April 2024 chemo starters

Monsters inc you are funny!

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This is the shampoo and conditioner x

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Just returned from seeing the nurse, she spoke to the doctor regarding my nails, not much they can do but have given me D3 for vitamin D and ferrous gluconate for iron which they said might help
Only way to describe my nails is that they are cloudy from the top working itā€™s way down my nail, they did say it doesnā€™t look like any infection so thatā€™s a positive x

This morningā€™s side effects are poonami - now travelling back to Reading- thank God for immodium!! And gentle nose bleed, both nostrils - this is a new one!!!

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This is my hair growth, taken last week :heart:
@gromit12 oh no!! Not what you need right now, hope the journey isnā€™t too bad for you xx

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Aw @gromit12 I had to laughā€¦. I got my Docetaxel the same day as you and it was like reading my own notes for today :woozy_face::joy: my husband just asked me yesterday about how my stomach had been and I told him surprisingly ok but I was a bit worried as I hadnt done anything yesterday. Literally said to him I might be in for a poonami todayā€¦. Sure enough from 3am - 4am normal service resumedā€‹:see_no_evil: Iā€™ve taken some Imodium as was still dodgy earlier so think stomach is settling now. Also had a nose bleed this morning :joy: Iā€™ve had a few this round but think itā€™s because of how dry the inside of my nose is! Mouth ulcers are back with a vengeance for the full sides of my tongue so I can only manage liquid food the now too which is a pain! Hard to have a diet to combat diarrhoea when you canā€™t eat solidsā€‹:see_no_evil:

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:weary: x

Isnā€™t this just such good fun :woozy_face::see_no_evil::poop:

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Sorry to hear about those of you still suffering with tummy, nose bleeds and nail problems - although I realise mine arenā€™t looking too good either!
@hc1973 @elle16 despite the heat, Iā€™ve worn my wig loads. Even though itā€™s a pain, I wouldnā€™t go out of the house without it. Iā€™ve come this far without the whole world knowing my diagnosis and Iā€™m not ready to drop that bombshell yet (although I have just given my new neighbour a scare this morning- thatā€™ll teach him to look in my front window :sweat_smile:)

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@isthisreal, great to hear youā€™re on your last chemo, hopefully itā€™s not too harsh. I finished radiotherapy 2 weeks ago, only downside was tiredness but seems to be settling this last few days. Started tamoxifen 4 weeks ago and took a few weeks to settle, really bad nausea and diarrhoea but it also has settled. Oncology thinks itā€™s been a combination of everything. Iā€™ve 4 sessions of reflexology with MacMillan and had the first today, it was amazing. As much as itā€™s great to finally finish all treatments itā€™s hard to process everything over this past 7 months, feels like a dream. Iā€™ve been doing more walking and trying to eat as healthy as possible. Small steps but itā€™s a start. I really hope everyone else is making progress, I know some of you still have surgery yet but as Iā€™ve said before Iā€™ve found nothing as bad chemotherapy. Itā€™s been a tough & long road for us all but weā€™re getting through it.

Pauline xxxx

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@pollyanna1 and @isthisreal was only thinking same and even though I rarely post I missed the commentary and then thought maybe Itā€™s because everybody is coming to the end of their treatment, which is really good and fair play everyone has been through so much. I have finished chemo and Iā€™m just waiting for my hair to stop shedding! Itā€™s lovely to start getting back to normal life and seeing the back of all the chemicals. Chemo is such a long road.

Does anyone have cream recommendations for radio therapy? Looking forward to the end but slightly worried about hormone treatment and symptoms.

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@isthisreal sorry youā€™re feeling rubbish. Iā€™m really struggling with the heat, how on earth do you know if youā€™ve got a temperature when your thermometer is in the removal van!!! :rofl::rofl:Keep forgetting Iā€™m only 14 days post chemo and Iā€™m attempting a house move and lots of travel. I think that during chemo my PICC line defined me- without it I forget that my guts are still in disarray, and overwhelming tiredness keeps hitting. Tomorrow is a drive back to Reading once Removal van 3 has off loaded for this delightful insertion of tracker seed on Friday- thereā€™ll be local they sayā€¦ :weary: And then I drive back here later that day for a weekend to chill, except the electrics have just blown in the garage- good job we noticed- so had to empty chest freezer and carry it back into house :weary: Hugs to all you lovely ladies. Laura xx

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Hi SL255, I think you will find radiotheraphy much easier than chemo, I know I did, however it is tiring going to sessions every weekday. As for cream, the radiologists will suggest what to use and when/how, but wash it off before each session. Mine said E 45 cream. Also my consultant gave me a prescription for Medi Honey, (You can get it on Amazon as well.) to use if your skin burns or feels sore. It is very very good. Donā€™t be too worried about hormone treatments. Not everyone has side effects. I have been on Letrozole for nearly 5 years now and yes my knee joints are bad and I have put on weight especially round my tummy and hips but if the tablets are keeping any cancer away I am prepared to continue to take them for another 5 years. I hope all your treatment goes well. There is light at the end of the tunnel. Take care.
Sunshine21

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@SL255 glad to hear youā€™ve finished your chemo, itā€™s such a relief. I found radiotherapy fine and energy definitely better this week. Hospital gave me Cetraben cream which I found great. I also was using aveeno before this which is great for scarring. Iā€™ve really sensitive skin and would be prone to eczema but never had any reaction to radiotherapy. Radiologist also told me that you donā€™t need to wash any creams off before radiation as new evidence suggests it makes no difference. Iā€™m wondering if this is why I had no reaction as I was putting it on 4 times a day. Ask when you go for your first appointment as every trust is maybe different xxxx

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@pollyanna1 and @sunshine21 thanks for the tips! Must start moisturising then! Yep definitely light at the end and eager to start on the hormone treatments too to see how I take to them. But Rads first and hopefully weeks will go fast.

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Iā€™ve had my last radio today, and Iā€™ve been using Flamagel and e45, no problems and a dream compared to chemo, also used an aluminium free deodorant, Iā€™m also suffering with tiredness but Iā€™m only 4 weeks post last chemo today do not sure if itā€™s chemo or radio thatā€™s exhausting me . Hope yours goes well for you xx

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@isthisreal apologies for just reading your post, but Iā€™ve been drinking lots of herbal/fruit teas and often leave them to lukewarm temperature before drinking so that might be worth a try. My niece also tells me that there are cold tea infusions nowadays :face_with_raised_eyebrow: which Iā€™d imagine are similar but designed to be drunk that way?

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Hope all doing well.

Anyone have any remedy for really sore eyes? My eyelashes have disappeared since chemo ended.

Hair still hanging on and hoping shedding finishes soon! But never realised how much eyelashes protect your eyes. Thanks!

Hi, it may be because theyā€™re dry - if it is then try xailin night ointment and hypromellose 0.3% eye drops during day. My eyes were red and scratchy/runny etc and no issues using these

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@belle1 thanks will give that a go!

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