wanted to tell you all about my early xmas pressie as I’m so excited and proud of myself!
I got a big shiny purple bike! With lots of comfortable padding and good suspension for my poor ole bones.
Been out with hubby and son and did 2 miles and felt really brilliant and alive! Fantastic, and its exercise and a bit of independence as I can’t drive.
Would definitely recommend it despite my mothers worries about my bone mets!
Loe Kitkat (exhausted but happy)
More Good News from me too! I wanted to share my good news too with everyone as sometimes we forget there is hope!
I’ve recently had CT scans on brain, abdomen, neck, pelvis and there is NO EVIDENCE OF METS !!! For those who don’t know I had liver mets and multiple brain mets (see profile) and am so overjoyed I can’t quite take it in. My onc said he was pleasantly surpised as he had expected there to be some activity!!!
I do still need to have bone scan as he thinks any cancer activity here might be the cause of my recent anaemia but I can deal with bone mets! Its not the bone mets that see you off is it.
Feel like the huge cloud I’ve carried around has been lifted, for a little while anyway.
So don’t give up, hope my news cheers you as much as it has me!
With love
Kitkat
Thanks again for prayers and good wishes also to Belinda for Kitkats post re WBR they do help and Ian has just read them. He is feeling better today think he is over the shock of picking up the wheelchair. Now we will see have many tiffs we have over his steering technique.
Love Debsxxx
…careful there Debs - during my wheelchair time my husband would perilously push me close to the canal edge, if i got a bit too lippy! If it’s anything like the one i had it was pretty unsteerable anyway.
Btw have you looked to see if there are any trials at all - I’ve heard they are selecting candidates with brain tumors in the states and europe for something called ‘tumour treating electrical field therapy’ - some guy in our local paper is going for it tho he has a brain tumour.
Debs, only just read your news so sorry to hear it, hope treatment goes well. haven’t posted much on your threads but read and so admired you on TV! You can be assured you are in my prayers and thoughts. Love debs xx
Just got back into bed after my first lot and I can say with all honesty I don’t like what it did to me the two rt girls were very kind and chatted while they did the stuff. Had rt to my back which I know will cause pain over the next few days before I feel the gain. By the time we got home I had started being sick and I hate being sick my liver hurts and I feel sad and angry that I am going through this and putting my family through it. My haed feels like it has been badly hit but I can’t say where.
Goodnight every one.
Love Debsxxx
i hate that you have to go thru’ this - you are right to be angry and sad, this is not the way it is supposed to be! i hope the side effects don’t last too long and the treatment does it’s job. i guess it is just one day at a time, you are in my thoughts and prayers,
Debs, I’m so sorry to read the first day has made you feel so ill…hopefully this will lessen with further doses?..is there anything that can help with the sickness? Perhaps the RT staff, Onc can prescribe something? Thinking of you both…and I’m just one of so many of us here, you are in so many other’s thoughts and prayers.
Love Belinda…xx
Debs, what a rotten time you are having. I hope the RT does it’s stuff but it must be awful to be feeling so ill. I hope you had a decent night’s sleep and that your next dose isn’t as bad or at least they can sort out the sickness. Wishing you all the best.
Nicky x
Sorry you’re having such a rotten time of it Debs, have always followed your treatment and wanted to add my thoughts and prayers for you.
Thinking of you and hoping you’re soon out doing wheelies! Di x
What are they prescribing for sickness? My rads to spine made me feel incredibly sick, worse than chemo. The right meds sorted it. Maybe you need a much higher dose because of WBR.
Feeling like that is so horrible but they must be able to do something!!??
Thinking of you lots and hoping for a better day for you.
So sorry to hear how awful the RT has made you feel - how many more do you have? You so need a break from all this suffering so I hope your onc can prescribe something to give you relief from your symptoms. You are in my prayers, as always.