August 2024 chemo starters

Only bio yogurts.

Sending positive vibes @bluesatsuma Iā€™ve found docetaxil and carboplatin awful stuff and makes me so ill first week of cycle but Iā€™ve been lucky not to have temp so far. It could be the live bacteria in your yoghurts. Iā€™m off all foods right now apart from the odd wee pancake xx

Back in a&e. No-one picc line trained so they wont do bloods. Temp 38.7. Its heaving here. The red card sent me to nearest a&e as no room at the acute oncology ward at bigger hospital. Iā€™m feeling ok but obviously temp is worrying. X

Thatā€™s awful. They take bloods via a cannula from me, wonā€™t they do that? Also my onc said that if I go in again I must insist on being isolated and ask for iv antibiotics within an hour, itā€™s NICE protocolā€¦ā€¦easier said than done I know :pensive:
Hope itā€™s sorted soon. Xx

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I am still waiting. I just donā€™t know how to advocate for myself. I am at least isolated now, but no-one can use picc line and Iā€™m not sure the 2 nurses running the place know where Iā€™ve been put. My husband is home with kids but I wish he was here. I feel bad as the place is so busy. But nothing is happening. Xxx

You must not feel bad about being there. The times I have been in A&E and wonder why some people are there. You are at risk , you have more reason to be there .
Sending hugs xx

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Morning everyone :wave:

@bluesatsuma did they find out anything? Hope you didnā€™t have to spend the night xx

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Morning

Hoping bluesatuma is better.
I have my second docetaxel this morning, just hope the journey isnā€™t too bad with this covering of snow and all the chaos it brings.

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Hope it goes well @bigpickle with no major side effects or setbacksšŸ¤ž

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My platelets are low so cycle 5 delayed a week. Ugh, meaning now Iā€™ll have to have an mri when Iā€™ll be feeling like crap and my last cycle may be the week before Christmas, so that means I wonā€™t be up to eating. So annoying.
I canā€™t complain @bluesatsuma is having it about 10x worse than me

Sorry to hear that @sez , and yeahā€¦ i do understand but sometimes you need to air your feelings :people_hugging:

Was having an ok morning until i showed and was going to change the dressing on my breast (incision site of lumpectomy ruptured about 1la month and a half ago) and looks nasty like when it ruptured ā€¦ several phone calls later the GP nurse has no availability, the nurse from the other GP can only see me Monday but the doctor is gonna ring between 3 and 5 todayā€¦ cried my eyes out from frustration and realised does me no favoursā€¦ so all i can do is waitā€¦ honestly boring is so underrated :cry:

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Sounds like quite few of us are in for a time of it at Christmas. I feel I need to focus on what I can do (not much!), aim for better days and breathe. Each step weā€™re closer to being better :crossed_fingers::crossed_fingers:and hopefully we can celebrate better in the new year.
Hugs to all you strong peeps xx

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@dhmb that sounds awful. They have to see you surely? It needs looking at. Hope you get it sorted asap.
I escaped the hospital at 1am. They only did blood tests, no swabs or antibiotics or urine tests. But then they decided to do a liver scan as my billirubin result is high. I had a scan this morning. They said my liver is slightly imflammed but that it isnā€™t concerning.

My temp is still over 38 but no antibiotics as dr thinks my temp is high because itā€™s a stress reaction.

So tired of it all. X

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Glad you got home.
It is so very tiring physically and emotionally.
Get plenty of rest if possible and letā€™s hope that temperature comes down.xx

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I am really hoping I should be okay for Christmas. But I have been relieved of all cooking and entertaining for the first time in many years.
I have quite a lot planned for next year, including getting another puppy. Itā€™s got to be better than this year :crossed_fingers::crossed_fingers:

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@bluesatsuma glad you are home now. What a nightmare for you. Maybe your body is so fit itā€™s fighting it ! I start doc on Tuesday. Dreading it :smiling_face_with_tear:

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So sorry to hear about your issues too, what a faff.
This all feels so worse the closer we get to the end (even if itā€™s just the end of the beginning and thereā€™s still loads left). Sending hugs back.

So had my second docetaxel today, all went without a hitch. The dose reduction bought it down to 164 mg / mlā€¦strange number.
Waiting game now to see what happens. It all went wrong on the following Monday, apart from filgrastim injection pain, which I can live with as it only lasted 3 days previouslyā€¦ Still one more to go. Got appointment to see radiotherapy consultant tomorrow morning.

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@bigpickle mine was reduced to a strange number to. From 200 to 148. 26%. It has definitely reduced the side effects for me. I feel a lot better than last cycle. Obviously Iā€™ve still had the hospital visits and high temp, but Iā€™m nowhere near as poorly as this time 3 weeks ago.

Hopefully your dose reduction will be the same for you as well xxx

Hi
Thatā€™s good to hear.
Stay well
Xx

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