Embarking on an adventure, you are welcome to tag along

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Hi, Sandra

Glad it went OK today. My appointments are 10.30-rather get it over with in the morning. I was warned of headaches by the Onc nurse although mine didn’t kick in for a few days. She said it’s fine to take paracetamol. She also warned me about runny eyes (mine havn’t)and it’s OK to use a hankie! You might be on a high tomorrow from the steroids but be prepared for lots of sleep on Sunday. I slept most of day 3 got up at 5pm went back to bed at 9.30 then slept all night as well.

Sounds klike you will be fine

Hugs & stuff

Carol

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Oh at last i have got connected Sanrda i have had thoughts for you all day the anticipaton is the worst.Hope you are feeling OK ish.Sorry to hear that your little g-son cannot come near you at pres, they are just such a joy.Sorry to hear that the 1st wig appt did not go well.I am sure there must be a lovely ‘rug’ as my friend called it that will suit you or now is the time to experiment? Did you have the cold cap?Never had the runny eyes but when the hair starts to go got the runny nose as nostril hair goes Divvy 7 tattoos indeed bragging or complaining? ( I would be bragging). Just for a laugh I had my results from WLE and ANC this am. Well the surgeon had drawn a lovely diagram of my boob, had got most of the v.diffuse lump(6.5 x 6.5 cms) but needs to go back to retrieve a bit he missed 0.5 cm sliver so says I how soon next Weds says the BCN have booked you in. Then I see a circle and a dot in the middle and thought oh, there is a but here. What is that I say? Your nipple he says)))The BCN said remember that?)).When we got outside for our customary chat she and my daughter and I thought this was hysterical yes I know small things amuse))Onc still away but when I pressed was told that no more peachy mother as dodgy lump and its many friends which showed no response on MRI does so on pathology.Had 4/11 affected nodes. Still sleeping with Rt arm out at 90 degrees as so uncomfortable and wakes me up otherwise and then surgeon told me that my arm was extended in that way during op for 1 1/2 -2hrs and elbow will feel better eventuallly.Sorry got cut off here( 15 mins from a major internatonal airport and rubbish connection how can that be?) so anyone I did not respondsorry and to Suze was going to comment have a great week-end all Jackiex

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Hi libby

Bragging obviously !

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Divvy,I knew it, hope work is better and the b****y HR and manager are being more decent and civilised to you. Think this may have been a different thread tho’.Jackie

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Hi libby
It was a different thread but thanks anyway, My manager will never change but I am feeling a lot better in myself. This week has been interesting as our receptionist has been on hols. In the past I would cover for her for part of the time, after doing my own work, but this time my work was given to someone else & the boss said I had to cover reception the whole time. This meant everyone coming into the building saw me first, which at the beginning of the week I was quite upset about as I have ‘issues’ with the hair & my appearance. Couldn’t decide if she was just unthinking or cruel.
BUT after a week my confidence is so much higher ! I have coped no problem, & today had 14 gentlemen in for a meeting & had to give them the fire & safety briefing etc. & it was fine. So now I can’t decide if my boss was unthinking or kind. (Mind you she’s never been known for kindness, so my money’s on unthinking!)

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Hi Adventurers,
Just a quickie as in Swindon for the weekend to see my grandson who I haven’t seen for 2 months am soo excited as I miss him soo much
:-)))

Sandra hope you are feeling ok and having some monents when you feel ‘normal’ mixed in with the no so normal ones. I can now vouch that after a tricky week managing various SE’s that things now seem to be calming down and I am having an increased number of ‘normal’ moments now :-)))) I am so glad for those times…it does make you appreciate it a lot more.

Been on pineapple juice to combat sore mouth which seems to be working.

Just had a lovely breakfast in hotel this morning which was really weird as I have had foods which I would never have even looked at before. Last nights dinner was awkward as I spent ages looking at the menu, questioned the waitress as to how fresh the food was, could barelt find anything that I thought I could eat then the choices left were all thing I would not have usually picked!!! Crikey it’s hard work for sure…anyway I ate, skipped dessert as couldn’t choose…but am still alive today!!! I think I thought I would eat a forbidden morsel of food and die on the spot!!! Well that wpuld make more interesting news if I croaked from eating a roast potato wouldn’t it (or maybe I am now being facetious - sorry )

ok back to my holiday…catch you all later

Hugs to everyone and wishes for an easy weekend as far as SE’s from the peachy mother (love that) are concerned

Suze xxxxxx

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Afternoon Ladies
Woke this morning wondering why l felt ‘normal’ but didn’t complain too much about that. Decided l would have a green tea and a couple of ginger biscuits, didn’t want to push my luck.
Then watched my dvd 3 times before l decided the injection would be easy peasy! and it was, so l was pleased with that, and decided if l come back in another life l would like to be a surgeon! see from one little injection l think l can be a surgeon! must be my peachy mother brain!

Took my Mum shopping to M & S this morning, then l went to a wool shop to get some patterns to knit some hats!! bought some cotton wool and dk, thought it would be fun and give me something to do, what l don’t want l will give to the local walk in centre, l am sure they can make use of them!

Feeling really well, but will it last! had my spoonful of manuka honey to keep me healthy! my actimel to keep my tummy healthy, and some liquorice to keep my ****** healthy! probably missed something, but l am sure l will be reminded when it happens.

Looking forward to my salad, mushrooms and steak for dinner. hope it continues! drank lots, well as much as l can without thinking l am going to drown!

Carol, I did phone the onc last night just to make sure about the tablets, and apologised for wasting her time! but she was so nice, and said to phone no matter how small the problem was, so that made me feel as though l wasn’t a complete nuisance!
Took my first two steroids to day, the nurse said to take one as soon as l got up and then the other at lunch time, then l would have no problems at night! Not looking to the next few days! xxx

Jackie took some comics and fruit and bits to the grandsons this morning, but they stayed in the lounge and l looked through the window, he said “grandma l want to cuddle and kiss you” hold back the tears, l thought!! so we kissed the window! and touched hands on the window! hope it is good clean, thick window!!
No to the cold cap, my onc is dead against it! so didn’t even ask, not that l would have had it, because of his views!
Why do they always miss that little bit? sorry you are having to go back, but not long to wait, hope it goes well, in and out the same day?
Well fancy not knowing your own nipple? too technical for us, whereas they are drawing nipples and boobs every day eh!
Is a pillow no good the for the arm when you sleep?
Enjoy your weekend xxx

Divvy, 14 gentlemen! well you sound as though you coped, so well done you, whether kindness or not, it worked for you and that is all that matters xxx

Suze, What are you like? on here when you have your lovely grandson to play with! yes l am doing good my friend, although early days!! plenty of time for all those side affect to kick in!
Wonder they didn’t throw you out of the hotel, asking how fresh their food was! bet she went into the kitchen and had a moan about you!

Hope everyone else is having a good day? and the s/e are easing
Hugs all round
Sandra xxx

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You all sound very upbeat , good on you !
Diwy , that must have been a baptism of fire for you , but did´nt you show them just what you are made of ! If your manager did it to be a b…d , well it back fired big time .
"Peachy Mother " Being a complete dud where crosswords and anything similar are concerned I found that really clever .
It´s awful not to be able to get near your grandchildren .
For me that was one of the worst things . I did´nt see my family or the granchildren for over six months until my rads were finished . The little one was just under 12 months when I went back in November ,just days before my op , then I went back three weeks ago , what a change . I must admit i had a few little weeps in my bedroom because of course she´d forgotten me , thankfully her big brother had´nt , and I was there for his fourth birthday .
This journey takes you to so many places , but to see my younger son again ,such joy !!
keep going girls !
Kris

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Hi it sounds like everyone is having a kinda upbeat day.Suze wot are you like? but paranoia sets in only too easily doesn’t it when doing what were simple things like choosing from a menu, its a wonder the chef did not come out to see you,and show you the door, but you have survived.Hope the rest of your break goes well. Divvy 14 men are you bragging or complaining (again)?Well done you coping with that and a great confidence booster for you whether that was the intention or not.Sandra ooh so sorry you are not able to get close to your g-c but hopefully not for too much longer. I had heard that some Onc do not like the cold cap it variess so much.No a pillow does not help just sleeping with my arm at Rt angles to my body but otherwise it has not beeen too bad at all so I cannot complain. Hopefully I will be in and out the same day if I am near the beg. of the afternoon list esp as no drain this time.Then the waiting agaaain. Yes fancy me not recognising a nipple the BCN clocked what had happened tho’ and when we got out she said’ you thought that was another cancer didn’t you?'I did too lol.Hope the s/e are minimal/doable for all and that everyone has an enjoyable week-end. Hugs Jackiexx

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Suze, I, too, had a resaurant experience today. Went into Manchester today with my daughter which was very brave of me. Went in a cafe for some lunch and went all through the menu mentally ticking off what I couln’t have, finished up with pasta with a sauce that was probably forbiden, but, hey, I don’t do this every day.

Was going to go into the Arndale to visit Hotel Chocolate but i got a real wilt and found I couldn’t cope with people coming at me from all directions and blowing football hooters down my earhole so I decided it was time to go home now.

Sandra, I went in M & S today and had to que for ages for the loo, I thought, I can’t wait for a changing room as well so I did,t buy anything. The Marks in Mchr is too big I find it overwhelming, is that my age or the “peachy mother” sorry can’t seem to spell any more

Love Carol

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Got my hair cut and quite pleased with it, thought less to fall out. I’ve never had hair this short b4. Also made app. to go about wigs. Anyone had the “fringe” hair piece? Thinking of trying it because had fringe for so long and thought might look better under a scarf.
Hope that you are all havin a lazy Sunday

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Danjo I’m 6 months post chemo & still find I can’t be doing with shopping. I used to love a potter round the shops but now I just can’t be bothered looking through racks of stuff, & as for waiting in a queue to buy anything - forget it. I’d like to say this is good for the bank balance but it doesn’t affect internet shopping unfortunately.

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Hi hope this finds you all well((ish) had a bit of a b****r after the surgeon said all was well with my wounds on Fri and had a reasonable day on Sat then found a v.reddened area in the axilla and side of boob and back raised temp and had to see out of hours doc lovely lady GP but no idea what was going had to explain all BC stuff to her, got a-b but think this may hold back my surgery on Weds to get bit of margins missed 1st time round OMG but say la vie la vie hope you are all OK this week-end and enjoying the sun or the footie Hugs Jackiexx

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Ok girls,
Maria needs lots of cyber hugs so get on her thread and give her lots of support, her thread is called ‘Need some cyber hugs’ ASAP!
Hugs to you all
Sandra xxx

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Hi everyone, not been around much lately but am reading up on the posts and pleased that everyone is doing sooo well…

Have posted on maria’s site separately - Maria lots of hugs you know we are all thinking of you on here

Sandra your first one out of the way, hope the side effects are not too bad - i have been lucky in that I don’t get many, apart from tierdness and the ‘emotional’ stuff I am sure is hormone related - the pysical ones are managable for me so that is good.

I could not do the injections to myself - my husband does them to me, from day 5 onwards 7 injections - I think the SE from them are are worst than FEC, ie terrible bone/back ache and the runs…

Anyhow the journey continues, time seems to go soo slow but we are all moving forward and making progress and hopefully soon this will all be in the past.

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Hi Saffronseed,
Really pleased Maria has had such a good response from everyone, just prooves we are a good bunch of lovely ladies!!
No side effect yet! little bit of feeling sick, but soon wears off.
Well you obviously trust your husband more than l trust mine, he is not very good with injections, and he would look and ask where shall l put it, and if l told him, l might live to regret it! so l do them myself, my son did say he would come and do them if l couldn’t but l had no problems. wonder why we all have them differently, l have mine for 10 days after the chemo! l will have to ask, and yes to the side effects, l was surprised when l got the back ache, no runs yet…

Lots of hugs to everyone
Sandra xxx

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hi everyone, 4 days of not posting, there are a lot of posts to catch up on! have felt better this cycle of fec, changed anti sickness meds, got heartburn tablets.Threw up badly thursday night after the chemo, it has happened every cycle that fist night. Good ish day friday, though thats means not too sick or sore, nothing on your level sandra, my god, your first day is lke my best day!!!saturday a dodgy one, today biut better, might even go out to the back garden tomorrow…!

Sandra, i have been told to avoid the probiotic yoghurts and drinks, are you ok to be havinf actimel? Dont want to scare you but would prefer someone to mention it to me,

take care all

Vickie

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Hi Vickie, No l haven’t been told to avoid anything, why no actimel? and yes l would like someone tell me, a novice at all this!
mind you if l am so good and you are so bad…Lol!
Love
Sandra xxx

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i know!think a lot of mine is hormonal plus keep thinking myself sick, associating things with the drugs/chemo, am mad. The yoghurts etc have good bacteria in but i think the reason to avoid them is to ahve no bacteria introduced into your body, not entirely sure tough so you may be best to check it out,

xxx

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Hi Vickie
Thank you for that, l will check it out before l down too many more!
Yes l was told the ‘younger’ ones get more sickness because of the hormons! lucky me eh! being sooooo old! has its advantages! but not many!!!
xxx