chemo kicks off 20 May - any good buddies?

no results yet - they joys, had two nurses with needles armed and prodding to get a vein which too about 20mins and various attempts! went back for the scan and the machine had broken down and had a rush on to get to carlisle for the scan as no way was I having radioactive injection again!! Hoping for results before end of week and got really worked up, fingers crossed.

Sweet re torch and hope you have a lovely birthday tomorrow.
My hair same, bit thicker but no more length!!!

xxx

Hi,
happy birthday for tomorrow dear Angieeeeeeee, happy birthday to you x x x Glad you have a romantic soul mate to brighten your days too. My hair is just getting thicker too, which is good as still far less than other people. Mind you, I shouldn’t take it for granted as it made an appearance after being trashed by chemo. Hair is far less everywhere, which is good and hoping it stays that way. It would be nice to take some benefit away with me.
Lisa the weekend sounded good until it gave you the blues. Some alcohols do that. I know you are anxious about the scan, so was I when I had mine. I think you have to just try to take the view that if it comes back clear you can relax and it will not keep going round your head, worrying you all the time. If you are unlucky and I have everything crossed that it will be good news for you, then they can start sorting it. Big hugs and thinking of you. I found mine on 7th January and ignored it for 3 weeks. Seems a long time ago now doesn’t it? How can so much change and how can we go through so much too, in such a short time. We ought to have medals. Keep your eyes fixed on Christmas x.

Well I did my duty and reported the ‘public shower’ after I checked no-one else was in there.LOL They were shocked and guess what it is the poor cancer patients of Colchester who appear nude! Someone should be spoken to about it. If I see anyone again, I will ring their local newspaper about it. When did any of you get marks from the rads? I am on day 5 today and not a squeak so far. Is it the 2nd or 3rd week it starts? Bought myself a very flash black and cream silk camisole as they say silk is as good as cream to heal. Will make a change from my spotty vest I bought after them telling me off for wearing a bra. I don’t see why not, if you have no skin problems. It has not enhanced my pear shaped profile unfortunately!! I might have to brave the huge spanx fat squashers that someone kindly sent me as a gift while on chemo!!! Ok I get the message. The hospital forbids any dieting as say very unwise while on rads. I was surprised to find my dry mouth coming back but they say rads cause dehydration so need to drink much more. It took me right back to all those horrible cures they kept giving me, remember slug tongue and lard cream on another occasion. I am getting into African snail status again, but not sure if it is the 50 mile journey each day, the rads or getting up so early each morning. My Victor took me today, and he wanted to go on to work in London, so said we had to be early. First he announced we would leave at 7.45 and I said yes but thought I would actually malinger in bed longer. Then this morning he has 7.45 fixed in his head and starts to hurry me along to be early for the early start. Nature called and he sat in the car waiting and I sat somewhere else!!! We got there before it even opened and had to wait in the car park!! He is not back on duty again this week so I can spend a little longer in bed. I keep waking up during the night and then I am out for the count when my alarm goes off. By the way, I also got a letter ordering me for a ‘pathways to work interview.’ Bearing in mind they know I have a job to return to, we will discuss For an hour it says!!!) This is the agenda-

the steps to get me back to paid or voluntary work (I have one)
training to get me back to work (I don’t need it, I have one)
programmes to help manage my health condition (Must be a miracle cure for me then!!)
job brokers to help me look for work (I have one)
trying other types of work while on benefit (I won’t be, I have a job)
tax credits to top up low pay (not with us both in full time jobs I think)
other help??? (no clues what this might be, maybe help to find a job)
Possible referral to disability employment advisers (not needed)

Not sure I am going to be very helpful at this interview. Oh and they spelt my name wrong, so might just ring up and say this is not me!! The interview is about a week before they know I plan to go back to work. Another con to pretend the crap Gov policy is getting people back to work!!
Take care, thinking of you all
Lily x

Hi all
And a very big Happy Birthday to Angie - have a great day and forget any ‘other’ things that occurred about now. I love the torch present from Tommy - what a sweetie. Also thanks for the link, I will look it up but may save it for her birthday as I’m Christmassed out for her - big thanks anyway.
Lisa - don’t blame you for making sure you got the bone scan done even if it meant a mad dash, you certainly don’t want to be radioactive for too long. Sorry to hear you were down after the weekend. Not surprising though with everything you (and we) have been dealing with. Plus you’ve got more medical stuff to contend with in the New Year - believe me I know how you feel!
Lily - hope rads are going OK and you got a lie in today. You may not get too sore, everyone reacts differently. I didn’t feel too bad until weeks 5 and 6 so you’re finished way before then anyway. You probably are getting tired because of the travel as well. I had to do about 70 miles each day for 6 weeks and it took it’s toll on me and my poor car!
Unfortunately my palpitations haven’t stopped completely and after a very small amount of wine on Sunday they were back yesterday. I contacted the hospital but they still hadn’t typed my notes up (what?) so no info had got back to my GP yet. They will call me later in the week and I might just go and pick the letter up and drop it at my GP’s who can then tweak my dose (I hope!) Otherwise looking forward to a miserable Christmas and NY. Hope you interview goes well and you get a job! Shame they don’t listen as it’s wasting your time and theirs.
We will have to sort out a way of keeping in touch as I know most of you won’t want to be on here all the time. Unfortunately I will be so I can keep in touch with any of you who will dip in and out. My daughters have banned me from Facebook as I’m too old! Most likely they don’t want me to read about what they do! Maybe email instead?
Must dash now as have to catch up on everything I didn’t do yesterday whilst waiting for my heart to calm down - grrrr.
To everyone else, hope all is going to plan, Christmas and otherwise.
Take care
Nicky xx

Hi: I am doing an extra day this week as my job sharer is poorly – How shall I spend my massive day’s earnings - at Jaeger or M&S? Big decision.

Bevy: I’m not happy about Tamoxifen as it supposed to be for pre-menopausal women and I am seven years post-meno. Also, having had one menopause I don’t want another one, thank you. Neither do I want the weight gain. I read the piece in the Mail last week about AI’s which supports my argument. So I must look up the research later to get my arguments straight. Seeing my onc on 9 Jan to discuss future moves. Had a long chat with my BCN on Friday – one of her regular calls, and let her know how I felt about the various future options, hopefully she will tell the Prof and I won’t have to do too much arguing.

I am having a nuclear scan on 30 Dec to check out my dicky-ticker before discussing Herceptin which I am also not convinced about. I already have supraventricular tachycardia which gives me palpitations mostly at night and, having read stuff on the herceptin thread about women having heart failure even having had successful MUGA scans, it don’t cheer me up!

Lily: glad the rads are going OK and your pills – let’s hope it stays that way. As you know I am not starting the chip fryer until 5 Jan – can’t wait!! Glad you are healing up well.

Definitely join the awkward squad with the dimbo’s re your money. When I was made redundant about four years ago, I applied for unemployment pay (or whatever they call it this week) and whilst I didn’t mind telling them about my resources, they wanted to know all about my OH’s pensions, savings, etc. I told them to s*d off. Bloody annoying having paid into this fund for 40-odd years and never claimed a thing, to be treated like a crook. Shan’t make any comments about what you have to be to get money out of this bankrupt country, but I am sure you can fill in the blanks! Love all the topics for your interview – what a waste of money, not wonder this country has gone down the tubes!

Loved the bit about the flasher – mind you a friend of mine once said “see one you’ve seen them all – after that it’s only a matter of dimensions” Ho Hum!!!

Nicky: hope your hand is getting better, so far I have not had any lymph problems but do measure my arms and so far the op arm is 1/4" bigger in circumference than the other one. My onc always gives it a good going over each time I see him. I have noticed that all my skin looks slightly darker than pre-chemo – almost as if I have a tan.

Also like the bit about Arimidex giving you anorexia – oh joy! Friend has been on it for about 12/18 months and she was already slim and gorgeous and 65 (if she wasn’t so nice I would hate her) and has put on a couple of pounds but I think that is probably age although she plays golf an enormous amount.

I think we are all getting to the F*** off 2008 point. I was talking to a girlfriend in Saffron Walden yesterday – she has also had a s**t year not for health reasons, but still very difficult. I remember back in Feb after dx walking the dog in the winter sun and thinking “I am not ill, I am not in pain, I am fit and healthy and they are going to carve me up and then make me ill to make me better!!” Luckily the op was OK, recovery took a while and then the chemo was easy, so it has not been as bad as it could have been. I think it is the years to come that get to us all, knowing that we can’t just walk away from this and go back to normal.

Happy birthday Angie – have a great one. Also liked the torch thingy, what a nice guy!

Got a bit of shopping to do at lunchtime and then I think it is only food left which will have to be next week. I finish on Friday and then come back on 8 Jan – halfway thru first week of rads.

will check back with you all at the end of the week with mega Christmas good wishes.

Julia

hi everyone, keep smiling santas on his way, maybe well have big parcels this year, i know wed all rather just have our health back, so we need to keep praying on that one. ive got myself a job, start thurs, in a nursery, im so excited (even though im exhausted think i might have a cold coming,) but still i have 2 days to rest, LOL.

i will talk more later cause im really busy at the moment and on my way out.(BANGgoes the rest!) and HAPPY BIRTHDAY ANGIE, ENJOY THE DAY. remember today is a gift thats why they call it the PRESENT.

god bless you all.

Hey Lorraine
Well done and what good news. Bit of a rush though starting on Thursday? Bet you’ll love it with all the little ones. Rest up if you can until Thursday then it’s straight in to Christmas decorations I guess?
Nicky xx

nicky 08

thanks nicky, i was hoping to start after christmas but the girl who runs the nursery is having bad problems with her back and she asked if possible could i start this week. so i am trying to rest up a little. hope you ok.
best wishes to everyone else, lily i wish i could think of loads to say like you but my minds a little tired at moment , so take care everyone, and healing thoughts to all of you

x

Hi,
Lorraine congratulations on the job. I am sure the little people will bring you much joy and you will come to love all of them - well almost! Hoping to hear better news on Victor as the mulled wine swamps over him. I love Christmas too and have hundreds of parcels to wrap. Very tempted to rush out and buy more, that’s tge trouble if I finish buying too early and still have the Christmas spirit raging!!
Nicky, hope you can get the palpatations sorted out before the surgeries all close for Christmas as it is a long break for them this year. I think it would be a good idea to collect the letter with Christmas post being so slow. Do you have any more treatment left to do this year? I am out of sinc with your bone things, pea brain can’t think what they are called! I am staying on here with you as I am not one of the youngens and would like to try to occasionally give back some of the support others have offered me. I will also be really pleased to keep in touch with you and anyone else here , but might not be able to post so often or so LONG once back at work full time. I don’t mind staying here and getting in the Guiness book of records for the longest blog, or moving. Does anyone have any strong views? My kids are on facebook and most of my tutor group too, who regularly try to break in and talk to my son as they don’t know why I am off sick.
Julia, you sound in good form. Shame you live so far away or we could have made a dual attack on the dept of work and pensions!! I have a slight red mark today so will see if it is still there in the morning. I am doubling my cream treatment to see if that helps. Maybe the gaps for the bank holidays will help it calm down a bit, we’ll see. I see you will be radioactive on new year’s eve, better watch who you hug! Ha ha love the flasher comment. No one to see this morning and no action taken to prevent it either! Might have to say something tomorrow again. By the way definitely Jaeger!!!
Angie hope you are to fun things tonight to enjoy your birthday.
Lisa I think you get results today, so hugs and will be thinking of you.
Bev hoping something on your unfairly long list is starting to calm down at last. it is a wonder you don’t scream with it!
Well it was rads 6 out of 15 today and my neighbour took me. I was in and out fast as early and we went to a big garden centre and I stuffed my face with a fresh cream and strawberry jam scone. It was the biggest scone in the basket of course and the biggest pot of cream. Needless to say trousers are under severe pressure tonight!! My friend with Bc is taking me tomorrow. Having all these different chauffers is so much fun it is more like going out for the day and passing the time much quicker. Out to dinner Wed and Thurs and engagement bash on Sunday so no chance of any slimming!
Take care everyone
Lily x

Hi Lily
I have the bone thingy’s every 4 weeks so my next on is on Monday. I can chose the day I have them done if I don’t need to see an onc so I choose Monday to get it over and done with. Only thing is I have to remind myself to have my bloods done on Friday so I’m not sitting around in hospital all morning on Monday (like last time!) I’m taking a card and some choccies and mince pies (no - not home made!) to the nurses who are so great but I bet they will moan about getting too many at this time of the year. I’m due some scans in a month or 2 but won’t hear just yet and, as I said earlier, I want to avoid any birthdays etc if possible as we all know that out of sight is out of mind!
I also like to give back support on this board so will be checking it out regularly but I will PM you, and any one else who wants it, my email address so when we all drift away we can keep in touch - plus I have to come and visit you and see myself on TV! Ha ha bet you thought I’d forgotten that!
Bye for now, don’t go spending too much!
Nicky xx

Hi again all: Am doing second extra day in office as sharer is still really ill – she phoned last night and sounded like a bloke - so two days to spend in Jaeger!

I’m feeling much better, hip is almost OK, just have to walk carefully and watch out for lumpy pavements, etc. Talked with Mary last night who used to be a theatre sister and then community nurse type thing. She thought that after a certain age (60!) your equilibrium and balance gets a bit dodgy and probably a class like “Body balance” would help. Apparently this is the one I looked at earlier which includes Pilates (boring), yoga and tai chi. I have been too idle to go so far but it is on my hit list for next year. My OH just says “Look where you are b****y well going and pick your ditto feet up!” Nice, what?

Mary has just returned from six weeks in Florida – they have time share there – and I didn’t really want to know about playing golf and lying about in the sun! She keeps asking us to go but OH doesn’t like long flights – might grit my teeth re flight and go on my own next year.

Nicky: are you on bone strengtheners? I remember seeing someone on here who was on them, just trawled thru but couldn’t find post. Annette, friend who had BC about 2 years ago – mast and Arimidex – is worried about the osteoporosis which can come with Arimidex. Said I would try to remember who was on strengtheners find out how and what. Is it you?

Lilly: I don’t think the lack of work and lack of pensions lot could cope with both of us but I will be there with you in spirit. Just give them hell – they deserve it!

Lorraine – congrats on the job, this will really give you a lift. Usually I work two days but have done four this week as job sharer is ill and I feel soooooo much livelier. I think if you do the “relax and don’t worry about things” for too long you get bone idle – so note above re fitness – once you are OK you really need to kick start yourself without going too mad.

Roll on 2009!!!

Angie: Hope you had a great birthday and the weather was kind to you for your walk. Nice and sunny but cold here today – and I am in the office!! Bum.

Hope everyone else is OK and making progress to Christmas.

Julia

XXXXX

Happy happy birthday Angie! hope it is a good one.

Julia quite understand why you are not keen on Tamoxifen. My onc has suggested I take it for two years by which time I should be post men. and then go on to one of the A.I. which I guess makes sense but I will continue to do some more research. I have made an appointment at the Haven Trust in London tomorrow so I will let you know how I get on.

Lily how awful nude men! wouldn’t be so bad if it was Brad Pitt or George Clooney poor loves how horrible for them. I have my tongue problems continuing and have been back to the GP for further investigation he has now taken a swab to check whether anything is growing! aghhhhh! doesn’t that just sound truly awful. I was never told not to wear a bra during rads isn’t it odd how the advice alters from hospital to hospital. Hope the skin is still behaving itself and keep slapping on the cream well o.k. maybe not slapping! Likewise totally agree with Julia what a waste of time and resources regarding the interview!

Lisa sorry to hear you were feelilng low but totally understandable and you have to try to think those horrible feelings wont last it is a grotty process you go through and will probably go through again but it will not last. Hope you are feeling better and hope the scan gives good news.

Lorraine well done on the job front and wishing you good luck and hope you enjoy having some normality back in your life.

And has been previously stated “Roll on 2009” and let’s get this horrible year behind us.

love to all.

Bev x

Hi,
well looks like we are all looking forward to Christmas and a brighter new year. Realistically I am walking straight into a 9 month review with my surgeon at the start of the year, so looks like appointments will still continue as usual. As I am on a trial, I get a lot of reviews so maybe I will get a bit more relaxed about them and not go in expecting the worst all the time!! Yeah right!
My friend who has secondary Bc has been told she will only get called for mammos every 2 years from now on. I was really shocked that they would leave it so long as she only finished chemo in August this year. Then I phoned my trial nurse and she said some ladies are only called every 3 years after BC!!! Does anyone know any more about this? We are tempted to go privately in between if necessary. My onc did not turn up this week and is now on hols, so I will finish rads without seeing anyone, not that I have any problems. They also tried to switch me to another onc, who has no sense of humour and drops bad news on you without any eye contact, so insisted I was not moved. Rads are going ok the tanned skin had disappeared this morning but came back late this evening. Chucking aqueous cream everywhere and went back to my tight vest top which causes a lot less free and easy swinging about than the silk extravaganza! No nudes to report but no signs of blocking the view either! Day 8 tomorrow - hooray over half way.
My BC friend drove me today. We both love taking someone else for treatment and scans, so we can be ’ the other person’ for a change. She was quite happy chatting to all the other Bc ladies after I joked that I seemed to have the ‘in hair style’!!! Went out to dinner tonight and I am so stuffed with lasagne and toffee cheesecake I cannot lie down! Another meal out tomorrow with my fab local friends on here. Hope all this extra weight does not affect my angles for rads!!LOL. Nicky fab to exchange emails and will not delete your big moment until you see it. Seriously any of you would be so welcome if you are ever in range of Chelmsford. I am in a village just outside but very close to A12. Good luck Nicky on Monday and also with bloods on Friday. I have to go for bloods after rads to check my levels. Met a lady today who had the short arm that I wanted on the trial and she is in dire trouble with her insides and has an ulcer from it now. She was on the xeloda tablets and says they are big to get down and lots of them each day. So I was thinking maybe I was lucky not to get them with my tummy trouble on the iv version. So much for reducing side effects by having tablets at home. I guess it is the luck of the draw as many people tolerate them for long periods of time.
Julia, 2 days!! You can afford both legs of the trousers now!!LOL. Glad your hip is improving and I see your Victor has a dry sense of humour when it comes to your aches and pains!! Tell him your 2nd husband would be much sweeter!!!
I know what is affecting my balance and equilibrium - my large lasagne and cheesecake! I do need to get back to work but it is full time or nothing so need to make sure I am completely over rads before going back. A school can be a tough and tiring place but I miss the buzz I get from teaching, all the kids and especially my tutor group. They sent me pictures of them all being silly and it made me want to be back. Next month I think.
Bev, I would be interested about Tamoxifen too. I am on it for one year probably and then switch to Femara if blood test says post men. Good luck with the swab. At least if you have something they can sort it out. I have iced my cake with aqeous cream as you suggest. Tan is coming back tonight again, but just in a curve underneath. Sadly no George Clooneys or Daniel Craigs in Colchester showers!!
Take care
Lily x

Hi girls - hope you are doing OK.
Julia - meant to say I loved your rant from a few days ago - I think it said exactly what I’m feeling! To answer your Q, Yes, I am on bone strengtheners. I get Pamidronate by IV every 4 weeks as I’ve got bone mets and this is to strengthen those areas in particular. I wouldn’t think you friend would necessarily get any IV ones as there is more expense involved than the tablet form. Also I expect they would check her bone density 1st and maybe put her on calcium tablets which I’ve read other women (on here) have had. As she is post menopausal (presumably form age rather than any other ovary shutdown) they may not do much at all, I think the oncs only react to extra medication and help when it’s younger women who have an early menopause who are at a greater risk from fractures etc as they have to deal with it for longer. However the bisphosphonates, either IV or tablet, are used for osteoporosis so it may be worth investigating.
Glad your hip, and presumably your mobility, is improving. It’s amazing how we can hurt ourselves so easily and it makes us so grumpy with all the aches and pains.
Bev - hope the mouth problem gets cleared up soon, it really drags you down when you think treatment is over and done with only to have another niggly little thing carry on. Definitely check out the Haven Trust, I’ve heard great things about all the lovely soothing therapies they use. Only problem for me is it’s a bit too far away to use regularly and I’d probably be more stressed when I got back than when I started. However I am checking out my local hospice (scary stuff!) who offer complementary therapies to anyone with secondaries so I expect to have a bit of ME time early next year. I love a back, shoulder and neck massage (don’t really go in for full body) but only want to now go to anyone that understands my condition so this will be a nice treat.
Lily - yeah, over half way with the rads. Finally getting to the end of the ‘regular’ treatments. Although you have to go back and see the oncs at least you know you’re monitored. Most of us mere mortals don’t get much of an in depth follow up. A quick grope on the breasts, a mammo every 2 years and ‘yes, your’re fine’.
I don’t know what secondaries your friend has but I’m surprised they’re not offering a bit more than a 2 yearly mammo. I know I have a local recurrence which they can monitor less invasively (and more cheaply!) if they needed to but I will get follow up scans every 3 months initially, then 6 monthly if things are stable, possibly moving out to annually after a while. I presume they have said to get to go back if she has any cause for concern which is how it will be with me if (and when) the checks get further apart.
Fingers crossed that Brad or George needed a shower today in Chelmsford! You should have recorded your previous experience and put it on Youtube! Maybe in the horror section though! I’ll PM my email address so you can pick it up when you want or when we all slow down too much on this thread.
Lorraine - hope today went well and you’re not too tired. Take care.
My quick update is that we’ve eventually got Christmassy at home. Along with a lot of swearing by me about the light sets we’d got, none of which seem to all work. I’m still suffering with dashes to the loo but I think the main problem is on the mend or gone. I just think it’s aftershocks! After I finished chemo I went straight onto strong antibiotics for my hand and it took ages for my stomach to recover. Just means I’m missing out on some of the party stuff going on at the moment. My hand is much better but still a bit puffy on one side but looking much more normal. Palpitations have stopped for a while (ie I’ve not had a glass of wine) and waiting to get notes from cardi (!) appt to then see my GP before the great Christmas shutdown!
Love to all you other ladies on here.
Nicky xx

Cant stay long just a quick nip on from work, just had the call, no evidence of bone mets on my bone scan, increased dye uptake on back, shoulder and knees, so they think its just degenerative, hoping so, still twitching but hopefully if something was there it would have raised a concern or uncertaintity - so diet big style after xmas as if my bones are crumbling already and on arimidex and early menopause need to try and strengthen them! Also, nuther bit of good news, my mam doesnt ahve the BRCA1 gene, its my dad which is of a lesser concern, also my brother doesnt have it so my lovely niece and tobe child then are having arent at risk!

Im defo going to be more positive now and look forward to a better 2009
xxxx

Hey Lisa

I’m seeing Dr D on Monday I think, well I’m going to Carlisle to see someone, didn’t bother to ask. 6 week post radio checkup I think. I just take the blue card and turn up now LOL. Anyway I’ll ask him when I there about this and let you know but a friend of mine who’s 10 years post DX took calcichews while on tamoxifen to help with bone density. Hasn’t he put you on one of the AI’s ie arimidex? Are you bisphosphonates too after the ooph etc as that’s what I’ll be doing afterwards (one way or another).

Anyway gotta get back to work.

I had a great birthday and just trying to get everything done before xmas now… at least I have a seriously powerful hoover. gonna need it LOL.

Lots of love everyone

Angie

Hiya, didnt see D a nother one! got Armidex but bisphosphonates cos of the effects of armidex and the early menopause but dont think that can have hit my bones yet so god help them!!! Off xmas shoping in lunch time - xmas party tomorrow lunch at North Lakes hotel - need more time!!!
x

Oh Lily you do make me laugh! Wish I was closer to Chelmsford but I think we would probably be sick with laughter!! What a good thought!! Tried the second husband – can’t make up his mind whether it is a hangover from too many business lunches and dinners or the dreaded flu plague – whichever I shall be keeping my distance until it’s all cleared up!!

Knew I was right not to do the trial thingy – I said at the beginning that I wanted time between doses of poison to recover and from what you say about the lady on xeloda I was right! What a horrible time she must be having. I sometimes think the cure is worse than the disease.

Have just been talking to friend whose husband had cancer at the back of his nose and into his sinuses. He was finished treatment now and is OK but says if the comes back so be it. I think he had a rough time – she said much worse than his triple bypass some years ago. It is a difficult call but depending on age and previous experience you can understand his thinking.

Bevy: thanks for the comments about tamoxifen and will be interested to hear how you get on with the Haven Trust.

Lisa: Good news about the results and your gene thingy, hope you are felling better now and looking forward to Chrissy – I think we all are and just want a bit of rest and relaxation. Have good lunches and to hell with the waistline!

Nicky: Glad you enjoyed the rant – you have to let it out sometime and at least you gals know what it is like. Re the note about Catharine’s husband and his cancer above, she said she felt useless to help as she didn’t know what it was all about. Will pass on the info about bones to Annette – she said her doctor didn’t even think she should bother with calcium tablets. If nothing else, it would make her feel she was doing something to help herself. Just reading your bit about the antibiotics – when I had huge problems with wasp sting some years ago and my doctor gave me mega antib’s the health shop lady said to take Echinacea with Goldenseal as this would counter all the tummy probs and to continue for about 7 days after finishing course – did this and no trouble. Always keep it handy now just in case.

Am trying to check with job sharer will be back on Monday, if not it looks like a complete Jaeger trouser suit, Lily. Not working Tuesday or Wed whether she is back or not.

Will do the Christmas good wishes next week – have a good weekend everyone, looks like its going to be raining – oh joy!

J
XXXXX

Hi Girlies,

I went to the Haven Trust today for my initial consultation. It is a bit of a treck as I am in Kent and the Haven is in Fulham but well worth the visit. Beautiful church building that has been renovated to accomodate different treatment rooms and has a very calm feel about it all. Well the upshot of it is I am entitled to 12 sessions of therapy such as nutrional advide, reflexology, acupuncture, shiatsu, manual lymphatic drainage etc etc. I have gone for the nutrional advice, reflex, acupuncture and manual lymph drainage. Hopefully the journey wont be too difficult but if I am feeling up to it I think it is definitely worth the visits. What an amazing place just wish there were more of them. They aslo run various workshops that you can book for a nominal amount of money. They have another centre in Leeds too.

My main aim is to try to discover how I can build my stamina back up and learn to look after my arm correctly. Any information I gather that I feel could be of assistance I will pass on,. I have already been told to juice Celery and cucumber along with a sprig of mint to ease my mouth problems sounds better than taking more medication.

Great news Lisa!

Lily I too was shocked that your friend was only offered a check over after 2 years. I have been told I will have a yearly mammogram and a physical examination every year for 5 years. Really worrying how things vary from region to region.

Take care everyone

love Bev x

hi everyone

well first day back at work, and i survived! even if i had a snail trail of snot on both shoulders, was looking after the babies and younger ones today, and they all seem to have runny noses which is usual for this time of year. i struggle to get up in the morning, have to be up at 6.45, but after tommorow off till next tuesday. i was a little tired,but i came home and had a rest and was ok, looking forward to tommorow, saves me wondering down town in and out of cafes and spending money i cant afford.

Lily
glad you coping well with the rads, i dont blame you tucking into the scones, and other delicous treats youve had more treatment than a lot of us, youve done well. there will be time to watch the diet later.

nicky 08
glad you getting in the mood for christmas, hope you have a good one.

carrieann

thanks for the kind thoughts, god bless x

Heya Ladies.

A bit sad today I’m afraid as popped into facebook to see that Mandy, aka Millielucas on here died on my Birthday (the 16th). I don’t think anyone on here has started a thread to tell people and I feel a bit uncomfortable doing it as I really didn’t know her that well other than the occasional exchange through the Breast Buddies group on Facebook.

Should I start a thread to tell people on here or not?

I know one of the group was effectively ostracized on here by a small gang of people who were really quite nasty if I recall so not sure how Mandy felt about this forum either… toughie.