Diagnosed at 29 - is there hope for me?

Uh? You are scared to go through treatment in case it doesn’t work and comes back stronger? Okay, extremely unlikely, but what would you have lost? Absolutely nothing.

Anyway, I’m glad I made you smile but you seem determined to look on the bleak side which is such a shame. ‘A lot of long term survivors’ doesn’t get close to the truth. The vast percentage of people who have cancer will survive and thrive. But they are the ones who put everything they have in to getting well because they love life and want more of it. They don’t sit around conjuring up worst case scenarios and convincing themselves armageddon is inevitable.
I’ve never been very convinced by the ‘there are people much worse off than you out there argument’ but then I have never needed persuading to save my own life. However, I will tell you that right now a 57 year old close friend is dying of motor neurone disease. This is the most cruel affliction you can imagine - she is two years in and totally paralysed apart from moving her eyes. She has no speech, is fed through a tube and lies prostrate 24hrs a day. And the cruellest thing of all is that from day of diagnosis there was never any hope. There is no treatment, the medics have no clue what causes MND and most people die in less than two years after acute suffering. But still my friend jumped at every drugs trial going in an effort to save her life.

You, like so many of us, have a disease which is, for the most part, cureable. So please, stop fantasising and get on with treatment. You owe it to all those who cannot help themselves, you owe it yourself and your family and friends - and you definitely owe it to the long-suffering dog!

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Let’s start with the positives. It’s small. It’s not in your lymph nodes. You have had a scan and there’s no sign of it anywhere else. It’s triple positive so there are lots of treatments. No one wants to have these treatments but most people get through them without too much difficulty. Just a small blip in what will hopefully be a long life. Please turn up for treatment. There’s absolutely no reason to believe you won’t be one of the majority for whom it turns out ok but you will lower your chances if you don’t have treatment.

I live with metastatic cancer and I still want to live each day I have.

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Thank you for this, your words really made me emotional. It’s true, I’m lucky there is hope, I’m lucky there are (several) treatments and I’m lucky I can still live during and after it, all things I’ve taken for granted.

Took a photo of this message for when I’m spiralling again, it’s helped me a lot today and sure will when I start treatment in the few days. Thank you for your words and for sharing this with me.

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It’s true, I just keep saying I’m the minority that got it so young, so I will be the minority that treatment won’t work but it’s been motivating seeing eveeryone’s stories and more than that the love for life despite everyone’s circumstances….I really need to get up and move forward and stop feeling sorry for myself. Thank you for sharing your thoughts :slight_smile:

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Thank you for these will check them out, and also congrats on the 5 years, that’s a huge milestone!

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Hi, Chan,
So sorry this has happened to you. There is good news as small lump and not spread to lymph. that’s a big one to give you relief.
Lots of people now survive hormonal cancers and have good lives. right now you are feeling shocked and sore emotionally, so give yourself a little time to take this in and don’t rub yourself out. Maybe put on a film that always comforts you or piece of music that you love. Right at this moment you need to feel a little calmer and doing those things may make you feel safe.

there are groups on here I think that are Triple positive breast cancer. Also when you are ready there are many breast cancer groups on FaceBook so you will find a group for sure there, as I have been on loads. There are groups that support with foods and diet whilst on Chemo as well.
After treatment, it was then that I looked at what I truly wanted to do and also looked at what I needed to change in my life. I did meet a hitch as my husband is now very seriously ill but I try to think of how we can keep happy.
Take it day by day and one step at a time. Please don’t think your life is over, it is changed for now but you will get it back. There are loads of different types of support online now. Sending love, Sx

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Hi @chan1,

Firstly, I’m so sorry to hear your diagnosis. Please know that we are all with you, and we hope that you find the forum a comforting and supportive place. I’m pleased to see that you’ve already had so many lovely responses and that you’re feeling a bit better since your first person.

Please know that if you ever have any questions or just need someone to talk to you can reach our nurses on our free helpline 0808 800 6000. You can also ask them any questions in the Ask Our Nurses section of the forum where they will respond to you.

You might also find it helpful to check out our Younger Women with breast cancer events so you can find support tailored to your situation and meet others going through the same thing.

Also, I see that someone has signposted to the Predict tool. Predict uses individual information about the person and their breast cancer alongside data from large research studies. However, as you mention, this version of Predict doesn’t include variables such as radiotherapy treatment and the impact these may have on prognosis. There is a newer version of Predict (version 3), which does include other factors, however this newer tool hasn’t been externally validated yet through large studies, and the UK Breast Cancer Group (UKBCG) is currently not endorsing this version it until it has been validated against international data.

We’re sending you all the very best,
Alice :heart:

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Thank you for the suggestion, maybe a comfort movie will help when I feel unsafe in my own body. I just wish I had a better mindset about all this, which seems like most people automatically do and this gives them strength to go through treatment and build a good life after, so really trying to work on that

Thank you for all the resources. Unfortunately my doctor doesnt want to discuss staging or disease free life probabilities which would massively help me with motivation despite knowing that they are just calculations. So I have to rely on this calculator for some potential clarifications for my case, especially because my fear is not beating it this time or going through the treatment (all doctors have told me you will be cured) so my fear is if it comes back and kills me (I guess like everyone else!)

Hi, my friend was diagnosed with breast cancer at 32 and she opted for a Lumpectomy and radiotherapy at the time. She did have node involvement.

She’ll be 60 next May so please don’t think this is the end for you.

It’s the scariest time for everyone when you get that diagnosis but things have changed with new treatment options and plenty of support.

Keep reaching out because it helps in so many ways. Sending love xx

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Wow what an amazing story, i wonder how she managed to skip chemo with node involvement. But this is just what I needed. Any idea if she ever had a recurrence?

Regardless thank you for the hope, I just need to look more for the positive stories because they’re out there. Thanks for sharing her experience with me :smiling_face:

The anxiety about it coming back is so real, but stories like susaq12’s friend are exactly what we need to hear. Treatments have come such a long way too. Sending you so much strength, you’ve got this!

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Hi, I think they just removed the nodes and blasted it with intense radiotherapy. She found out she carries the BRCA 1 gene so opted for a double mastectomy and hysterectomy just before her 50th birthday. 10 years on and she’s as fit and healthy as the next person x

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Breast cancer is the most studied cancer, with many treatments coming up every few months. I know it is very difficult at first, but it gets easier as time goes by, and one day, you will forget about what you went through. One thing I was told and I believe it is accurate, you will appreciate life way more than healthy people who take the appreciation for life for granted. Best of luck.

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I am so sorry you are going through this and at such a young age. My journey started last year at 56. I had a large lobular tumour. I opted to have a Mastectomy with reconstruction (diep). It was a massive operation and I am still in recovery mode, eg doing physio and tonight off to Yoga.

If I had to give you some advice it would be to “reframe” your thinking. Try to start to look at each day as a gift and to live totally in the present moment enjoying life each day. Enjoy the little moments like walking your dog or a visit from a friend. Smell the roses and enjoy the sunsets. Start to tick off things on your bucket list too. When I got diagnosed I decided to finally do a pottery course and then a Bonsai one - all things I had wanted to to but had not made time for. Life is for living and in a way this diagnosis has made me want to really live life and not take things for granted.
Don’t get me wrong, I have my down days too but I try not to dwell on the future too much - rather I focus on the present and put my own needs first.

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I’m so sorry to read your post, I can’t imagine the shock and bewilderment you are feeling but I can relate to the disassociation with feelings.

I’m 70 and was diagnosed last year, had a mastectomy and I am fine, so in that sense, I am of little or no use to you in terms of a similar situation BUT… THE DIASSOCIATION…

I was shocked at myself. My brother was ill before I went in for my mastectomy and my sister and other brother visited him but I couldn’t because he had a serious infection. However, I felt no emotion, I was pragmatic about it ( I would have been distraught normally). Two weeks after the mastectomy, my brother died. I had to get on a plane to Ireland ( funerals are quick there) and attended the funeral to support his adult children. They were sobbing but I felt nothing. A few months later, my friend’s husband called me to say that my friend was dying of pancreatic cancer and was asking for me. I went to her, she died, I went through practicalities with her husband and adult children but I couldn’t feel anything. I was beginning to think that I would never feel anything again.

The only feeling I had was anger which made me intolerant and irritable. I didn’t like myself. I too found it hard to enjoy my dog.

MacMillan were marvellous and I received counselling, it was great to be able to voice things that I couldn’t to any friend or relative or my partner.

I realised that the dissociation is a protection thing. There is only so much that you can cope with and your subconscious protects you from being exhausted with all the emotion. You are in shock, you need time to adjust but you have to make decisions.

With regard to my diagnosis of cancer ( which I appreciate is very different as I am 70), I believed the doctor that it would be fine as it was confined to one breast. I could have had a lumpectomy but I decided I wanted to cut it out and get on with my life. I decided to be positive and to be grateful for the chance to overcome something that would have been life threatening. Before the op, I stood naked in front of mirror every day and visualised the scar. After the op, I was really pleased with the scar and offered to have it photographed to reassure other patients.

I was eager to get on with recovery until I realised that I wasn’t feeling anything.

Last week, I went to see “War Horse” and had a good cry!

Make use of this forum and your MacMillan nurse ( if you have one).

Attend your treatments and accept every bit of help offered to you.

By the way, my grandmother got cancer at 35, she had a mastectomy and lived to 84!

I don’t know if this has helped you but I hope it has in some small way!

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Yes different experience at my age but still tough regardless of age when getting this diagnosis.

Thank you for sharing your feelings on dissociating, I’ve not found many people who got this and you’ve explained it perfectly. Maybe there will be a day things are a bit more joyful and I can feel happy doing things I loved before, including cuddles with my dog!

Also what a success your grandmother had, I just wasnt lucky enough to get it so early to just need surgery but still hoping for similar results :smiling_face:

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Hello,

I got diagnosed with TNBC at 35. Tomorrow is 1 year since I rang the bell! You can do this! What really helped me was connecting with other younger women going through the same. I shared my journey on instagram- @triple_negatitty I connected with loads of people on there and we still talk all the time and we get exactly how eachother is feeling. The cancer community is amazing. My advice is just to take 1 thing/step at a time, it’s going to be hard but just focus on 1 treatment at a time. Also celebrate the wins; half way through chemotherapy, end of chemotherapy etc this helped me plan and think about other things too. My inbox is always open.

Jade

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Do one nice thing for yourself today, pretend you are caring for the person that you love most… possibly that is your dog​:heart::service_dog:

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Thank you for sharing, will check out your insta too, I’m finding it hard to share the news with anyone, feel a lot of shame around it so admire you a lot for sharing with the whole world!

Congrats on the 1 year, hope you celebrate well, you deserve it a lot.

If you dont mind me asking how are you dealing with, if at all, with any recurrence fears?

Thats my main fear moving forward in life.

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