Hi sharon.bas - your Dr sounds like a right muppet. What an obnoxious toe-rag (can’t really say the proper word or I will be banned!) Fate works in weird ways, and maybe, just maybe, one day he will have his ‘love spuds’ tampered with and it will be just as painful. ha ha
Chin up girly, you are coping really well considering how much you have had to put up with. Once the mayhem calms down and you get a few hours to yourself without someone medical manhandling you, you can then get your head around the AWOL boobie.
I am doing good, got a few pin prick sized tongue blisters but nothing to moan about really. Plus the mouthwash is so tasty, I am happy to gargle every few hours!
Well done Julie for getting number 2 over and done with & managing to post on-line and text me the same day!
I am back in for chemo on Tuesday (number 5) so making the most of things this weekend. Although feeling a little tired today as my daughter had six friends over for tea and a pyjama party last night, it’s her 10th birthday tomorrow.
A meet up sounds good to me to, 10 or 11 May was suggested and that would be good for me too, as last chemo will be 19 May all being well.
Sharon.Bas sorry to hear you are still having a rough time.
Daisy glad you are ok, Cheryl says ‘hello’ and often asks if I’ve heard from you.
Well should be in bed but took stupid steriods at 8 as forgot them earlier so not sure when will sleep tonight! My vein hurts where it burst and then put it in another one in ! got loads of heart burn and indigestion, nothing helps it much , any ideas, took gaviscon , indigestion and heart burn stuff too and mints and ginger!
seem to have gone of food again, tea coffee most things but hope it just last the week as last time it did, metal taste not here yet so waiting for that, but just cant taste much!
my body feels tired but head alert!well brain such as it is, my head is now bald on top and back just hair at sides so nicola will shave rest of tomorrow or wed or john may do it ,but not keen! fed up with bits of hair everywhere you look and my head is feeling cold! wore wig most of day and put scarf on tonight!
Well good luck again for tue Helen! will think of you , only one more after that!
i have booked to go to Gunton Hall with mum (mad) on the 11th to 13th may, and got train tickets today too cheap in advance, so hope all goes ok, its a warners camp, her age more.
Sharon bas, you certainly are putting a brave face on , you really have been through it but well done with it all , you are stronger than you thought and will come out the otherside of this , I thought the pasin i suffered and drains etc after my op and pain before op wold never ease ,but things do improve eventually, and in a few weeks time you will be feeling much better about everything!
LOVELY TO TALK TO YOU SHELIA LAST NIGHT,
I will sort out tickets next week for pink party
we will have to go out for a drink one eve sometime
lots of love to all juliexxxx
I am not a happy bunny! Three weeks later and I still don’t have my CT results! I have phoned and moaned to the breast nurses and just keep getting told ‘they haven’t been looked at yet’. They don’t even know if Dr Whiting (?) is on his hols or not, and to be truthful, they didn’t seem bothered!
So, I have been told to ring again tomorrow and if I don’t get any joy, they will make me an appintment to see him, possibly this Tuesday.
Don’t suppose anyone has Proff Davidsons secretary’s number by any chance?
I am so in the mood for a row! - OMG, does this mean I have the stirrings of PMT after 9 years? If so, for their sake, I better have the results tomorrow!
HI everyone, I have had so much to read as plonkers cut through my cable nearly 2 weeks ago and have had no tv or internet!!!
Sharon bas I am so sorry to hear the trauma you have beeen through. As if being diagnosed was not bad enough you have now had to go through physical hell as well. Hope you are now on the road to a healthy recovery.
It sounds like a lot of you are coming to the end of chemo so well done.
Julie I wpould love to go to the Pink Party and I know a few friends will as well so count me in and I willl let you lknow about mates. I was going to organise a party in October but may still do.
I saw a oncologist for check up last week which went ok I suppose and I return to work a week on Tuesday. I feel tired but will feel worse I expect.
Better go and cook dinner now love sharon 2 xx
Love and thoughts to everyone xxxxxxxxxxxxxxxxxxxxxx
Hope everyone is okay on chemo and recovering from surgery well.
Julie, I had awful heartburn on chemo, they gave me omeprozole which usually worked well. Trouble is because of my hiatus hyena I’m still on it!
Daisy, sorry they are keeping you hanging about waiting for scan results. I really can’t STAND waiting, I would of thought it would of been read by now, hope they tell you tomorrow. By the way, I had mine late on a Wednesday afternoon and got the results first thing the following Friday morning.
Lily, hope you are okay, is it this week you get your results? You will be fine I’m sure. I think it’s Parents Evening Thursday, and guess what? I move house on Thursday!! Don’t think I have appointment with you yet, but if I do I promise not to FLASH boob or head, hee hee.
Well I have been clearing out cupboards, drawers, everything today, and it seems I have more rubbish to get rid of than stuff to take with me! Quite cleansing to have a good clear out though.
Sharon, I’m looking forward to seeing you on Friday, sorry I have been so busy lately, I have really missed you x.
Hi,
just a quicky, Sharon2 glad you are back. Puzzled what you meant by appointment ok you suppose, whats up? Doesn’t sound like you were reassured. Tracey I had no idea you had actually sold, etc, wonderful news to get that new start. i hope you are coming to see me on parents evening and I def won’t do anything didgy there lol. Best behaviour. Daisy I have the tel number somewhere will get it to you. BTW I still haven’t got my results due to same doc on hols for 2 weeks and he apparently has to see evey mammo, etc. I don’t mind waiting if he is the expert. I see the Prof on Wed and will enquire. Sharonbas keep your chin up matey, it will get better. Must remember to go for blood suckers this week, yuk.
Hi to Helen, Julie, Flora and anyone I have so rudely forgotten, sorry, really tired
Lily x
Hi Lily, I didn;t mean the last post to sound negative. I saw a Dr P–t- (not allowed to say names) who was reassuring, did not rush me and answered all my questions I thought as well as physically examining me. He stated I would be on hormones for 5 years and under them for about 10!!! as it was such an aggressive beast.
who else is going to the pink party?
My son and I are doing a sponsored walk next Monday for his football club - 10 miles!!! Last year I was great but this year well, watch this space. JAck does about 15 as he keeps coming back to me and than played 1 1/2 hours football.
Sharon bas how you doing today!
Hello to everyone else and we really are going to have to meet up soon.
daisy99 is that sharon I cannot remember!
Love sharon xxxxxxxxxxxxxxxx
Breast Care nurse rang me back and I got the usual ‘oh its still not on the system, can you ring again in 48 hours?’ No I bleedin’ well CAN’T!
So, Mrs Peeved of Danbury contacted the PCT and Nevs PA, she rang the Radiology dept who are they going to do it as a matter of urgency. The PA is lovely and was very helpful and I will have a call tomorrow with my results. It has been read, but not reported on???
Why does it take for me to angry and start losing my rag before things get done? Fingers crossed I will get a decent kip tonight as I have spent the last three having nightmares about …‘what if’.
Hi ladies
Daisy you go girl, I am sorry you have had to bang your fist as well as making all those calls, but I am glad you have got them moving and hopefully get good news tomorrow.
Good luck to helen for number 5 tomorrow hope daughter had good birthday.
Julie hope your indigestion is improving and you are getting your appetite back, I felt better once I had gone completly bauld, never got on with wigs but wore scarfs when I went out, but mainly stayed onatural indoors. Love Warners break can make you feel so young in comparison lol.
Sharon2 great to hear from you, good luck for retun to work take it easy though.
Tracey, bet you are busy, hope you are not going to far.
As for me not much as changed my chest still gurggles as I walk or turn over this is despite it being packed daily with a number of lengths of gauze. without going into to much gory details the district nurses are contmplating comming in twice daily as despite packing wound is still oozing tons. got to admit whole thing making me quite sick. because of infection pain and swelling I am weel behind on my excerises hope this wont hold me up to much and wont be permentant. cant wait till thursday hope they give me more answers then
Hi,
well I feel fighting fit compared to some of you poor guys, get better soon. Never works with chemo though, just the same old thing again and again, same yukky stuff. Daisy glad you got the number and you know with this, bad news tends to travel fast so I try to stay calm. Easier said than done I know. The same doc has not sent my mammo results either! I see the prof on Thursday so yukky bloods tomorrow after work. I do begrudge paying for the car park. Thanks Sharon2, sounds like good news but with a sting in the tail. I understand now. Yes lets fix a date to meet. Happy packing Tracey!
Gotta go, very tired
Lily x
Howdy all - received a phone call 9.10am, all clear on the organ scan…BUT, got to see Nev on Thursday as something is showing up in the pelvic region, he thinks it is just a cyst and has said not to worry about it. Shame I had to be rude to people to get the results.
I am going to have an ultrasound (hopefully soon or I will use the private healthcare) just to see what is lurking.
Hope everyone is well and good luck Lily with results.
Next chemo for me is Friday 8th, the worst days are the Mon&Tues after, apart from that, count me in meeting wise please.
Hi,
Daisy well hooray for main part of the scan and poooo for the blip but hooray that he thinks it is nothing. Might see you there what time are you, mine is 10 am. You don’t want to be after me as he loves my hubby and we are in there forever.Try not to worry as he knows what he is talking about but will cross fingers for you just in case. Sharon2 tell Tracey happy moving day and to give me a call if she has changed her tel number. How is the old barnet coming along?
Any meet will have to be an evening for me, preferably a Monday, Wednesday or Thursday
Lily x x
Hi Lily - my appt is also at 10.00, seemingly there are 3 of us with the same time appt! So, will see you there! If you are taking too long I will bang on the door!
Firstly Helen has imformed me there are no tickets left for the PINK PARTY which s real sad as was looking forward to going and had about 8 others interested too! still good for them that they sold out that quickly!
My boob has decided to become a brick again tonight! and my normal one is aching too so worried about it!
This Swine flu seems abit of a worry, should we worry about it more?
Sickness seems to be going abit, sore mouth and pebble poohs bui indigestion improving i think! Having real problems sleeping thought, waking every 2 hours like clockwork! any suggestions other than a hammer!
Well Sharon/Daisy
You certainly had to get cross to get them to give you an answer! We should not have to go through all that to get an answer!g ood luck when you see Prof D though!
Hope all goes ok! I may go out soon with scarf on , also may look at wigs up road to me to see what there like! Has anyone bought or looked at market ones? Someone said hairdressers up road to me ,Rainsford road have them 75 pound? do they cut them anyone know?
Sharonbas
well love glad you seem to be on road to recovery, cant believe what you have been through, stasy on mend !
Went to Hylands park today made me feel better! nice to be out in sun at last!
Shelia , sad about tickets for Pink Party, we must get together soon,love to everyone , and hope to see you soon,
love juliexxxxx
Hi,
Daisy see you there and lol if i get in before you!! We are having brekky in the canteen first. Julie yes I was worried to hear pig flu at Broomfield but heard from someone else so not sure if def or being tested. If it is def I would be very careful about going to public crowded places but one of the BC team would give the best advice. I was anxious going to have my blood taken as people looked ill!
Oooooh I hate going for results
Lily x