Lily hope you get sorted today, let us know. Back isnt sore just itchy, god knows how they got through all that fat!!!
Going into hospital for 12 tomorrow and Op not till wed, they might have to tie me down!!! Shaking like a leaf already but hoping work keeps my busy. Im aslo really worried about the after effects of having ovaries out after reading some scary stuff on here!!
Lisa
x
Hi Lisa,
I would just concentrate on getting the operation over and done, as the possible effects of not having it done could be so much worse. I would do anything not to go through the last 6 months again as a repeat! We have already gone through what many people in the past few years, only had when they were unlucky to have a recurrence. My onc says we have a belt and braces approach now on primary so he doesn’t see us again - hope that works out. Still I know how lonely lying waiting is and will be there myself before too long. Bet I won’t be so brave then!
Thinking of you and you better take some books or sign up for the tv while in there as you have quite a while on Tuesday sitting round. Thinking of you and the sooner you get there, the sooner it is done and over. Then you can just concentrate on getting back on your feet. Lots of luck and love and let us know you are out and done when you can
Big hugs
Lily x x
Thanks Lily, I know im being a baby and i do want to do everything I can to stop it coming back!! just hope it works get in such a downer abotu it all sometimes. Really hope the itching has stopped and you get it sorted, sounds painful
xx
Lisa. Did you have patientline when you had your op before, because newcastle has it and that one has internet so you might be able to stay in touch, but I get the impression you might be able to read but not contribute ie they stop you posting maybe. But I’ll keep an eye out for you just in case.
Hope the rads itching goes down… guess who’s turned out to be allergic to simple soap, yep you guessed it moi!
I’m sure you’ll cope with the menopausal symptoms. My Ma has some great tips for dealing with a lot of them and it’s really hard to imagine but after chemo, rads and 2 lots of surgery I’m sure they’ll feel a doddle in comparison and I’m not just saying that as I really do expect I’ll be doing the same thing next year 
Lily: youchy youch blurk. Eyes or itching, how to choose!
Did they say anything about clarityn as I find it a thousand times better than piriton. I’ve used it for years for really bad hayfever and I never have side effects with it however piriton just knocks me sideways and makes me sooo drowsy. In fact so far that’s the only side effect I’m getting from the rads is being drowsy just like piriton used to make me so you might have an idea what to expect there.
Sorry I’ve kinda lost track of where everyone else is as because it’s on the previous page and I’m muddled and overloaded with work.
So love to you all and I hope this whole week is a good one for you.
Angie
Thanks Angie - just nipped tohospital on lunch break as neck really sore, they hae no idea what mark is looks like a big burn so just tomorrow to focus on./ how on earth can you be alergic to simple shower gel, bless, what you using?? had the tiredness hit in yet? hope you doing well.
To everyone else, have a ncie week
xx
oh yes the tiredness has certainly hit in. just curled up on sofa for now. I’d give the radiotherapy dept a call if your backs still itchy after the op’s all done. Sorry supposed to be distracting you aren’t I… how about trying to pretend your going to see the bridge at gateshead or something instead and just try and surprise yourself at the last minut 
Anyway hope you’re keeping those nerves well in order… don’t let them get to you it will be OK.
Lots of love
Angie
Hi again,
the beast lost my post. Grrrrrrrrrrrrrrrrr. Lisa just wanted to send you lots of love and luck again. Try to get a good sleep tonight if you can, I wish I could send you some piriton. That would wipe you out, if you are like me. Take some warm things and especially socks as the weather looks like it will be chilly up your way this week. Once this is over, is it just tablets and if so which will you have? You are so far ahead of me now, I don’t even start rads till Dec and the surgery will take my dates to right through Christmas now. I winder whether you can go 4 days without treatment as the weekend is straight after Christmas. There will be a huge backlog after that. Anyway hugs Lisa and we are all holding your hand in cyber space, but some people will have a better signal than from down here x x .
Angie yes piriton totally wipes me out. When I get it iv I almost slide out of the chair so I have to curl up in the armchair and put pillows on the table as I get treated sitting upright. Not the best when you are virtually comatose! Is it good or bad sleepiness while on rads? I don’t mind being sleepy if not drained. I was thinking of going back to work through rads but union say I will not get any pay for doing it until I go back full time, so no point being a hero.
Another chemo marathon runner coming in this week hopefully. Yaaaaaay Bevy, hope you were ok to get it done, and that they got the final stabbing in as it should be. Julia and I are resting in the pits right now. Hope you are ok Julia, my stomach is absolutely dire this time and has been very uncomfortable, how are you getting on? Joanne hope you are still there we need a bit of cheering on for the final stretch, hope the tummy is improving. Do you need treatment for the ulcer? Sounds very painful x. Nicky are you back yet and how are you? I think you have a visit towards the end of the week, so hope that goes well. Lorraine, well hooray here comes the cold weather to bring out the big jumpers and save us from diets till the new year!! Medically we need extra layers to keep warm, don’t you think? LOL
Well no My Blobby tonight so fingers crossed I won’t wake up red, but piriton at the ready, armed and dangerous
Love
Lily x
Hi all
A very quick message to say we’ve been away for a few days with our girls to Paris. Back yesterday evening and haven’t had time to read the book that’s been written on here since last Thursday! Will read it all later but hope everyone is OK. Just had a quick skim through and hope I haven’t missed wishing Lisa good luck for today with her op.
Take care all
Nicky xx
Hi girls
good luck Lisa will be thinking of you. I had an overy out three years ago with keyhole surgery due to it being attached to a rather large cyst. It wasn’t too bad at all just felt bruised but the healing process was pretty quick in comparison to BC surgery. Hope it goes smoothly.
Thanks Lily I had the bloods done yesterda and haven’t heard anything so must be o.k. to go ahead tomorrow aghhhhhhhhhhh! but the last one thank god I just hate the thought of knowing I need to visit the black hole once more as I have really had enough as I know all of you have too.
So Angie the rads make you drowsy too something to look forward to but it can’t be as horrible as chemo? (I hope) I refuse to worry about tomorrow as it takes the strength away from today (that will be my motto from now on)
Good luck to everyone thinking of you all.
Bev x
Heya Ladies.
In all honesty the rads are wiping me out completely… to much to actually care about things like bank balances etc which is the good news so yes you may end up sleeping through 3 weeks, but you won’t have the energy to be stressed so that’s good 
Good luck tomorrow Bev, last one… trumpets at the ready.
Lily I guess you’re on your way down to the low neuts point now, or is it not so bad on the cmf?
Lisa, should you read this don’t run away, you’ll be home in a few days and the ops will be over.
Lots of love Ladies
Angie
Nearly forgot to say I’m developing this strange furry stuff all over. OH says it’s called hair and it means I’ll be a mammal again soon
Hi: We have covering of snow here in Grandborough – where I live, not far from Rugby – don’t think walking the dog is on the agenda today!
Lily, I always feel horribly guilty when you are suffering so much and I am fine. Your itchy-coos must be driving you mad – must look back thru the posts to see what progress you are making. Hope the itches are on the way out.
Had the roof down on the sexy car yesterday, it was cold but really sunny, and it was great!
To stop me losing posts, I now open up a Word page and type all my rubbish on there and can flip back to the posts and then to word. When I have finished, I copy and paste it on to the BC discussion. Works a treat!
Lisa – very, very best of luck for tomorrow – hope the weather up your way is not too bad although the forecast is awful Have you noticed they give Sever Weather Warnings now for what we would always call normal shitty English weather!!
Angie: Glad you are doing OK with the rads except for the tiredness. This seems to be the worst part. Having read your last post, the exhaustion seems awful – almost puts you off.
Went to see my onc on Monday and it was all good news – thank you God – no problems anywhere – they can’t resist a good grope, can they? Seemed very impressed with my “Positive” attitude and thinks that has helped me get thru with so few problems. Than and my bloody minded state of “This is NOT going to make me ill”. We have fixed to start my rads after Christmas and I will be having 15 which is a lot less than I thought as I have 40E boobs – but I’m not complaining. Got to do the planning thing in December and, because he wants me to do Herceptin, need a heart scan as I have irregular heart beat. All in all not a bad result. Having thought about the conversation later, I think the chemo nurses must have passed on my comments about not doing anything until after Christmas – what ever, so long as I get what I want, I don’t care who said what to whom.
Lily, we still have one more double dose to go, but let’s hope it is easy.
Nicky: wish I had been to Paris – last time I went there it was July and peed down with rain the whole time – made it a good excuse to sit and cafes and bars!
Bevy: hope today goes well, at least it is the last one.
Anyone read the piece in the Mail today about brachytherapy – sounds interesting!!
Also, anyone come across a link between lactose and breast cancer? My sister has friends with BC who gave up dairy and went the soya route to avoid lactose but I thought soya was full of phyto-oestragen?
Good luck and love to everyone.
J
XXXX
Hi,
well the blobs have gone so that was a much better evening but still can’t eat beyond bread, pasta, crackers and eggs. Managed to drink tea today without too much trouble so hopefully my cesspit of a digestive system is calming a little. I might see if it will accept chicken tonight. I really need to take it slowly and not leap into normal eating too quick as that always backfires!! Went out to lunch with my great 2 BC buddies from work and they ate their little faces off. GRRRRR. I had bread and butter and chips. They had a lovely meal and then ordered big puddings!!! So I sat and watched one eat sticky toffeee bread and butter pudding with dates and ice cream and the other eat plum crumble with raspberry ripple ice cream and custard. You will note that I remember every ingredient and mouthful they ate too!! Sheer torture. Still you know what it is 21 days until Julia and I finish chemo, although I think she might have a few tablets beyond that day? That is definitely do-able.
Hi Nicky looking forward to hearing about your trip, hope you were up to really enjoying yourself, you certainly deserve to. Bevy the last one tomorrow, how good that sounds, one more dive and then you can start getting better. I know how you feel as this treatment is definitely building up steam and I am very anxious about how painful the second one might be next time as this was only bearable for a day or two with the stomach pains and violent trots. Oh well c’est la vie!
Furry Angie, yes I feel like a wooly mammoth after being squeeky hair free clean on epi. Hey that was a good thing and we didn’t appreciate it! I don’t sweat any more either, weird eh but I am sure that will come back. Hope the rads tiredness wears off soon, how many more to go? A different kind of challenge I guess. It might be all the travelling getting to you as well. I don’t think I get low neuts as such. On day 8 of dose 7 they were higher than when I started chemo, at 5.8.
My body seems to get all fired up when under attack and comes back with a left hook!! I have no idea why we all differ on this but do think that giving up work must have helped. Rest must be luck.
Might pop back later, off to sort dinner out and crackers for me. Grrrrrr
Lily x
hi everyone
lily 2000
oh you poor thing, what next? i think you do wonderful, you are an inspirtation to others. i know how it feels to be itchy, ive had athletes foot or something between my toes and they have cracked, and dry skin on bottom of feet, and ive been itching like crazy, but not a fraction of what youve been through. my sister isnt too good at moment, she is waiting for date of chemo, but she was vomiting at weekend, they first said it was a bug, then her liver playing up, then enemia, but sometimes she can hardly stand up. in some ways i hope they hurry up with her appointment. it was so funny today, i went to see her, and she needed a hand while she went to the toilet, so i was holding her by her arm and kind of walking behind her. and she keeps laughing, and laughing, ( i thought shed flipped seeing as she was nearly collapsing, not particularly funny in my eyes. and then she told me after, i was treading on her dressing gown, at the back and she couldnt move,) strange the things we find funny, and how we seem to be able to laugh in the middle of this awful thing.
lisa, hope op goes well, and that you recover quickly.
nicky 08
id forgot youd gone away, hope you had a wonderful time,
Do you forget things, from one minute to the next? maybe im a senior citizen and ive forgot, maybe ive got to pick up me pension tommorow? ( take no notice ive having a mad moment) my moods are still a bit low. does your new meds effect you in any way?
all have a good day tommorow, i hope the snow slows down, like to watch it from the house, but not go out in it, and i feel like a day out tommorow.
take care everyone x
Hi,
Lorraine that is just the kind of thing that would have my whole house falling about laughing. Once someone starts giggling, the whole lot go till they can’t talk, breathe or start crying with it. We all settle down and then someone starts us all off again. It can go on for hours sometimes. By the way next is I finish chemotherapy and see if I can be totally normal on rads. I am not fair skinned and couldn’t burn if I tried, so hoping that will be on my side and will not get too sore. Time will tell. Hey I think all you ladies who have been through more than a local primary are the inspiration to us all and keeping encouraging everyone else too. Have you got those big jumpers out yet?
Lisa if you can pick up messages in Newcastle. Big hugs and thinking of you all day, sending you sweet dreams till you wake up all done and another big item ticked off your list x x
Love
Lily x x
Hi all
I’ve eventually caught up with all the posts - what a long read!
I’ll start off with my cr@p day yesterday - what a come down from Paris! Ended up in the cardio unit ALL DAY with tests as I keep getting palpitations. These seem to be made worse by even a small amount of vino so that was a pain when away! I’ve had these on and off for a few years but they seem to have got worse in the last 4 weeks. Oh, I wonder what has happened then? Maybe it’s my Femara? Try to explain this to the cardio unit is like trying to talk chinese to me ie no understanding whatsoever. After all it’s only listed in the group of second most common side effects! Had to wait till 5pm for consultants round and then he made me cry! Not his fault but I am soooooo p*ssed off with being in hospital for one thing or another and having more needles stuck in me when I have only 1 slightly good vein in my arm and one in my hand. Anyway came home eventually, now on beta blockers to add to my stash. Oh, and another hospital appt to be done with the cardiologist - when will my life ever get back to ‘normal’? Never mind I’m back there on Friday (again!) for my IV bone strengtheners. What really gets me is there is no communication between units if you have separate problems. ie Epi is known to cause heart problems, has this happened to me? Femara is known to give palpitations, how come no-one else seems to know? Now have to pursue this with my onc but obviously won’t want to (can’t?) come off AI’s - ahhhhhhhhhhhhhhhhhhhhhhhh.
Rant over.
Paris was great. Loads of walking but weather was lovely (unlike the forecast had shown). Nice food and wine (boo hoo, not so much for me!) Everything went very smoothly and we flew out of Terminal 5 at LHR - very swish. Much different from other terminals as full of light and space. Even had a treat for breakfast at Gordon Ramsay’s restaurant there. Sorry to all of you still going through the poison routine and on chip butties (Lily!) Anyway back to reality - and the washing - now! Was meant to be in work yesterday and today but after yesterday’s fiasco I’m not wasting my day being stuck indoors so I’m not working today either. Only problem is I don’t get paid if I’m not there so yet again I’ve lost money over all of this (sorry - I forgot, rant was meant to be over!)
Just have to enjoy the snow! Can you believe it? October in the deep south and we have snow! Definitely going for a walk this morning.
Quick note/s to you all.
Lily - sounds horrible all those rashes and itches, hope they’re all clear now. Bed socks, hmmmm, not so sure about those, guess I’d look very similar to you though but a bit balder! May give them a go as I do have a rather fetching pair of flight socks in natural tan! As you say, November is on Saturday - your last chemo month - hoorya.
Bev - hope all goes well today and you’ll be well and truly done. Hope side effects keep to a minimum.
Lisa - got dates wrong, think today is the day. Take care sweetie, rest up and get looked after as much as poss by your family and friends.
Lorraine - it’s not surprising you feel down - it’s such a roller coaster isn’t it. I’m always putting on a brave face but every so often it gets to me - like yesterday - and I feel very sorry for myself but don’t want to upset OH and my girls. Plus I want to enjoy things and have a similar attitude to you that you have to make each day count. We’ll have to do some mutual supporting!
Angie - hope you’re not getting to tired - it does zap you but in a totally different way to chemo. Hopefully not for too long and you’ll be done and dusted.
Julia, Chris and anyone else I’ve forgotten, and all those I haven’t - hope you have a good week
Take care all
Nicky xx
Well hopefully Lisas fine and Bevy’s finished chemo? Really hope so. Don’t be suprised if you find yourself rushing to get past the side effects this time Bev, but don’t push too hard or you’ll land flat on your ar*e (possibly literally, I nearly did in all the mud from the rain, hence the purchasing of wellies).
Lorraine, your poor sis. Hopefully she’s not going to get nausea with the chemo they put her on. Hope you’re doing well, I’ve found neat lavender oil can work wonders on athletes foot, just rub it in at first sign of trouble. But if the skins broken you might want to dilute it with something like vitamin e oil or even just olive oil. Lavender and tea tree oils are both antifungal and antibacterial, that’s how I managed to stop a lot of infections during chemo actually. Hope you’re having a good week anyway.
Niki… one spot on TV and your swanning around Paris… you go girl Sounds like it was a lovely trip. How was Ramsey’s breakfast worth the visit?
Anyway going to do another little stint of work, keeps the lights on and me and OH have decided that we have got to start living as if we have a future together that will be long and productive. I’ve been too scared to really make any long term plans this year but it feels like it’s time to maybe be a little bit hopeful at least I mean we might all have good long lives yet right?
Lots of love to you all
Angie
Hi everyone,
well today was a good day for me because I spent more time out the bathroom than in. How simple does life get, when you peal down the layers? Feeling like I made progress and that number 7 is almost gone out of my system even though I still have a dry mouth. I don’t think that ever goes now. So looking forward to and embracing my run at it, face on to meet number 8 in 13 days and all finished in 20 days time. Still lots of time before then to get out and about. I am so desperate to see Daniel Craig as Bond again, but can’t chance the big crowds with flu about, so will wait for it to settle down a bit. I am also starting to do some Christmas shopping in case I get sleeping sickness like Angie on rads, or the surgery keeps me in or from driving for a bit. Woops forgot about the seatbelt and the new scar if I drive myself for rads. New plan needed.
Well I hope that Lisa is snoozing away tonight and that it all went really well and she has now got that next part done. Thinking of you and big hugs x x.
Angie I agree that we have wasted enough time on this and should go out there and do things. I think it takes a while to build up steam and confidence. I think me will come back when I have enough hair and my fat steroid face has gone, so I don’t look like a victim of something. I don’t enjoy open access to my health problem because of my very obvious differences in appearance. I guess the wedding plans will be the start of you moving back in to planning for the future mode. Can’t think of anything better. Hope your energy levels rise a bit soon. Nicky I was hoping to hear that you had the time of your life in Paris, so disappointed for you that you have something else to contend with. The only good thing I can say is that my friend loves the beta blockers she has for high BP as they make her lose lots of weight with no effort. I am amazed that the cardio team don’t consult with oncology but perhaps that will have happened when you see them again. I expect they just wanted to make sure you were stable at the time and not in danger. I had to have an ECG before going on epi, did you have one? If you do a search there have been a few people who have had heart changes.Kirsty had that problem too, if you remember. I have been skimming my Bc book but can’t find anything useful to quote, sorry.It could very well be the after effect of chemo rather than the Femara, especially as you have started to do more. The sitting about on chemo might have masked it. Anyway I hope they come up with a safe solution for you, that gives you protection from the Bc hormones too.Sock it to them on Friday and get some cross dept conversations going. Good luck, let me know how you get on x. I certainly don’t begrudge you any treats at all, go for it. We had no snow, just a short hail storm but one of my daughters who live 3 miles away had 1 cm of hail and was out with her dogs when it started. She was in hysterics about how funny it was as her partner had no hood and has no hair! Have a go with the socks. I am every few days and it is helping.
Bevy hooooooooooray are you done and dusted? I hope so, congratulations and stay strong through the next set of side effects. I am expecting mine to be worse and preparing myself. Julia I am on a countdown, how about you? I am getting very excited about it! Hope your cold is better now. Joanne please let us know how you are x. Kirsty are you ok now?
Lorraine have you found a new outlet for your books yet? Some of the Amazon book sellers would probably be interested or maybe start your own internet shop on ebay? Take care everyone. By the way did you all get post chemo blood checks to look at your Hb, tumour markers, white counts, etc. Apparently we do at our unit, make sense.
Love
Lily x
Hi: Am trying to do a proper catch up, so here we go:
Lily: Glad the itchy seems to be getting under control. Yes, I have pills until 25 Nov and then I am finished – champagne with neighbours that night. Am having my scan and planning for rads tomorrow at 4pm – a bit early since I’m not starting until Jan but thought I would get it out of the way.
Lucky Bevy – all done, just get thru the side effects and you are away. Forgive me for not remembering all your info, but what have you got from here?
Lisa: hope you are feeling OK now and will make speedy progress after your op.
Nicky: Having had a trip to Paris you now get to pay! Palpitations are awful, I get them due to my tachycardia which I have had for 30 years but not serious enough to require medication. I have noticed that they have got a bit worse on the chemo, like waking me up at night but not so bad I need to do anything about it. Have to have heart scan before Herceptin as that can affect your heart, and three monthly scans whilst on it. Do you think we will ever get away from the bloody hospitals???
It is always the case that one bit doesn’t talk to the other – you would think by now they had the licked. I mentioned earlier that I think my chemo nurse had told my Prof that I was determined not to start rads until after Christmas and New Year. He just said we would start in January because it was no use doing it in bits and pieces. Needless to say, I didn’t argue but it will be interesting to see how we get on tomorrow.
Am working today having had good night out with couple of girls last night with Kathy’s OH doing the chauffeuring. Super pub in Long Itchington (near Rugby) – great fillet steak, huge chips to die for, Lily, and super wine at great prices. Can’t beat it really.
Keep well, and enjoy the sunny if cold weather.
LOL
Julia
hi everyone
oh its soooooooo colddddddddddddddd! im sitting with my coat on while i type. (put the heating on now so should warm up soon.) its comical really because in 5 minutes everything will be coming off when i have a heat surge.
vertangie
thanks for the kind thoughts about my sister. she is dreading the chemo because she saw it made me sick, but i have told her, everyone is different, and it depends on which treatment they give you. she has been having some trouble with her bowels and since she was operated on in that area, she is scared of pushing incase she damages herself. ive been feeding her up with sweetcorn seems to have done the trick.
lily 2000
glad yours seems a happy house at the moment, my hubby seems moody, and its harder too stay positive when hes like that. but i do have some fun and laughter with friends, and other family members. (just wish hubby and i could share some) never mind maybe one day soon. so november is the time for you to finish treatment, you will have to save some fireworks for then. i havnt got a lot of books left at bookshop, only few religous items, and cards. so i will perhaps just get rid of them to the churches. we do have lots of giftware at home from a previous business, but it doesnt seem to go on e.bay, and my computer is playing up anyway. so it would make me more stressed. anyway things will sort out one day, we just have to believe.
Nicky 08
so glad you enjoyed france, but sorry you have problems with your ticker. i had the same feelings after chemo, and they gave me a heart scan, not heard anything so i presume im ok. and it as gone back to normal now, so i think maybe your’s will too. hope so.
take care everyone, x