@belle1
My best ones are really cheap sarong thin ones I found in a hippy store in Paris before chemo BUT the ones I wear most now if I want to look smarter are Accessorize ones and Oliver Bonas. Brighton Lace sent me two gorgeous ones too which are thinner and great in warm weather.
Satin ones are hideous and too thick and slippy and a bit too Joan Collins.
I got a lovely blue one from Mango last week.
Either go larger really thin sarong material or go smaller and slightly thicker but anything below 65cm square is too small to tie. Donāt be afraid to buy a large one and cut it in half to make it work. Itās worth it as itās hard to find ones to love and youāll use them so itās worth it! The accessorize ones will be too thick once itās over 22 degrees so Iāll halve them then and have two! X
3 Likes
Luckily, scarves are in fashion this year! They knew we were coming! Donāt bother with Zara as too thick. X
2 Likes
BUTTHOLES!!!
Docetaxel really does give you a painful bum. I was hoping to avoid it but on Day 5 today, I woke up not constipated and mostly healthy but then the floodgates have opened and itās not fun but not the worst diarrhoea Iāve had.
Read around and loads of people seem to have ended up using Sudocrem or Preparation H. Iāve gone straight for the Anusol/Preparation H approach for the relief and itās instantly feeling better.
It may be worth stocking up now for those behind me on this fun merry go round. X
3 Likes
Day 4 Docetaxel
Feel like Iāve crashed and burned today, absolutely exhausted, sore mouth and throat, no taste, but not like EC , no sickness, done absolutely nothing all day .
Tender fingers and toes , so so tired 
Hi Iāve been of the radar this last few days, sorry if I dampened anyone sprits a few days ago this 3rd cycle has wrecked me. I never had sickness or diarrhoea as bad with other cycles, just feel like Iāve been run over by a bus and so emotional. I donāt even know myself. Fingers crossed it settles soon. As lot of you know my sister died suddenly last month and this last week or so my heads been all over the place. I think if I felt well I could cope or even try to occupy my head.
Please donāt let my rant dishearten anyone, I know Iāve one more cycle after this to go and I will do it. I have to so I can let you women whom have radiotherapy to do tell you what itās like lol. Iām totally amazed at how well lots of you are doing, itās never easy, so be very proud. X
Like some of you Iāve bought lots of head scarves but finally got some that arenāt too big or small.
Iāve copied the link
Pauline x
3 Likes
Thank you so much for your kind words,itās been a tough few days emotionally and physically. My dad called with me today (82)and heās just finished treatment for bladder cancer a few months ago and we had a great chat and told me heād never got through it without my help( crying once again) heās such an inspiration and I know I can do this with all the great support I have. Postive pants back on lol xxx
6 Likes
Good luck for your next one, sending Hugs xxx
1 Like
Ah, are you in Sonning? Iām in Henleyā¦ Are you also at RBH?
1 Like
I totally get you regarding surgery, Iām the same 15 sessions of radiotherapy which they said should be starting end of June beginning of July. Iāve a planning appointment this Thursday with radiotherapy ( different hospital) have you had any word about this xxx
1 Like
Is your mouth pain totally different to EC? I feel like someone has exfoliated my entire mouth and tongue with steel wool. So swollen and sore and no taste at all!!! It also hurts to chew and gums feel soooo sore!
Iām also bloody wiped out and toes and fingers feel all wrong. Ends of toes are really sore especially and almost a bit itchy sometimes.
Still better than EC though weirdly.
X
1 Like
Oh @pollyanna1 Iām so so sorry but Iām also pleased your Daddy told you that. You have so much on you. Iām not sure Iād even be upright in your situation. Most of us are struggling with just cancer without worrying about our Dads and dealing with such immense loss. I wish I could take some of it away from you xx
2 Likes
Iāve got a couple of these but canāt fathom how they work!!! They come with a little ring / toggle thing too. They are gorgeous pattern.
1 Like
@elle16 - sorry to hear that! My doctor said the come down after you finish the steroids can be brutal on docetaxel. Fingers crossed you start to feel better soon. I start on docetaxel tomorrow. I started the steroids today - a massive dose compared to what I was on for EC. Knew I had to sleep well last night because Iāll be wired for the next three nights but lay awake all night worrying about not sleeping. Honestly! 
1 Like
@kartoffel yes Iām at the RBH, but having chemo at Brants Bridge. Where are you having chemo? Laura x
@swk1981 Yes!!! I couldnāt have put it better 
BUTTHOLES!
1 Like
@elle16 yes I felt the same after docetaxel. I had about 4 days (day 5 onwards) where was shattered and barely did anything. Hoping yours doesnāt last as long x
1 Like
@swk1981 yes my mouth has been bizarre too since docetaxel. A few ulcers and cuts at side of mouth and my tongue has been red and sore. I love the perfect analogy of exfoliating with steel wool!!!
Everything tastes blandā¦. I keep looking at the food to check what Iām actually eating. The only blinking thing I can taste is horrible kefir!
I think Iām a week ahead of you and my mouth mostly got better on about day 9, taste coming back slowly.
Did you try sucking ice cubes or ice lolly on chemo day? Someone had suggested it so I tried, but not sure if it did much good.
Good luck for the next few days xx
1 Like
Iām not sure I would have survived the chemo tummy pain this time without kĆ©fir. Iāve drunk 4/5 times more this time and itās sorted the bloat every time within hours. Still hate the taste though after years of it!
Canāt do ice lollies because chemo killed them for me unfortunately. The only thing that has made me throw up is the mention of a Calippo since the start of chemo. I literally hurled talking about them. Mental!!!
Everything tastes sooo bland but i can smell curry even though we live on a farm so thereās no curry near me. Iāve gone insane. The hinges of my jaw hurt and I swear someone has taken a razor blade to my inside cheeks. Jeez. This is still better than EC but I canāt identify a single bit of my body that doesnāt hurt right now. Am tempted to take some morphine and switch off because itās quite hard to escape the joint/flesh/nerve pain.
I mucked out horses this morning and coped and ignored the pain but I canāt figure out whether moving around is better because lying still I can just notice all the pain.
Hollywood promised me vomiting, baldness and being thin. Instead I got nausea, pain, baldness, fluid retention and an addiction to Pringles. Bastards. I was at least hoping to rock my ugly missing boob in Spain with an insanely flat stomach and some hip bones to distract from the boob. Soooooooo unfair!
3 Likes
Thanks everyone for making me feel less alone, wire wool in my mouth is a perfect analysis, just feel battered after what feels like my 1654 sleep of the day ,
@pollyanna1 you are incredible, keep doing what youāre doing, canāt even begin to imagine the heart ache and pain youāve coped withš©· if I could hug you I would,
Thank you so much for the link, those headscarves look perfect, my delivery man will be pleased 
Keep going everyone, weāve got this 
3 Likes
