Only bio yogurts.
Sending positive vibes @bluesatsuma Iāve found docetaxil and carboplatin awful stuff and makes me so ill first week of cycle but Iāve been lucky not to have temp so far. It could be the live bacteria in your yoghurts. Iām off all foods right now apart from the odd wee pancake xx
Back in a&e. No-one picc line trained so they wont do bloods. Temp 38.7. Its heaving here. The red card sent me to nearest a&e as no room at the acute oncology ward at bigger hospital. Iām feeling ok but obviously temp is worrying. X
Thatās awful. They take bloods via a cannula from me, wonāt they do that? Also my onc said that if I go in again I must insist on being isolated and ask for iv antibiotics within an hour, itās NICE protocolā¦ā¦easier said than done I know
Hope itās sorted soon. Xx
I am still waiting. I just donāt know how to advocate for myself. I am at least isolated now, but no-one can use picc line and Iām not sure the 2 nurses running the place know where Iāve been put. My husband is home with kids but I wish he was here. I feel bad as the place is so busy. But nothing is happening. Xxx
You must not feel bad about being there. The times I have been in A&E and wonder why some people are there. You are at risk , you have more reason to be there .
Sending hugs xx
Morning everyone
@bluesatsuma did they find out anything? Hope you didnāt have to spend the night xx
Morning
Hoping bluesatuma is better.
I have my second docetaxel this morning, just hope the journey isnāt too bad with this covering of snow and all the chaos it brings.
My platelets are low so cycle 5 delayed a week. Ugh, meaning now Iāll have to have an mri when Iāll be feeling like crap and my last cycle may be the week before Christmas, so that means I wonāt be up to eating. So annoying.
I canāt complain @bluesatsuma is having it about 10x worse than me
Sorry to hear that @sez , and yeahā¦ i do understand but sometimes you need to air your feelings
Was having an ok morning until i showed and was going to change the dressing on my breast (incision site of lumpectomy ruptured about 1la month and a half ago) and looks nasty like when it ruptured ā¦ several phone calls later the GP nurse has no availability, the nurse from the other GP can only see me Monday but the doctor is gonna ring between 3 and 5 todayā¦ cried my eyes out from frustration and realised does me no favoursā¦ so all i can do is waitā¦ honestly boring is so underrated
Sounds like quite few of us are in for a time of it at Christmas. I feel I need to focus on what I can do (not much!), aim for better days and breathe. Each step weāre closer to being better and hopefully we can celebrate better in the new year.
Hugs to all you strong peeps xx
@dhmb that sounds awful. They have to see you surely? It needs looking at. Hope you get it sorted asap.
I escaped the hospital at 1am. They only did blood tests, no swabs or antibiotics or urine tests. But then they decided to do a liver scan as my billirubin result is high. I had a scan this morning. They said my liver is slightly imflammed but that it isnāt concerning.
My temp is still over 38 but no antibiotics as dr thinks my temp is high because itās a stress reaction.
So tired of it all. X
Glad you got home.
It is so very tiring physically and emotionally.
Get plenty of rest if possible and letās hope that temperature comes down.xx
I am really hoping I should be okay for Christmas. But I have been relieved of all cooking and entertaining for the first time in many years.
I have quite a lot planned for next year, including getting another puppy. Itās got to be better than this year
@bluesatsuma glad you are home now. What a nightmare for you. Maybe your body is so fit itās fighting it ! I start doc on Tuesday. Dreading it
So sorry to hear about your issues too, what a faff.
This all feels so worse the closer we get to the end (even if itās just the end of the beginning and thereās still loads left). Sending hugs back.
So had my second docetaxel today, all went without a hitch. The dose reduction bought it down to 164 mg / mlā¦strange number.
Waiting game now to see what happens. It all went wrong on the following Monday, apart from filgrastim injection pain, which I can live with as it only lasted 3 days previouslyā¦ Still one more to go. Got appointment to see radiotherapy consultant tomorrow morning.
@bigpickle mine was reduced to a strange number to. From 200 to 148. 26%. It has definitely reduced the side effects for me. I feel a lot better than last cycle. Obviously Iāve still had the hospital visits and high temp, but Iām nowhere near as poorly as this time 3 weeks ago.
Hopefully your dose reduction will be the same for you as well xxx
Hi
Thatās good to hear.
Stay well
Xx