Pix! That’s so cute 
Thanks for the funny post x
Pixie - how true (about our BCC pals being priceless!)
I totally agree with the comments about the girl on GMTV this morning. I only caught the tail end of the interview, and found myself wondering what was wrong with her (as Doctor Hilary was there so it was obviously something) then I realised it was BC. It doesn’t really help those of us who are going through, or finished, treatment and feel like c**p.
Love to you all,
Shenagh xx
Pixie that is excellent! I habe decided I must have the best chemo nurses going - only one attempt again today and i fell asleep during the infusion. I slept well last night thanks to the trusty zopliclone but only for a few more nights and then goes back into its locked box till my last one in 3 weeks all being well.
I have a wonderful head of regrowth all silver grey and akin to a long haired kiwi - sort stubby sparse lashes and very infrequent brows, still no fluff on my jardin de femme!But those leg hairs grrrrrrrr!
well I have the central heating on and have jumpers like pixie getting their first airing of the year. I wish I had seen the GMTV interview but I’m afraid I’m a radio 2 girl and tend not to watch TV althought i made a special effort fot debs from cornwall.
Just waiting for the 69 chemo buss to hit - had to laff my DG seems to be setting upits own fan club esp on FB where by shazza and lyn the gemjunkie are also keeping an inventory of their most recent meals down the front and stuck to the bum lol; on that note shuv over pauline pass the scrambled eggas and marmite on toast xxx lol
Girls love you all loads xxxxx R xxxxx
Lulu so sad to hear about lorenzo!!
Pixie love yr post gave me a smile!
Didn’t see the woman on GMTV wish i had though, why do they always have women on who haven’t lost hair!
know what you mean Pauline, but everyone tells me how well i look, not how i feel though!
Think the bus is on the way but at least its the last lot of side effects!
had my tattoos done yesterday, have to say the machine and bed you lie on isn’t exactly comfy!
Also had my boobs photographed for a study, head missing so why did I smile!!!
rachel love the fact you slept through chemo did you have yr DG with you???
well girls getting my spot ready on the sofa, bye for now
love debs xxxx
hey there
belated birthday wishes to you pixie! i am having night sweats too-wake up with sweaty semi bald head…minging.Husband said i need a squeegie like for windows…nice. I wish my periods would bu**er off tho! still on time after 5 cycles!
Rachel i refuse to shave my legs as the growth is quite lush and makes a change to the rest of me! my eyebrows are ridiculous-bushy in parts and bald in others! V classy. I have a kiwi head too and it looks a bit gray…not happy and i am not being ungrateful as my mum said “hair is hair” errr no… i would rather not have curly grey pube hair thanks a lot!
Ive got my radiotherapy appt through now and start 5th november so not long after last chemo! 3 weeks after i think! phew! All over by 27th November. Diagnosis 24th april-finish treatment 27th november. Not bad me thinks in the scale of things!
Anyway i have two cranky babies in bed refusing to sleep so have turned their monitors off and turned tv up! Kids! I will not be beaten by two children who need a blummin nap!
GP still in kitchen and i feel it is for the long term…kitchen now smells of wee…
S
Have just registered. Have been reading everyone’s posts it is good to know there are others going through this, who are positive and supportive of each other. I found a lump in February and have since had a full mastectomy and total lymph clearance, I am on the 5th of 6 FEC’s and will be having radio-therapy next. I think I am doing okay.
It is good to read that others have shaved their heads cried, been sick, laughed, been angry etc. It seems we are all coping, so best wishes everyone
Hi Jane, just wanted to say welcome to our mad little thread! I have made some amazing friends on here, and can honestly say that I don’t know how I would have got through the past four months without them! A few of us are on FB too, so if you’re on there, let us know.
Oh, I need some advice please… can’t decide which tattoo to get done. I either want my son’s name (Jai) on the inside of my wrist, or something on the top of my foot, maybe a flower garland and pink ribbon or something. What do you guys think?
Love and hugs to everyone.
Shenagh xxx
Hi Shenagh and everyone
You are very brave having a tattoo, the only one I can think about is the one before radiotherapy, or is it two. Have you had that?
So does everyone have night sweats. The oncologist said that the menapause was a side effect of the treatment, my periods have stopped, have got the sweats, so guess he was right!!
Jane
Welcome Jane. My periods have been regular as clockwork since starting chemo (although only lasting 3 or 4 days; bonus!), until this week; it should have appeared today but no sign. Hoorah! Hopefully this means it has been halted by the chemo and not that I’m pregnant… Haven’t had any night sweats as yet though.
She, I have a phobia about the inside of my wrist and can’t bear anyone holding my wrists (weird, I know!), so the thought of someone sticking needles there makes me feel very funny indeed. Go for the foot!!
Sue, your post really cracked me up what with your head of curly grey pube hair, haha. Most of my hair has fallen out now (apart from a few fine silvery hairs like yours Rach) and I can’t believe how white my head is. WTF is that all about??? I well and truly am starting to resemble George Dawes; all I need is a pink baby-grow. Punani hairs very sparse but haven’t lost eyebrows or lashes… yet.
Pix,love your woolley hat! You’re a woman after my own heart; totally live in woolley hats from September to July, so quite glad winter’s here as can cover head up without use of scarves or wigs. Bought a big furry hat the other day from River Island and can’t wait to test drive it. And yes, you lovely ladies are all priceless. Ahhh.
Rach I also miss the tv interviews/documentaries re bc, but more of a radio 4 gal myself. When I do watch tele I go for the real trash; nothing as intellectual as breakfast tv! Hope those SEs stay away hon.
xoxoxox
Bonjour mes amis
ca va aujour d’hui? Well so far the number 69 is taking its own sweet time - did the nasty deed with the neulasta GCSF injection and felt quite weird so toddled off to bed for a couple of hours with my dearest litte furry friends - feel fine now gagging for hot curry and glass of vino - taste bugs are giving up the job already - sob! But must behave as I have the st davids nurse visting the kids ce soir. then I plan on a litte treat…
welcome jane!!! hope your ok honey? we are all pretty nice on here - mad but nice x
She - I’ve already said go for your foot or neck on FB, go for something small and then build up - i like wrist tats but remember thay are hard to cover up for any reason. Pick your artist with care - get recommendations and the longer the waiting list often the better the artist.
As for the monthlies try bi monthlies every bloody two weeks - so fed up with it and the hot sweats -
Sue I also have a sweaty head that soaks the pillow each night which then freezes me and then wets me - yum - really nice NOT! I am still looking at silk sheets and pillow cases - but can reconsile the cost with the possible comfort factor.
right better get dressed for the second time today whoop i’m doin’good! Bought 4 wispa bars and still have 3 left how strong is that will power? xxxx love and hugs xxxx
Hello
I have to post a comment having read the thread to say what a great ‘fun’ bunch you are and to laugh and joke at all that is happening is so great to read
Pauline - don’t rush the going back to work, i am 4 months post finishing Rad ( 31 sessions [ diag last oct, surgery, lymph clearnace, 8 session , fortnightly of chemo)) and it all does take it toll I still ache like hell each morning and it take me ages to get flexible. so if you can stay off i would, each to their own but all this does make you re evaluate stuff.
when re growth starts some get a fluffy down on their cheeks , i did and was told do not remove, it it does fall off, my kids called me wolverin for weeks but it does go away, waxing or shaving just makes it grown back. As for head hair i had the most odd fluffy baby down hair as a re growth, and was very brave and shaved it off i think its the best thing i did i now have really thick curly hair ( was straight before) growing through. Weight gain has been the biggest b**er fo me i have put on two stone but hopefully i will start to lose it now i am back swimming, though i didn’t go today as i just felt totally shattered.
I got really annoyed today when i saw a comment for a celeb called Kate Burley , who said health eating and watching your weight could halp against breast cancer aaarrggghhh I was at my fitest, thinest ( size 10 bottom size 14 boobs I loved them) and most healthy pre cancer, have always eaten good proper food etc etc
hope you don’t mind me butting into your thread, any questions you want to ask about the next steps, i am not expert but will try to help xxxx Rhian
Hi Rhian, thanks for your post. Of course we don’t mind you butting in, the more the merrier! And I’m sure a lot of us will have questions for you! I finished my rads four weeks ago, but am still planning another six weeks or so off work (on doctor’s advice). Going to be sensible and do what they say.
love to all xxx
welcome rhian and jane, your most welcome. thanks all for your advice on going back to work, made me realise i have been too optomistic maybe. will see how i feel and take advice from the doc.
Rach and frisid, 69 bus not arrived yet for me, hope your both still waiting for it too. Taste on the way out though and no energy, can cope with that i suppose.
hopeing for more sleep tonight, luv to everyonem, pauline xxx
It whats suits you re work, i went through chemo with a lady who had just started her own business and she wanted to carry one as much as possible because it was ‘hers’ i on the other had was in a pretty stressful job and unless i was able to stay on top of my game i know i would have struggled. My GP has been very supportive so i have opted to be guided by him.
Lack of sleep is so damn hard i suffered with bone pain and in the end my Onc perscribed Tramadol, which i found really helpful, they helped me sleep.
xxxx
hi all
thanks for the congrats on sophie anne she is a little sweetie and i love the cuddles well the hair has started dropping out so i just got it cut shorter for now i have my next swamp juice on tues all being well with bloods on monday seems weird having blood teat day before also see onc as well mon belated birthday wishes to all who have recently had birthdays its 6 21am and i couldnt sleep so been catching up and well done evie on last swamp juice i went through mine on calender and all being well if nothing goes wrong or crops up 29th dec will be my last one and we all kow that will soon be here i had a teary episode other day but not too bad now thank goodness i thought i had been coping to well but we all have it thanks to all the wonderful ladies who have helped me through all this welcome to new ladies as well you have come to the right place if it wasnt for the bcc site i think i would have give up its been a great help to me through all this and i couldnt have meet a nicer group to post in so a big thanks to all you wonderful people and bcc site for giving us the opertunity to meet and share our problems and the treatment i have learnt a great deal from this site and its got me through and getting me through a difficult time in my life
love you all
janice xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Morning ladies and those who have yet to decide (lol)
still awaiting the 69 bus but have no sense of taste PAH! Got some energy tho’so off to the fish shop to top our bio orb and fish tank (not not the ones you eat with chips although now I think about it…)
Frankie is at sat school, she is narked with me as she has to represent the school choir tomorrow and feels that a 7 day week at school shud be banned but i wont let her off with a nice note explaining she is too tired to vocalise - wot a rotter I am.
I have just had my tat sessions for rads appointment thru for oct 16th - I can’t believe it - it may all be over by Xmas - a bit like the gr8 war LOL. Popped into work the other day and was told i would be expected to be back by jan if rads done by xmas - oh no way - if I’m not up to it i shall take as long as i need providing I can afford it of course! talking to some ladies at the swamping the other day they told me the finsih of treatement can be hard on the old emotions and to take care of ourselves.
Right off for a shower, put some slap on and draw in my eyebrows, brown eyeliner for lashes and tie my scarf over my fussi wussi.
Well rhian - lovely to hear from you prepare for loads of questions
love rachelxxxx
p.s.I heard from erin the other day - she is still on for CP but not very chipper in her self i have begged her to get back on line or to fone the help line - ERIN come back honey xxxxxxx
i agree, erin babe, you need to to come back and talk to us, even if it is to listen to rach’s worped sence of humor. rach, pass my love on if she doesnt come back will you please. Still waiting for bus too but like u taste is going and DG just got runny egg down it, getting as bad as you. I was told my full pay runs out this week, and then half pay + ssp for only 2 weeks then half pay for rest of another 6 months. Money or not and a hubby being made redundant i have decided i am not going to be pushed into going back. As u say its about emotions too isn’t it, others on here have made me realise that too. Glad u have your reds planning through, still waiting for mine.
janice, glad your getting through this c**p with the help of a new baby, my neice came 4 weeks early the week i had my op, i think she knew i needed her. she is nearly 6 months now, i cant believe where the time has gone.
Luv to u all on here, chin up girls and have a good weekend. can someone have a drink for me tonight (hold that finger, not u rach) as its a waste of time me having one with no taste buds, thanks
Luv Pauline xxxx
Pauline - when SSP stops you can claim what was incapacity benefit, its part of the unemployment dept, which is quite confusing because i still have my job to go back to I just don’t get paid by my employer anymore, the benefits system is a nightmare but I was determinded to claim what was rightfully mine.
Everyone - its never too late pre RADS to prepare your skin with lots of moisturiser every day, in a rather cruel way same way as you would prepare for going on hols in a hot country.
Rachel - Narky kids LOL they make sure you keep your feet on the ground thats for sure. My three never held back saying it as it was but at times being so thoughtful and kind, my 22yrs old boy shaved my head for me i was in tears, he telling me it was a one off opportunity to try out a mohikan LOL ha ha
xx
Hi everyone,
Rach: Thanks for trying to get Erin to come back. I hope she does as I really miss her on this thread.
She: I will have an appointment with the genetics people. I am a bit nervous about it. Can you tell me what happens?
Winds are really high here in York. Rach… I could see you flying your kite in this! Fluffy puppy and hubby seem to be settled in for the day, so I will be, too.
Can’t believe that some of you are having your rads planned and getting tattoos Soon to be through the treatments! I started using the aqueous cream after my planning session. I am still using it and have found that it has helped with my skin.
Yvette xxx
ps. Welcome Rhian !!!