@yjmc the ibuprofen is for the bone pain caused by the injection. I took it at 8pm so then go to bed not long after- and hopefully sleep! I noticed a lot of American women being given clarityn for bone pain, not so common here. Mentioned to my team who didn’t know much about it but happy for me to take and I’m still taking it daily with Kadcyla.
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I’m doing this too, Clarityn & couple paracetamol First one last night, is ok so far for which I’m grateful.
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They did, thank you. Checked the usual. the temperature was over 36 by then and almost no shivering. My blood pressure is usually low, that was something that was flagged up but with our reassurance that it is in my normal range, they let me be.
I was retained in hospital after my first operation when it was low and that was not pleasant at all. Much prefered reassurance the paramedics gave me and I stayed at home. But they had better luck contacting the hospital to confirm that symptoms I had including nausea, weakness etc just a reaction to chemo.
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@stroud_morning so glad you got good care last night. How are you feeling this morning xx
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Glad you’re ok, must’ve been scary 
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How are you feeling today? Hope you’re ok 
xxx
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I am much better, thank you. Managed to have a snooze after not much sleep last night. Looking forward to go for a walk with the other half when he gets his lunch break. Can’t trust myself yet 
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Hello - chemo newbie here joining the thread as I’m starting next week on the 10th!
I’m going to have 6 cycles of docetaxol and carboplatin by infusion, plus Phesgo injections too as I’m Her2+. I then have another 11 cycles of the Phesgo, plus a mastectomy and radiotherapy and then hormone blockers of some kind for years too because mine is estrogen+ too.
I’m oscillating wildly between ‘hells yeah I got this! 
’ and wondering how I am going to manage to stay sane on such a long active treatment plan to be honest. The thought of the active treatment part with awful side effects not being over until I have my last Phesgo in March NEXT YEAR is killing my spirit a bit.
The hormone stuff doesn’t bother me too much as I’m actually already in a chemical menopause from taking triptorelin for my endo and I have multiple other long-term conditions so once I am out of the Year of Awful Horror I will basically adding ‘cancer’ to the list of ‘things wrong with my flesh vessel’ lol.
People keep saying ‘one step at a time’ but I am a natural planner and usually in very tight control of my entire life so my brain won’t let me relinquish that and just be like ‘let’s see how today is’ because I simply don’t think like that, never have lol 
I think breaking it down into colour-coded and dated tasks and events like a project management type thing might help me - my husband laughed when I told him I was going to make a ‘Cancer Treatment Gantt Chart’ at the weekend 
Anyway, apologies for the giant wall of crazy text and hello everyone 
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@genericuser1 welcome to the club no one wants to join. I’m a planner and like to be in control too. I started chemo a year ago today and once I had dates for treatment / clinics etc I was able to plan. Try not to expect awful side effects. I recognise that I have been very fortunate but I have got through relatively ok up to now. I was really worried about nausea but I had really good medication and just took everything as advised. I had to keep away from folk in general as I was immunosuppressed but I kept walking most days and even managed to keep running. Good luck and you’ve joined a fabulous group here xx
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Thank you, that makes me feel a bit better and yes, this is a great group 
I’ve definitely found the loss of control the worst thing so far, and coping with so much uncertainty. I am can cope with pain and genuinely don’t mind losing my hair etc - I had nearly waist-length thick hair a couple weeks ago but decided to chop it in stages and enjoy some random hairstyles on my way to a buzzcut, which my husband did for me while we were a bit tipsy one night earlier this week - but the fact I am not in control of the scheduling or the side effects or how my body will react etc is making me crazy! xx
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Did you take the Claityn daily or just befor the injections? xx
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@saints33 Ive been taking it every day since I started - still on Kadcyla and Letrozole both of which cause bone / joint pain xx
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@genericuser1 once I got started I felt much more in control. It was the anticipation and waiting around which I found hardest xx
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@gromit12 Aye, that’s it, and it’s not helped by the fact I can feel the tumour just sitting there, being all malignant and trying to kill me, and I honestly feel that chemo will help me mentally - I’ll know that if I feel bad, the cancer must feel worse!
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@genericuser1 I also struggled with the tumour still.being there, and got really upset when I had the first ultrasound during chemo and it had not shrunk at all. But I knew the chemo was stopping it growing 
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Epsom salt baths helped lots of us from the chemo gangs back in 2017-2018 with the bone pain from the jabs 
Shi xx
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I’ve hit a more difficult day. I’ve got constipation so the helpline advised to take laxido which I’m doing. But also very digestive-y and queasy which I’m finding hard going. I’ve not eaten much at all today. I’ve decided to take a metoclopromide tablet that I was prescribed to see if that helps. At least it doesn’t cause constipation! Feeling miserable now. I was doing really well. Guess it is day 5/6 now for me which I gather can be the hardest. (Chemo late afternoon last Tuesday).
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Oh no 
. My nurse advised I start taking laxido from day 1 after chemo. Maybe that will help prevent for next time? How’s the energy levels? Thinking of you. I start tomorrow 
been crying all day.
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Yes I’m going to take a lot earlier next time! Aww, it’s hard - thinking of you x
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Hope you’re ok. I also find day 5/6 the hardest x
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