Ah @hoggie sending love to you. I’m round 2 tomorrow, and mines been doing the same (I didn’t cold cap). The only thing I can say that’s helping me is thinking if the chemo is doing that to my hair, hopefully it’s zapping any cancer cells left in me since the mastectomy and lymph nodes been removed.
Not sure if that will help you at all. It’s just horrible xx
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Thanks @sunshine17 that is a good way of looking at it.
Good luck with round 2. Hope it is kind to you.
Xxx
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They did give me a new dressing today as it looked pretty rough when they pulled the old one off!
Fingers crossed it works, maybe it’s the same one you have? The weird gel/jelly bit that was on the old dressing is gone and there’s now a white little cushion thing that says ‘biopatch’…
Did your skin get better completely?
I have had my COVID vaccines through all my chemo - EC and Docetaxel/ herceptin and now Kadcyla. Different trusts recommend at different times - I was told to have it within 72 hours of having chemo,.but check with your team xx
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I am going for my third EC on Thursday. My side effects have been minimal, tired for a few days, funny taste in my mouth and taste buds went for a few days too. My hair fell out after 2nd session so I clipped all my hair off. I am loving the bald look, have just embraced it.
The last few days though I have had dull aches in my legs, is this a side effect? It’s not painful. Anyone else had this? Should I mention it to my consultant tomorrow?
Don’t know whether it could be high blood pressure related as my ankles have swollen up.
Sorry to hear what you going through @hoggie.
I didn’t cold cap and I was crying so much after shaving it and couldn’t accept looking at the mirror first and then was not able to take my headwear off next to my family but I assure you it’s get better and now I can walk in front even my in-law with bald head proudly.
It’s sign you are fighter and you choose to fight hard.
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Could I please ask if anyone’s chemo was postponed due to low neurophil counts? I was due my 4th round tomorrow. Now need to wait. Trying to stay positive but also feel like I failed myself, almost did something wrong or didn’t do things right (eating, sleeping, exercising 
).
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Thats my thought too, Im going to delay my covid jab, not had a problem before but just my luck to get SE on top of chemo, not fun
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@hoggie so sorry to hear of your disappointment with the hair. What can I say but that you gave it a go, you may have protected hair follicles enough to help earlier regrowth. When you can face it put that fabulous wig on if you need, a bit of lippy and give yourself a huge smile. @stroud_morning you’ve been unlucky, highly unlikely you could have done anything to change things, hopefully you’ll be back on track soon. Best to everyone on the thread. WE can do this ladies.
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No but after chemo and radiotherapy this is one of the things I’m considering
Sorry this has been so hard for you, this whole cancer journey is a rollercoaster and seems to be the left field things that ‘get you’ and push you to that tip of the iceberg as such, roll on 2026 that’s what I say
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I’ve had a few delays not neutrophils but a few different ‘infections’ I’ve still only managed one infusion hoping for what seems like 100th time lucky on Friday to try again although all the stop starts don’t help the nerves
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@carrie5 thanks.
I am gong to cold cap again on Friday but it might be the last time, depending on how much hair I have left in another 3 weeks!
Feeling better this morning as while working on teams, with a little flurry of hair around me, the postman came and bought…
-
A new “Vitamin Sea” T-shirt I ordered ages ago
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A gorgeous dress for my Niece’s wedding in September. This will be after my chemo finishes and something I am hoping to be able to go to with all the family.
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A bouquet of sunflowers from my mother in law. Also a bottle of fizz. She must be psychic and know I need a pick me up!
Also you and my other messages have cheered me up.
Onco rang this morning re bloods and all is “pristine” in her words so we are good to go again at full strength on Friday.
Love to you all
Xxx
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Yes bring on 2026! Or even later this year! My chemo ends at the beg of August! And you’ll all hear me cheer wherever you are In the uk!!
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Hey , I too shaved my head and was upset to see myself for a day or too. I then went on vinted and ordered some scarves and embraced that I now have to think about head wear! Mine came out day 16 round one so was caught unaware. I follow a couple of ladies with alopecia on YouTube and look how positive they are with permanent hair loss and appreciate that mine will come back. I think the hair loss is the hardest part 
xx
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I’m TN as well, runny nose and mad hot and cold flushes with EC but no nosebleeds, as yet.
Feeling really down at the moment as passed out yesterday when I went for my blood test for my 2nd cycle. I was so disorientated and frightened when I came round I couldn’t speak 
Spent the next hour and a half there with them trying to get blood from a stone with a NICU needle, the ones they use on babies ffs!! 
I’m developing massive anxiety response to hospitals and anything medical and feel so pathetic I can’t even give a blood sample but terrified of a PICC line as well
If they insist I’m going to request a port I think?
Partner was so good, he came home from work early, (which made me feel more pathetic), took me shopping and he bought our wedding outfits for June, which was lovely but made me cry even more!!!
This journey is so hard on me emotionally some days
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Oh @kayb52 that sounds traumatic! I’ve got my appointment through for my PICC line fitting. As much as I feel it’s the right thing for me, it’s still giving me the ick.
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Oh and my husband had to take today off too as I have some sort of inner ear thing making me really woozy. Both children had stuff going on that they needed escorted to and I was just not in a fit state. I’m guilty of trying to keep on going until I physically can’t.
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@greenqueen - oh no! Hope you’re okay now. And yes I’m the same guilty of doing way too
much and not resting enough if not careful!!