April 2024 chemo starters

I know this is annoying but you really do look fabulous, the hair growth is brilliant, especially as I know you had a big hair loss again when you were poorly after your last docetaxel, I will try and pop a photo on tomorrow if I look half human :rofl: xx

So yesterday, all day, I was ready for my 7pm appointment with the gynae about ovary removal. Did I remember to go? Nope.

Today, ready all day for Look Good Feel Better. Did I go? Yes. Was it actually today? No. Itā€™s tomorrow! :woman_facepalming:t2:

Iā€™m not compatible with life right now! :woman_facepalming:t2::joy:

Iā€™m not sure I should be allowed out of the house.

Thank you @elle16 youā€™re very kind!

Hair committed suicide on first Thursday of Docetaxel so Day7/8 ish last time so most of that has come in since then! I imagine it may die and come back again this time. A little tragic when your hair growth is the most eventful part of your week but hey ho! X

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Oh no :woman_facepalming: sounds like my life lol , just canā€™t catch a break


I d liked to say this is my hair growth but itā€™s pretty much stayed like this, Iā€™ve no idea on the colour anymore, seems to go from grey to dark like yours, I think I must loose and grow some at roughly the same time as itā€™s never been longer than this or complete bald Iā€™ve started rehab macha oil capsules today so Iā€™m hoping for a miracle growth, I actually dreamt my hair grew back last night and was very disappointed when I looked n the mirror, xx

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@belle1 oh no! Iā€™m so sorry you had to through all of that and still didnā€™t get anywhere- thatā€™s so frustrating for you. Really hope they can sort out a Hickman line for you ASAP :crossed_fingers:

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@swk1981 oh dear it sounds like chemo brain is in full flow for you!! Iā€™ll give you a laughā€¦. Yesterday I was waiting on toast popping, literally standing right beside the toaster daydreaming, then about 5 mins later was like for gods sake this is taking foreverā€¦. Looked down and there was no bread in the damn toasterā€‹:joy::joy:

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Thatā€™s hilarious. I swear the chemo brain has gone up a whole other notch on Docetaxel! I now say ā€œBobā€ when I donā€™t know the word for something so that my kids and husband know I just canā€™t find it in my brain and they need to help me out. Works better than getting frustrated! Iā€™m normally sharp as a tack and I think the kids quite like me being a bit thick and not noticing much!

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So sorry to hear this, I also had treatment through cannula and my last one my veins kept tissuing but lucky finally got it. Itā€™s weird that every hospital does this different. Hopefully you get some news soon xxxx

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@swk1981 youā€™re looking fantastic, Iā€™m getting jealous of your hair and also @elle16. Iā€™m starting to get a bit of stubble on my head thatā€™s about it :joy:
This chemo is weird Iā€™m now full of freckles and this cycle my stomach is also full of freckles( I promise I havenā€™t been sunbathing in my bikini :joy:)
Who mentioned about hair oil as I canā€™t remember, Iā€™m willing to try anything.
Wasnā€™t going to share this but here goes, has anyone had problems with their legs. Iā€™ve now had 3 falls were as I havenā€™t tripped, leg has just went beneath me. Latest one was this afternoon fell while watering plants, one of those times looking around to see if anyone seen me. A neighbour was getting in to their car and came over and asked was I ok and i stupidly said just pulling some weeds. Iā€™m sure they looked at me and thought that poor girl chemo must be effecting her brain. I donā€™t know why I just didnā€™t tell them the truth as I was just sitting plonked in drive. :joy:
When I eventually crawled in to the house my poor husband thought Iā€™d seriously hurt myself as the tears were streaming down my face ( laughter at the response I gave my neighbour) sure if you didnā€™t laugh youā€™d cry xxx
Pauline xxx

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0ch!!! Definitely not what you need, I had my fall down the stairs but havenā€™t felt like my legs are giving way, but they are weak, I would definitely mention it at your next appointment just to put your mind at rest.


Iā€™ve started these today, they are quite new, no proven help with chemo hair as far as Iā€™m aware but I just thought I would give them a shot, nothing nasty in them, I just massaged into my scalp and then washed out after a couple of hours, think the recommended time is 4 hours, I will let you all know if I think they help xx
Ps Iā€™ve also gained new freckles xx

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@belle1 sorry to hear about your day, I have my fingers crossed for you that they will get that appointment booked super fast.
@pollyanna1 ouch! I bet your poor husband wondered what had happened!
Iā€™m very jealous of your hair growth @swk1981 I just have stubble and the sides of my head are completely smooth.
Feeling really nervous about starting the Abraxane on Thursday and hate the thought of going in every week urgh!
Big hugs to everyone Helen x

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@hc1973 how many cycles of Abraxane have you got? Laura x

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Is it wrong that Iā€™m that easily sold just on the nice packaging? :woman_facepalming:t2::joy:

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@gromit12 9 sessions Iā€™m hoping to finish by my birthday but theyā€™ve told me you often need a week break. Iā€™m hoping not! Iā€™m really dreading having to go every week.

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@hc1973 gosh thatā€™s really tough. :crossed_fingers:It all goes to plan. Laura xx

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Thanks Laura, Iā€™m sure it will all go to plan. Thank goodness for all these treatments how ever horrible they are. Thatā€™s what Iā€™m focusing on. I hope you are OK after your Herceptin Helen x

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@swk1981 Me too :woman_facepalming:
@hc1973 @gromit12 you are so right, we just need to keep focusing on the end goal :smiling_face_with_three_hearts:

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Good morning everyone,

I hope everyone is feeling okay today?

Has anyone else on Docetaxel experienced ear aches? I remember it last time but put it down to me being so unwell in hospital.

Theyā€™re back again today and my teeth hurt so badly today too. Nail beds really not happy either, feel like someone has stamped on them.

Sx

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@swk1981 my teeth are certainly not happy :confused:was even considering visiting the dentist during the night, as it kept me awake. Jaw in general not particularly happy either! Oh chemo, the gift that keeps giving, and taking us by surprise! Laura x

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Sorry youā€™ve got the same Laura! Youā€™ve reminded me that my jaw, at the hinge, was horrific last time.

I feel like thereā€™s cotton wool stuck in my throat too, holding both sides of my throat together and choking me.

I seem to remember @elle16 and I complaining about teeth last time at this point maybe.

Iā€™d take ECā€™s nausea any day over this right now.

Have only managed to sleep 3 hours a night since the night before chemo (a week ago). Iā€™m not on any steroids now so it makes no sense at all. Feel exhausted and weak but cannot sleep for the life of me! X

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I found this with sleep during each round of EC and it turned out it was the Filgrastrim injections that give me insomnia. Just wondering if youā€™re on a few days of those as well? I start them as I finish the steroids so it ends up days of not sleeping much. I havenā€™t had the high steroid dose from Docetaxel yet though but it seems to be Filgrastrim that gets me worse for some reason

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