Oh no sorry to hear you’re struggling. Strange how it’s worse on 3rd one. But remember you will never have to do EC again! What an achievement. So even whilst you feel crap remember this was the last one! I’m not sure what you’re moving into but the nurse said today that EC is tough and super strong x
How are you finding the weekly pac? Hope I
You’re ok x
So far it’s bearable! I’m very achey and sore and get tired easily but have been fine to work and do school pick ups etc, I wasn’t a fan of the pre med steroid dose I was so wired have you started yours now too? How are you getting on?
I started weekly pac today, I feel so sleepy think it was the strong antihistamine. Hopefully I’ll sleep it off x
I’ll keep fingers crossed for you that you get a good nights sleep and feel ok tomorrow bet your glad it’s another one down!
Thank you and hope you sleep well x
I wondered why I was so tired on the unit.
I was so tired last night but couldn’t go asleep til 5am! Then I was wide awake at 7! Must be the steroids. I’m v tired now so a v early night for me! X
I found just being in a quiet room eyes closed helped, I think as long as we’re resting, that’s the best thing we can do for ourselves. Hope you can sleep tonight xx
Yes you’re right. How are you feeling today x
On the up thanks, still a bit queezy but not been sick, I’m allowed to take Ciclizine before Pac tomorow morning, I just have to remember to tell the nurses so they dont give me the other one I was on. Wonder If my sickness/temp was because I had a double whammy last wk.
Came here from May 2025 chemo thread. This has made me feel better, as ive been dealing with feeling like my chest and skull are being squeezed and wasn’t sure if chemo or filgastim - now reading this I’m thinking filgastim! Ive never had migraines either but this must be what its like? Fizzing hurting skull and sinuses - under my eyes, side of my head. Honestly been worrying it was a blood clot! Xx
I took 2 weeks off after my last EC as it had definitely accumulated. I’ve got surgery on 3rd June so I’ve taken another 2 weeks off for recovery. Fingers crossed there’s no more active cells because then the end will finally be in sight. I’ve felt slightly overwhelmed with work in a mental capacity as it’s a lot to process. Thank you for asking x
Definitely the steriods, it’s like being wired it’s crazy because you think you can sleep but brain keeps you awake. I would have said to my past self, just read your book. My husband said even if you’re not sleeping at least you are resting, which took the pressure off to make myself sleep x
I’m just like that! It’s like I’m tired but wired!
This was my exact thought, but no, turns out it’s just side effects of the filgrastim I also get the popping sinuses and face pain
It’s hard trying to pinpoint what causes what side effects. Especially if you are a hormone driven BC and additionally receiving Zoladex injections too which send me up the wall emotionally but also cause headache. So much to adapt to. Not looking forward to the years of hormone inhibitors.
Have my 3rd (and penultimate!) EC tomorrow. Im exhausted just thinking about the medicine schedule that follows! Im going to take 2 steroids in the morning and maybe skip the evening dose as the insomnia is unbearable.
Can’t decide what to do re cold cap. I’ve buzzed my hair as so much has fallen out so I was just going to abandon it, but then a woman at a group I go to said I could continue to help with regrowth. Not sure it’s worth the extra 90 minutes though.
First chemo session tomorrow scared, frightened, tearful just not knowing what to expect. No cold cap to old to worry about the hair at 70yrs old, as long as they get rid of the cancer cells I don’t care. Had such a bad time with my couple of operations I had with bad infection after opp had to wait for it to be clear before I can have chemo but I am sure it will be fine xxx
Good luck for tomorow, the nurses will be keeping an eye on you the whole time, getting that first one out of the way is a big brave step xx
Thanks xxxxx