Thanks Nicky x Lily hope you are okay x
Quite on here today, hope just enjoying the sun. Been a long week but tomorrow doing my midnight walk with 1400 people in our town, 6 miles - arrgghhh!!!
Found out today that the plastic surgeon never got my referral so being chased up, will put things back a bit!!!
Love to all xxx
hi girlies,
leave you for a few days and mountings of posts to catch up with, at least that means your all living life to the full.
lily 2000
im not doing too bad reducing food intake, and im not going to let you tempt me with your talk of sausages, burgers etc. so sorry to hear you have had sad news about friends, it is a hard disease but its not the only horrid disease out there unfortunetly, and at least doesnt always effect our senses (hearing, sight, etc) so we can at least enjoy most of what life as to offer. but it is horrid, and we just have to take it one day at a time! hope you feel more upbeat
soon.
i am still at mums at present. its been nice spending time with her, and only came home a couple of times to do little housework. wed night mum had a fall and tried to lift her, even though im not supposed to, but couldnt manage it, so had to have paramedics out, (2 Hunky guys came about 1 in the morning, they were lovely picked mum up and went on their way. last night she was very confused, and we didnt get to sleep till about 1, and then i couldnt get comfy in bed i keep tossing and turning, and yes the heat does get to me.
nicky 08
glad to hear tabs are suiting you, keep taking them, and hopefully it will zap these secondaries. wouldnt it be great if it got rid of them, (im not sure if thats possible?)
lisaf
hope you do ok tommorow, enjoy.
bevvy
nice to hear from you, take care
keep living life to the full, no regrets then, enjoy!
xxxx
hi everyone
back home now,after id left my sisters my other sister rang and said there was water coming through kitchen ceiling seems like a roof tile as fell off, so glad it didnt happen when i was there. i had a horrible feeling the other day when i was there, i had horrid head, and felt weird, and of course for a moment you think negatively, but thankfully its gone better now. my sister who is poorly as been back in hospital with stomach pains, and they think her liver is swollen, she had it operated on in march, so they observed her for few days and then let her go home, they dont know whats the matter, and said they can only do so many ct scans so she will have to wait a month.i really hope shes ok. she seems to have suffered quite a lot more than me. first it was her bowel and then secondaries in liver.
hubby’s birthday, i was so pleased i thought id brought him the ideal pressie(cos he as everything, he needs , well i mean he as me hasnt he?)so i brought him a season ticket for a fishing pond near us, but it wasnt the one hes talked about, so dont know if hell use it (never mind though my son whos 14 will). men are so difficult to please arnt they. i asked him to go out tonight, he didnt want to. so i thought id cook him a nice tea, and ruined the meat! aghhhhhhhhhh
hope you all ok x
Really hope your sister is okay.
Love to everyone else, its late so not staying on. Managed a 6 mile midnight walk last night for our local hospice, was a lovely night and emotional, off on hummer tomorrow for aunts birthday.
Love to everyone xx
Hi,
Lisa well done for the midnight walk, a great thing to do. Hope you are not too shattered from it. Did you get a lot of sponsors? The trip in the hummer sounds fun, where are you going?
Lorraine, what a worry with your sister, fingers crossed there is nothing bad going on and it is something they can sort out for her. She has had a massive amount of treatment so it is not surprising she is taking time to get over it. Poor old Mum too, what a time you are all having. Sorry to hear you had an odd turn, I know how fast the mind can go off at anything different. Was it just that once? Big hugs for you x.Victor does not deserve your efforts to do something nice for him, bet you feel like pushing him in that lake lol!
Nicky thank you I miss your soothing words that stopped my mind from going into overdrive. Are the exams all over yet and any news on whichever one was doing the art course? Hope they are both ok. How are the palpatations now? Have the bone tablets made any difference to them? Were you waiting for scan results? Fingers crossed as always.
Sorry I went off for a while, just kept busy and read a whole novel on a happier subject. So that and listening to the killers 20 times in a row bounced me back up.
So ’ are we human or are we dancers?’
Love
Lily x
Im nearly human after too much dancing and wine. Well could barely walk after the midnight walk but it was Aunts 50th and my cousins girlfriends hen night so we hired a surprise hummer for her it was lovely, 16 of us in it and drove to keswick in lake district, always take it for granted as only 30minutes away but the scenery is even better out of a hummer limo, had a good afternoon, I had the bar maid job and my mam on kareoke was a blast, then we all went for an indian meal and more booze, havent laughed so much for ages done me good, if I could stop panicing about these floaters I would be fine!
Lily glad you read a full book, takes your mind somewhere else.
Lorraine hope your sister picks up soon, you have a lot to deal with.
Well, off for a rest on sofa before work tomorrow x
Hi,
ok you all need a good laugh. I was sent an email asking about taking part in sports day at school, either the staff relay (they are mega competitive and win local road races all the time) or at the end of the relay in a 3 legged race!! Oh dear my fat finger just hit delete all on its own lol.
I am def a dancer Lisa
Lily x
hi everyone
thanks for all your concerns regarding my sis, shes feeling a little better now shes out of hospital, (so she tells me anyway)the only .thing with me being positive, is i think she feels she as to cope the same. im worried about the fact the doctors havnt been in touch with her blood results, she should have been starting chemo again today, and no ones been in touch. she says she will talk to someone when she goes up the hospital at the end of the month. i have tried to advise her to get in touch, im afraid cos a lot can happen in a month,
just been on a long, long walk, lovely though, through our local nature reserve and followed the river down to town probably about 4 miles. i think some of my weight is coming off, hubby says scales are broke, i will hit him over the head with them if he says that again! went for coffee today at druckers and never had a cake, had a pannini though, and had 1 square of dark chocolate.
can you die from chocolate withdrawel? cos its killing me! cut out all the extras had hot chocolate and said no when they asked me if i wanted cream and marshmellows( if i dont lose weight after all this, im going go and have the biggest cream cake i can find, and enjoy every mouthful.
anyone been watching apprentice, i really thought kate would win, just shows doesnt it.
lisaf
hope you start to feel better soon, and all your strange symptoms dissapear, keep having fun, and you wont have time to notice them.
lily
glad you doing ok, i too have been reading, and knitting for grandaughter, and ive managed to find a book, thats not mentioning illnesses, when i was going through chemo i couldnt believe it, the books i picked up, all seemed to have characters in who had cancer, and so i soon put them down, one even had secondaries in her bones, i mean what a co-incidence?
nicky
hope you doing ok?
take care everyone i havnt mentioned, your all in my thoughts
x
Hi ladies
Well the dreary weather has arrived - how I wish the sun was back!
I love reading and try to have one on the go all the time. I’m seriously thinking of getting one of the e-books so I don’t have to keep buying the real ones and them piling up all around the house when I’ve finished with them! A bit of escape didn’t do anyone any harm. I know what you mean about the cancer thing tho’ Lorraine. I was given the latest marian Keyes (sp?) book for my birthday, got to about page 100 and yes, there was the C word! I just stopped reading it. I love thrillers/crime books so they don’t mention IT quite as often so I guess I’ll stick with those from now on!
Lily - can’t think why you didn’t sign up straight away - what with those long legs of yours you would have won all the races LOL. From all your questions, the tablets seem fine and I’m so glad I’ve changed over, no more hospitals for a while. The palpitations are a bit of a pain (not literally) as they’ve been fluttering around a bit. Hoping the new dose (which I am now taking) will sort them out. These are my main medical worry at the mo, which is odd seeing I’ve still got BC! However they do affect your everyday life and quality of it if they play up and then it seems to take ages to get sorted with various medical visits etc. Fingers crossed.
Lisa - sound like fun, how many Hummers are seen in the Lake District? Not many I should think, having said that there’s not many anywhere - bet everyone thought you were celebs! Sounds like a great laugh and just what you (and all of us) need. Hope you’re not worrying about things too much, if you are, go get them checked out you naughty girl 
Lorraine - you’re doing so well with you walking and dieting. If it doesn’t show straight away keep going, it will make a difference and then you’ll do even better. Dying from lack of chocolate? I’m not medically trained as we all know but I’m not too sure on that one! However a small square of dark choc is good for you so you could treat yourself every so often? We all need treats after all. Hope your sis gets sorted, I can understand why she’s not chasing but also we all know how things can change, as you’ve said.
Well, fairly uneventful week from me. If you can count having to drive up to the Emirates Stadium at 10pm on Sunday night to pick up a very drunk daughter after Capital’s Summer Time Ball. Enough said! However the great thing is we’ve booked to go to Florida for our hols! Should be great fun and the last main holiday we have with both daughters as they start uni in Sept. Can’t wait - and that’s just me! Also ED has got her results from her course and got the ‘Merit’ she needs to go on to the next course. She, and we, are soooo pleased. She wants to do special effects makeup and really loved the Uni where the next course (an HND) is taking place. She can convert to a degree by taking a 3rd year, only downside is she may commute from home rather than live away which means OH and I won’t get the freedom we wanted in September - never mind.
Hope everyone else on here is doing well and think of you all especially Angie.
Take care
Nicky xx
Hi girls
sorry I’ve not been in touch with such very long time. it’s got a lot
harder to know what to say after all this time I honestly do not know
where to start.
I got a card from Lilly this morning and really had to rack my brain
I didn’t recognise your handwriting.
Thank you for taking the time to write, and sorry it’s going to take
such a long time, to catch up with you all.
I am now using dictation software, so it anything you read, seems
like complete gibber rich, such as that. Hopefully that explains
why.
My health has been up and down like a yo-yo and I am entering my fourth week on steroids. I have not had more than four hours sleep per night until a couple of days ago. things between Tommy and I quite afraid, alike have reached a point where I’m not caring that much.
I decided to stay away from this forum, for a while, found some of the influences here less than constructive. No one in this group, but I just didn’t want the influence when I’m trying to get some control back over my life.
sometimes you just need to protect yourself from other people’s attitudes. So I decided to take a sabbatical. but I have come to the conclusion that I just don’t need to read the points of view of those people. They have their own point of view I have mine, the two do not need to cross paths.
this software that I’m using can read to me too. to stay in touch with you all a lot more in the future.
and I need to tell you all about how we have closed down the business, as it’s decided to collapse on our wedding day. And then a week later one of our servers collapsed to. And then Tjitze, my healer, pointed out that life was trying to tell me something. The amount of bad luck at me and I have had to resolve in the last month, has left is feeling a little shaken. But I think things are starting to normalise now. All release they will be when I’m off these steroids.
I Apologise now for not having taken the time to read what you’ve all been up to and I hope to to catch up with you all over the next month or so.
I am feeling extremely beaten right now. But never defeated you know me.
Lots and lots of love to you all. And I hope to speak to you again soon.
please don’t shoot me, but Tommy may very well be doing some wedding photography. As he’s been talked into it, but he will be specialising in Lake District base landscape photography not yet average wedding photography. And to be honest, the money wouldn’t go amiss.
I shall try and put up a picture from our wedding in a second.
I hope I have not depressed you all, I’m sure once I am no longer suffering quite so much sleep deprivation I will be a more like my old cheery self. just hoping Tommy and I make it through this week, it would be chronically sad, if our marriage failed and after 14 years of being together. bus I really do not like being dependent upon other people and I’m finding that very hard to adjust to.
I cannot wait, to be off of these steroids. Hopefully, I will not collapse this time. I am currently on a reducing reducing dose, and anything could happen in the next few days. do not worry if I become quiet again. Hopefully I’m just sleeping, Lord knows I could do with some.
I think I have bent your ears enough for one of message, I hope to speak to you all again soon.
one thing Tommy and I are doing, is ever read time we have a depressing oncology appointment we make a point, with doing something fun afterwards I highly highly recommend that.
Hi Angie
So good to hear from you. I’m not one of your group but have been watching for your posts.
I really hope that you feel better when the steroids have been reduced and also hope that you and your new husband can work things out. It must be difficult when your husband is hoping for the ‘all clear’.
I also know that what you are hoping for and what your husband is hoping for is very different.
The software is good - don’t worry about that!
Looking forward to your posts.
Mal
wow angie, brilliant to hear from you.
can you tell me about the software if your up to it, cos my friend is dsylesic and i think it might help her, to join in on this site.
you are doing the right thing concentrating on yours and tommys time together, time is precious to us all. i also pray that when you reduce your steriods, things arnt too bad.
take care and its sooo lovely to hear from you x
Wow angie you never fail to amaze me with your strength. You photo is lovely but we had already found it and been thinking of you lots, really glad Lily’s note got to you.
I really dont know what to say, I think you need to do what is right for you in terms of this site, you have been an inspiration to others but look after yourself first and foremost. Im sorry about your business.
It’s hard being indpeentant and having to accept help, I hope you let Tommy help you and you work things out, its enough to put a strain on any relationship but just concentrate on you and hope the steriods reducing are going in the right direction.
The dictation software is working great - chin up chuck and hope you get a good night sleep.
Missed you xxx
Hi,
oh I love it when a good plan comes together lol. Angie I kissed the note for luck and just prayed someone would track you down through Tommy’s contact at that place. It sounds like you have a lot to think about and work through. Well we are all here to help if we can or just sympathise if you want to let off steam about anything or anyone! Glad I remebered to put my pen name on it or you wouldn’t have had a clue who was writing! Dictation software adds to your posts and will no doubt give us a few chuckles when it does its own thing occasionally. We have no such excuse for poor spelling, oh apart from chemo brain. I hope they manage to stabilise you without keeping the steroids going. Do you have any more chemo planned as I understand it the rads allow the chemo to get through to the brain. B…y dex must be really annoying and giving you the munchies. Keep us posted buddy and really brilliant to hear from you x.
Lisa has a point but I find it hard to accept help too. I think we all do, as this c…p disease has robbed us of enough already. I hate getting people to do things for me.
Nicky congrats to your daughter for her art exam, bad luck for not getting the house to yourself again (what were you going to get up too anyway?) and ha ha for joking about me racing lol.
Well I am signed off sick for a week with trochanteric bursitis and it really hurts. Of course you know what I was worried about, small ache gradually building up and then really hurting and feeling like my hip was going to snap! I totally ignored it and thought it would go away. It didn’t. Last night I had the worst sleep ever as could not get comfy or turn over without shooting pains. Foolishly went to work, nearly got stuck in my car at school,limped to the office. So many people said poor you, how are you, shame no-one could even get me a cup of coffee. Only got to the loo once as it wasn’t worth the aches. I was crying by the time I got home from my feet on the clutch and brake, booed over hubby who came in with 12 beautiful pale pink roses for me. Went to the doc and boooed over him too, so signed offf and told to rest. Lots of tablets sending me off with the fairies so feeling happier this evening and dreading going to sleep, hence the lateness of this post. Doc says it was from tripping over at school 3 times and gave it a big poke to check the diagnosis. I was more concerned about my pants, having been dressed by hubby before I went (just in case I had to strip!) as I can’t pull them up.LOL. Oh the things we have to do!
take care everyone and gee great to hear from you Ange
Lily x x x x x x x
Hi ladies and especially a huge hug to Angie
It’s been so lovely to hear from you, we have all been so worried but it doesn’t sound you’ve been having a bed of roses either. I wish both of you so much luck and hope you can sort yourselves out in the coming days - it must be so difficult for both of you, this crap disease has so much to answer for. I also hope you can come of the steroids asap and that you feel better for it. Lots of love to you and keep in touch when you can even if it’s a one liner! By the way the software is brill.
Well done Lily with the plan I’m not sure how you tracked Angie down but I think we are all so glad you did - not sure if she is ha ha! Sorry to hear about your pain, it must be so bad if you were in tears. Make sure you rest up and it heals or de-inflames itself - assuming it’s an inflammation.
A quick Hi to everyone else, hope you are all OK.
Nicky xx
Morning ladies
I have just sent a link to Lily about this stuff called magnesium oil. I was in excruciating pain recently with what they call restless legs this was a side effect of steroids in my case.
But the magnesium absorbed into the skin and calms everything down I would not be without it now it’s amazing stuff as I say I have sent you a link. No need to be in pain.
I forgot to tell you all that I have resumed the tamoxifen as my oncologists and I worked out that we could use the steroids to help me get through the transition so that I would no longer be sick from the tamoxifen.
this has worked very well and I have now been on tamoxifen for over a month so I think the transition is going well. I know it is worth taking.
of course I haven’t told you all that I have next to the arm Have I? A small patch has been discovered in my humorous. This would surely by coincidence and we think we’ve caught it extremely early. Not in any pain or discomfort from them I wouldn’t even know they were there as I have been told. Have had some good news
my blood levels are also currently being monitored, and when I last saw my wonderful GP a full blood analysis in order to work out what was going on with his leg pain, it turns out that IM sodium deficient so I need a lot of salt which sounds like you may be in the same boat really maybe you should get a blood test.
My liver tests came back looking really good basically I am very healthy apart from the steroids, and sleep deprivation, and the salt levels.
they are amount of good news for me to.
Lunch time for me lots of love to you all.
Hi Angie, so good to hear from you again as you have been in all our thoughts. What can I say other than my thoughts and prayers are with you and Tommy and I hope you can cope with all that has been thrown at you and that the medication doesn’t cause you so much discomfort in the future. Regarding this site you just do whatever is right for you as both you and Tommy have been and continue to be in a place of immense stress I hope you can be a comfort to one another.
Lily what have you been up to overdoing it by the sounds of it. Hope you are feeling a bit brighter.
Well I reached my first hurdle yesterday as I had the blasted horrible check up mammogram and a thorough checking over by the surgeon and I am delighted to report all is well so I will not see her now until this time next year for which I am very grateful. She said the trials I took part in are all coming to fruition and should be hitting the news soon so I felt very important and hope that the research will make a huge difference to women in the future.
Love to you all and special cyber hugs to Angie. xx
Hi everyone sorry not been intouch Ive just had a fab few days down in Wiltshire what a lovely place to visit. I will read through all the posts tomorrow and have a catch up.
Its nice to see you back on here Angie :0)
Take care all xx
Hi,
now you see why I was hunting you down Angie, straight in there with a remedy for me. We missed our Doctor Angie helping us out with all the minor discomforts.The message has only just flashed up so I will look at that in a second. Thank goodness the NSAIDs have kicked in really fast and have had no actual pain today. I did nothing just in case but it is back and starting to ache a bit now. Can’t even have a hot bath as hubby has gone to bed and I cannot bend to get out. My son is here but that is def not an option arggh. Very glad you are bvack on the Tamoxifen so i can think of it bombing round your body putting any nasties to sleep. I hadn’t realised that you could get such a bad reaction to it. I thought it was causing my stiff feet and ankles in the morning but one day of NSAIDs has completely cleared that so I now wonder if I have arthritis. Its funny as my feet got better when I was on CMF and I was not sure if it was due to less exercise (you may remember I spent huge amounts of time in the bathroom lol) or to the methotrexate, which is also used for arthritis. Is it a small bone met you are talking about? Good thing they got it early if so. Interesting about the salt but I am a salt eater and a big carnivore so I think I am ok with that. They check my bloods every few months and my GP said I am fighting fit and I even managed to have a high haemoglobin count and very low tumour markers hooray. Fab news about your liver tests, now you made me think of having some yummy pate on toast lol. Food again, time you gave us some of your culinary advice too.
Thanks Nick, I am much improved today and will probably go back to work early. I have a 20,000 word dissertation to write so at least I can just sit and get stuck into that. I am way behing with my deadline but can ask for as long extension as I want due to BC. I would just rather get it done and then I can graduate with my friends. That is assuming I finish it and pass! Hi Bev I haven’t really done anything, which is why the doc is confident I did the damage tripping over at school. I have fallen on the stairs 3 times now as I have no base and have to keep moving rooms, floors and buildings, carrying all my stuff. I carry it in my left hand (to avoid lymphodeama in Bc side) but then cannot hang on to the hand rail as everyone travels on the left. I have fired off an email to the school complaining again. No-one listens! Well done for fab results and for getting the big squeeze over and done with. I look forward to saying my friend was the guinea pig for that research and how lovely to have something so positive to come out of that nasty procedure and op. Long time for the next appointment, will you see the onc in between? I am on 3 month checks still. Hi soulgirl glad you had a nice break and I am sure you feel a lot better for it.
Well my only news is from daytime tv, so will not bore you with that. I also watched the football, ok I was just watching David Beckham x x.
Hugs everyone
Lily xx
hi all, wont stop long as think (or hope) ive been overdoing the typing after all my mates t-shirts and busy at work my wrist seems a bit swollen and I have very faint tingles in my hands (both).
Angie, great to hear that you have some good news with your liver - hopefully you will be fighting fit after the steroids are reduced further, hopefully you can tell us what is next, i.e. chemo maybe? Glad the small area was found early and in control. You back to giving us tips alreay!!!
Lily, you poor thing, must have been panicing and in pain, did you have your bridgets on at the docs?!?!?!
Bev, glad he big squeeze went okay.
Nicky - hope you doing okay.
Signing off - speak soon xx