That is so much information! I’m so impressed at how well you’ve done to get all that. It makes the information that I know look absolutely pitiful 
Did you ask for all that or were you just given it?
Sorry you are back to post surgery rest and recovery but really great news on your lympnodes. Do you feel some relief about that? 
I was given a copy of pathology report from surgeon, that’s my third report, he automatically gives me a copy which is great to have. I am so relieved and happy it’s not in my lymph nodes, I am very lucky. I am in Ireland, is it not a thing in the UK to get a copy of your of report?
I think I could ask for a copy. I’m not sure I’m brave enough yet for all the details haha
Im glad you shared this and I read it. I was diagnosed a week ago and I feel similar to you. Its like im describing another person. Im so tired. I worry im not doing what I should be doing.
Hi @kay8 I am so glad you messaged, these forums have been such a life saver for me over the past few months since posting this!
I am so sorry that you are having to go through this too! What I have learnt is there is no right or wrong way of handling this. I was very numb for the first month or so, and every now and then something would trigger me. I guess its still the same now but I am on the rollercoaster of treatment so just focused on each next step.
What is happening for you next? Have you got further tests now before your full treatment plan? Any questions you might have then please do not hesitate in sending over! xx
Thanks for your reply. Im done all my tests; I have my first oncology appointment next week, followed by chemo a week or 2 later. I should also have a fertility consultation next week. My treatment has been confirmed as chemo, surgery, radiotherapy and tablets. I cant wrap my head around the very long timescales im facing. I had no idea how long it could be…
Im trying to prepare and educate myself, and take it a day at a time. But I’m so terrified of losing my hair, my identity, my passions, my energy…
Glad all the tests are done for you, so you now have a plan in place of what is going to happen.
The next appointment with the oncologist and your Breast Care Nurse and they will talk you through which chemo you will be given. They are fantastic and explain it all really clearly.
I also had the fertility consultation, I decided not to freeze my eggs, I am 39 and had already made the decision last year that I didn’t want children but again the person I met with was amazing and explained exactly how it would work and they were all led by my decision 
I know the timescales seem long, but one of the girls oncologist said to her, give me one year of your life (it won’t be a full year really) and I will give you, your whole life back. That has really stuck with me!
Losing my hair was the main thing I was worried about, I didn’t want to lose who I was because I thought that it defined me, and when it first went that was a bit of a knock as made it more real but honestly it feels good now. Knowing that I get to watch it grow back will represent it all being over. Also not everyone loses their hair, I have spoken to a few people now that haven’t ad have just had it thin out.
What day do you have your oncologist appointment?
Couple images of me recently with my bald head and head scarf and mid chemo, and I think rocking it!
Thank you for your thoughtful reply. It is useful hearing about your journey, and the perspective you shared.
What helped you to accept the hair loss and change in your body (e.g. energy etc)?
You are welcome, I am 4 months ahead of you so can completely understand what you are going through so happy to help where I can.
The hair loss was hard at the time but it felt so much better to shave it off, I felt like I was taking back my control that I had lost. The energy, just accepting that this is short term and we will get that energy back. It was really hard over Christmas as felt like I was missing out on everything, but feel like right now I am in hibernation and then I will be coming out of it soon. I have also worked throughout, lucky enough that I am more office base and my work have been fantastic in allowing me to work from home when needed. I have chemo on Friday’s and then on Monday - Wednesday I work from home and have a nap during the day, and then usually back in the office on Thursday and Friday. You just have to really listen to your body and what it needs.
Dear Tessie,
I would say that what you are describing sounds exactly what I was going through. I was overwhelmed and one minute ok and the next minute dizzy and the next minute ok and then the next minute not able to concentrate and very tired. I think a big part of the problem was adjusting to the fact that I have just joined the Breast Cancer Society. How does one adjust to that?
My first mammogram showed a spiculated mass (95% chance of being malignant). Two days later an ultrasound and a 3D mammogram moved me up to a bi-rad 5. Three weeks later core biopsy confirmed IDC. One week later sentinel dye injection and lumpectomy removed my nipple and cancer site and lymph node leaving a 6” scar across my breast. So now I am waiting for the results of the surgery to hear my treatment plan if it is needed.
There is no way one can go through a month or more of waiting without going up and down like a yo-yo. I found I became more silent than anything else. I kind-of-disappeared into my bedroom to rest and sleep or to my couch to distract myself with a movie.
I got this far in my own way. It might not be anyone else’s way but it was mine. Any you will too.
Whichever way is your way is ok. Don’t worry about, “will I stay like this forever?” No you won’t. You will get back to being all of the best things about you.
You’ve got this!
hi It absolutely is related! This really bugs me that the doctors say this I slept for pretty much 3 months before finding out I had cancer for roughly 6 months. I shared my story on TikTok and lots of ladies came forward saying they were the same always tired/exhausted or run down. Maybe doctors aren’t aware of all the symptoms
Hope you’re doing okay x
Hi
Thank you for your response.
I am doing okay considering. I have had all the surgery and started on Tamoxifen but had to come off it as it made me so sick. I am still feeling very nauseous alot of the time and to tired to do anything and have lost 5kgs!
Dr’s cant work out what’s going on! Im just so fed up and exhausted.
Cancer just keeps giving!
Hope your doing okay. X
Hello,
I have just joined today, I was wondering how you are now, any advice.
I think like divorce I have done denial, anger, carried on with work as normal but deep down that was hard. I have accepted but now fear what the treatment is going to be.
Hope you are ok let us know 
Hi @lil56 it has been a little while since I read what I wrote back in September when I was first diagnosed, thank you for asking and I am so sorry that you have had to join these forums, but I have to say that it is a safe space that has really helped me through these past 7 months!
I am doing pretty well, I have been through 7 rounds of chemo (EC and Docetaxel), 4 sessions of Phesgo (i have 14 more to go), have had Zoladex since October and had a lumpectomy with a couple lymph nodes removed 3 weeks ago to make sure all was clear and I heard last Wednesday that they got it all, which was an amazing feeling! Tomorrow I have a meeting to discuss what medication I will be put on and next week I have my first radiotherapy meeting. It is amazing how quickly the doctors get you on and through your treatment plan 
Also just to say I have worked through out i found it good for me to keep that bit of control and normality, i had 5 days off sick during chemo and 2 weeks off after surgery.
I know it feels just such a long way off right now but you will get there 
Have you been given your next steps yet? Very happy to answer any questions that you may have xx
Hello tessie86, Im so glad you are doing well, no i still havent heard, noone called me today. They have their meeting Friday so i pray they call me Friday. Take care stay strong xxx
