Yep def feels weird not being poked and probed every Wednesday nor seeing the same faces on Fridayā¦ is it even weirder to say i miss them? We did have a few giggles between the tearsā¦
Iāll be thinking of you sunshine, hoping all goes wellš Have they said if youāre able to go home thw same day?
I have an appointment on Tuesday to discuss the mastectomy (no reconstruction for now) and the concent form and i absolutely feel terrified not sure which is more terrifying the surgery or the recovery to be honestā¦ Iāve not been vocal about how i feel to those around me because not sure it would be of any benefit really so i just march on but Iām definitely more irritable and wondered if i should say somethingā¦
Have ypu been told with the best intentions " oh youāre so strong" and you think: what the hell you going on about??? Me strong? Hell noā¦ i think as long as i keep moving forwardā¦ moving forward thatās what i keep thinking aboutā¦ someone mentioned springā¦ definitely thinking of spring ā¦
Finger, toes and everything crossed for you, sending hugs xx
I have to stay in for 5 to 7 days depending on drains @dhmb. Itāll be my longest stay ever in a hospital and I havenāt got a baby to keep me busy this time.
People say Iām brave all the time, but being brave infers you have a choice to chicken out, and we donāt really do we. Hope that you get a date for your masectomy and that all goes well at your appointment xxx
Hi @bluesatsuma
Ive got my final chemo session on Monday. Its been a long time coming. Looking forward to getting that stage over and done with. Then next month Iāve got 15 sessions of radiotherapy finishing end Feb. Then its ājustā the 5 years of tamoxifen for me. Feeling positive that im almost at the end.
Good luck with your mastectomy & diep on Tuesday. Like all your other treatment you will get though this next stage and its another one to tick off the list.
Best wishes. Xx
Hey @bluesatsuma i finished chemo 12 days ago and having mastectomy beginning of Feb. I really wanted DIEP but as they think I may need radiotherapy they wonāt do it and will only do implants.
Good luck with it all x
Hi @galdiolus thank you. Hate how we all get told different thingsā¦so confusing. I was told that implants would be damaged by radiotherapy but that a diep would be less damaged as itās own tissue . Total opposite to what you were advised. Iām having radiotherapy after diep. Hooe your reconstruction goes well in Feb. Xxx
Thank you @sievehead. Well done on getting to last chemo and food luck for nect steps. Iāve got radiotherapy to come too snd then ten years of tamoxifen. It feels neverending, but weāve all done the difficult bit now i guess. Xxx
Thank you @bluesatsuma yes I felt very frustrated that they said implants first because of radiotherapy. I agree different surgeons definitely have differing opinions.
Iām having a lumpectomy on Monday and sentinel node removal.
It depends on what they find in each of these what my next stages are. It could be:
A) Radiotherapy
B) More chemo
C) Another operation followed by any combination of A and B.
As usual itās the waiting and unknown next steps that get me.
Has anyone been offered a clinical trail for Radiotherapy? Iām taking part in one as I was originally diagnosed with cancer in my lymph nodes that are now showing clear of cancer.
If the sentinel node tissue samples give the results the trail want I wonāt have radiotherapy.
Itās good to read we have all almost completed chemo and onto our next steps.
P.S I hate it (but just smile) when someone says how brave I am. I agree, itās not like we have so many appealing options right now!!!
Sending healing vibes to those of you finishing up chemo, those going through surgery or starting RT. Take it easy.
Iām minded to keep up my arm exercises after RT as things are getting a bit creaky and while I always do shoulder curls and arm raises, I tend to rush it through and cut corners, my mastectomy/reconstruction was back at the start of July and through chemo it was more important to just get through it. So far no skin reaction from RT, fingers crossed it stays that way.
Sending best wishes to all xx
Glad to hear you have yet to get any reaction from RTā¦I am also so far absolutely fine. I moisturise 3x daily with flamigel and it seems to be doing the trick.
Had 5th Herceptin injection todayā¦the best yet. Didnāt feel much of a sting at all.
I had my diep left reconstruction and right reduction for symmetry on Tuesday. This time, i had the best treatment and care. I was in at 7.30am, on the table by 8.30. It took 7 hours and i was in critical care after for a few hours, though totally lucid and awake.
I had my own ensuite room and a nurse checked bloodflow to flap every 30 minutes. The next morning, the physios got me up walking and after 4 days i came home.
Its been a massive op. My body is wrecked, swollen, sore and Iāve gone from a very active person to someone who cries when they have to stand up. My kids have been a little upset to see how Iāve been since cominghome yesterday. I know it will get better every day and will be worth it. Right now, it feels like a mistake.
3 weeks until results. God, i hope that this is the last difficult part, but i know i still need radiotherapy and tamoxifen.
So glad to hear everything went well with surgery and that youāre on the mend, but at the same time Iām sorry to hear youāre in pain. Have you been given anything for that or does the standard paracetamol and ibuprofen do the trick? Really hope so
And definitely yes, waiting for results is madnessā¦ Thinking of you, hugs xx
Having my mastectomy Wednesday and the recovery is what Iām more fearful of, however, the longest part is over, the trickiest yet to come but like everything else this too will passā¦ i keep thinking of spring when everything is more ā¦ dare i say normal?
Hello @bluesatsuma
I wondered how you were getting on. That sounds like a big operation and I hope your pain gets better soon. You canāt rush anything, nature will heal you. Hopefully you have the worst parts of your journey behind you. As someone who has finished radiotherapy I can honestly say from my experience it is a breeze.
Sending hugs xx