Don’t give him too much credit, it’s only round the corner
Haha!!! Brilliant
@stafford22 I too am getting stabbing pains on my mastectomy scar. I was starting to think it was just me. I got acid reflux a couple of times around day 8/9 only. The last few days I’ve been suffering with mouth sores and 2 cold sores on my lip!! Maybe I can get a special mouth wash on prescription?
Hope all went well during your first treatment. I had my PICC line fited a week after the first. Fingers crossed they will book you in to be fitted before the second one.
@fowkey72 Yep, this happened to me on day 5… the lethargy was real and I just felt really sad. Day 6 was similar for me, but I started to feel better from day 7 onwards. I’m on day 10 now and feeling back to my usual self… I’m going to enjoy the next few days as the countdown to my second EC next Tuesday has begun!
@greenqueen I had really bad acid reflux, so I spoke to my BCN and she got the doctor to prescribe me Lansoprazole. She said it was really common during treatment and that I would continue to take the pills throughout my chemo. Have a chat with your BCN…
@gerbera1 - ask for aciclivor tablets on script for cold sores - I get horrendous cold sores and this is only thing clears them up and onc says I can have them with chemo
they can sometimes affect kidneys insomuch as they flush through them though so make sure you check they’re okay for you
Also I got diflam mouthwash and duraphat toothpaste you can get both on script for ulcers x
Good to know others have had stabbing pains in surgery site as well
Good luck everyone with upcoming treatments.
i had lumpectomy early jan and yesterday and today had the stabbing at site, its like it wants to remind us all the bloody time.
Me too gone off tea!
Thanks good to know, it’s all new and it is knowing what is a normal. I suppose it can affect everyone differently. Next round should be less daunting
Might be worth checking with your team first as I am no medic but I use and swear by difflam it numbs it and heals it
Sorry your going through this, I have also found I get a lot of conflicting advice from ‘professionals’ when access to my oncologist would probably solve and sort a lot my only advice is to advocate for yourself over and over until they listen it’s taken me three days of backwards and forwards and all it took was that one person to listen and understand today and balls are rolling! So don’t be afraid to make a nuisance of yourself
Yes you really have to keep on top of things. I’ve been chasing a genetics test as I haven’t been offered and think they forgot x
Hiya @chestybreasty I had my port fitted 11 April. It has healed quite well but does feel a bit odd and I have a tender spot which I think is where the catheter comes out of the port. I don’t know why that would be tender there. I was very careful to keep it dry for 10 days. I have now swum with it and done a yoga class which were fine. The port itself seems huge - on the leaflet it showed they make a daddy port, a mummy one and a baby one. I don’t know which I’ve been given but I can’t see that it needs to be that large. I hope yours settles down and your treatments work well with it.
Check with your team about being able to take gaviscon, Dizzybrummie from Oct17 chemo thread who had chemo same time as me took gaviscon but do check with your team 1st Shi xx
Difflam but do ring your team to check all is ok to keep you safe from any risk of infection Shi xx
Hi there.
Thanks for your comments, I really appreciate them. I had chemo today and they couldn’t access it, they think it may have moved somehow. They also can feel the line running up my arm and think it is pressing on the nerve. The nurses are so patient and persistent though - they were trying for about an hour.
I’m glad yours seems ok and good that you are swimming and doing yoga. Exercise is such an important part of my life but they think I should be able to cycle and run with a PICC line. I’ve been on lots of walks instead!!
Good luck with your treatments too.
Alison
This is exactly the same pattern as me. The main thing is we know it’ll lift by day 10 and won’t last forever x
Has anyone yet had paclitaxol?! Do you get as floored as you do with the ec? I’ve only had one ec and I will now not be having the further 3 and moving straight to 12 weekly paclitaxol and herceptin due to the risks being higher than the benefits
I’ve just done 3 ecs and I’m totally floored against. It’s so hard and brutal. Some people find it ok but I find it hard. I’m now moving onto 12 weekly paclitaxal and praying it’ll be much easier to manage. I’ve read up on it and seems the weekly pac is much easier than 2 weekly as 2 weekly is double dense. I hope you’re ok x