April 2024 chemo starters

:heart:always report everything to your team during chemo :heart: just so they are aware, remember they been it all before and will be able to advise you also mention to your onc next time you see them :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Ahh thanks @kartoffel i will look at headwrappers! I live in Fleet and I’m at the Nuffield hospital in Guildford so not a million miles away!

Thanks @Shi spoke to my oncologist today she has prescribed me some stronger painkillers and told me just to take them! In for another EC on Thursday yuck!

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First docetaxel done :white_check_mark: just two more to go and then I’m finished. I’m so fed up with it and cannot wait for it all to be over now!

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@ivy-cat well done :+1: you’re so nearly there :hugs::hugs: xx

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@ivy-cat a big moment! Well done! I hope you get a good sleep tonight! Xx

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Docetaxel - check temps

Hey everyone,

When you start Docetaxel, check your temps. I’m now admitted into hospital with neutropenic sepsis. Briefly spiked over 38 and have a normal temp but my neutrophils are at 0.5 so am now in for two days. Only signs were feeling awful and having a brief slight temp and diarrhoea.

They don’t even have a room for me so they have me next to someone with chronic diarrhoea and I’m absolutely terrified since I have no immune system whatsoever right now.

It took 7.5 hours for them to get results from bloods and bother to start any antibiotics and it’s been an absolute disaster. X

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@swk1981 hope you’re getting sorted, I was also in hospital all day yesterday until late last night. I had phoned oncology unit to see if I could get something stronger for sickness and they sent me straight to hospital as I’d mentioned I’d really bad pains in my jaw and check bones. Seemingly doxorubicin one of my chemotherapy drugs can cause cardiology toxicity (only found out this yesterday) so had to have ECG and other blood tests. ECG was fine but said my bloods for heart where elevated but I’d no cardiac episodes and this should return to normal when finish chemo. Turns out I’ve Trigeminal neuralgia so they’ve given me tablets for nerve pain. I was lucky I was given a separate room and staff were amazing, but like you the last time i was in with bad infection i had to stay in the car and eventually they got me a bed in a store room. our hospital was bursting at the seems when i left a few hours ago, people were standing and laying in corridor’s i really feel for the staff.
Sorry for the long rant I really hope you’re getting sorted but just wanted to make everyone aware phone your team if anything different ( they practically gave off to me that not to be sitting at home second guessing. This is what they’re here for and no be leaving things as chemo can mask so many other stuff without temps.)
Sending you Hugs :hugs:

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This is great advice, as I’ve learnt today. I think it’s more I didn’t want to bother them but they said better to contact them with any new symptoms as it’s easier for them to control as chemo masks do much other stuff xxx

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Well done, you’re nearly there. :smiling_face_with_three_hearts:

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@swk1981 this sounds terrifying! So glad you are now getting treatment but can fully imagine the absolute fear that you currently have. The doctor absolutely hammered home to me yesterday about phoning them straight away if I have the slightest high temperature. She said that the side effects of docetaxel often feel flu like and can mask a serious condition such as sepsis. I really hope you recover quickly and can get home soon, thinking of you, Emma x

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@pollyanna1 - I think you have had the worst time of all of us! Sending you lots of hugs and really hoping that is the end of all the awful side-effects for you. Such good advice to contact the hospital straight away, I think we all feel reluctant to bother such busy staff but it is so important when you’re having chemo. Sending lots of love, Emma

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Just read all the posts. @pollyanna1 and @swk1981 I hope you both feel better soon. Sending hugs Helen x

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@swk1981 so sorry to hear this, I hope that the antibiotics kick in quickly and you can get home soon xx

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Oh @pollyanna1 what a terrible thing to happen. I hope things ease for you and you have a more settled day at home xx

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@pollyanna1 @swk1981 sending you both healing hugs :hugs::hugs: hope you’re both feeling better soon xx

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Catching up on chat after first round of paclitaxel.

So sorry to read what’s happened @swk1981 amd @pollyanna1 sending you lots of healing hugs!! Hope you both pick up soon.

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I’m just catching up with everyone, OMG @swk1981 and @pollyanna1 i just can’t get my head round it, really hope you are both ok and starting to feel better :mending_heart: I thought I was having a rough couple of days until I’ve read your posts and realise mines been nothing compared to what you are both dealing with, thank god you both realised that it wasn’t general side effects and you got the help you needed, sending lots of hugs and love :heart:

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Thank you so much, 1 more to go on the 12th of June :crossed_fingers:. I’ve my planning appointment for radiotherapy tomorrow so that’s making me stay positive the end is in sight. As much as I hate chemo I can’t wait to get the last one done and put it behind me. Drs were amazing, I’m now on Ondansetron for sickness which is really helping and tablets for neuralgia in my face. Hope you’re keeping well x

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Thanks so much, everyone’s side effects are horrible for them. I hope you’re feeling better. :smiling_face_with_three_hearts:

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