Yeah that can definitely do it! Also I find after a couple of bad days I’m so tired I sleep a bit better the next one! Am pleased for you though, are you feeling better for it? I had a bit of a down day yesterday which was strange but I think it was just lots of conversations that affected me. Someone at works husband who’s had cancer went to the dentist and they found a lump on his neck so he was suddenly having to go for a check up and she was a bit wobbly so we chatted through that. Then one of my friends was having a life crisis has she hasnt got any financial security (but she and her hubby are both employed they have gorgeous kids and a lovely house with a close extended family, however she was kinda saying that as I’m a bit more financially secure I’m better off and I know she didn’t mean it like that but it made me feel a bit rubbish (ie count your blessings please) and then another friends little boy started school yesterday and so she sent me a voice recording of the message he sent his dad as he was upset his dad hadn’t picked him up - I thought it was a mistake at first but no she sent it to me intentionally? Bit odd and why would I want to hear it? Fair enough send me photos of new school uniform etc but that was just a bit too much? X
Ah you always make me feel better! Thanks. Sometimes I just wonder whether my reactions are off kilter. Oooh it’s very medical in your household eh?
Hope you have a good day with your mum. I’ve just had some yummy soup which is restoring my equilibrium lol xxx
Yes thank you was still feeling a bit rubbish but it improved as the day went on! Bakeoff was good although it always makes me hungry! Glad you had a good day. I hope you get some sleep tonight. Nearly the weekend again already! Started trying to eat a bit more mindfully and did a lunchtime walk and evening exercises so that helps I’m sure. Xx
HURRAH!!!
Full report tomorrow please!!
I’ve still been feeling a bit crap. It’s Friday tomorrow though hooray so will try and sleep and be cheerful and productive in the morning xxx
Oh bloody hell! The things that come out of people’s mouths! Hope you’ve taken no notice. I remember a woman at work emailing me to say that she thought my hair looked a million times better short than it ever did long lol! It’s brilliant that you’re stronger -you are doing who well at persevering. I’m glad you had a nice say with your mum. She sounds fun. It’s really close here which makes sleeping worse I think, has it been like that your way? Must try and sleep so I actually function at work tomorrow as opposed to moaning and doing nowt properly! Xx
Oh no!!! How disappointing. Gutting.
Can’t believe it’s only 9 days how are you feeling? Work was ok but I have been really sick this afternoon. Stabbing pains and sickness etc. Thought it would pass but it hasn’t. Had some peptobismal but couldn’t keep it down so just going to see if I can sleep it off. Haven’t felt like this for ages! Glad climbing was good. I think keeping moving is key xx
Xxx
OK thanks! Hey I’m ok thanks. Had a horrible night but stopped about 3 so no more pain and have managed water and dry toast today. Don’t think I’ve been that sick since my first fec chemo. I’m ok with sickness and the other stuff but this had pain and cramps that wouldn’t go in between. Must have been something I ate. How’s you today? Xx
At least you know what’s causing it.
It’s worth talking to them about it. I don’t know much about herceptin but I know it’s ok to move a couple of days with zoladex. However I am also mindful that when I was on chemo my nurse told me it’s not ideal to break any cycles in chemo as it can make it less effective (but that was chemo so it’s probably different). It gets you down when your body doesn’t work the way you want it to doesn’t it? I think you are doing brilliantly to run at all, and it’s a lot of chemicals that you’re dealing with.
My stomach is sore but not as bad so I’m just going to chill today. Let me know what they say re delays to the injection xx
Sounds like you have a good plan xx
No! You are fighting against the injustice of what’s happened to you, proving you’re stronger than it, and inspiring everyone around you xx
Good luck good luck xx
I’m so glad it went ok! Yay! Go You! Can’t believe you went to the climbing wall as well superfit or what ?
I just get all bloaty after zoladex and weirdy hormoney I think but I find I focus on work and done spend time on symptoms which is probably a good thing lol. I’ve felt weird the last couple of weeks but I don’t know whether that’s in response to panic about new jobs so I’ve gone all hyperchondriac?! Or if it’s when I stop to think I notice that I really never feel that great. This stomach thing has been weird but I think it was just something I ate. My stomach is still sore and not back to usual yet but I think that’s normal. To be honest my stomach is never really normal anyway lol
I think the course will be good, when you get back into the swing of things with work it will be help the transition although I honestly think all your running is amazing! You are fab xx
Lol they probably think you’re mad but you need to do what’s right for you.
I generally struggle with my stomach but haven’t been sick like I was on Friday for a long while, I have more bloat, diarrhoea type stuff which could be tamoxifen or zoladex I think. Also my stomach wasn’t that good before it all think it’s just a weak spot for me which means I can usually hack quite bad symptoms so it was odd to be in such pain lol. Hope the chat goes ok tomorrow x
Oh that’s fab ?
Yay!
Re work you will just have to see how you get on eh? Are you worrying? It’s weird going back but it does help you feel like part of society again.
I’ve got zoladex tomorrow and was a bit spacey after the stomach stuff (think I pulled a muscle lol) so need to pull my finger out at work lol. Xx
I like to think of it as processing. What are you worrying about?
Have you spoken to anyone? We can talk it through if it helps (I always find speaking/writing helps)
I panicked about my wig but was ok… Also worried about being able to do the work but it was ok too actually. Not as important as your job though so less at stake.
Zoladex is an implant in the belly and I’m ok with it I think as I justify anything that keeps me going longer. I wish I was like you and good at exercise I know I’m overweight and not doing myself any favours it’s embarrassing! Although with a fatter belly it doesn’t hurt as much haha so there’s always a plus side. How come it’s 18 of herceptin? is that a block of treatment like radio or somethjng? X
A year is long enough eh?
You are right, it’s hard to move away from it when treatment continues.
I don’t think people will be thinking badly of you re your shifts. There is nothing to take advantage of is there? - you have had something rubbish happen to you and now you’re trying to get back to normal. You have also taken a less senior role so it’s not like you haven’t made sacrifices. I think stick with ‘stuff it’. If you can, you need to just think ‘nothing is fixed in stone, I will see how I feel and take it from there’. I think most people will be impressed that you’re trying but either way it doesn’t really matter what they think, it’s up to you (and your line manager) xx
I will keep telling you that! Won’t your colleagues understand better anyway as they work in the hospital so they know what it’s like dealing with serious illness?
Glad you’re sleeping better that helps a lot. Re me I think I should just force myself more it’s weird though I was going ok and then it suddenly exploded. I just need to adopt my diet and exercise but I find it hard to prioritise it and always end up doing other stuff instead - no excuse and I think lymphoedema would benefit from the right type of exercise. How are you feeling about your check ups are these the first ones since treatment finished? Xx
Yeah it’s such a difficult job. My oncologist has been so nice though I’ve been really lucky. The only person I didn’t really like was the surgeon who put my portacath in. I think re se’s its tough. I had bad knee pain which I thought was zoladex but my surgeon referred me for tests whereas my oncologist said ‘oh it’s probably zoladex’ lol. I think you just really have to be your own advocate.
I find talking about it in my appointments always makes me feel worse anyway. X
You need to factor some rest in lovely. I get sick when I do too much.
You have done a lot these last few days, but it could also be the injection?
I think sometimes with the oncologists they can’t say anything about the hot flushes as there’s not much you can do is there? Hope you feel better soon. I went for an asthma check up this afternoon and I’ve put on weight, BP is up to 130 and she gave me a flu jab lol!!