August 2024 chemo starters

Hi @bluesatsuma :wave:,

Yep def feels weird not being poked and probed every Wednesday nor seeing the same faces on Fridayā€¦ is it even weirder to say i miss them? We did have a few giggles between the tearsā€¦

Iā€™ll be thinking of you sunshine, hoping all goes wellšŸ™ Have they said if youā€™re able to go home thw same day?

I have an appointment on Tuesday to discuss the mastectomy (no reconstruction for now) and the concent form and i absolutely feel terrified not sure which is more terrifying the surgery or the recovery to be honestā€¦ Iā€™ve not been vocal about how i feel to those around me because not sure it would be of any benefit really so i just march on but Iā€™m definitely more irritable and wondered if i should say somethingā€¦

Have ypu been told with the best intentions " oh youā€™re so strong" and you think: what the hell you going on about??? Me strong? Hell noā€¦ i think as long as i keep moving forwardā€¦ moving forward thatā€™s what i keep thinking aboutā€¦ someone mentioned springā€¦ definitely thinking of spring ā€¦

Finger, toes and everything crossed for you, sending hugs xx

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I have to stay in for 5 to 7 days depending on drains @dhmb. Itā€™ll be my longest stay ever in a hospital and I havenā€™t got a baby to keep me busy this time.

People say Iā€™m brave all the time, but being brave infers you have a choice to chicken out, and we donā€™t really do we. Hope that you get a date for your masectomy and that all goes well at your appointment xxx

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Hi @bluesatsuma
Ive got my final chemo session on Monday. Its been a long time coming. Looking forward to getting that stage over and done with. Then next month Iā€™ve got 15 sessions of radiotherapy finishing end Feb. Then its ā€˜justā€™ the 5 years of tamoxifen for me. Feeling positive that im almost at the end.
Good luck with your mastectomy & diep on Tuesday. Like all your other treatment you will get though this next stage and its another one to tick off the list.
Best wishes. Xx

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Hey @bluesatsuma i finished chemo 12 days ago and having mastectomy beginning of Feb. I really wanted DIEP but as they think I may need radiotherapy they wonā€™t do it and will only do implants.
Good luck with it all x

Hi @bluesatsuma

Best of luck for Tuesday, hope it all goes well.
Xx

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Hi @galdiolus thank you. Hate how we all get told different thingsā€¦so confusing. I was told that implants would be damaged by radiotherapy but that a diep would be less damaged as itā€™s own tissue . Total opposite to what you were advised. Iā€™m having radiotherapy after diep. Hooe your reconstruction goes well in Feb. Xxx

Thank you @sievehead. Well done on getting to last chemo and food luck for nect steps. Iā€™ve got radiotherapy to come too snd then ten years of tamoxifen. It feels neverending, but weā€™ve all done the difficult bit now i guess. Xxx

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Thank you @bluesatsuma yes I felt very frustrated that they said implants first because of radiotherapy. I agree different surgeons definitely have differing opinions.

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@bluesatsuma
Good luck with Tuesdays op xx

Iā€™m having a lumpectomy on Monday and sentinel node removal.
It depends on what they find in each of these what my next stages are. It could be:
A) Radiotherapy
B) More chemo
C) Another operation followed by any combination of A and B.
As usual itā€™s the waiting and unknown next steps that get me.

Has anyone been offered a clinical trail for Radiotherapy? Iā€™m taking part in one as I was originally diagnosed with cancer in my lymph nodes that are now showing clear of cancer.
If the sentinel node tissue samples give the results the trail want I wonā€™t have radiotherapy.

Itā€™s good to read we have all almost completed chemo and onto our next steps.
P.S I hate it (but just smile) when someone says how brave I am. I agree, itā€™s not like we have so many appealing options right now!!!

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Hi @gillian0808 :wave:

Just wanted to send a hug with lots of love and fingers, toes and everything crossed for you wishing everything goes to plan :pray: will be thinking of you :people_hugging:

Hoping everyone has had a good weekend, take care xx

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@dhmb
Thank you so much for your lovely message.
Iā€™m feeling a bit nervous for tomorrow so this was much needed!
Kind regards
Gill x

Sending healing vibes to those of you finishing up chemo, those going through surgery or starting RT. Take it easy.
Iā€™m minded to keep up my arm exercises after RT as things are getting a bit creaky and while I always do shoulder curls and arm raises, I tend to rush it through and cut corners, my mastectomy/reconstruction was back at the start of July and through chemo it was more important to just get through it. So far no skin reaction from RT, fingers crossed it stays that way.
Sending best wishes to all xx

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Hi @songbird1 :wave:

So glad to hear RT is going well so far, may long it may continue :crossed_fingers:

Sending hugs with happy tears xx

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Hi @songbird1

Glad to hear you have yet to get any reaction from RTā€¦I am also so far absolutely fine. I moisturise 3x daily with flamigel and it seems to be doing the trick.
Had 5th Herceptin injection todayā€¦the best yet. Didnā€™t feel much of a sting at all.

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Great news @bigpickle , fingers crossed you wonā€™t have any reactions :crossed_fingers: Do you have a few to go?

Wishing everyone safe from the weather xx

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Hiā€¦.yes I have got lots to go. I need 17/18 and I have had 5. I think it will be October before I am finishedšŸ™ˆ

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Wowā€¦ that is a lot indeed. Hope everything continues to improve without any hitches, sending hugs xx

Hi everyone.

I had my diep left reconstruction and right reduction for symmetry on Tuesday. This time, i had the best treatment and care. I was in at 7.30am, on the table by 8.30. It took 7 hours and i was in critical care after for a few hours, though totally lucid and awake.

I had my own ensuite room and a nurse checked bloodflow to flap every 30 minutes. The next morning, the physios got me up walking and after 4 days i came home.

Its been a massive op. My body is wrecked, swollen, sore and Iā€™ve gone from a very active person to someone who cries when they have to stand up. My kids have been a little upset to see how Iā€™ve been since cominghome yesterday. I know it will get better every day and will be worth it. Right now, it feels like a mistake.

3 weeks until results. God, i hope that this is the last difficult part, but i know i still need radiotherapy and tamoxifen.

Hope everyone else is ok.

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Hi @bluesatsuma ,

So glad to hear everything went well with surgery and that youā€™re on the mend, but at the same time Iā€™m sorry to hear youā€™re in pain. Have you been given anything for that or does the standard paracetamol and ibuprofen do the trick? Really hope so :pray:
And definitely yes, waiting for results is madnessā€¦ Thinking of you, hugs xx

Having my mastectomy Wednesday and the recovery is what Iā€™m more fearful of, however, the longest part is over, the trickiest yet to come but like everything else this too will passā€¦ i keep thinking of spring when everything is more ā€¦ dare i say normal?

Wishing everyone a good Sunday xx

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Hello @bluesatsuma
I wondered how you were getting on. That sounds like a big operation and I hope your pain gets better soon. You canā€™t rush anything, nature will heal you. Hopefully you have the worst parts of your journey behind you. As someone who has finished radiotherapy I can honestly say from my experience it is a breeze.
Sending hugs xx

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