LILY
TRIED SENDING YOU A PIC OF SOME BALLOONS BUT I THINK YOU STILL GETTING TEDDY AND FLOWERS ARNT YOU?
What a week this has been. Iām sorry to say that Iāll now be joining those of you in the secondaries area as I collapsed over the weekend and it turns out Iāve got brain mets. I can;t even believe Iām saying that. Seeing the onc on Thursday and asking loads of questions about the parp trial as that will hopefully offer some relief and maybe even a cure.
So if itās lilyās birthday today then happy birthday, donāt collapse or anything mad.
Iāll be having brain rads next which we hope will work. My Poor Ma is a wreck which lets face it would would be wouldnāt you. Iām not sure I can face causing anymore suffering. Iām back on the bastard steroids too but Iāll talk to the other girls with brain mets in a moment.
Angie
Weāve not communicated before, but Iāve often enjoyed reading your posts. Iām so sorry to hear you have brain mets - my very best wishes to you!
Gill
Hi,
Dear Angie I am totally numbed by your news. I canāt believe it could be so soon, so unfair, so undeserved, so bā¦y cā¦p disease. I am struggling to believe it can be happening. You know we are all here with you, all the way as always. I know the onc will have a plan to fight it and hope you can get on the trial you mentioned. I do not know a lot about PARP, but will read up about it now. If I can help in any way with my books or surfing, please say as I would like to help if I can. You are such a strong person and I know once you get to grips with it, you will be fighting it with all your might. I know brain mets are more unusual so you could maybe think about getting a second opinion, if you are not already in a top unit. I really feel like dissolving on the floor but I am determined to stand by your side through this and help in any way I can. We are all with you, always. Love to you and Tommy x x
Thank you everyone else for your kind wishes and I know you will understand if I just want to think about Angie right now.
Love
Lily x
God, dont know what to say I havent stopped crying since I read your post Angie and just want you to know Im thinking of you and if you need anything at all you know where we are - Im so sorry you collapsed to must have been very scary and hope you havent got any pain. I hope the meeting with Onc gives you more answers about the parp trial.
Love you
x
p.s. Lily hope you had nice birthday
Oh my God Angie. I am so so sorry and sad to hear whatās happened. You must be in a truly scary place right now and I do know how you must be feeling. You will get some good info and support from the secondaries forum as there are several ladies on there with brain mets. From what Iāve read, and Iām sure you have, it seems like rads definitely help and if chemo is needed the rads help the chemo do itās job. I guess you donāt know everything just yet about what treatment you will get but I hope itās sorted quickly and you donāt have any more problems before you start rads, steroids will help even though you wonāt want to be on them.
Thinking of you and Tommy and will be giving you all the support I can.
Take care hun
Nicky xx
Hi Angie
I am sorry to read of your diagnosis. As well as the support you are receiving from your fellow forum users you may find the Secondary resources pack helpful. It can be found following this link:-
breastcancercare.org.uk/server/show/conPublication.2
Also if you If you feel you need to talk to someone in confidence then please give the helpline a call, the staff here are all either breast care nurses or people who have personal experience of breast care issues. The number to call is 0808 800 6000 the lines open Monday to Friday 9am - 5pm and Saturdays 9am - 2pm.
I hope this is of some help to you.
Kind regards
Sam (BCC Facilitator)
Lovely Angie: What terrible news, you must be devastated. Just as it seemed we were all moving on to something vaguely resembling normal. This really is a b*****d s****y disease - fill in the stars!!
As the girls have said, we are all with you and Tommy and will support you both in any way we can.
I know you would say ā information is all ā so no doubt you will be doing your research, and, as Lily says, get a second or even a third opinion to make absolutely sure of where you are going.
Take good care of yourself.
Love and hugs
Julia
XXXXX
dear angie,
i too am so sorry to hear about your recent discovery, you must be feeling so low, i hope and pray for you and your family that you will be given the strength to fight like you have always done. i think it is probably part of the disease we all dread, but nowadays there is probably so much they can do. at the moment you need the love and support of all those close to you, and please dont be tempted to isolate yourself. you are in my thoughts im giving you a big hug, i hope you can imagine all of our healing thoughts coming your way., sometimes it doesnt matter how many people are around you can still feel alone, please dont hide how you feel, sharing is what gets us through this.
i know you may not believe in god at this present moment, but i do and im asking him to take care of you, and give you comfort and if possible healing. forgive me if i offend you by saying this.
love and prayers lorraine x
i hope ive managed to change my picture to a bunch of flowers for you x
Angie, know you probably have a lot to deal with at moment but just wanted to know that we are all thinking of us and understand you might not want to post at mo! Here when you want to vent and talk xx
Oh Angie what can we say words cannot express the feelings of sadness for you going through this and the support we want to be able to give to you. You are a tough cookie and need to call upon all your reserves to deal with this bloody unfair situation. My thoughts are with you and your family and if there is anything we can do research etc then please let us know how to help. Thinking of you and sending as many positive vibes as possible.
all my love Bevy x
hi everyone, still having problems with site, tried changing pic on last message to angie, thought balloons were not appropriate but it didnt work, anyone know why?
hope the rest of you are behaving yourselves, speak to you all later x
Youve got the bear and flowers back on. You need to go to your profile and edit and then select another picture at the bottom of page - I think so anyhow.
Love to everyone x
p.s. maybe a problem as my old picture back on too and I changed it the other day.
hi lisaf
thanks for your help, but i think there must be a problem, because i had the picture i wanted in the space at the bottom of the page, and it was showing under my name, but wasnt on the posts. i can see balloons at my end, dont know how you can see teddy. aghhhhhhhhhhhh.,
difficulties again. i suppose we should be glad to have any pictures better than previous when you couldnt.
goodnight.x
Hi,
Lorraine there are yellow flowers on the the contact message you sent me.
Angie thinking of you and Tommy. Have you got a list of your questions to take with you, as it is hard to take it all in and remember things on the day. Sure you must have so much you want to ask. A lady in our area got onto a US trial so that is an avenue to think about as they are so far ahead of us. We are all praying the onc will lift your spirits with his plan of action. When do you start rads? Please lean on all of us if it helps in any way.
Hugs all round everyone
Lily x
Looks like the right pictures are back!
Angie hope the Onc appointment goes as well as can, I know you must be devestated but I also know you have already done a lot of research on the parp trial and hopefully this could be a good avenue to go down, albeith Im not that up to date on it. Really hope the steriods have at least sorted out any pain but to be honest cant remember if you were in pain or not.
Hope everyone else okay, bit quiet on here but hard to know what to say at mo and dont feel like being jolly as Angies news has hit me hard
x
Hi: Hey got a picture on - not the one I wanted but it worked, just got to work out how to change it now. By the way, that is Carrieann, the chemo, etc, hasnāt changed me that much!!!
I think we are all sitting and waiting to hear how Angie gets on with the onc tomorrow. Please God let it be good news.
We are all with you Angie.
Love and hugs
Julia
XXX
Nice photo - might have to put my pooch on - bless they were discussed enough when we had the old Hair thread, about pincing their cast offs.
Every thing crossed for some good news for Angie tomorrow x
Good luck tomorrow Angie, weāll all be thinking of you and sending positive thoughts.
Looks like Lily and I are lagging behind now in the photo stakes. Will see what I can do.
Take care everyone, all of our support for Angie and each other is still so much needed.
Nicky xx
Hi Ladies
It has been a very long time since being on the site. I have just found that it as all changesā¦WOW!!! Luckly i have found the thread which has carried on from the old site.
So hello and (((((((BIG HUGS))))))) A bit late but Happy New Year, unless you are chinese!!!
The reason i was thinking of you guys is because i have been writing a diary about my own experience of BC. I was just going through the diary tonight and tomorrow will be a year to the day that i was diagnosed. In the diary i have also written how much this site as helped me cope and get loads of good advice, with Chemo and Radio. So yet again i would like to give you all a big THANKS 
I am now back at work and feel good to be back behind my desk and feeling i am on the road to recovery. Only working part time at the moment as i still get tired in the afternoon. It was strange going back for the first time and funny when people had to look twice at me. The last time some of them saw me i had long hair, now i am going in with short spiky hair. No wig or hats in sight and feeling proud!!!
I wonāt go on anymore. Hope you are all well and best wishes to those who are still having treatment.
Kirsty xxx