@belle1 - I’m not bothered by injections but I would absolutely hate that too! Hope it’s not as bad as you expect x
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Love this xxx
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@belle1 I too was ridiculously nervous about my first herceptin last week. It really wasn’t as bad as I’d anticipated. First advice is don’t look! Huge contraption thing which rests on your leg. The first ml has local anaesthetic in so it really didn’t hurt. Had timer on my phone and we talked rubbish for 5 minutes!! 
It does leave a spectacular lump which took day to go down, but didn’t particularly notice it. You’ll be fine. Laura x
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Thanks everyone - and thanks for the heads up about the contraption on my leg lol!
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How often do you need to have them @belle1? I hope it goes okay. Thigh and butt injections are the worst!
Try and imagine any rogue cells being wrapped in Herceptin and being blocked from feeding off anything. The little fuckers are being engulfed and starved! Mu ha ha! Die, you little shits!!! This is where the long term magic happens and grinds cancer to a halt with the long term drugs! God I love picturing suffocating, dying cancer cells. The little buggers deserve everything they get for what they’ve put us through! Xxx
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Don’t be afraid to ask for numbing cream then! I use it for G-CSF because I’m so pathetic! Whatever gets you through it!
One done, 16 to go @gromit12!!!
This really is the gift that keeps giving isn’t it? 
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@kartoffel @swk1981 thank you for the bupa information, I’ve rang them this morning and like you both said I am entitled to the cash benefits, feel like I’ve achieved something today and would never have thought of it without the information from you both, 🩷 xx
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Yes it’s nice to have some good news, and I can also use them for some alternative treatments that I can’t get on nhs, but I’m going to hold off these until chemos finished,
How are you feeling today @swk1981 ? I’ve done nothing but rest and don’t want to jinx myself but feel a little better, hopefully rest and water is the key and will come out of this week unscathed, I’m just conscious that I went down hill on day 7 last time , having bloods checked tomorrow which is reassuring me that they will stop my injections if my neutrophils are going crazy high again,
Also did you have sports day yet? I can’t remember when you said it was and keep thinking about how it went for you? Xx
Aw today didn’t go to plan at all! I went in and they didn’t seem to know about my jag till I asked when I was getting it as I was more and more anxious as time went on. They checked and seen that I was due it but wanted to get my cannula in first then get the Herceptin done.
Unfortunately they tried 6 times with my left hand (as right can’t be used now) and even used an ultrasound machine by the end to find veins but my veins kept blowing as soon as the cannula went in. I got assessed for a PICC line but the veins are too small and knackered from the EC for that too so I need to get booked in for a Hickman line. They said it’s usually a couple weeks wait but they’re going to make phone calls to a couple hospitals to see who can get me in first and to try get me in asap so I’m just waiting now and should get a phone call at some point soon to let me know when I’m booked in for😏 chemo will be on hold till I can get it sorted
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Oh @belle1 I’m so sorry! That’s just rubbish. Did they do the Herceptin at all then?
It’s bonkers how much things differ between hospitals in some oncologists refusing to do a thing without a PICC at the beginning and others pushing it through peripheral veins. I don’t get it.
You must be done in by today after being nervous about it too! X
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I’m tired and shakey. My mouth is hacked up and sore but guts are holding okay but loose.
I feel happy that I’m in a better state than last time but it’s been tiring assessing myself endlessly.
Off to a Look Good Feel Better at 4pm in the hope that I can learn how to do make up at 43 years old. Don’t have the energy but I’m kind of in it for the goodie bag and to have some quiet from the kids.
Am mostly sat in bed watching Ascot having placed loads of bets on races today.
I think it went so badly last time that I am setting the bar low with drinking and keeping mouth clean as a good day. My brother messaged asking how I was and I said “Alive!” and I realised I did literally set the bar at that for this cycle 
The bone pain and weakness blows my mind with this drug though. I’m not sure 4/5 months of muscles wasting away helps either. I’m think I may have lost weight but I’ve also lost all muscle so am just all loose and weak.
I’ve faced that I’m not doing anything until this weekend. I just don’t want neutrophils or 0.5 OR 40 this time.
Not sure whether we’re doing bloods though mid-cycle. I’m not sure I want to know my liver bone bloods again after last time! X
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Oh @belle1 what an awful day you’ve had, I can’t even imagine, really hope they get you in quickly, there’s nothing worse than the end dates changing, gutted for you, xx
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Oh @belle1 that is just awful, I’m so sorry. So fortunate I’ve had a PICC from day 1. Hugs
Laura xx
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@swk1981 sounds promising, I agree with the slacking of the body, I’ve definitely reduced my calorie intake too but like you I’m not burning any calories, I’m staying away from the scales this week though,
I did have a big puffy face yesterday, today I’ve just got a puffy face that no make up would ever disguise, I’ve given up on make up but try to put a little eyebrow on so I don’t look like a satellite dish 
The aches are undeserved but another reminder of the shitty poison running through our bodies, roll on next week !!! 
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@swk1981 @elle16 @gromit12 thanks guys. Yeah it’s been draining and disappointing and I’m just hoping they can get me in next week for the Hickman 
Its murder it’s got to this stage before they’ve agreed to it.
Also (swk1981) I couldn’t get the Herceptin as it needs to be done with the Docetaxel. My heart rate was high and I was really anxious to the point where they offered me diazepam lol but turns out I didn’t need it as no jag today anyway. It didn’t help that they didn’t seem to realise I was to get it then weren’t telling me when I was getting it etc and it seemed to drag on before all the cannula stuff went wrong!
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Satellite dish!
My hair has grown in loads in the last few weeks too and the grey that fell out is more brown. I’m on about my 3rd or 4th lot of hair now!
God knows what I’ll get back eventually but at least Docetaxel hasn’t managed to make me go completely scalped like I feared!
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Must be so frustrating that they could of put you a line in at the beginning, think it’s horrible when you work yourself up for something and then it doesn’t go ahead, I’m not surprised your heart rate was high xx
@swk1981 hope the class goes well xx
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