Bev… I hate the stuff but really live yogurt (easiyo’s brew your own at home stuff is the best) will basically repopulate your body with good bacteria which will kill of the candida which is what causes the thrush. Much better than constantly trying to suppress the bad stuff.
hi everyone
nicky 08
so sorry you have the trots, (i wonder where that name came from?) anyone know? my sister has been having trouble with her bowels and she has had trouble keeping anything done for over a month, she also has lost loads of weight, but i think id rather just try cutting down. and im not really giving myself a hard time, just think my weight is creeping up to quickly, my diet today
cup of tea
porridge
cappucino ( and cake eaten with my eyes but not my mouth)
sandwich, crisps and cuppa
salmon, brocolli, jacket, parsley sauce
tangerine, pineapple
small yoghurt
miniture choc bar.
1 advent snowman
1/2 ham sandwich.
cuppa
fancying a steam pud with custard though, hmmmmmmmmmmmm
my sister starts chemo tommorow, she is having it through drip, takes about 2 hours and as to take some pills home which she takes everyday for two weeks, i hope its not too tough for her.
lily 2000
hope you recovering ok, been writing my christmas cards wrote 3 boxes up to now, and still got to do family, and neighbours. ive been adding a stupid joke to some, for instance.
what do you sing at a snowmans birthday party? FREEZE A JOLLY GOOD FELLOW. couldnt find anything better, maybe i’ll get some sent me next year could do with a laugh. i also brought some christmas cards with cds of christmas carols attached they were only £1 from the works. and brought some small gifts to give to the chemo nurses, ive decided not to buy chocs cause they get so many. hope you managing to get organised for christmas, are you seeing the grandson over the holidays. my eldest son is staying christmas eve, with my grandaughter, im looking forward to that. i forgot to get my 13year old is advent calendar and the shops i visited today, had ran out. so ive got chocolate snowman and santas stuck on the kitchen tiles with a number and christmas scene on them and thats his advent calander for this year. (not exactly what he wanted, but hey its better than nothing. tommorow i plan to start the decorations, because my hubby is working everyday upto christmas, from thursday. not that he will be doing a lot, but i can get the mess out of the way and then we can relax.
everyone else, take care hope you managing to get some rest and relaxation with christmas looming.
take care x
Hi what happened
Hi,
just had something weird come up on my post about Electricity, weird or what. So now I have lost my actual post! So brief version is feeling ok but chest still very tender. Angie and Nicky hope you feel better soon. Nicky I think the cereal and milk might be the worst culprits as I rad the trots frequently triggeres lactose intolerance, and then goes afterwards. That def got me. Still struggling to get my taste back too Bevvy, mine is like 300 licked envelopes - yummmmmmmy!
Lorraine wish your sister luck and hoipe it does not bring back bad memories for you going back in there.
Write more tomorrow
Lily x
Waah. no time, real life back with a vengance here…
Lorraine. Hope the chemo works for your sis but doesn’t make her feel too bad.
Lily… ouch, hope it heals fast.
How re you all managing to eat so much do far today I’ve had a farleys rusk and a satsuma and I’m full! must be this cold.
Angie
Hiya all, tahnks for your posts, feel much better now funeral over. Ouch Lily sounds painful, think they would have had to pin me down Im such a wimp!! Nickey re trots, hope its better soon, nothing worse, started a diet on Monday and overdone the fibre which isnt good when you have a 1/2 hour traffice delay on way to work! Angie, hope you are feeling better, suffering with cold too but unfortunately I tend to feed mine!!!
Well decided monday was a new (ish) me, more positive (just hope this isnt a bad idea incase bad news coming), my dad came to pick something up before work at I was at the door with it at 7.20am, dressed for the freezing weather and dragging the dog out for a good walk before work. Its day three of tablets and tyring to get my calcium in and keep bones moving - its wiered waiting for the side effects to hit in
I’ll give you my diet for Monday as yesterdayw as the funeral and the wine was flowing and afternoon tea sooooo far too embarassed for that.
Day 1 - no booze :-((
Granola with dried fruit and skimmed milk
youghurt
Green Tea (yuk)
Satsuma
Brown roll with ham
Pasta with chicken, bacon and peppers (homemade I add) and roll
Granola
Feel good with that but boy did I make up for it yesterday!!!
Heya Lisa.
Glad the funerals over, hopefully that’s the last one any of us are doing for a really really really really long time.
Careful thinking there’s more bad news coming, don’t let this year make you scared to live your life. I can totally understand, I won’t be happy until those ovaries are gone (how’s the recovering by the way?) but on the flip side reports are out there that people on parp inhibitors who are BRCA are doing really, words like “complete remission” and “virtually no side effects” are in those articles and that makes me happy 
I decided to just go back to bed for 4 hours this afternoon. that was the right decision as I feel I can cook and eat now, my homemade dead easy but super dooper minestrone is about to go on.
Here’s the recipe for those of you wanting to diet, get the vits and not give up flavour.
veg stock (I always use a tin of baxters beef consomme instead though).
fry finely chopped onion and bacon (you can leave out the bacon but why would you, it’s the flavour LOL)
add teaspoon of sweet smoked paprika
add diced veggies of any kind (courgette, savoy cabbage, carrots, potatoes etc) and saute for 10 mins.
add water to just ocver veggies and leave to simmer gently until almost all the water is absorbed (about 20 mins for 4 person amount of soup)
pour in stock (or consomme and little pasta pieces (or snapped spahetti)
simmer gently for 10
Scoff with bread.
Hungry… must make soup now.
Angie
I’m Going out to play in the snow, life can be good can’t it
Angie
Hi,
well not a single snowflake down here in the South East, lots of rain early on and then sunshine for a lot of the day. Hope you 2 up North enjoyed the snow and weren’t too cold. Had a look at my scar today and very neat and clean, about 2 inches longer. Thankfullt I am not aware of it unless I bump against something. Lisa I feel a wuss after you hardly said a sqeak and had a much bigger op. I think the new start is a brilliant idea and well done for being so positive. I am trying to start thinking about seeing rads finishing as the end part for me too. I know sadly it isn’t always the end, as some of our good friends on here know. But I also think we should go back out there and not keep thinking what if. What if, may never happen and if fate decides it will, then that is even more reason to have a great time while the going is good. No fat ladies singing on here!!! So I am with you on this one, twining after so long again! I am glad you got through the funeral ok. I start my tablets tonight as I decided not to start them just before the op. Hoping for no side effects but still freezing, so warming up a BIT would be good and save on heating. Angie - great to see you being your normal positive self and looking at the good research and things available and coming up. I do feel for you and Lisa having these extra things to worry about. I am still not sure what I will do about my girls, onc says they can’t have mammos till they are 40!! Might go to have a chat with one of the BCNs who deals with these things and see if she thinks it is likely, consequences, etc. Keeep me posted please as I am basing a lot of my decision on how you, Lisa and Nicky get on with relatives. I talked to my friend, who also had 4 babies and we felt that we would not have risked having all our children if we had that hanging over us. So sad to look at my last 2 and think I would never have had the pleasure of having them. Such a hard decision. Nicky are the trots easing up yet? Just wondered how your hand was now and whether you have a cardio appointment too. You have a lot going on again just now. Are you at home or still trying to work between appointments? Bevvy my mouth is starting to improve, how is yours? Lorraine how did your sister get on with her first chemo? It does make or break your confidence according to how the first one goes, so hope it went well and that you were ok too, going back in there. Any news on the job yet?
I still have acid reflux but not until the evening. Bones are starting to appear in fat chemo face and hair need a cut!!!
I saw my GP today who tried to give me another 3 months off after telling me I looked really well? I have said I need to go back to work as pay so low. No incapacity benefit so far as they are disputing one day, as they think SSP was one day out. I suggested they could pay me the rest but they cannot do anything so I am on the backburner again, they owe me since mid October now. Are you all claiming it, as it is an automatic benefit and not means tested? Not very good, about £64 per week and you don’t have to be working either. Tank top terror invited me in the lair to test some bottles of his damson gin, I don’t think so!
Take care
Lily x
hi everyone,
cant stop long tonight, im shattered (done too much today i think.) i had to sit with my sister early today 7.30, because shes just had her chemo, and hubby didnt like leaving her alone. she isnt being as sick as i was, but she has some awful feelings in her finger tips, like needles she says, and when she drinks anything cool she feels like her mouth is frozen, (anyone had this, and how long does it last shes asked me?)
i then went grandaughters nativity and maccys for lunch, little walk around town and then home to put tree up. then baked christmas biscuits and got all decs from loft, and started putting them up. i think now im going to bed, ready for the 7 o clock stint at sisters tommorow. take care everyone. speak later. x
Hi,
Lorraine, one of the chemo drugs is sensitive to the cold. The old chap sitting next to me , who has bowel cancer, was wincin with the veins in his arm when the air con came on in the unit. He had to have his whole are covered up. Also another guy with the same told me he cannot hol metal and has to use plastic cutlery while on chemo. What is she having? Taxol causes pins and needles sensations. It is called neuropathy and although my book says it is reversible, unfortunately it is accumulative over the doses on that drug. This is from abook so might be different for others. I would phone the unit as that has come in so quickly as they may or may not want to adjust her next dose. Sorry to hear she has that. I bet the nativity was a tear jerker. What did your Grandaughter do? My little chap is in one at 3 years old but apparently they keep forgetting the words. It is on a rads day so will be touch and go whether i get out to see it. I will be so disappointed if I miss it, might ask for a change of time that day if they let me. I wish my tree was out the loft. Hope she feels better soon.
Well I certainly said I want a positive start to the new year at the right time. Got a call just now to say my eldest daughter is engaged!!! They are giving me time to grow some hair before the wedding apparently. He is lovely and I have been hoping this would happen for a long time. Hubby is talking money and bills already! I am not to tell anyone in the family so had to blab on here or it will burst out before I know it.
Lily x
What wonderful news Lily great to hear good things that are happening let’s all hope 2009 will be a good one for us. (I think we all derserve it) I am very jealous your hair needs cutting! I am desperately rubbing my head every evening (look like a fat budda) trying to encourage its growth as I can still see most of my scalp. Still that is a side issue really isn’t it. I am also very jealous of all the grandchildren talk strangely that was the first thing that came into my mind when I was diagnosed “this can’t be happening I haven’t got grandchildren yet” patience hopefully one day. My mouth is still disgusting and thanks Angie for the advice re the yogurts I have bought some and will give it a go.
Lorraine so sorry to hear your poor sister is having a rough time if it is any consolation thinking back each session seemed to have a different sife effect attached to it so hopefully that wont be ongoing it must be so difficult for you coping with supporting her when you still need it yourself good luck.
Lisa hope you are well and recovering from all the added stress you have had to deal with.
Last radiotherapy today whopee!!! I haven’t felt too bad just a bit more tired and thankfully my skin although a little red has not caused grief at all I have use aloe vera on it at night and I think that has helped. Saw the Onc yesterday who doesn’t want to see my until mid Jan and then I will have a follow up with the surgeon next June!
seems so weird after all these months of treatments. He did suggest I see the Lympeodema nurse again though as my hand and arm are still puffy not massive but not as they should be so I am hoping this is post surgery, post chemo post rads. Keeping my puffy fingers crossed.
love to you all and have a good weekend. (can’t even celebrate properly due to the disgusting mouth! typical I was so looking forward to a glass of bubbly)
Bev xxx
Hi All: Am not in office this week so shall have to put up with slow old dial up at home.
Lily: Thank goodness that is all over for you, have been wondering how you are. Don’t think I would have wanted to be awake for all that, however glad you are feeling OK.
Angie: How is the snow? We have just had a thin covering and ice but have beautiful blue sky sunny but freezing morning today, may even take dog out and break in new shoes. Went out with her on Monday and stepped on what I thought was wet road, it was ice and my feet flew from under me and I landed on my back and took a lot of the strain on my arms and right leg – ache like hell. So bought some new Timberland shoes in sale £43 instead of £70 – at least they have good ridged soles which should help. Don’t start rads until 5 Jan – they wanted to start before Christmas doing a couple of days here and there but I told Prof that I didn’t want that, wanted to have a rest, he said OK and we will do the 15 in three straight runs – Oh Joy but at least I get time off for good behaviour!!!
Interesting to see what we are all eating – I can’t do milk gives me acid but can do cream – oh yes!
Yesterday I had tea, two eggs on toast, green tea halfway thru morning, lots of water, lunch of bacon sandwich, more water, tea, shepherds pie with peas, Blacksticks Blue cheese with a bit of crusty bread and rather nice red wine. This evening we have a bit of a do in the village so no doubt will eat and probably drink too much. So far have had tea, two weetabix softened with hot water, blob of double cream and spoonful of manuka honey, now on the water.
Had my real hair cut yesterday – it is about half inch around sides and back but still thin on top. My lovely hairdresser tidied up with straggles, gave me lovely head massage – can you just carry on all day and I will sleep?? Said it was about time I paid him some money as he has been looking after the wigs for me, etc. Said no way until I have full head of hair and we will talk about it then. Now how nice is that? He should be coming to our lunch on Sunday but it is his grandson’s birthday so can’t make it.
Lisa: Glad you are feeling better now the funeral is over, hope that day was sunny not grey and grim.
Everyday: Interesting about your sister and her fingers. I have finished the chemo (25 Nov) but have had tingly fingers for ages. Mostly when I am not moving about – like reading newspaper or book, driving or during night. Started in right (surgery) hand but now in both, BCN said not to worry but keep a watch. Also have palpitations but have had supraventrical tachycardia for about 30 years so am not too worried but will have to see what happens when I have heart scan at end of Dec as they want to give me Herceptin – not sure.
Anyway, everybody take care, have a great weekend and let’s hope Christmas is good for all of us.
Love to all
Julia
Heya Ladies.
Woohoo Lily, congrats to the daughter. I get the impression you like a good wedding so thrilled for all of you.
Bev… BaBadaBaBA BAAAAAAAA. And she’s roasted and done, well done for hanging in there. Try skipping on the way out (so long as it’s not icy) it feels great
Julia… Youch, a friend in the village did exactly the same thing. This is what arnica cream was invented for I highly recommend using it. The bruising comes up much faster so it looks like it’s worse than you thought but then you heal much faster too rather than feeling tender for days and days.
We bought me the best walking boots we could find in Keswick which is the outdoors shop capital of the UK, so we ended up spending over £200 of 1 pair of boots, Tommy convinced me it was worth it. He and I have been stomping around in snow and ice and only had a couple of teeny skids so far so these vibram soles really are all they’re cracked up to be I love my Zamberlans.
Right… have a great weekend everyone. I’ll be working again (hope long is it going to take to catch up!)
Angie
Hi girls
Must say I’m still feeling the after effects of my rads. Therefore I’m confined indoors as I can’t risk being away from the loo. This is the worst I’ve felt all year and after all I’ve (we’ve) been through it really is the pits. I can’t wait to get 2008 over with and am literally counting down the days. It would be nice to celebrate the New Year with some champagne but even that’s off limits due to palpitations! So sorry to be a grumps but I cannot believe how fed up I am whereas I’d hoped after chemo to have bounced back up. I feel chemo was a breeze compared to all these additional life altering problems even though we all know it wasn’t.
Well, I get to see the cardiologist on Monday and although I need things sorting I’m really not looking forward to what he prescribes me as, yet again, there are side effects to deal with. Grrrr!
Anyway…
Lily - how fantastic - a wedding on the cards. Something to really look forwards to and put all this behind you. Hope you are healing, and feeling, well. When do rads start? next week?
Lorraine - is it Christmas in your house yet? Sounds like it must be. We’re never that well organised although that’s got something to do with my eldest daughter’s birthday being on 10th so we don’t do anything before then. Hope your sister is comfortable and coping Ok with the chemo. Don’t exhaust yourself looking after her though - you’re still in recovery as well. I meant to ask how your tai Chi is going? I did it about 10 yrs ago and it’s a lovely gentle exercise but be warned it is the most ancient form of martial arts and each move represents a kick, punch or block! However as the healing form is the usual one used you should feel real benefits plus it’s a good toning exercise as you have to move and support yourself so slowly.
Julia - hope you are OK and enjoying some well earned freedom away from hospitals and hope heart is OK for any other treatments.
Bevy - hope yukky taste goes and you can enjoy some champers. I’ve still got 2 bottles in the fridge I’ve not been abe to have since I finished chemo - it’s not fair!
Lisa - hope you are feeling good and sounds like you’re positive about moving on - atta girl!
Angie - keep stomping around in those boots. It must be lovely where you are especially covered in snow.
To anyone I’ve not mentioned, and all I have, have a great weekend.
Nicky xx
hi everyone
just a quick post, i need an early night, still feeling tired. after christmas preparations.and were only half way done, but at least decs are handy so i can do a little when i feel less tired. problem is, i cant rest at moment knowing it needs to be done. i went my sisters early this morning, she isnt doing too bad, but the feelings she gets are quiet peculiar to say the least. and it is because shes sensitive to the cold as well. at the moment. we are a right pair, she needs the fire on full, and im sitting their stripping off cos me hot flushes.
lily 2000
i managed not to cry at nativity, but i felt so sorry for my grandaughter , because she has a cold and her nose was running all the time, i just wanted to go and wipe it. she was a sheep.it was lovely she is only 3 as well, one little girl kept talking to her granny in the audience, and telling her not to sing to the songs. it was funny. its great news about your daughter, youll be able to buy a hat. i couldnt sleep last night, i kept thinking it was time to go around my sisters, cos i need ed to be up for 6.30. so tonight im off for an early night.
nicky 08
thanks for your concern, im thankful that i can at least be of some help to my sister. and i will just rest imbetween when i can. saying that im always out and about, but i did refuse a trip out today with a friend, because i needed to rest. sorry you feeling so rough, things will get better for you soon, i have a feeling.
FOOD DIARY
2 Toast cup of tea
2 tangerine.
lasgne, 2 slices of bread
small yoghurt
cup of tea
1 biscuit
small portion curry and rice
mini milk lolly (needed it to cool mouth down)
about 5 mini eclairs or maybe 6
packet of crisps
slice of bread
not a brilliant day, today no veg, and too many calories.
good night everyone. have a great weekend.x
i,
well went shopping all day with daughters one and three and boy did we buy a lot. Still almost all my Christmas presents are bought now, just a few edible items to get last minute. I am an absolute Christmas addict and just get so carried away. My little Grandson had 64 presents last year, so I have tried to be a bit more sensible as funds lower this year. My favourite is a scooby doo fancy dress costume complete with collar and hat like his head. Not very good if he needs the loo though!! I ignored my ethical dilemma and bought everyone jumpers in Primark as they are such good prices. I know why. We had an engagement spudulike lunch!!! Such a nice day. I have started my nolvadex tablets and nothing yet, so waiting to see how I react. Hope it will be mild as I will be on them for at least a year. Bevvy hope your hair starts sprouting, it is that rotten epi that eats hair to under the surface of the scalp so a bit of growing before it bursts through. Although my Grandson was a surprise to us all, my thought was at least I will see one. I had no idea why I reacted so oddly until this happened. I was also trying to join the screening programme but got turned down. Maybe I forsaw this.I can’t remember, do you have children? Congratulations for finishing rads and thanks for the positive input about that too. I start on Tuesday. Julia, hope you are ok after your fall, sounds painful. I am good and at last can take the bandage off and shower tomorrow. I can’t drink milk either yet. Tastes are starting to come back but slowly. What has happened about the herceptin debate? It seems strange with you being hormone positive. I was told you get tamoxifen if you are over 100 out of 300 on the scores. I was 130 so get it. good luck with the last stretch. I finish rads on 31 Dec, which gives me some recovery time before back to work. I think it is better for me to have that time at the end as schools are hard work. Thanks Angie, we can swop wedding tips. She wants a big venue so it will be a big dip into the savings I think. How are your plans going? Exciting time for you. Nicky I had a feeling you wre suffering badly. Try to keep your chin up through this rotten bit and think that at least the big needles are gone now. Really really hope it eases soon and that your heart calms down too. You have a lot on your plate again suddenly so rest when you can. Hope to hear it is calming very soon x. Lorraine off to bed eraly with all these early mornings. Hope you are both ok. I love it, little people dressed as sheep, so sweet. Mine will probably pick his nose!!! Lisa have a good weekend.
take care everyone
Love
Lily x x
hi girls
just wanted to pop back to see how you all doing and to say a very big thank you for your help to me. Often think of you all and hope things are going as well as can be. Love to you all and thanks again
Lee
Thanks Lee for thinking of us all and I hope all is well in your home.
Lily I have two children a 24 yr old daughter living in France so we don’t get to see her much but she is happy so we are to. She started with doing a ski season 4 years ago and has only come back for short visits and our 26 year old son lives with his girlfriend who is lovely so we are hoping for wedding bells in the not too distant future (not sure they feel the same way) I am going to see my friends grandaughter’s nativity next week which I am looking forward to as it will be at the school I worked in for 10 years as a teaching assistant. Regarding the Stat Sick pay that is all I have received from the beginning of this journey as private companies who I now work for only have to give two weeks pay so I shall be looking forward to going back to work although that wont be until after christmas now as the GP wants me to wait until then.
Lorraine hope your sister is feeling better what a terrible situation what with you still trying to recover and now your need to give support , thinking of your both.
Nicky sorry to hear you are still struggeling so unfair after having got through the chemo it really is the pits.
Angie thanks for the congrats on getting through the rads the weird thing is that when I came out instead of feeling upbeat I got to the car and burst into tears it was a bit like the valve bursting off the pressure cooker (where did that come from and why?) thank goodness no one was with me so I just blubbed all the way home. I guess it was the relief of getting to the finishing line. I didn’t know I had any more tears left in me. In the future I only want to cry with happiness.
We had been invited out tonight to a 50th birthday party but I just don’t feel ready for that kind of socializing yet not sure why but still feel too vunerable with my new fat body and funny wig I think I will need to wait a while and just do smaller social things have any of you felt like that?
Anyway love to all and hoping your all have a peaceful weekend.
Bev x
hiya, all, still limited to tiny spare lap top till monday so dont mind the mistakes. had a very frosty few days here and defo realising how much my family have been around for me, my dads family have always been there but not really close but we are now and having some really good giggles. Well, the rat was in hiding but havent enough hair to go without, even walked into a pub with scarf on which is a new one for me.
Of out this afternoon just for a couple with my friend who’s dad died, its her b.day and ive persuaded her to come out usually other way round as I hate my new figure and having to don the rat but needs must and need to start enjoying myself and if I can remain unscathed by the bone scan and mamo in January I will feel a l0t happier and a little breathing space to make some decisions about another op and which way to go. Off to see my 4 yr old only niece in nativity on tuesday, she’s a pengiun???, she does make me laugh though, she told my mam to “take a chill pill” yest and I cracked up - goingto be a really wierd xmas this year with my aunt dying mam will be really sad but got everything crossed for all our results week of 15th Dec. Pills 6 days in and so far not too bad, few headaches and my limbs aching a bit but nothing to complain about but wondering when they hit in? Felt it a bit at 1am when was putting the last bauble on my black tree - not being a mizz just colour co-ordinated - honest!!
Lily - congrats on the engagement, nothing better to make you happy, even if you do have a little blub!! Dont be turning down no damson gin!!! you should maybe ask about the mamo’s for daughters, even without doing the genetics they said would start me on then at 45 due to family history.
Nicky - hope you pick up soon, I know my friends dad suffered more with rads than chemo- im sure you will brave it out and hoe you start to feel better soon.
Angie - will have to have another read re parp trials, those words are very encouraging. Soup sounds yum too.
Everyday - thoughts go out to your sister and im sure you are being such a great help to her.
Bev - big congrats 0n finishing the rads, still use the cream, i still have some dry patches.
Julie - youve made me really jeleous re the real hair cut - roll on
love to all for a good ish weekend
xxx