August 2024 chemo starters

Oh @bluesatsuma sorry to hear you’re going through that :worried: Crossing everything you can think of so that Wednesday brings you a bit more comfort and that tomorrow’s appointment gives you a clear roadmap to the finish line :people_hugging:

Yeah same thing happened to me: diagnoses followed by lumpectomy and radiotherapy always with the understanding that things might change but honestly never thought it actually would, and thought couple of months and i can go back to normal as if nothing had happened. … couldn’t be more wrong. Looking back probably i was being nieve :roll_eyes:

After the lumpectomy, results came back and no clear margins… change of plans to lumpectomy, chemotherapy, mastectomy, radiotherapy and hormonal treatment or something of the sort to follow.

It just felt like instead of reaching the finish line, the road just got longer and longer like when you stretch bubble gum… HOWEVER… first 3 done :white_check_mark: and now definitely things are going at a quicker pace so feeling like I’m getting somewhere :crossed_fingers:I still dont know what radiotherapy and what comes after will look like but it will be dealt with in due course. Right now resting and healing are my priorities… doesn’t mesn i don’t miss my crochet :sweat_smile:

Huge hugs and wishing a peaceful Sunday :people_hugging:

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We’re at the same point @dhmb…between mastectomy and radiotherapy. Have you had your pathology from mastectomy yet? I’ve been told late Feb for mine. I keep imagining that they’ll find something else in there, like her2+ cells or grade 3 cells. I’m sure they won’t really though. Xx

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Not yet @bluesatsuma , i should be discussing that around the 25th give or take so we should be having results back around the same time :crossed_fingers::people_hugging:

I’m trying to put the results out of mind for now and just relaxing and healing otherwise I’m not doing myself any favours and drive myself up the walls with worry and truth be told won’t change the outcome whatever that might be. But yes I have caught myself thinking of it from time to time not gonna lie, guess easier said than done :sweat_smile:

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@bluesatsuma and @dhmb yes it’s definitely taken longer than I thought, not as complicated as both of yours though. Initially I kept being told that it was good I’d caught it early and it was just a lumpectomy plus radiotherapy plus endocrine. Was told nothing suspicious under my arm in lymph node area.
Then suddenly after the first op, it seemed it was in my lymph nodes after all (two thirds of them) so then onto chemo…. I do feel like a different person from who I was last January :joy:. Still, we’re getting there and I’ve been lucky in many ways so onwards and upwards (as people keep telling me!). xx

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Always one foot in front of the other @anne3 :grin: and on days like today (hope the same for you) the sun is shining and goodness me what a difference it makes!

I keep forgetting the lymph nodes… yep 3 out of 4 tested positive so had a lymph node clearance on Wednesday at the same time of the mastectomy. Not that im in pain, but it’s where it’s most uncomfortable really, kinda like a persistent twinge in my armpit…

And yes, could definitely be worse… so far hasn’t been fun at all, far from it but could indeed be worse :wink:

Huge hugs and remember, we ARE getting there :grin:

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Thank you @dhmb and definitely time for you to look after yourself. Yes sunny and bright here today but was very frosty. Managed a pleasant walk though :blush:. Remember my bruising was very purple and extensive after lymph node clearance so hope yours not too bad. At least you’re now on the right side of the op and can recover a bit. Take care xx

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Did you have all 3 levels of your lymph nodes removed or just the standard 2 levels?

Hi Linda - I had cancer in the third level so all of them I believe as they say they removed all evidence! (13 out of 19 were affected). It was quite purple but healed well and looks ok now. :blush:

Have you had any problems and what does the scar look like? I don’t have cancer there now as far as we know but it is a preventitive measure.

Hi - not had any problems, no oedema or anything. The scar was a few inches (they reused the area they used for the sentinel lymph node biopsy) but there is now just a small area of scar visible really. The area under my arm still feels numb although I don’t actually notice it now so much. All in all for me the surgery has been fine. Hope you’re doing ok. Take care x

Saw onco today. She had my bloods done to check hormone status as i think ive gobe through menopause during chemo. She said that id probably start tamoxifen and ovarian suppression butvswitch to an AI after a while.

Anyone on here started tamoxifen and zoladex yet? What can i expect?

Does everyone on zoladex have to have biphosphates too?

Thanks all

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How is everyone doing?

Not feeling great, had a follow up with the nurse to check how the wound was (can’t believe it’s been a week!) and stitchwise all good, i can move my arm and do the recomended exercises ok, but it was so swollen my arm touching the side of my chest was so painful that the seroma needed to be drained. Without doubt felt much better but now the pain is a bit worse even though not nearly as swollen as before… starting to think I’ve lost my marbles :sweat:

Has this happened to anyone? I’m trying to resist and not google it, but how (if possible) can i prevent it from swelling up again which the nurse said it likely to happen?

Anyway… i guess I’m just feeling a bit discouraged and i wish a peaceful night to everyone xx