Morning girls…
Just a wee tip…if you download google chrome and use it as your internet browser it has a spell checker built in!! what can I say? Fabulous!!!.. can’t believe how I can’t spell these days!
Hope you’re all well
Hugs
Fiona xxx
good morning girlies
Ohh it monday it 8.30 and Im watching casualty as I try to get dressed and sorted for the day (its an old one on gold or something)
We had the most beautiful walk yesterday - it was freezing cold but soooooo sunny - we were out int he woods and fields for nearly 3 hrs climbig inclines and running sklopes - I managed it - me who couldnt walk up stairs only 10 weeks ago. The walking did make my oedema worse tho - I really really need a sleave, I had to soap my rings off.
dogs are still knackered (lol)
I will post this on the cp thread bt i wanted to make sure this was ok with all of you - a wonderful friend of mine is a specialist nurse at the marsden london - she works with Bc patients and has been so good to me thru all of this. Anyway she teaches nurses about Bc and care of patients. I have said its ok for her to use some of our cp fotos in her presentation because it shows that Bc can be isolating and that on line forums such as this one can help to break barriers in Bc, also becase of the fun we had in wigs etc she wants to show that despite it all life still goes on. I hope this is ok with you guys that were there.
toodles xxxx rachel xxxx
thats a great idea rach,feelin alot better went out on saturday night with the girls had loads of comments about my hair,people dont know why and i dont like tellin everyone,after i had a few drinks i couldnt stop cryin so better keep off the voddy lol,im seein the onc on wednesday what do they do at your first appointment?hope you are all ok speak soon,xxxxxxxx pauline shazza is welcome to my wig only wore it once and its real hair
just a quickie! still not got a computer so having to borrow a friends.
sending hugs to everyone feeling down at the mo. ((())))
i’m back at work on the 16th, just as well cos i’m turning into a real couch potato - cant seem to drag my sorry arse off the sofa most of the week, then when i get some energy i go overboard and do daft things like falling off my mountain bike!
Gina, caro and mumsy are a bit quiet at the mo - hope you are all ok, thinking of you all.
hugs
xxx
Hi all, Just wanted to say Hi and that i’m still around. I’ve been reading all on here and fb but have not got the energy at the mo to write much as feeling abit glum over my 3 yo, saying that she has been great today but with hubby working in Italy i’m just exhusted(told him we should have relocated over there with him). I’m also getting pains in my jaw bone, down my neck across my collar bone and into my back probably just stress and tension but i’ve had it ever since i discovered my lump and mentioned it at every appointment and all they do is feel my glands in my neck, say it’s ok and then it’s never mentioned again untill i bring it up at the next appt and i’m now really p***ed off about it. Also really upset as my dad’s dementia has drastically got worse over the last month and today he said on the phone that i was an imposter and a liar, he’s also getting agressive towards my mum, it’s just so sad.
Anyway hope to catch up more soon xxxxx
Love you all
Hi gina, so sorry to hear about your dad that must be awful sounds like life is really tough for you at the moment, hope things getting better for you soon. xx
hi
rach i will ask my sis, she is in ood health and she only had her baby last aurgust,
gina i`m so sorry to hear about your dad, my grandad had it and he was convinced people were taking his money ,the sad thing is we found out that someone was, but he got very aggressive , keep on going girlie , you are fab just remember that
well my mums op was cancelled because the lady who went in before her had a heart attack, so my mum was sent home, so has to go through it all again friday
take care all of you julie xxx
Oh Julie, thats so hard for your mum, you get yourself so ready for an op, as well we know! Hope she gets it done friday.
Gina, so sorry to hear about your dad, it must be so hard, a very cruel disease.
hope the rest of you girlies are ok, now we are all getting back to work we dont get on here so much!
love to you all Debs xxx
just a quickie… not read anything yet… just to let you all know that new york was totally amazing… loved it and would love to go back again.
i have my appt with my surgeon in the morning to discuss risk reducing surgery so gonna ask him very nicely if he will have a look at hannah and hopefully be able to put out minds at rest.
anyway lots of love to you all and will catch up more over the next few days.
Lxx
Well I posted last night, but it got lost (groan).
Rach, sounds like you had a ball on your inclines and slopes??? Why are you having to wait soooooooo long to see Lymphodema Nurse and get a sleeve??? I was “taped” yesterday, very attractive, but the bag of flour (or thats what it felt like) following clearance has all but gone! So girls the taping has worked for me, I am well impressed. Going every day to have a lymphatic drainage massage and she is pleased with the results. Also did 30 lengths in the pool yesterday - must have looked special with my glove on and blue tape on my back!!!
Good luck with returning to work Pix and be careful on that bike!
Gina, so sorry to hear about your Dad - how upsetting for you and your family. Sending you big hugs, you know where I am if you ever need an ear! Can you insist on a scan to get to the bottom of your aches and pains??? My neck has been agony since the rads, so could be that.
Debs, nice to hear from you and sounds like you are doing fine and back in the swing of work.
Lulu - NY sounds fab and hope you and Walt enjoyed. Hopefully good news about Hannah and be in your pocket tomorrow when you meet with the Surgeon. Keep us posted.
Caro - you ok? Not been on for a while.
Off to CP (Notts) on Fri with my bro, sis-in-law and 6 yr old nephew so that will be full on (bit different than last time) and then cases out ready for St Lucia, then back to work to pay for it all!
Pauline - PM me with Mrs Fockas address so I can post scarves etc.
Hope we’re all doin ok??? love to all
xxxx
Just a quick one for those of you not on fb, i had good news yesterday, my arm has a cyst in it not mets as i was first told and they are also happy to leave the are in my head for 6 months when they will rescan me then. I am happy now and going to enjoy the summer knowing i will be rechecked in 6 months. Going to make up for the summer we all had robbed last year!!!
Just read all your posts, i think janey had replys pretty much covered so i wont repeat everything she has said but i agree with it all, well done on the swimming janey
Julie hope your mum finally gets her op tomorrow
Lulu, im in your pocket too this morning, hope you manage to flutter your lovely eyelashes at the onc and get some reasurance for hannah
Gina ((((hug)))
Lots of you are back to work now, hope your all managing to adapt back into the rat race, i just can’t believe about a year ago we were all getting the cr*p news and taking up ressidence on our settees with our DGs and choc bars (rach) where has the time gone???
You all take care, missing you all,luv pauline xxx
whoop whoop Pauline, thank the lord! I am so pleased that it is a cyst! You enjoy the Summer now as you so rightly say! Where’s the tat pic??? Dying to see it.
Your right about this time last year - I hadn’t found my lump at this stage and life was rosy and dandy! Crash, bang, wallop and it gets turned on its head, but hey met some forever friends along the way and got very attached to my DG (and everyone elses!!) and that sofa. As you say P - it seems like a lifetime away already!
love you all, special ladies
xxxx
Hi all,
Fabulous news Paulinexxxxxx
feeling a bit down as the pain in my leg is really dreadful. It wakes me at night, and is sometimes making me cry, the dr just keeps saying take the tabs but i dont want to spend the rest of my life on pills1!!My hands hurt too, especially my thumbs! cant knit or sew and Im feeling well fed up! Sorry for the moan gerties but there is no-one else to moan to!!- im sure you dont mind!
Sorry, will be more cheerful next time but has anyone else got this problem?
love ya loads
xxlissiexx
Excellent Pauline!!! am really pleased.
Back at work one shift a week and delivered a lovely baby last night but boy is it hard work! I am less tired this time but boy does it drain you!Night shift sunday…killer.
Mumszy so sorry about your pain. That sucks. Not something i suffer from so cant help.
Jayney glad taping has helped.
Lulu how is your daughter? Any help today?
Anyway, love to all
S
XX
Hi all
Great news pauline
well this time last year i was waiting to go to the breast clinic on the 16th so i was already worrying…would never have thought i would be a year on and have gone through all the treatment and met some lovely ladies too of course.
Im now getting really concerned as alot of people recently have said how nice i look with short gray hair i think they need to get down to specsavers pronto…lol
Yes Mumszy i have and am suffering with joint pain especially in my knees and sometimes my lower back im currently having Herceptin and apparently it can cause aches and pains, i have also notice my grip isnt as strong as it used to be im having to ask people to open bottles for me but trying to keep active not easy though. Hope yours eases soon, did your GP say what was causing them.
love to everyone
Sally xx
happy mothers day!!!
well mum got her op friday, and is looking good but she is in alot of pain at the min, been round there today and my oldest sis has put a new bed spread and cusions on my mums bed, it looks fab, my mum will love it.
yes this time last year i hadnt found my lump, found it on the 18th and then you know the rest, was asked if i wanted to run a playscheme at my nursery this summer , i said “not on your nelly”, i want to spend some quality time with my kids, family and special friends.
mrs p is coming round to have a bouce on my trampoline, anyone else this way come and have a go!!!
well no sign of my mothers day dinner, so looks like its bread and milk for tea lol
love you all julie x
mumszy
i still have alot of joint pain, the chemo really takes it out of your joints, i to still suffer with knumb fingers and toes,i not on hecp or tax so think chemo is to blame
take it easy julie x
Hi to all you beautiful ladies - so glad most of you are faring well. Sorry to hear about joint aches etc, I can relate to that I am getting all mine post chemo = onc told me last week that I will be on arimidex from 1 April and that it can cause joint pains especially after resting - I am already stiff as a board when I get out of bed so am expecting to be paralised on the meds.
I have had almost 3 weeks of rads and have 2 full weeks to go - the sodding journey is a killer and the train company keeps changing the platform at the last minute and I have to keep climbing those stairs and down again!!! I have now recieved a freedom pass after spending a fortune on trains - only took about 8 weeks to get it whoopie - however instead of two years for temp disability I have got the full five years so can travel into London for nought after 9.30am everyday just for the hell of it.
Skin is holding up well so far - hope I dont get the blackheads and brown marks!
I have been having counselling at the Cancer Clinic as like many of you I have been really sad lately and sorry for myself and crying a lot - does not help being surrounded by all these men at home with no common sense and draining me with their inanimate presence.
Have called friends and have some company travelling on some days which really helps me with motivation and support.
Apparently grey hair is fashionable!!! Everyone says they like me with my silver and slate Judy Dench style - I popped in to see my hairdresser last week and she ‘trimmed’ it for me around the neck and ears. Bit of a shock for people when they think of me with long thick red hair! I am getting used to it though.
I must sort out a holiday for OH and me as he has two weeks leave from 24 April (summer holiday!) do not feel able to return to work yet. My brain still is foggy and forgetful - everything has to be done in slow motion. Well done to all who have returned - a bit more normality.
I was not dx until July 09 so a year ago I was oblivious to what lay ahead - but one good thing thats happened is meeting all you gorgeous inspiring girlies on here and CP just confirmed to me how fab you all are - Missing you loads - Lyn xxxxx
I’m worse than Julie x
hello my lovelies
Gina sending you maga (((HUGS))))
Gem junkie hugs to you too babe!
Well I ahbe managed 2 weeks at work and gone back to Uni for the day. But I have to say that by Friday i was wipped out - I did my early shift and then collapsed on the sofa in my DG for a few hours when i got home - it was a bit like old times really lol
I have spent the weekend and mothering sunday down south with the out laws - it was as ever so totally unbearable and so totally heart breaking to be with two people who so obviously hate the air that I breath - you would think that after nearly 20 yrs they would be used to me by now ( me them of course).
My FIL made comments about my boobs (the remaining one is a DD pointed out that my attributes remained unchanged (b*stard how dare he!)He has also been unwell with active hepatitis but told me that at 70yrs old he was worried he wouldnt see next summer as the dr had advised him he may develop cancer (???) I tried empathy and sympathy but the up shot is only he has the rights to worries about the future he has no idea what his son has been through supporting me and girls thi spast yr. I tried to explain to FIL that I have friends with BC and who are being investigated for 2ndary cancer - he was so unable to think of anyone other than himself - I sobbed on the way home and fab man tried his best to defend me and look at after me. The girls are now picking up on the atmosphere between us !
Sorry to moan on - bt thanks for letting me unload - as I have said before we can pick our friends but not our family (eh Gina - sounds so familiar huh?)
love to you all girls and see you in june in Tamworth xxxx