Welcome bakeswhen stressed can we abbreviate to bws? All lovely girls here , loads of support . Sorry you are going through this again , persistent b…r isn’t it?
Well we could all do with your knowledge and experience , some of us have recently started chemo but quite a few queuing up to begin, quite scary at times.
Good luck on 12 th , lets all get this over with xx
Thanks Lols, bws is fine - although actually my name is Katherine!
evening all had quite a giood day, but had a row with my OH over finaces, i want a wig as ive sed before and he thinks i should wait, im convinced thart having a wig will give me a boost, not even sure id wear one but for some reason i want one. dont want to go expensive but can any one help with ideas ive scanned ebay with no look really, i want to stay short atm been offered some more bandanas by a lady who i used to look after her boys, so might have quite a few of them/
does anyone else get panicky over chemo i seem t have odd moments were my stomach does somersaults and i feel sick, i had a real weird dream last night about carers who i work with sittig round a table with no tops on, i think im losing it a bit.
sold my gecko today as i have neither the patience or the energy to look after it, hopefully shes gone to a good home, he seemed a nice m,an who took her.
well goodnight to all, watching jack and the giant slayer atm, thanks for listening it does help!!
angie
Hi Angie, I think we are all terrified of the chemo and rightly so. Who in their right mind welcomes their body to be poisoned. But we are all going to do it and we know it is temporary. I feel sick too when I think of it, but it is proven to work, just read other threads.
Sam got her wig on ebay and I am sure she can tell you the seller she got it from, she said they had a few.
Do you not get a voucher from your hospital to help with the cost?
I hope you have a brighter day tomorrow and a good nights sleep tonight. I went through a couple of weeks of weird chemo related dreams and it was awful, Talking about my fears on here took the dreams away
xxxx
Angie, you might get a voucher for a wig around a £100 il get one when I visit chemo unit before first appt. could you phone your bc nurse Monday she should know? I feel sick when I think of chemo as gilly says all that poison and we are consenting to it, but the reason why makes sense, we will get through this.
sam paid about £7 pounds for one on eBay if you look at her profile pic she’s got it on looks fab.
i get crazy dreams to at the moment probably the stress I remember them clearly and they stress me out all day! Hope you all get some sleep tonight Maisie’s xx
Hi Lynsey44 how was the heart scan mine is 8/8 looks like i am just behind you re- treatment am having FEC x6 Gill x
Yeah me too! Hopefully I can’t sleep any less than last night. Maybe the iv dex is stronger than the tabs eh? I have got to say girls though that I am so much calmer having had the first lot and it being better than I hoped. I have felt ok today even managed a walk this evening. I am eating fairly constantly tbh Gilly but not felt sick at all today. Only got 1 more ondansetron left however, wish the flippin steroids finished then too! Monday’s last day for dex. Sorry I forgot you had paid 8.00 Lols but hey they may be better!
Have just booked a week away in a cottage in Northumberland we had to go up for a wedding at matfen hall but the hotel was a fortune so my little westie can come too and we’ll do hadrian’s wall etc. Be nice to have a break in the hopefully good phase of chemo, only 2nd cycle so cumulative effect shouldn’t be too bad?
Night girls and welcome Catherine aka BWS! No fun doing this again I bet! Fingers crossed they zap it this time eh?
Jacquie xx
Sorry Katherine! I hate it when people spell names wrong, x
So glad you have had a good day Jacqui. My OH is from Gateshead so we are up in that neck of the woods quite often it is lovely up there.
I have my heart scan on Monday, so last test before the cocktails begin.
Thinking of Chezza and hoping she is alright.
Hope all maisies have a good nights sleep
xxxx
Hi Katherine and welcome to the Maisies. Angie if you want a wig then get one if it makes you feel better to have one hun just in case. I’ve not had a voucher yet either but not sure if that is because I’m doing the cold cap, hoing to ask bc nurse next week when I speak to her about permanent prosthesis…
I hope we all have a good nights sleep without any bizarre dreams,
Good night maisies x x x
Hi ladies,
Iam messaginging after a great night out. really couldn’t be bother beacuse Oh still away but so glad I went out.
It was a laugh a minute as ssoon as i met the girls.
Vietnamese was amazing, we shared all dishes but my main was seabass with mango, it was delicious.
We were the last in teh restauarant and possibly the noisiest but do I care? No!!
We then went in to town to different bars, mate did karoake she is amasing. I just toasted her with vodka.
Sure I will sleep well tonight, if I don’t I do no believe there is any solution to sleeplessness.
Welcome Katherine to our lovely group xx
morning Ladies hope you all had a good nights sleep , Angie I was offered a voucher Friday on my first chemo session, like you love I wanted to sort a wig out prior to treatment so went with my daughter to pick one then last Monday met a good friend for lunch the went to pick it up and had a laugh and a joke about iI desided not to do the cold cap two things you avised only to wash it once a week and I’m 56 keep my hair longish and have keep it dyed because it would go grey, and you can’t dye it so no point in keeping it, im going to have it cut short Tuesday and when the first patch appears, I’ve told my daughter she can zap it off with OH hair clippers , drugs Thursday and chemo Friday all went well no side effects, and no se,s so far but taking all the tabs I’ve been given, you go girl and get a wig if you want one us ladies don’t ask for much but hair is on the top of my list, hope everyone as a good going to cut Sunday dinner today looking forward to it,luv to all chins up girlies this tread keeps me going. I’ve surprised myself on how I’m coping some ladies on here have been going for years with secondary’s and bone mets and I determined to join them luv to all Rose xxxxx
Hello,
I’m beginning my treatment on 14th August, six cycles of Fec-T chemotherapy. I’m so anxious about it and don’t want to be a burden to my wonderful husband. My daughter starts Uni in September and I really am upset that her last memories of me before she goes will be of her mum looking ill.
RainbowRosie
Good morning Maisies and thanks for the messages of welcome. Angie when I had my first chemo session I met with the NHS wig lady just beforehand and she provided a voucher. I didn’t go down the wig route, although I got a couple of hairpieces to wear under scarves and hats. Luckily I’ve been told my hair won’t fall out, just get thinner this time around, otherwise I would definitely have gone for a wig - it helps to avoid that ‘cancer patient’ look on the days when you’re feeling ok and just want to forget about it.
My top tips for chemo from last time:
- take all the anti-sickness meds at the right time
- TELL someone about side-effects - I suffered in silence for the first couple of treatments because I didn’t like to complain, then discovered they can give you stuff to counter-act a lot of SEs if you ask for it
- hair falls out about day 17
- didn’t try this one myself, but a lot of ladies having chemo with me sucked on ice lollies during the treatment to help prevent mouth ulcers
- if your temperature goes up, DO NOT take paracetomol, it artificially masks the temperature and could hide the beginning of an infection. Get on the phone to your chemo hotline, you will probably need to be checked out at A&E.
Hope everyone had a good night’s sleep, glad to hear you had such a great night out Sam, it’s nice to be able to forget about flippin’ C for a few hours and relax.
Katherine x
Morning maisies
Venice25 my heart scan was fine thanks normal is between 50 and 58 i think and i was 65 so my onc was happy with it. Im hoping i get a start date soon i hate not knowing things i like to plan.
Thanks for posting those tips BWS -Katherine im going to start writing these tips in a little diary i got just so i can find everything.
i hope you all have a great sunday and those who recently were at the bar have minimal se’s. Im off with my oh and best friend and her family soon we are going to the zoo! Its her little girls first zoo trip so im hoping the rain holds off and she likes the animals!
Speak to you all soon
Lynsey xx
Good morning to all you Maisies, hope everyone is well this morning and has a great Sunday!
Hi Rainbowrosie, I was in the same predicament, my 18 year old son is in the RAF and is coming home for his summer holidays when my chemo was due to start. I didnt want him seeing me ill and having to go away again, I know it would have been on his mind. They were happy to postpone mine a few weeks, so why dont you ask if you can do the same and enjoy the last few weeks with your daughter and let herleave with you still well? Its worth an ask and may put yur mind at rest.
xxxx
Good morning Maisies , welcome rainbowrosie , my daughter is also off to uni in September I start 6 x Fec on Thursday , it is so hard going through this as us mums are the strong ones I. Have a son 24 him and his oh live with us whilst Saving for their own place , I have my ed who is pregnant with our first grandchild , my us is off to uni at 18 and my ys is only 9 so life is always hectic here but think the fact we can talk on here about concerns or for a rant keeps us all sane xxx
Morning Maisies and welcome to the group Rainbowrosie, this is the best group of ladies to have a banter with so hope you will get all the help and support you need during this journey we are all on. Hope everyone who has been to the Bar is not suffering too much with SE s today and hope you all have a great Sunday xx
Morning Maisie’s, welcome rainbowrosie, luv the name by the way, this a fab groupmof girls for support and a laugh .
hope everyone’s ok and little or no se’s. absolutely pouring down in south wales and off to local agricultural show ( gower) today of all days , all the sunshine we’ve had, so wellies on and big umbrella, if I didnt have hair it would be sooo easy, there’s a positive for what’s to come!!!
Think it will be coffee and cakes in big tent but I love the sheepdog trials with the ducks so will be getting wet and the shire horses and all the animals and I’m so Not getting any more hens!!!
I know what you mean about your sons and daughters seeing you ill, my to look panic stricken sometimes and I’m ok at the mo, but I suppose they will cope and it’s a big learning curve for them and us, in one way it might bring us all even closer to our families, hope so.
right girlies have a happy day all of you in the sun or rain xx ju
Morning Maisies! I am a bit whingey this morning I’m afraid, had about 2 hours sleep, steroids really don’t agree with me! Still got 2 more nights on them too! However apart from the lack of sleep I feel ok so no huge drama. I do have quite a bruise where the cannula went in but I don’t think the chemo drugs have leaked my macmillan book says extravasation is red and painful mine just looks normal bruise colour?
Welcome Rainbowrosie I don’t normally whine but don’t do well short of sleep sorry girls! my lovely hubby has brought me breakfast in bed and I have warched some relaxing gardening on tv, onto saturday kitchen now amazing how idle you can be!
Think I will hit the shower now, how are you Chez? No posts for a couple of days hope you’re ok?
Enjoy your day girlies it is lovely here in Harrogate, from what I can see from my bed!,
Love Jacquie xx