Im having a lumpectomy and SLN biopsy for invasive lobular carcinoma stage 0 grade 2 On Friday
Ive been told definitely surgery and radiotheraphy but possibe 30% chance ill may need chemo as well.
I originally was told it was area of calcification for dcis so was prepared to have that comfirmed.
I went into shock when i was told dsic was beign and i have this invasive one instead and they have check it hasnt spread
I m so worried that they may have gotten something else wrong as well after given me wrong diadnosis. The surgeon is lovely but i feel that i cant ask the bc nurse i was assigned any questions cause i feel in only annoying her when i tried. . Who can i ask instead? Can i ask for a different nurse? Lying here crying again
So sorry to read about your situation and what you are going throughā¦ we all know how worrying it is to wait for results and how anxiety takes over your thoughts. Unfortunately the diagnosis can change, it happens frequently as your medical team do more tests and biopsies. Once you have the surgery and the pathology results, they can build the treatment plan. Try and focus on the positives that surgery will remove the cancer, any further treatment is an extra insurance to try and prevent recurrence. I know thereās no guarantees, but your medical team are doing everything to help you. That said, if youāve problems with your nurse, you could ask for another or not worry about calling, they are there to help you. There are other support groups on this forum where you can speak to the nurses or contact Maggies. All the bestā¦ it will feel better soon xxx
Hi @bellalasagne1, I was told there was no other option when I raised about permanent marks/tattoos this weekā¦. Not happy about it to be honest, I feel that they just expect you to accept it. It might be dependent on hospital, but looks like I have no choice. I had the oncologist call it out in my notes and will raise again with the radiologists. Iāll see how it goes and then have the option to have them lasered off at a local skin clinicā¦ fingers crossed they are very small x
Hi @amafoss65 for being so kind in helping me try and understand what will happen on Friday. I was focused on what i was told will happen but now i dont trust anything im being told so ill never know if im being told the truth when im being spoken to.
Cancer is bad enough to deal with without being afraid that your doctor has gotten something wrong or maybe missed something. Im thankful my cancer was found but how can i ever trust what they say now? How can i get past that?
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Hello, I am so sorry about your diagnosis. I was similar to you, I was told at first call back, that I had an area of calcifications. More tests and biopsy confirmed high grade DCIS. I then had surgery to remove the DCIS and at my pathology results, I was told that a small IDC had been found in amongst the DCIS. I then had a SLNB and again a small 2.5mm cancer was found in 1 out of the 2 nodes taken. I am now about to start chemotherapy tomorrow ( Monday). I was originally told, one operation and then 5 days of radiotherapy, BUT unfotunately they have to change the treatment with any new findings. It isnāt that they get it wrong, or that they lie to you, it is just that the cancer is not always visible on mammograms etc and then is found once the tissue removed at surgery is sent to the pathologists. If you think about it, it is much better that they pick up the invasive cancer now and treat you for it, rather than it stayed inside you and grew and caused a much bigger problem further down the line. So as you see, I am one, amongst many, many people on this forum, who have been exactly where you are now, with the diagnosis changing into something we never wanted, but they will treat it, the treatment plan will be different, but it will get treated. So please donāt feel that your doctors and nurses are lying to you, they are not. It is just that this area of cancer could not be seen, prior to your operation. Good luck with everything, you are not alone in this. x
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Thank you bellbert. I understand a bit better now. You are right it is better its picked up early and treated quickly!
I think I need to expect the unexpected on friday now.
I have so many emotions running through my head. Anger, sadness and fear. Im doing my best to be positive but finding it very hard.
I hope your doing well on your recovery journey and thank you again for the information x
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Keep raising it, and read the other threads. Iām sure - but May of course be wrong - that there is an alternative.
I had tattoos first time round on my left side so when I needed radio on my right side the radiographers did look into whether those markers could help them. Turned out they didnāt, they still had to speak to my previous hospitalās radiology dept to get the previous measurements to ensure this radio didnāt overlap.
I didnāt need more tattoos this time due to the machines and technology used.
Previous tattoos are tiny, pin prick size, and not at all noticeable.
@lottie73 Iām getting less tired, thank-you, but I have been WFH all week and havenāt done anything else. The next 2 weeks will be interesting as I add in travelling to my team (100 miles away) and a trip to London. Iām taking the train rather than driving so I can have a nap on the way home if I need to. Better that than on the motorway!!!
Love to all BBBs xx
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