Well done sharnie for keeping up the fittness… I was same all through rads 16 mile hill walks felt really fit im iver two months post rads now and boy have I been knocked out shatterd…they say it is recivering from rads I said I gelt better than this during rads told them about my long hill walks daily…then they said well its prob all that catxhing up with you ontop of rads…x
Lorna you keep a check in your spelling your gettin as bad as me ha x
christine x
Evening ladiea
im just writting my list of questions for my oncologist tomorrow…what is the letter im asking fpr all about my opp is it a pathology repprt?? I cant find the comment about it…im up and out at 6am and have to be ready have to drop my daughter in Manchester at 7am & be back in pendle burnley for 10am for acupuncture then round to hospital to see oncologist… so when I leave my house I
need to be all sorted wih all guns blazing and my list of questions for oncologist…x
christine x
Hi Christine. Don’t know what stage you’re at so apologies if this doesn’t apply, but my main questions for the oncologist were what treatment he recommended and how much each added to my survival. He’s a bit of an arse but he gave me the info before I could ask. They did an additional test to see how fast the cancer cells were growing (ki67 test, I think). This was good because it showed that although my tumour was grade 3 and aggressive, it was at the slower growing end of the scale. This site has questions to ask: ww5.komen.org/BreastCancer/QuestionstoAsktheDoctorPDFDownloads.html
There are also some on breast cancer.org.uk
Good luck.
Thanks jill and thanks mf.
very interesting im trying not to forget to ask things I dont wamt to come away and say to myself I forgot to ask this n that…x
christine x
One thing I didn’t ask about was reconstruction - wish I had as apparently it’s difficult after rads because the tissue hardens.
Good luck Christine…Will have everything crossed x
Hi All
I have just joined the forum this evening after reading so many interesting and helpful comments. I was diagnosed with BC in June , had lumpectomy and sne in July . Have my onc appointment this Thursday . Just wondered what will happen and the likelihood of when radiotheraphy may start ? I realise it’s all a process and a waiting game …
Any help would be more than grateful? X
Yes good luck Christine will be thinking of u x
Hi Lisa. My rads started about 4 weeks after my final op (ended up having three). I think 4-6 weeks is normal to give time for the surgical wounds to heal. Hope you’re recovering well. Where I live, they offer a radiotherapy workshop for people with all kinds of cancer where you learn about the treatment and how to look after yourself. It’s quite useful. Not sure if everywhere has these.
Hi Lisa,welcome.I had my Onc appointment 2 weeks ago and start radiotherapy week on Friday.Im presuming you def are having radiotherapy ?The Onc appt just involves them going through why they are doing radiotherapy and talking through side effects and risks and getting your consent,also any questions you may have.
Timescales do vary between hospitals but I think they are supposed to start with 30 days of your appointment with Onc.
Morning ladies
thanks for all your good luck comments (any one would think im taking my driving test ha ) I just hope im not falling asleep by the tine im at the hospital…To be honest ive not took my tablets for about 4 nights and I do feel the difference…I will tell the oncologist this …I know he will try talk me into trying another brand …I just hope he will say im allowed the injection for my shoulder with it being on same side had my lynthnoids out…I really need to be getting back to work and a normal life again …wellcome to the forum Lisa its been great for me on here what better than to chat to people who are all going through it we are all in the same boat.x
christine x
Dear All
Thank you for all your replies , it’s so helpful and supportive knowing so many are going through the same process.
I am hoping that then my rad will start in sept ( my surgery was 6th July ) I had good news last wk from my onco dx test score was low so no chemo just rad. My lymph node had some micrometastis in so not sure what they will do with that ???
thank u all , hope yr all staying strong
lisa x
Morning Jo
I finished rads on 9th June im about 10weeks post rads now yea rads was a doddle to me too…just got blisters on last few days and weeke after fot infected under boob but nothing creams didnt sort out…its the tablets why I cant feel back to normal walking like some ine at 90 when I get out of bed and banging heads tiredness etc…are you taking any tablets ? X
christine x
Good morning back from second booster session - must say I’m not liking this much! It takes a lot longer - I think I was in the room about 25 minutes today! I got a bit worried at one point as I thought they had forgotten I was lying there! Apparently my clips were being elusive!! I started to count the branches on the picture on the ceiling at one point. Do you all have tree pictures on the ceiling at your hospitals? As I’m having boosters they are all in the same room so I have to look at a cherry blossom tree for the next week and a half - be much nicer if Poldark was there ha,ha! Hope you all have a good day, my nights aren’t getting any better - think I’m going to start looking for the meteor showers in the skies this week whilst I’m awake!
Hi Jennifed. I’m a left-sider but when I asked about holding my breath during rads they told me they just catch a small bit of the lung so not to worry, though there might be side-effects!
Sharnie,I will send Poldark over,he will give you something more interesting to look at.Although he didn’t turn up for Sheena last week and I had to send Gary Barlow ,do you have a back up ??
I am a bit confused about the heart issue,my Onc was very low key about any risks from radiotherapy due to precision of where they aim radiation.They never mentioned my heart at planning appt, although I have heard from another lady at same hospital that if they can see it on your C.T scan they will look at breathing techniques.
Sending Brad and Poldark,you need cheering up!!!It is a blooming long job this isn’t it,I seem to have living in “cancer world” forever.My boss is coming round this afternoon part of my employers sickness procedure where they try to pressure you into going back to work before you are right,something to look forward to…
At least she phoned to wish you good luck eh!!!Our sickness policy has a one size fits all approach , often wondered in the past how it would deal with cancer ,now I will find out!One of the questions they ask is what are you doing to get back to work ASAP and what can you do not stop this reoccurring…Well I have been under the knife ,I am taking tablets that make me feel crap and I am going to spend the majority of the next 3 weeks at the hospital being radiated ,can you suggest anything else…Oh and I’m working on a vaccine for all cancers…so there is no chance I will inconvenience you again with this malarkey …