April 2024 chemo starters

We have a drawer full of ice cream lolly’s in our freezer too…. I think you’re right about being able to taste it more with it being so cold!

Totally off todays topic but I was curious to see what doses people are on for those that have been on EC? I’m on 155mg Epirubicin and 1000mg Cyclophosphamide and just wondered about doses for side effects etc that we’re getting. I know it can depend on weight too so just for reference I’m 64kg😂 feels like a confession haha!

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Hi @belle I’m also on EC my dosage in my book says Epirubicin 166mg and Cyclophosphamide 1104mg so it all sounds very similar!

As for ice creams and ice lolly’s it sounds like we are all the same. I’m also addicted to Pringles and salty crisps !

Yesterday I ate a whole tube of Pringles and could have cried when I realised I eaten the whole tube!

Hope everyone is Ok from their treatments this week. I’m still battling annoying headaches particularly over one eye. Very boring! H x

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Sounds amazing @elle16 , I’m hoping to go on a cruise with my dad and my sister and family for Christmas, it’s so nice to have things to look forward to :smiling_face_with_three_hearts:

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@tsoph - try taking an antihistamine an hour before you do the injection. It really works. I had excruciating bone pain during cycle 1, so bad I phoned the helpline as I was struggling to walk. I’ve taken antihistamines since and not had any. I’ve been taking loratadine x

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@elle16 hope you enjoyed lunch and catch up with friends. Hubby and I went to farm shop and I demolished a chilli jacket potato :yum:having done the washing and fought with a quilt cover I am now bushed!!! Filgrastin jabs restart later :weary:xx

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@belle1 I’m epirubucin 180 mg, and cyclophosphamide 900mg and yesterday weighed in at a whopping 73kg :weary::weary:

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Hi lovely ladies, just got back from my 4th round, my first Docetaxel + Phesgo. It all went remarkably (for me) undramatically! I’d said how nervous I was about having a reaction and so they put the Docetaxel in at an even slower rate than they normally do, and :crossed_fingers:t2: nothing other than sleepiness so far. I also asked for the numbing cream for the Phesgo and I think that helped too.
Hope that reassures the others that are moving over next time x

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Aw that’s good to hear. I have one more EC then I’ll be onto the same as you. I didn’t know you could ask for numbing cream either. How was the injection/how long does it take? I’m more nervous about that than anything else due to it going into the thigh lol

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@belle1 The injection is a slow one so takes about 5 minutes, but it is a normal fine needle. It stings for first 30seconds and then it’s just annoying having a needle in your thigh as they put rest in slowly, then it stings for about 5 seconds as they pull it out. I would say not too bad at all.

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@belle1 im also 64 kilos ( just had to weigh myself to check ) I was 66 last chemo :woman_facepalming: and could be anything for the next one depends on if I can control myself or not, I’m really trying :crossed_fingers: I have absolutely no idea what they give me, I’m assuming it will be the same as yours, would it be on the paperwork I have from the hospital?
@gromit12 that sounds lovely, I’ve had a lovely time thank you, didn’t look at any plants stayed true to myself and we stayed in the cafe :joy: had a lovely lunch and a catch up

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@hc1973 fabulous, I think we will deserve it after this year :heart::ship: xx
I’m taking nurofen plus for the headaches, it’s ibuprofen plus codeine and they seem to be working , but does state on the box for three day use only, but I try to only take them when it’s really bad x
@ivy-cat i feel like I’m back at slimming world when I get on the scales, :woman_facepalming:

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Yeah I’ve got a cancer treatment record book to take to appointments and they fill it out at each cycle with my bloods results and chemo drugs. It also has info about side effects and pages to track your side effects in it.

Yeah I’ve just lost a pound or two in the last month but tbh it’s probably more muscle if I lose weight as I can’t lift the same and don’t want to push it too hard but am just working out to maintain at best. Hoping I don’t lose too much as I’m one of those folk that’s just up and down naturally so muscle gives me a bit more weight and shape and I’ve spent years putting and keeping a couple stone on… I’m certainly still eating the same😂 some days are torture with a crazy appetite!!

@isthisreal thanks for that info - helps me feel less scared of it!!

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Oh love this :sparkling_heart::sparkling_heart: this is why am doing it next year - my son will be 25 & I most definitely will have shifted this chemo weight (well hopefully) & be feeling back to my normal self & into the normal routine - definitely something amazing to look forward too

Enjoy, you deserve it :sparkling_heart::sparkling_heart:

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@ivegotthis01 thank you :heart:

Thanks @elle16 I will try that as I’ve really struggled this cycle!

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@belle1 do you have a picc line fitted? I’ve stopped going to the gym and lifting weights as I was worried about pulling out my picc line. I suppose I could adapt and not do any overhead lifting? Emma

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No I don’t… they said I’ve got a few veins to use and they’d rather avoid the PICC as it’s another risk of infection (and I’ve already picked up a couple infections since I started chemo😂)

It’s one thing that puts me off it is I don’t know if it would limit exercise just from what I’ve seen people say but I’m sure you could adapt in some way and still do deadlifts/rows/press ups instead of bench presses/biceps/triceps etc! My forearm hurts when I do overhead presses due to the phlebitis but thankfully it does warm up and ease off so I can still do them when I’m warm enough.

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I’ve got a picc line and I’ve kept up with lifting - modifying more for my energy levels. I don’t do anything heavy overhead. My nurse just told me not to do any handstands but there’s no danger of that considering I couldn’t do them before cancer… :joy: I do classes with Sarah @ Get Me Back, you can find out more here: https://www.getmeback.uk/

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@belle1 and @kartoffel - thank you! I think now that I’ve had my picc line a while and it seems pretty healed that I’m going to go back to lifting weights. I miss it and I don’t want to lose any more muscle x

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@belle1 @ivy-cat @kartoffel I think you are all amazing, lifting weights and working out and @gromit12 with your running, inspirational all of you, :heart:

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