Bless you, I hope it all went ok. That must have been so hard. Yes my partner is going with me. Thankyou. Just all feels that way you know.
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They are obliged to try to fill cancellations to avoid wasting time , they may have tried to contact others before offering the appointment to you . Whatever happens we will be here for you xx
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Hi all of you. Thankyou for being here with me. I have been diagnosed with stage 3 invasive ductal cancer. It is her2 negative. They have said it’s sensitive and driven by hormones. They couldn’t give me a mammogram because I’m still breast feeding and have to speak to the consultant as that can make things harder to see. I’m so worried that will make the mri harder to see too. So I need to try to stop breastfeeding.
I may have to have another ultrasound and biopsy after the mri but may not depending on outcome. I just hope it hasn’t spread 
They said it’s about two weeks to get results after I’ve had the MRI.
How soon after your MRI’s did you all start treatment? Thanks again for being here x
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I’m so sorry this was the outcome @321_cake and I’m also pleased you were able to get your results much earlier than expected.
I didn’t have an MRI after my first diagnosis as it was stage 1 and I went for surgery 4 weeks later. I did have one after my local recurrence was confirmed and commenced chemo just under 3 weeks later.
I hope you manage to get a plan sorted really soon but in the meantime we’re all here for you. x
Ok so now you know what you’re dealing with.
It was about 4 weeks from MRI results to surgery. In my case HER2 negative meant no chemotherapy so I went straight to surgery with hormone therapy (which I’ve now stopped) and 5 days radiotherapy which I’m having next week.
I was told IDC was very treatable. Have they said how big the lump is and if they’re worried about your lymph nodes?
Thankyou so much I think I got confused with grade and stage. As mine is a grade 3. I’m not sure what stage it is. I’m not sure when you find that out.
Have you finished having treatment now? Thankyou x
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Bless you. They said that they are going to scan my under arm after the MRI. They said approx 14mm.
Bless you, I hope you’re getting on ok with it all. What type is yours? X
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It’s easy to get staging and grading mixed up. I had no idea there was such a thing as a grade before my own diagnosis. My cancer is grade 3 triple negative.
No, treatment is very much part of my life at the moment. Week 4 of chemo tomorrow with the last one currently scheduled towards the end of September.
So Grade 3 is the speed it’s growing at rather than the severity. I only got told the stage verbally as I asked one of the nurses when it wasn’t in my paperwork.
Mine was initially 8mm on ultrasound, 12mm on MRI (I was assured it hadn’t grown just MRI gives more accurate measurement) and 15mm once taken out with margins. My radiographer called it tiny and very treatable and you’re in the same range which is good. No lymph nodes involved so I’m allegedly Stage 1.
Ultrasound radiographer told me my lymph nodes looked good to her confirmed by biopsy taken during lumpectomy surgery.
Mine was oestrogen and progesterone positive and HER2 negative like yours. So plan was surgery, radiotherapy for 5 days and hormone therapy. Letrozole gave me terrible side effects so I’m not continuing with hormone therapy (minimal benefit in my case) and am having whole breast radiotherapy instead of partial. The radiotherapy is next week then hopefully I’m done except for annual checks.
I do feel like I’ve got away lightly compared to others here but your results so far are similar to mine.
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Hello again @321_cake
So sorry that you are now officially part of this club that nobody ever wanted to join but I think it’s better to know . I didn’t have an MRI but my friend who was diagnosed 3 months after me did . I think she waited just under two weeks for results . As far as I understand it the Grade refers to how different the cells look under the microscope as compared to normal cells . They probably won’t be able to give you a Stage until your MRI results and other results are in as that refers to spread . So sorry that you are going to need to give up breastfeeding and sending love . Xx
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@JoanneN @mssteel @bluetit11
Thank you so much for your replies and for being there. I think the main thing on my mind is because it says invasive and I’m worried about it spreading. It’s now all the waiting for things to start and for more results I guess x
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Mine said invasive too but it just meant it had gone into the the tissue around the duct it started off in. x
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Just echoing that invasive just means it’s broken out of the milk duct it started in @321_cake, although I can see how it sounds like it means it’s rampaging around your body!
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@mssteel @bluetit11
Thankyou I just have no idea with all this.
I’ve been worrying about spreading and they said they won’t do an axilla ultra sound until the MRI results are back. I said I’ve had one before but they said in my results that they hadn’t said anything about that then I pushed today and said it was definitely scanned. She had a look and she said actually it does say there was thickening. So now will need a biopsy there too The nurse has just said it could have potentially spread
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Remember they are looking to exclude things as least as much as to find them. Sorry you are back to waiting for results again xx
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Thankyou for your replies. I’m just going out of my mind. I’m feeling my whole body now any pain or ache and it feels like everything is aching.
Thankyou for your support all of you x
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Sorry to hear about your results. I think once you have seen the team with all your investigations complete then they can individualised your care plan and treatment. So sad that your not able to continue breast feeding but they way forward is to concentrate on you and getting through this.
I think I feel a bit relieved having seen the team, who have set the ball rolling with my Letrozole medication, MRI, mid June, and earliest day for surgery is mid August.
Good luck on this journey, we are all here for you.
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Thankyou for replying. Glad you have a plan in place. Good luck with it all. Is there waiting lists to start things then? Is that how it works? X
I think it depends on your treatment path. Sometimes they want hormone therapy or chemotherapy to shrink your tumour pre surgery. In my case I was given hormone therapy to stop it growing but surgery was 2 weeks after my MRI results so very quick. Radiotherapy is fairly prompt after my surgery results too.
The earliest date on the waiting list for my surgery was mid August. By starting the Letrozole now, it will hopefully in my case being a postmenopausal women, helps shrink any tumour.