday. Then I have the task of fighting for my fertility rights before treatment! I think I would be devastated if this ruined my chances of having children. Sorry if I’m rambling.
Stuart - sorry to hear about your wife - we’re all here if you need to let off some steam. Goes for everyone really!!
Obviously I really need Vicky to stay positive but that can mean not telling her things I know about her staging/grade/treatment etc. Trouble is, she knows I’m holding back and that causes its own problems
Anyway, she’s off to stay with her folks from tomorrow until the weekend to give us both a break (not that either of us will sleep well apart) but when she’s back I’ll try and get her to join in
Hi where would be the easiest place to meet? I live in Rugby but can travel on public transport
if people who are interested in meeting up let me know i could then work out the wheres and hows!!!
Keep on going it does get easier!!!
Anna x x
Well Northampton could be easiest or Daventry? I can get a bus to Northampton or Rugby, or I could rope someone into giving me a lift.
Stuart - a break will do you both good. Mum is living with me and it has been really hard to lose my independence and I get days where I just need to scream. I think she now realises when I want to be left alone and she respects that. It must be hard for a couple - I 've found things hard and I’m single. My scan results were all clear, but as I need to start chemo I have the fertility risk and that has upset me a little. IF they wanted to start the egg harvesting that wouldn’t happen until end of October and would involve injecting me with the hormone that my tumour loves - oestrogen. I’ve had to accept I need the chemo to get well. No good news to hear on your birthday but all in all I had a good few days lol!
Yes, Vicky seems to have perked up a bit and has done the whole family thing which is good for her and for them too I’m shattered though, I seem to be able to manage only 3-4 hours sleep a night when she’s not around
Glad you had a good birthday though Always good to be able to relax for a while.
Hi All,
I also live between Northampton and Milton Keynes and work in Northampton and am keen to meet up with some others in the area.I am a young at heart 52 so can I join?
I have to say that the treatment I recieved at NGH was excellent and I am 20mths down the line and am trying to remain positive, but it ain’t always easy!!
Not sure how we actually get to speak to eachother - you can tell I’m 52 when it comes to technology!
Hopefully meet with some of you soon.
Claire x
Milton Keynes or Northampton would be easiest for me as I don’t drive, and can get to either on the bus.
Alternatively I can manage Coventry or Rugby on the train
Welcome to the thread. I think my post has highlighted a need for people in our situation to meet up. I’m sure I can get to MK if I needed to - I may be able to start driving again in another week or so I hope. Failing that getting to Northampton should be fairly easy on the bus.
I have also found NGH pretty good. Apparently most breast clinics don’t yet do the sentinel node biopsy and i was lucky enough to have had that done right away. They looked after me so well, and the scar when fully healed will be pretty discrete to my huge relief!
Stuart - hopefully when Vicki is up to it she can join in with us on here if it helps her. Bless you’re besotted if you only get a few hours sleep!!