April 2024 chemo starters

Hopefully no delay to holiday, will just be having the chemo potentially later on the Friday and then we go on Saturday. We are going to drive straight to my chemo from Cornwall. It will be like the old days when the kids were small and we used to get up early for camping trips to beat the traffic!

Just would have preferred first day at home as I have bad diarrhoea straight after so I will be popping those loperamide tablets pre journey!

When’s your holiday planned?
Hx

2 Likes

@hc1973 - I’ve read that eating mushrooms can improve your neutrophil count. Might be complete nonsense but mushrooms are good for you anyway! In Japan and China patients are told to eat mushrooms following chemo. Could be worth a try? I eat shitake mushrooms and oyster mushrooms are also good (unless you hate mushrooms of course!)

4 Likes

Thanks! I asked at the chemo ward yesterday and she just said oh we can give you stuff for that🤣 I did already get Imodium in so good to know that’s all I hopefully will need!

Yeah I didn’t know I was getting piriton on drip and had already had an antihistamine before chemo too due to having a rash from an allergy to my first hickman line dressing, so think it knocked me out when I got home. Glad to get a good sleep though as I’m sure the steroids will affect me more tonight and I start my Filgrastrim injections today too which should give me about 5 days of insomnia going by my usual pattern :rofl:

2 Likes

@belle1 great that you slept! I was the Duracell bunny for half, if not more, of the night! Eating cereal at silly o’clock! I take immodium for the diarrhoea. Always take it before going out even with one lot of diarrhoea and always carry it with me when I go out. The instant melts so just dissolve in your mouth. Laura xx

5 Likes

Thanks! I’m out a walk now as feel the need to burn some energy lol but can’t do my usual stuff due to my line still settling at my neck etc. This forum has been so fab for tips from everyone - makes things so much easier to see other people’s experiences and what you are all doing so thank you!

5 Likes

Great advice! I’m going to buy some of those instant melt ones today. I was just taking it when it happened but I think from reading it on here today I may just take it if going out! Especially for my car trip to Cornwall next week!

4 Likes

It’s not going to hurt is it, as it’s hardly likely to then bung you up as we know there’s more on the way :see_no_evil::see_no_evil:and it’s worked pretty effectively for me :crossed_fingers::crossed_fingers:xx

3 Likes

Got an answer on my insurance. Because I’ve held the policy since 2018 and I booked the holiday before I was diagnosed, the entire holiday is covered for August with Barclays/Aviva. However, nothing I book after cancer is covered so she advised me to cancel the policy as soon as I get back from my holiday! It’s good at least that this one is sorted so I’ll worry about it when I get back and won’t book anything until I find an alternative provider.

7 Likes

That’s brilliant news about your insurance, now you can look forward to going away xx

2 Likes

Hello you.

I am frankly enjoying this forum. Every moment brings us closer to the end, and I find it so meaningful to read about each of your journeys.

I have been quiet because due to the effects of chemotherapy, I’m experiencing a sudden menopause which is affecting my hormones and mood. Typically, women’s bodies naturally ease into menopause over time, but in my case, this isn’t the norm.

With that said, over the past two weeks, I’ve been feeling incredibly low, but I’ve taken positive steps to improve my well-being. I’ve scheduled counseling for next week, and I’ve been engaging in regular exercise, including long solo walks and daily 20-minute Body Conditioning home workouts from Monday to Friday. These activities have been really beneficial, especially this week.

As I write, I’m currently receiving my 2nd Docetaxel/Phesgo treatment. There’s a good chance my surgery might happen sooner than expected. I’ve been wondering if anyone else feels the urge to thoroughly clean their house before each chemotherapy session. I find it comforting to return home to a tidy (ish) environment. :crazy_face:

6 Likes

Well done on taking control of your mental wellbeing. And well done on walks and body conditioning :+1: my getting out running / walking virtually every day has been a life saver. Helps with bone pain too :+1:I had round 2 of Docetaxel and herceptin yesterday and other than lacking sleep and buzzing with steroids I’m ok today. Just going out for Walk- you’ve reminded me!! :rofl:Hang in there. Laura xx

3 Likes

Yes that is absolutely me, I have to make sure everything is straight before each session.
I think this is going to push me into early menopause too, I dint think I would notice it too much with everything else going on. Sorry that you are feeling low, but great to get some counselling.

I hope you start to feel more like yourself.
Mandy x

3 Likes

Hello @pinklady2 i know exactly what you mean i spoke to my oncologist yesterday as my periods stopped after my second EC and I’ve had such bad hot flushes, I have every neck fan and portable fan known to man in every room of my house :rofl::rofl:

Well done you for getting out and about, it’s hard when you feel tired. However makes you feel so much better mentally when you have.

The body conditioning sounds good I’ve noticed I’m a lot weaker than I was when I started all this and I’ve lost a lot of muscle tone.

Hope your treatment goes well. Helen x

4 Likes

Treat for getting out the day after chemo :wink:

No wonder I’m putting on weight :flushed::rofl:but they keep saying eat what I want when I want!!! :rofl::rofl:

8 Likes

Hi ladies, just catching up on all your messages, glad everyone seems to be doing ok and all positive vibes :heart: what an amazing bunch you all are !!!
the diarrhoea lots of you have had sounds awful I’ve by some sort of miracle swerved this side effect so have no advice, but I’m taking on board all your tips as I know the cancer gods could bless me with this gift at any time and probably when I least expect it :woman_facepalming:
Sending lots of love to you all xxx

5 Likes

@isthisreal i have saved some stuff for after surgery etc - you can check out Get Me Back UK and One Step Training…. Get Me Back UK has wee free snippets and help on Instagram and I also follow Katerh_Fitness (the menopause fitness coach) on Instagram but she has a book that has workouts you can build up to to do conditioning too and also does some free content. I found her through the body coach (Joe Wicks) who has loads of free content on YouTube too of all intensities so hopefully some of this can help get you started!

I’ve generally kept up with other strength training I usually do (Les Mills online classes) but at a slightly lower weight/intensity during chemo as I was very fit/active before and wanted to try maintain as long as possible ahead of surgery but had saved the other stuff so I can build back up after surgery!

5 Likes

:rofl::rofl::rofl:

1 Like

No
:joy:
Quite the opposite! Sitting watching Glastonbury on the TV, trying to avoid looking at the dust underneath :rofl:

2 Likes

Lovely to catch up on your messages tonight. You guys are incredible, I think that I’m doing okay but the idea of formal exercise (not walking or a short jog) is just so daunting at the moment. My motivation is low and the brain/body are certainly not in a place to be active. Well done to you all :clap:t2: and thanks for the links posted earlier, have saved them for inspiration a few weeks down the line. I did manage some 80s dance moves at an ABBA tribute last night and that’s done for me today :dancer:t2::mirror_ball::man_dancing:t2:

6 Likes

Dancing most definitely counts :grin::dancer:t2:

5 Likes