Slept reasonably well- seem to have a pattern of waking around 4am for a couple of hours, before drifting off for another while. I’m feeling ok, sluggish but the meds are working to keep the sickness away 
We’re going out for a walk away from suburbia today, it’s beautiful in the Surrey Hills and I’ve chosen one that starts in a village and is reasonably short, hopefully that will get the endorphins flowing!
The nurse yesterday asked if I’d been doing all my usual activities 
I thought that was a really strange question!
How are you doing @gromit12 ?
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Remarkably ok on the whole thank you, once the nausea was controlled, and then the resulting constipation. I walked to the village coffee shop yesterday, which really did me good. I’d told them I was about to start chemo and they wouldn’t let me pay for my lunch 
can’t face coffee though 
Bone pain last night but just seeing it as my bone marrow battling to produce white blood cells, which has to be a good thing! on my way to a wig shop, as I’m debating continuing the cold cap. Didn’t want a wig, not really sure why, but decided to at least go and see. Enjoy your walk, fresh air does wonders xx
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Yes will definitely take paracetamol as that seems to help. Starting on Monday. On AC-T so less chance of retention on that from what I hear but seems to be also a bit of pot luck as regards who it works for.
And yes that’s so true on going over everything repeatedly. Less is more!
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I went yesterday to see about a wig & actually came home with one. I’ve went for a similar style & colours that I normally have. BTW it looks really good & you can’t tell its a wig I have on 
I just need to practice putting it on. I’ve got it as a fall back if cold cap doesn’t work as was told on Tuesday at the new patient meeting that if there’s any hair loss or thinning they will stop it as hair will grown back differently.
1st cycle not until 18th but am now on count down mode as just want it started.
Gaining lots of helpful tips ladies so thank you hope you all are doing ok
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@ivegotthis01 are you feeling a bit better? I went to the wig shop and they were amazing. I’ve come away with the second one I tried on, and I love it. No one can tell it’s a wig!!! Ironically had to call into my husband’s work today and I’d kept it on and everything was saying how well I looked - retirement must be suiting me!!! Not quite the plan I had for retirement!!! Very pleased that I didn’t have to pay VAT on wig either.
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Oh that’s brilliant to hear, mine was the 3rd I tried on 
am actually so shocked at how good they look. Bet you felt like a million dollar’s & enjoyed the compliments 
I got mine on prescription so didn’t pay a thing, I am in Scotland so will be different if your in England.
This time next week I could have finished my 1st one - am in at 9am but been told I will have a consultation 1st, then in longer due to cold cap.
Once treatment is over, you will then be able to enjoy retirement as you had planned, start by making a list of things you want to do or even book a trip away. My friend is getting married the end of August, I just hope am well enough to go
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@ivegotthis01 do you need a PICC line? That added a couple of hours to my first morning. I wouldn’t have got a wig on prescription here in England but I feel it’s worth every penny!! We are actually buying a house by the sea for retirement!!! It’s all still going through, though I want to be up here certainly until after surgery
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OMG dry mouth!!! Advice please? And does it go away again before second round (I really really hope so)??
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I guess if ‘usual activities’ are feeling rubbish and doing very little…… then yes I’m totally on track as usual 
! What a ridiculous thing to ask 
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I’m so pleased to hear about those of you who have found really nice realistic wigs! I’ve not been able to get out as feeling so rough since the chemo to get one yet, but have pretty much decided to not try cold cap again (it wasn’t too awful but given the reactions I had to pre-chemo drugs I don’t want anything else adding to the stress/time of my next session) so it’s hairless and wigs for me.
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@isthisreal do you have a hair clinic at your hospital? I do but eventually gave up trying to make contact and found a private wig shop on the Cancer Research website, which wasn’t too far away fortunately. Are you feeling any better yet? Having had such a bad experience on the day is not going to have helped. Virtual hugs 
xx
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Exactly!
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No-one has said about a picc line, I’m hoping my veins will be ok. Oh how lovely this is what I would love 
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Biotene mouth sloosh helped with dry mouth, might be worth a try 
Shi xx
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Also your Macmillan’s at your trusts usually have preloved wigs that you can purchase for a donation. And do get your wig vouchers from your trusts, if you’ve not been told about them ask, not all trusts are forthcoming about what your entitled to and do book your look good feel better sessions through your Macmillan’s at your trusts Shi xx
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Hello Everyone! I hope people don’t mind if I join this thread! I had my first chemo Docetaxal and Cyclophosphamide last Thursday. Unfortunately I didn’t have a great reaction so I have an appointment with my oncologist today to find out the new plan. Like everyone here how hard is when you have to wait! I’m inpatient at the best of times🤣 I’ve been reading this thread everyday and thought that maybe I should put myself on here and say Hi ! I’m lucky I have a lovely family and friends but I’m sure you guys know it’s hard as I want to protect them from all the horrible stuff and just get on with it. Every morning I’ve been reading this thread thinking I can completely relate or my mouths dry ect! Hopefully I can join your group and we can all share tips and advice form our shared journeys. Here’s to a happy Friday to everyone. Xx
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Hi @Shi My BCN asked me whether I would consider a wig and then offered me the NHS code towards it, as well as a local supplier who I’m due to revisit in a few weeks now we’ve met and chosen a wig (never thought there were so many shades of grey 
) I think there will be a “top up” amount but I’m grateful for the voucher.
I wanted to pick up on your comment about “Macmillan at your Trust” - do all NHS Trusts have a Macmillan connection? This hasn’t been mentioned at all, but I have seen other posts referencing their services so wanted to know a little more about that? I’m in Surrey
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You’re very welcome @hc1973 - I’ve learnt so much from the comments on here and it’s always good to share with people going through the same, or similar experiences. I hope your appointment goes well, your team will I’m sure have dealt with this before so we must trust in their expertise. All the best for today!
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