Hc1972 
your onc might suggest abraxane as alternative lots who have had reaction get switched to abraxane and get on fine with that I had a reaction in my 2nd docetaxol, it can happen and your teams have seen it all before. Sending 
Shi xx
There is a MacMillan department at my trust and they help with lots of things during your treatments, ask at an information area in your hospital if no one has pointed you in their direction there should also be things like reflexology and things on offer too. If you’ve Maggies centres army your trusts use them too hope this helps Shi xx
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Thanks @Shi yes I’ve heard a few people talk about Abraxane. I just want to get on with it I think I will feel more settled once I know. X
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Welcome!! We’re all in this together
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Thank you! I already had the toothpaste but now ordered some more of their products. It doesn’t feel quite so bad so far today - would be amazing if it was short-lived thing.
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Welcome @hc1973 this is a great group and I’ve learnt a lot and feel really supported. I hope you get your meds sorted soon, I think quite a few people react to docetaxel - I need to have it for my last three sessions and I’m a bit apprehensive!
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@isthisreal hopefully it will pass. I had a horrible sensation like a burnt tongue for a few days. I swilled my mouth out with mouthwash every few hours and it seems to have gone now. How are you feeling more generally? Are the side effects easing off at all?
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@altoan my hospital it’s the Big C which runs the courses, reflexology, wig referrals etc. They have a separate centre next to the cancer unit. think that there is a centre at most hospitals for cancer support though. My nurse told me about the wig voucher but there’s a two month waiting list for a fitting, so I’ve seen someone locally in the meantime who can source one for me and I may get the second one as a back up - depending how much hair I lose!
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Hello everyone, wanted to pop in and say happy Friday!!
I had an awful day yesterday, got a period in my second week of ec (getting rounds two weekly) so was an emotional mess and had back ache from nowhere yesterday thst was horrendous! I don’t normally get periods (had a coil) but now it’s out I guess it’s back on! And all the emotions that go with it.
I’ve been reading the posts this week but didn’t feel able to join in. What an amazing bunch you all are!! Sending love x
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Do all keep eye out for oral thrush chemo can cause this it’s happened to a lot of us over the years, let your teams know they will prescribe you something (try getting fluconzole) don’t let them fob you off with drops Shi xx
@mlp74 sorry to hear you’ve had a bad few days! I had a terrible headache yesterday and really struggled to shake it off. Thankfully it seems to have gone now 
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Am due to start my 1st EC on Thursday & will also be getting my treatment every 2 wks. I got my period yesterday & have also been really emosh (am normally fine) but the thought that this could possibly be my last ever period has made me so upset 
the best bit is I hate getting them anyway, but am now crying at anything today 
also got abit back pain but am blaming it on the vaccines I’ve had earlier on in the week.
Hope things settle for you 
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Hi @ivy-cat sorry to hear you’ve had a crap day with headaches, glad to hear they’ve passed. It’s all ups and downs isn’t it!
@ivegotthis01 its a menace isn’t it! I cried yesterday and have no reason other than I was asked how I was. I am usually measured and level headed so I hate that emotions take over but learning to roll with it. Hope it passes for you soon. All the next for the start of your chemo! You can do it 
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I’ve got bone pain today- in hips, back and femurs- just telling myself the filgrastin is working and my bone marrow is working overtime making white blood cells!!! As she takes more ibuprofen 
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Hi everyone,
Any thoughts on things to bring to hospital for chemo aside from phone, charger, comfy socks and hat for cold cap plus paracetamol?
Also not a whole lot on right now to download for TV so if anyone has any good bingeable drama series send them my way!
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Hi ladies, hope you’re all doing well. I’ve been reading the threads and I think it’s great the Support everyone gives. We’re all on the same road and if one person hasn’t had a certain side effect someone else will. I really don’t know why I’ve come on here only that I feel it’s my only outlet at the minute. My sisters funeral was yesterday and cremation is on Tuesday. Everyone keeps telling me how strong and positive I am, inside I feel different but think I’ve no other choice as her children and my dad are totally distraught. So coming on here to see how you ladies are helps me.
@isitreallyme , I’ve found Manuka honey very good for dry mouth and throat it has really helped me.
@hc1973 , you seem to be on the chemo regime as me. Is yours 3 weekly? I’ve found the 1st 2 weeks the toughest and then everything starts to ease of.
For anyone suffering headaches, even after a week I found the anti sickness tablets really helped with this.
For all yous ladies getting wigs I got a beautiful one that was similar colour and even had loose curls like my own, you would never know it was a wig. Here’s the funny part now …… I had it on for my sisters funeral yesterday and when I was about to leave the house the winds were really strong and I don’t think Wendy ( my kids have named my wig) would have stayed put. I had to then put on my head scarf. I had a giggle to myself as my sister knew I hadn’t told many people about my diagnosis and with about 400 people at the funeral they all know now. She would have found this hilarious. Needless to say I’ve woke up this morning and most of my hair is gone xxxxx
Sorry for such a long message it’s great to have an outlet. Together we can all get through this 
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Good to hear from you @pollyanna1 and I’m glad you feel that we are here for you x
You’ve had so much to deal with, I’m not surprised that you’ve not had a chance to properly grieve yet - you probably appear much stronger than you actually feel! I really hope things start to get a little easier, even if it’s just your treatment going as well as it can. Much love to you xx
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Hi @pollyanna1 thanks for your lovely supportive message. I hope you are OK it sounds like you have been going through a really awful time cancer aside. I was due to have 6 rounds of cyclophosphamide and docetaxel. Unfortunately had 2 x really bad reactions so am being switched onto 3 rounds of EC followed by Abraxane for another 3.
Back in next week to start again! My heads been killing me since last week (had the chemo on the Thurs) I thought it might be to do with my sugars as I’m diabetic but the oncologist said it was likely to be the filgrastim.
I am trying to cram load of things in over the next few days ahead of next week. I hope everyone else is feeling OK.
With regards to dry mouth I bought some moisturising mouthwash and toothpaste off Amazon that seems good called biotene.
I hope everyone else some nice things planned, my daughters back from university so it’s been so nice to sit in the sofa with her today in my pjs!
Big hugs everyone, yes it’s pants but we can all get through this! Xx
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@hc1973 interesting what you say about filgrastin and headaches- I’ve had a low grade headache virtually constantly since starting the filgrastin - last one last night. Grief- each of them cause different stuff don’t they?! Hope you have a lovely weekend with your daughter. I’ve got a couple of nice things planned over the weekend, and met a friend for lunch today xx
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