Sorry you have to go back but at least you know you will then be ready to start rads. The transport facility is great and even better to take the stress away from hubby. Wishing lots of love xxxxxxx
Well better safe than sorry. Thought I might get away without another WLE but with Grade 3 I suppose I expected it. It’s the first time i’ve actually been pleased to have big boobs, since they have plenty to work with without a mx., hope I haven’t vexed it. Xx Francine
Good luck olli, I think you’re having your first session today. Hope all goes well
Great news Judi. Good to get the first one over and done with.
I’m glad I’m not starting till next week as I’ve come down with a cough and there’s no way I would be able to hold my breath during the treatment (have to hold it in 20 sec bursts I think due to where the tumour was). Hopefully be fine next Monday.
I’m meant to be working from home today but it’s quite tricky when the sun is shining! Wish I was outside enjoying it…
Hi girls, hope everyone ok. First rad today and all ok. Can’t believe that there is no noise or flashing lights. Love the way it moves around, really sussing us out. Have all my appointments for the afternoons which is great as I finish work at 1.30. Love to all xxxxxxx
Well done judi, you are 1 in front of me. I can feel a slight warmth tonight, plenty of e45 and only using simple soap. I see the onc on Monday, for update and thereafter every monday during treatment. How are you feeling. Hope all good lol xxxxxxx
Hi All I’ve been reading the posts on this busy thread. I don’t start Rad until Monday, so can’t join in with your comments / experiences yet. Wishing you all well - seems daft saying that, but I’m expect you know what I mean xxx
Hey, Judi! You’re having rads in Hull? Queens on Castle Hill site, by any chance? What time are your appts? My remaining appts are at 15:40 (except Monday which I changed cos I’m seeing Paul Simon in Manchester, and stupid cancer is NOT taking that from me!), only got 4 more to go but if you’re there around that time, shout up- we could venture into that cafe at the entrance for a natter? I’m only 20 mins down the road so can be fairly flexible, time-wise
Love,
Rose xx
First one done , 14 to go was told the others would only take 10 minutes. Good cos my arms didn’t want to come back down today. Major pins and needles in the fingers of my other hand (head of humerus broken 8 years ago) managed to keep flexing my fingers without moving owt else lol. Was out the house 5 1/2 hours! So glad to have transport but am feeling really trapped that this me for the next 14 week days. Yes I have told myself off very severely as I know I am very lucky and it will be over soon. Sorry for the moan xxx
Gosh nenya, you’re entitled to moan spending that much time out the house for such a short treatment! It doesn’t sound like it will be much fun repeating that but it all WILL be over one day soon.
Judi, can’t believe you’re 3 down already! Glad it’s all going well so far
Pandorra don’t like the sound of going pink so quickly, keep slavering over the e45 I reckon!
Can I just ask you all about the state of your scars/scar tissue as you’re about to start treatment? Have your scars fully healed and/or do you still have lumps and bumps of scar tissue? I definitely have hard lumps and there’s a 2mm or so part of my scar that hasn’t healed as much as the rest (surgery was 5 weeks ago now). Just wondered if it would cause any problems as treatment gets underway?
Wondering about my treatment plan and why I have so many compared to some. I’m to do 28. Stage III Her 2 pos but all negative findings after surgery. What’s your plan ladies?
Thank you Judi. I had AC/T Herceptin.
And it was in the lymph nodes. Double mastectomy.
Sue, I had 4 EC, 2 paclitaxol (should have been 4 but was stopped early due to side effects), WLE and SNB with clear margins and fortunately no node involvement and a year of herceptin. I’m having 15 rads followed by 5 boosters
Was diagnosed with Grade 3 Her2+ pos IDC. I’ve never been given a stage but suspect it may have been a 2 or a high stage 1
Wow, I wouldn’t want to start with an open wound either, but I hope someone who has been in your situation call comment. And we can only have faith in those treating us if it is a go to treat you …they should know.
I am trying to listen to my intuition more. And I wish you well. Keep posting.
Wow, I wouldn’t want to start with an open wound either, but I hope someone who has been in your situation can comment. And we can only have faith in those treating us if it is a go to treat you …they should know.
I am trying to listen to my intuition more. And I wish you well. Keep posting.
Hi Hawkeye. Sorry to hear you’re having problems with your wound. I must say I would be rather worried starting rads with an open wound and I would be surprised if they did this. My consultant made it quite clear that I couldn’t start it until my wound had healed, which has meant that since I am having another WLE on Wednesday, my rads have been held off again. Have you chatted to your BCN about it? It must be a worrying time for you and we all know what that’s like. Sending you a virtual hug x
OMG I an soo cross and feel like screaming!!! Having the ‘why me?’ moment, I live a clean life, have never done anything wrong to anyone or anything and there’s some hideous people out there getting off scot free!
Sorry I don’t even feel better for letting off steam. Just feeling trapped. I kno I have nothing to complain about as I have come off very lightly in this journey. Worried about my job, I lift pans containing 20lb of meat before adding water and the trays weigh 11 lbs before putting anything on argghhhhhh. Will I have to pay back sick pay if I hand my notice in? Sorry again, but I have written this with a very aggressive finger lol xxxx
Well done for letting off the steam. That question must be asked over and over, what did we do wrong, why, and when we get a bad moment it hurts so much. But, we get on and there are many people that actually admire us, for our strength, determination, courage and above all for the person we are. The ladies on this site are incredible and just remember you are one of those. Shout when ever you need us. Lol xxxxxxx
Judi, I hope the hospital transport works out ok and you’re not left hanging around too long.
I’ve had my first zap this morning. Physically obviously everything is fine, I did find the machine a huge reminder of how serious cancer is and how it needs to be treated. Massive understatement I know but even after all these months, I still haven’t got my head around the fact that I’ve been very ill.
A bit frustrated that some of my appts have been changed (I’m there at different times each day) and three are now going to be in the evening. Means I have a lovely free day but the thought of treatment hanging over me.
Oh well, good luck for this afternoon sunflower
Oh yes. Listening to someone in our local supermarket whingeing that one of the potatoes in a pack she bought was green and she wanted her money back. Please! I could have screamed. If that’s all she’s got to worry about, she’s a lucky woman. I then felt guilty about feeling like that, which made me feel even more angry, lol. What a surreal world BC is, it seems to completely change you as a person. Is it just me? I have a feeling I won’t ever be quite the same person again but I guess a lot of us may feel like that. Just going to have a bit of a snivel and I’ll be fine. ??