gina, think ladies have beat me to it with the side effects of tax.
i will refresh
. SE will hit you about 48 hours after having tax
. first week or 2, horrible furry mouth, dry and everything has no taste…horrible - nothing can be done only find foods you fancy and can eat
. constipation - Mavicol works a treat, as rach says mix it with something
. diahreah - as debs said imodium as soon as it starts
. stomach cramps - sorting constipation or diareah will ease this
. aches and pains - tramidol made me sick so i use ibuprofen and co codamol
. sweats and chills - not a lot can be done
. pins and needles or numbness of toes and fingers - massage helped my toes
. sore mouth - i have avoided this by using diflam twice a day
I know this is an extensive list, everyone is different, you hopefully will only just get a few and not all of them. I only had some of the above and had some on number 4 and some different ones on number 5 so you never know what to expect but if you know how to manage any that comes along you will be fine. i have my last one this week and i don’t know which ones i will be lucky enough to get. Hope the above has helped and ladies, if i have missed any, please feel free to add to the list.
p.s gina, forgot tiedness but i must say i havn’t been as bad with that as on fec, as we say …we are all different. Try not to worry, it’s easier to have than fec and if u have managed fec you will be fine. Just be prpared for every eventually thats the best advice i can give.
Hey ladies! Felt totally terrible all day yesterday but seem to have slept it off and feel normal chemo ill today- so functioning but not enjoying it! Sent kids to mums…poor mum three days in a row! Little beasts tiring her out instead of me!
Piggie looking brighter today…will soon kick her back out with the pack of girlies outside!
Got my old malp piggie back today as he mate has died and he is lonely. He is now livig with my rabbit…cant see it working as both horny devils but lets see!!!
Roll on number 6 then never ever ever will i have chemo again!
Have good weekend where poss ladies
Thanks for all your support!
well done evie,ive got my 5th in a week,so scared dreadin it,then bring on no 6.im goin out tomorrow night with the girls gonna get p…d and forget about everythin.hope u all have a good weekend xxxxxxxxx
Sue i have just read your post and that is outrageous what an ordeal for you… i would maybe consider speaking to the trust about their cannulation policy if thats how they do it…
i always give out to people who feel the urge to smack my veins… that just hurts even more… at my chemo unit we all get given a basin of hot water to stick our hand in which does help.
glad your feeling a bit brighter today and that piggie is on the mend too.
gina sorry to hear you have been feeling down but do come on and off-load we have all done it at some point… i have the same problem with my eyes and got some eye drops which helps a bit and i put lots of breaks in my posts as i find 1 long block really difficult to read… cant read books for the same reason.
mandy all painkiller cause constipation to some degree… codeine based ones are the worst but if ayour on regular analgesics def need to take laxatives too… i take dioctyl, lactulose and senna although my mum is trying to get me to take movicol… she has lemon and lime flavoured one which is apparently not quite so boggin so may give it a bash and report my findings LOL
Jayney glad the tramadol has been helping.
i have been getting tummy cramps for last few days not sure if its related to new chemo CMF but have mouth ulcers which i definitely didnt have on the epi.
went to have a meeting with an art therapist today at maggies and im starting art therapy in two weeks time and im looking forward to it.
hello my lovely ladies
I’m back from a Mexican lunch with an old pal(I could taste it yippeee) I had a glass of wine and then went on to the kids school for an exeat service in the school chapel -AHHHHHHHHH it was so sweet Frankie looked gorgeous in her blue albe & kept grinning at me from the choir stalls, gabby was grinning from ear to ear in the church and my pals boy Mattie was also in the choir, so handsome that we decided he and gabs are to be wed only for the huge wedding and party we could have as two families!!!. It was such a treat to be dressed, in make up and seeing the kids behaving normally.
Girls we are doing so well!
I am so proud of you , of us; for the hardships, the juggling, the sleeping, the eating, the trying to keep family life normal, our positive out look in spite of the hell of the hand that has been dealt to us, the chemo, the surgery, the rads, the travelling.
Every year the queen gives out awards to people for their service to the common wealth and stupid ar*ses like mick jagger get an award for doing what??? well most of those awards should go to people like us who hold family life and soul together despite bone and muscle aching exhaustion,
those who cook sunday lunch despite nausea and vomiting,
those who finds five mins to help with home work;
to cuddel husbands/kids and to…
even find 30 mins ( ok be real rachel 2 mins) to have sex.
WE ARE MARVELLOUS STRONG WONDERFUL WOMEN WITH A DEPTH OF CHARACTER THAT THIS SODDING DISEASE CANNOT OVER COME!
Oh rachel, you crack me up!!! Ive been feeling really low the past few days, even had a disagreement with J yesterday… I just feel so bl***y tired all the time and everything is such an effort.
oh Sue you poor thing! I had 5 attempts 1st 3 doses but last 2 they got in 1st time, my veins are all in such a state, cant wait for my last dose on 8th October.
cant wait for CP…
Oh well back to the sofa, have a great w/e everyone,
love to all,
xxmumszyxx
Rachel, you make me smile and you make me cry at the same time. What you write is so true.
Within the past half hour, two friends have both messaged me, saying that I am such an inspiration to them, which is lovely. But, I don’t feel like one tonight. Saw the geneticist today, and due to family history and my young diagnosis, it looks like they will go ahead with the full testing (which is what I wanted), but since I’ve come home from hospital, I have been on a major, major downer. Feel like a black cloud has descended on to my shoulders, and I don’t really know why.
You ladies are still thick in the middle of treatment, and are so strong. I’ve finished my radiotherapy and surgeries, but I still feel so upset - need to try and pull myself together.
Anyhoo, love and hugs to each and every one of you - stay strong and positive : )
Please do remember that you are very welcome to give the helpline a ring if you feel you need to talk about how you are feeling at the moment. These feelings are perfectly normal and they are a great place to offload and be a listening ear.
Give them a ring tomorrow if you feel it will help.
The number is at the top of the page and they will be open from 9am in the morning.
Oh she! That blo*dy black cloud - I call mine a black dog but with out the waggy tail! It is so much to digest and take in honey and it is never easy to hear that you will need further testing for genes that don’t work properly. I agree with our lovely moderator give the line a ring.
It 11am and I’m in my goppin dressing gown that I may even have to consider washing soon but afaid it will disintegrate in the wash as its only the curry/chilli/carbonara/red wine and sweat stains that hold it together also need to hoover the bed - no not cos i’ve been up to any unsavoury practices; its my marmite and toast addiction it has left a few crumbs to many for a good nites sleep lol oh I am a slatten!!!
Hubbie back from his trip to austria and dropped bomb shell; he is away for my next swamping and for most of the week after - OMG! Still it wil keep me moving if nothing else - he feels awaful but there is nothing he can do about it and in this climate of expendable jobs he has to be willing and able!
Rightho me hearties - the kids need taxi -ing to a paint ball park - I’ve my oldest friend coming for a glass of wine (she is from Worksop) and my god son coming - wine truck is about to make delivery and i really shud tryt o get dressed. Love hugs to all those down inthe dump 0 remeber it is a valid feeling so please don’t feel guilty xxx R xxx
oh I forgot to say I emailed Lisa the girl that blogs about BC on Allright tit - she replied to me - now she is inspirational but again her blog could upset some people - I have found it really funny and really honest but as I say not everyone will find it their cup of tea. Anywway what a lovely lady - watch out her book shud be out soon. xxxR
Rach… I’ve said it before and I’ll say it again… You are a star! I loved your little monologoue… gorgeous and so uplifting! xxx
She: I think there is so much to process, hon. I am having similar problems. Is it because we are trying to fit back into life, but our piece does not exactly fit anymore? Please let me know how the genetic testing goes. I posted my forms the other day and am not sure if I will get an appt.
Love to everyone xxx
Good afternoon all of you,
Well my black cloud is hovvering but I can see some blue sky at the moment for the 1st time this week…!!
She, Yvetteh, I know how you feel, Im looking forward to the last chemo and know that I have Rads to go, but my life has settled into 3 week cycles, and I will be lost without them, but HEY look at it as though it the beginning of NEW LIFE for us all. I intend to enjoy every second of the rest of my life, this BC has been a real wake up call for me.
rachel, you poor thing! John has only managed to make one chemo with me but I HOPE he will come for the last one, we are intending that anyway, I have an apt to speek to see the Rads cons on the same day. I want my treatment moved locally so it may be a bit of a fight.
Rachel, Ive sent you a PM…
I went to the Haven yesterday and had acupuncture! What an experience, I went without any expectations, but I had the best nights sleep evr last night and the aches & pains in my joints seem better today, and I definitely feel more positive and less ‘down’. Its a wonderful place , Im going for a group class of ‘ear acupuncture’ on monday and Im really looking forward to it, Well if it works, why not??
Have to change the bed and do the washing and ironing today, but tomorrow Im promised a trip to the seaside if the weather is good!! OH is delivering son to Uni today, so Im alone again…
Have a great wekend girlies, not long now and we can say goodbye to all this Bl***y BC and get on with LIVING, chins up now, we are British after all … hahaha
Love n hugs
xxmumszyxx
Hi ladies, sorry to hear some of you are feeling down. I was talking to my friend last night who is nearly 2 years from DX. she was telling me how she was feeling really low after her treatment was finished, felt alone and missed the security of hosp checks. what i am trying to say is that what you are feeling is normal so dont beat yourselves up about it. Thare is light at the end of the tunnel, she is happy now, back working, looks amazing with her new boobs, fantastic hair do and lovely figure (she would argue that point) but she did look great and she is an insperation to me. I wish i could share her with you all. So chin up, best you can and we will all get there some time soon.
rachel, what can i say. You hit the nail on the head. We all do deserve a medel, You make me laugh, you and that bloo*y boggin dressing gown…
Lokk after yourselves everyone and have a good weekend, luv Pauline xxx
She i felt like that after my treatment finished the first time too… like paulines friend once i was finished with the hospital visits and was kinda left to ‘get on with it’ and people kept presuming you were ‘all better’ but you still have the emotional effects to deal with.
some of it is the shock of actually being alive and having had cancer which was like a really bad dream, but it brought up many insecurities and thinking about the future… while i was going through treatment i was just kinda living day by day and week by week but afterwards there was more things to consider and the realisation of what i had been through really hit home hard and i kinda went on a bit of a downward spiral…
i was still in touch with my bcn who suggested the oncology psychology service and i had a really great counsellor who i saw regularly for a few months till i got myself back on track.
somebody also posted this link which i have book marked but not read yet so not sure if its any good but though it might be of interest to those finishing treatment like yourself Shenagh
Hello ladies,
My headscarf/wig off to you ladies with children!!How how how do you do it?I cant imagine having these symptoms and having to deal with families.
From my understanding,it can be harder to deal with the BC after treatment is over and i dont look forward to it.I just go with the emotional rollercoaster,when im down i just except it and have a cry and feel a bit sorry for myself and then normally by the next day i can bring myself up again.
Be gentle with yourself,you have every right to feel sad about this sometimes!!!
Im off for a glass of rose and X Factor!!!
Dirty dancing tomorrow night at 9,channel 5 i’ll be watching.
If you have not seen the Julie and Julia movie, I would highly recommend it! I watched it 2 weeks ago. For the past two days I have been inspired to cook. Tonight I cooked two Julia Child’s recipes. Took my mind off BC for while
