I seen my oc today and signed consent forms. Awaiting heart scan and pre assessment appt. I asked for a start date for chemo oc said depending on scan appointment either the 11th or 18th DEcember
I really want to get started now as the anticipation is very stressful. Is anyone using the cold cap?
I am not sure what to do regarding the cold cap as my hospital only have one size cap. I have spoken with a couple of ladies who tried it and gave up after the fourth go. I have also read the reviews on the forum which were more positive. I am still undecided. Jacx
Jac I’m on the November thread and started chemo on Friday. My hospital uses the 1 size gel caps which then has a tighter cap which goes over the top and I’m giving it a go - fingers crossed.
I just had a call from hospital. They gave me a date for chemo 11th Dec but no appointment for pre assessment. Is it ok?
Hope you’re all doing ok
Thinking of you all
A thanks for letting us know how you are. Glad you’re feeling fine. Please take care. Someone advised me to eat well and get enough rest during the treatment
Hi Jonomo
I’m glad everything went well for your first chemo.
I asked the oc how they would administer the chemo and he said via a candler . I see a lot of the other ladies have picc lines.
It seems like I have waited ages for the start date.
Good luck to everyone starting soon. Jac
Hi A
I’m glad everything went well for your first chemo.
I asked the oc how they would administer the chemo and he said via a candler . I see a lot of the other ladies have PICC lines.
It seems like I have waited ages for the start date.
Good luck to everyone starting soon. Jac
Thank you. A
I just feel so weak this evening. Dark thoughts and not sure how I’m going get thru this . Feel v emotional and alone and trying to act normal. I wish I cud stop crying.
Sorry but my eyes keep leaking a river! Luv to all jac xx
welcome to the angels Joanne1973- sounds like you’re planning a lot to get thru before 13th, take your time you don’t need to put yourself under too much pressure right now. Hope the hypnotherapy helps.
Kaz16 fingers crossed for you n the infection, hope it clears up in time.
THE- the nurse could only find 2 veins in my arm for the PICC, one was up too close to the artery & the other they tried to put it in but the vein was too narrow. Central line ok (I think it is a Hickman) but need to find a way to cover it properly coz currently only having washes- think I need to speak to nurses about it soon!!
Setae eh - sorry your finding it difficult to tell your family-obviously we don’t know your situation but I’m sure leaving it and worrying how to tell them cannot make the telling any easier & is harder on you.
I told my family on the day of diagnosis, separately but face to face. After a few hours hubby n son went to prearranged golf & football but the rest of us (mum,brother,sistersx2 & sister in law ) all went for a meal to spend a few hours together & get our heads around it & I’m really pleased I did it that way.
Today is FECT # 1 day 4 & I still feel a bit of a fraud really. I have felt queasy a few times but been able to eat ok although my mouth today feels a bit chalky so wonder if taste buds are going… I get a little tired but pace myself to do the chores, put my tree up today n went food shopping (admittedly to a smaller supermarket than normal). there I met someone from work who said “oh you do look well”!!! Maybe it’s the visit to the hairdressers I’ve treated myself to each week since I’ve been off…or maybe lack of stress lines as not at work!!!
I realise I’ve been fortunate with SE so far, but let’s be strong Angels & try not to worry what’s going to happen to us, we can’t really change it much so it’s enough to deal with it when it happens. we need to take it easy n conserve our strength
I am new here too starting chemo on 12 December. Diagnosed with IDC grade 2 stage 2 lymph node involvement, had a lumpectomy and SNB. Surgeon thinks best to get on with chemo then back for more surgery to remove lymph nodes and also more breast tissue. Then radiation after surgery and Tamoxifen for 10 years! I am having 8 courses of “dense” chemotherapy 4 rounds of AC and 4 rounds of TAX - every two weeks. I hope I can manage it. Anyone else doing this regime?
Hi Sarahmummy and welcome to the BCC forums
In addition to the support you have found here please feel free to call our helpliners for practical and emotional support, lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000
Here’s a link to the BCC ‘Treatments’ information and further support ideas which you may find helpful over the coming months:
Hi
This is my first post on here and can’t believe how many other women are affected. I am 40 years old with 2 teenagers and a very busy active lifestyle so was really shocked when I was diagnosed.
Was diagnosed on 17th October 2013 with stage 2 IDC and high grade DCIS with 2 lymph nodes affected. Had WLE and ANC on 29th October. Had my first chemo session yesterday (having 6 x FEC-T) and was so terrified I was physically shaking, but it wasn’t as bad as I expected. When I got home I had a headache then after about 6 hours felt sick so took anti sickness tablet n went to bed.
To those of you about to start chemo please don’t worry too much about all the side effects (I know it’s easier said than done) just try to think of the end goal it will soon be over. Well I’m hoping so…
Hi Barbie40
Welcome and I am sure your fellow users will be along soon with support and shared experiences for you, our helpliners are also on hand with practical and emotional support on 0808 800 6000 and lines open weekdays 9-5 and Sat 10-2
You may find the following link to the BCC ‘Younger women’ information and further support helpful:
I don’t think many of us ever expect to be in this situation, I know I would have sworn blind I was the healthiest of my family and close friends but u just never know…wham bam 1 day it just jumps up n hits u.
The forums really nice to browse thru n find info from other people who maybe have had similar side effects or problems or maybe just had a different experience. Everyone seems to have a different journey with breast cancer, with different treatments & things in a different order.
Don’t forget girls 85% of us will still be going strong past 2024 and with all the new developments I’m sure the figure will get even higher!!!
Receiving my 1st chemo on 2/12/13 was a bit of a let down if anything lol, I sat in a comfy chair in a horseshoe shaped room of many chairs with my sister for support. I had the water, books & company but to be honest it took less than 1 hour & I fled hardly anything…I think I expected it to be traumatic it the most distressing thing was the number of times we were offered a brew n biscuits…“no I don’t want any thank u!!!”.
I really feel for the people who aren’t as fortunate in their side effects but have learnt don’t worry til there’s something concrete to worry about n then find a way to deal with it.
Love n hugs to all my fellow angels, keep strong we’re gonna make it x
Jonamo and Ro good to hear from you. I heard the first week might be a bit difficult but it’s getting better the second week. Stay strong. Thinking of you x
I have ultrasound tomorrow, hospital appointment on Tue with oncologist and start the chemo on Wed. So I’m going to have a busy week. I’m also going to see my Mum tomorrow, not sure when I can see her again! Finally I decided not to tell my family but I have a friend staying with me for one week when I start the treatment.
Sorry to hear you’ve had a rough few days. Like Tara I was sick within 2 hours of the first chemo and had terrible nausea plus headache for the following 3 days but was ok after that. Most people have recommended a drug called Emend which is supposed to work very well for the sickness and nausea. I’ll definitely be asking my oncologist about this on the 13th Dec as FEC 2 is due on the 20th . I’ve not been having any extra injections, glad though as I hate needles.
Hi A, like you I get a very dry mouth at night and need to take a glass of water to bed. Glad to read you’re feeling better though, things start to go back into perspective once the nausea settles down (don’t think the steroids help).
Good luck to all you ladies starting your chemo this month - remember this is doable (please mind me it’s doable when I feel like pants after the 20th Dec when my next FEC is due).