Coming out the other side - one year on!

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Oh I had a great day yesterday, went into London for the afternoon with some friends and family, just wandered around the south bank area and had a lovely Greek meal. Now at home and enjoying the sunshine thinking that i really should do some housework …Nah what the hell the sun will soon be gone so i’ll just enjoy it whilst it’s out.

Glad i’m not the only one with sore runny eyes and a non stop dripping nose makes me feel like i’m 90.

Rachel My hubby has also been away for 2 out of 3 chemo, he feels so bad about it but like you say in these times he can’t really say no, also has something to do with him having to have 12 weeks sick leave himself but i have told him he has to come to one of the chemo sessions!!! Luckily my sis in law comes and stays.

Enjoy the rest of this sunny day everyone xXX

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well,went out with the girls last nite,only was going to have a few drinks but i was so drunk,cant find my wig,dont want to talk to anybody keep havin flash backs,oh dear can i ever show my face again lol

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Drabble i cant drink at all on chemo!!! i instantly feel sick and unwell then thats game over! Bit jealous. Sure you will hold your bald head high again!!

I am couch bound.Kids at grandmas again…poor gma had a hard week! Kids dont seem to care as long as they get the fuss.

anyway, need a nap!

Gina love south bank area and we have eaten a lovely greek meal there! Ahhhh the days before kids…

S

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evie,how was ur 5tu fec,i am so dreadin it.hope everybody is well xxx

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LMAO drabble you are are queen of party animals xxxx
Sue rest and get well honey xxx
Yvette i was an academicc but gave it up 3 yrs ago for a huge pay cut but easier life style - so i am so with you on the lets present a poster/paper/key note yawn!!!
we had a glorious walk up Twmbalum in SE Wales saw all the way across to exmoor and clevedon and back to the black mountains and brecons. Haaaaaa …no wind so the kites were a bitter disappointment. lovewly lunch and now resting with peppermint tea. Bed before 9.30.
Had to laff today fab man said he had never seen a gooseberry with a centre parting before as he referred to my head in a cross wind!
love and good nite to you gorgeous babes xxx R the goosgogg with a centre parting xxxxx

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drabble 5th has been stinky- briefly tho. I think it was worse due to the stress of the incompetant nurse and poor bloody care i recived when given the chemo. i was so upset i was shaking-with anger! Soooo, sunday is my bad day and ive been kid free and now going to bed. no worse than number 4 me thinks.

lots love ladies
s

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Hi All

Have just sent husband off to work with a curt “off you go to your normal bl**dy life then”, so that’s how sh*te I’m feeling today. 7th chemo looming tomorrow (3rd Tax) and I don’t want it. Evie - is that nurse following me around too? I had a less-than-competent one when I had my 6th chemo - my arm is still a mess and the vein she insisted on using for the drain cleaner is still red and sore, even tho I asked her to avoid it. That wasn’t as bad as the comments from the nurse in the emergency admissions ward when I went into hospital 2 weeks ago (where I resided for 7 hours, from 6 pm - 1 am, whilst waiting for a bed on the Onc ward)They left me in a dehydrated state, which was the reason for my admission, with no water and no drip forthcoming until I started making a fuss about 4 hours into my sojourn there - she started digging in my arm to try to get a cannula in, asked me what treatment I was having (chemo, surgery,rads) then said "ooh, you must have a very aggressive cancer then if you’re having all that lot!!! Cue tears+++. Then I asked her why it was taking so long to find a bed for me, as surely they wouldn’t be discharging anyone that late at night - she said there was a bed for me, but it wasn’t ready yet, but she couldn’t tell me why. Well, that meant only one thing to me - i.e. a person was still in it,but expected to vacate it - if you get my drift.Oh dear, it was not a good expereience.

This morning I have to take my Minnie Schnauzer to the vet again as he has a limp but they don’t know why (x-ray showed nothing). He’s having injections to try to develop his joints. Meanwhile NO EXERCISE for 4 weeks - hahahaha - he is a 2 year old bundle of energy and cries when we leave him behind when we walk our other dog - a Border Collie. So I have ordered a doggie buggy for him, but could only get a pink one and my husband is not impressed with that.

I have had an elderly ex-neighbour staying for the w/e - full of good intentions, but she kept telling me what I “shouldn’t be doing” (closing the gate, watering the garden, normal stuff, aarrgh). She meant well…

Side effects girls - oh gawd, nose bleeds, sore nails, tingly fingers and feet, eyes really bad - can’t see to read or watch tv properly now, so worried about driving too,taste just coming back in time for next “hit” tomorrow,diarrhoea, fatigue of course, chemo brain - chuck in the fear of recurrence that has now descended following my son’s completion of his chemo - life is just about perfect - not!

Could be worse - could be at work giving flu vaccines amongst other stuff. Am thinking of changing my name to “Moaning Minnie”

Have a good day everyone - think there’s a few of us having chemo this week, so know I’m not alone.Good luck all.

xxx

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Hi All
Big hugs to both Sue and Erin xxxxx (((((hugs))))
Your not a moaning minnie you have real concerns - your poor fab man tho’ - why are we always so hard on our nearest and most dearest?

I feel like a re-enactment of the Zombie movie the day of the living dead by George A Romero. That suffle and sort of ‘hurrrgggghhh’ groan they make LOL

Got my 2nd tax on thurs which means Caro you have one more week of normality before your good old FECing on monday and Mumszy you must also be due your last one soon!

Yet again over did yesterday walking miles up welsh hill sides and now ache all over again. At least my chest is clearing up (for now any way) I think Mumszy and dancing queen were wondering wots up with me (LOL) well I have something called bronchiectasis which is a sort of permanent dilation of the bronchi in which pools all the secretions and that gives me a chest infection. The reason i can be treated out of hosp was cos my neuts didn’t drop (good old neulasta) and I am very concordant (LMAO) with oral therapy.(oh er missus)
Right got up a 6 is to see debs on TV now back to bed til lunch then a quick trip to waitrose (as a special treat I usually use Asda - I know a bad word on here at the mo) and some home made chicken soup for tea! good old jewish antibiotics xxxx love to you all Rxxx
p.s. how the GPig sue?

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p.p.s Bloody nose bleeds no wonder we are all anaemic!!!

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((((((((((hugs))))))))) for sue and erin, wish i could do more to help you feel better. moan away girls, thats what we are here for, to listen to each other and try and help when we can. Dont be hard on yourselves and let others look after you.

Rachel, I had a nose bleed last week, didn’t reaslise it was probably a side effect, any more surprises in store though i have my last tax this thursday so i hope not. I seem to be following you round the forum this morning, thought you were going back to sleep. Didn’t know you were clever enought to type in your sleep, full of surprises you are.

Try to have a good day all of you, luv Pauline xxx

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Rachel, was going to make my chicken soup today! guess what roast we had yesterday, its definately a comfort food after the dreaded swamping!
well hopefully i will have my last one tomorrow, don’t really feel I’ve got over last one! But wil be glad to say I’ve finished!!! well that bit anyway!

Rachel and Pauline wil be thinking of you thurs!
Christina you on Wed?? good luck.
we are all getting there girls, Erin and Evie hope you both feel better soon, erin as the others said we are here to listen!

love to all Debs xxxx

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Big big hugs for Sue and Erin, 5th hit me really bad but it didnt last long thank goodness, and 6th and FINAL one next week!! Bet its gonna be a bad one though!!
had a wonderful day yesterday, OH took me to the seaside!! We went to Aberdovey, and walked along the beach for miles and miles, I even had a paddle in the sea!!! We had delishus fresh crab salad there and I had 3 pints in the pub, felt really tipsy!! We took the wrong turning coming back and it took us 3 hours to get back!!
I feel so well after the acupuncture, it really has done me good my joints feel great, and i have such energy!! Roll on the next dose,
Oh well, I gna go to Hereford now much love to you all,
xxmumszyxx

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Hey. Am still pretty rubbish. hubbie has taken today off as to be fair even getting out of bed was an effort let alone feed, clean etc kids, rabbit, guinea pigs,two day old washing up…urrgghhh. house is s stink hole.

rachel my Damn pig is now settled in a large pen in the kitchen as tried to put her back out with her mates twice and she stood there shaking and got bullied! Ahhhhhh. she looks up at me and there it goes…back by the boiler in the kitchen to keep warm!

Erin i keep moaning at my hubbie as he is useless at looking after me and looks like a kicked puppy a lot as i rant and rave about feeling rubbish…oh i am boring!!!

Also what is this bloody chemo smell up my nose?!!!? every cycle it drives me insane smelling chemicals whereever i go. toilet cleaners smell like toxic waste and i want to scratch my nose off!!

mumszy good luck with your last one!
Rach- hope chemo goes ok and you dont get a duffer nurse who rams cannulas in your flesh (not vein) and walks away for a chat.

back to the couch and some chocolate

S

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I decided to have some wine for lunch (never drink at this time usually, but this is my last day of being able to taste it) plus a banana sandwich, cherry cake, carrot cake, a kit kat, oh, and just found a mars bar ice cream in the freezer. No wonder I’ve put on a stone since starting chemo!

Just responded to the “Tickled Pink” thread, and now we’ve been “told off” by the BCC moderator. The day is getting worse.

Evie - I get the bad smells too - always pouring bleach down my stinky drains. Just thinking what to make for husband’s dinner later to make up for being horrible to him this morning - maybe I’ll jus t pop to Asda for some fluffy pink underwear… nah, he’s still not interested in “that side” of our relationship, won’t talk about it. What’s he gonna be like when I’m boobless, then too sore for him to touch me eh?

Bah! Where’s the wine… xxx

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Hello all you wonderful ladies. Haven’t posted in a while as been away in Padstow for the last few days (or Padstein as Rach calls it). Not quite Scotland but I guess the weather was better! Had lovely time doing nothing but eating and drinking (nothing new there then). Ate in a couple of Rick’s restaurants (the man himself was even there having a meal himself one night); food was quite disappointing tbh. Also did long coastal walk one day but after 1.5 hours of walking was totally exhausted and breathless and then realised I still had to walk back; quite a scary experience! Been to the hospital today for my prostheses fitting: mine also have nipples Rachel but don’t think they’re as big as your one, as certainly not tweakable!! Oh yes, and thank you for reminding me I’ve got my 3rd FECing next Monday, really not looking forward to that! The vein in my arm is so tight and sore already and I’ve still got 4 to go… has anyone else suffered from that and do you have any tips???

Sue, your experiences with your 5th FEC have scared me rigid. Really hope I get competent nurses.

Rachel hon, good luck with your 2nd Tax on Thursday. Just think, only ONE more to go after this one! Also, thank you so much for organising Centre Parcs for January. I’ll send you an email shortly. I’m really looking forward to meeting all of you lovely ladies who are going in person. Only slight concern is that I still won’t have any hair by that point, so I guess it will mean swimming as a baldie…?! I hope I’m not the only one!!!

Mumsy and Pauline, can’t believe you’re both having your LAST CHEMOS!!! You lucky girls you, I’m so envious! Hope it goes smoothly. Mumszy, very impressed about your 3 pints at lunch time; don’t think even I could manage that!!!

Erin, I also had some wine with a big lunch. Too scared to get on the scales as know I’ve piled on loads of weight since this bc crap.

Sorry some of you have been feeling down lately, but things can only get better and it will pass. Apologies for not acknowledging everyone but it’s taken me ages just to read through the last 10 pages of posts since I’ve been away! You’re all in my thoughts though and I don’t know what I’d do without your support.

Lots of love, Caro xxxxx

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chicken soup was lovely - off for my pre chemp blood test now - thinking of you ladies about to be swamped.
Can I remind you all that the final bill for CP has to be paid by the end of October so please get the dosh to mebefore then - sorry to ask…
love to you all R
p.s I have to admit that like the colour pink…

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p.p.s there has been a lot of sl*gging off of the BCC charity recently but I feel we shud not forget that without this charity and with out their service provision I would be pretty lonely BC babe and would never have met you wonderful guys. I also think that moderators who have had to read all this must feel terribly divided by opinion. So despite that fact that mistakes have been made re some rather larger life b list celebs ( who outrage me), I’m glad that BCC exists to help me and people like me. Thanx BCC - i was going to put this on the other thread but said i wasn’t gonna post there again after volunteering to falsh the falsie.LOl xxx

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Thanks for your kind words Mummytumbles, it is much appreciated.

Kind regards,
Jo, Facilitator

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I have not posted here for a long time as I was dx in July and am only just into first FEC so more on other thresds but felt I had to say well done Rachel I totally agree BCC rules - these threads have been marvellous for me and BCC have made it possible.

Wish I was going to Centre Parcs. I am in touch with Shaz (smallstar) quite a lot on facebook and think she is bloody great and you are all so special - we are all sisters in this and I am just so glad you are all there - we need a have a big big party at some point and show the world we are SUPERWOMEN (not KP and boob models). Hugs and love to you all Lynb. xxxxxxxxxxxxxxxxxxxxxxx

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Oh Gemjumkie you’ve just made me cry!!! I wish we could open up the whole of CP for a mega gathering! I will organise another for later in the year for those who will be still swamped and may be more than 2 villas as well. Shaz is amazing isn’t she?!I know that without these threads and all the fabulous friends I have made there no way i would always be able to see the funny side of BC (there is one!)
Off for blood test now and then taking mum out cos dad still can’t drive after his collapse last week. xxxxx