lily - happy 50 b-day celebrations
have a good evening all
love jk x
saw on today, and as suspected its more chemo
have to FEC x3 and TAX x 3
i need a portacath, and start chemo when wounds healed so prolly end of the mont
oh such joys
Linda
xxx
Hi Ladies…
A quick update - true to everyone’s advice, after diagnosis, time really does fly…
Diagnosed Monday, spent Tuesday sorting out children, work, insurances etc. Wednesday bone scan and today CT scan. Tomorrow meet with surgeon and hopefully get more detail on surgery and treatment plan. Half expect to be told also chemo, but prepared for that.
Still feeling really positive and ready to fight this.
Marguerite
Linda… here is me concerned that I might get chemo, so sorry that you are having to do it again.
Hi,
Linda sorry you have more to do but it sounds like a good plan to blast the wotsits to pieces. You need to get black or very dark nail polish for the Tax to stop your nails peeling off as it protects the nail bed.Have you got a wig or anything ready? The place in Southend is brilliant if you didn’t go there last time. Its crap to have chemo again but hope knowing it is roaring round your body to every cell to track down any stray cells will at least bring you some comfort and feel you are giving it a good fight.Hope this treatment is kind to you.I had to have a port, ask away if you want to know anything about it. Hugs x.
Thanks Kath we did not all make it for the meet but had a really nice time. I was up at 2 sucking rennies I enjoyed the food so much!!!
Marguerite you are certainly ticking things off your list fast. Are you going into Springfield? Keep us posted what op they are giving you and if we can help, shout. You can do this, little steps and enjoy all the good days and smiles you can in between.
Thinking of everyone going through treatment.
Fab to see everyone who made it and yes I ate too much!!
Lily x
Hi there
yep still got the wig from lasat time, love the colour but not too keen on the style luckily my hairdresser is a trained wig cutter so she is going to restyle it for me, and she knows what suits me so will be going there soon,
I did siggest trying cold cap this time but onc said I will still lose my hair so not going to bother with that
Tax was not too bad on my nails last time but could be different 2nd time round
I am hoping to carry on working throughout chemo this time, last time I went off for the whole time, and I think that made me worse, however I am a nurse and although I am currently clinicial onc is not too keen on me being in a hospital environment too much so will have to see how that goes.
I hope everything goes well for you Margurite, keep us informed, in many ways it is easier second time round you know what to expect a little more, 1st time it is fear of the unknown that is scarey, so we will be here for you every step of the way.
Lily thanks for all your kind words, I am looking forward to so of these meets.
Kathy hope you are doing well, and keeping abreast of things 
I was also wondering if any of you ladies have been to the look good feel better days, I went last time and it really was a nice afternoon and came away with a nice big bag of cosmetics decent stuff as well, they taught us how to make the most of make-up esp things like eye lashes and ey-brows, thought it would make a nice afternoon for us. The nearest places tho are Colchester or St Barts (very easy walking distance to Liverpool st)
Let me know if anyone fancies it and I can look into it.
(there is a web)
Linda
xxxxx
Met with consultant last night, bone and CT scans all ok! What a relief! Hopefully I am having surgery two weeks today, Saturday 20th! Will meet with plastic surgeon next week to confirm. Any advice on reconstruction would be great.
Do you ladies ever meet? It would be great to meet with you at some point… this is still all surreal, still have too many fears.
Marguerite
Great news re clear scans Margurtie and good luck with the surgery
Who is the plastic surgeon? Is it Mr Ramakrishnam, if so he is excellent and will advise you on the best surgery for you.
I am sure you have fears we all do.
I have not met anyone from here yet but I am looking forward to meeting others.
I love in Billericay if anyone wants to meet up for coffee one afternoon
Hope you ladies are all well
Linda
xxx
hi girls
marguerite such a relief scans clear & things moving forward at a pace - i was dx 7/9/09 & only just started cemo thurs 4th feb after mx & snb, scans, ax clearance & portacath fitted! so def private winning on timeline!!
good luck!
linda rubbish to have chemo again but agree not quiet so daunting when you know the routine …altho didn’t help me much thurs as manged to create a disturbance in the chemo suite when i had a fit!! i have trouble with needles! did it at my 1st core biopsy too & scared them all too! & a few other times!but had been good this time…so far!!
i used cold cap 1st time but certainly wouldn’t consider it this tiem - really cold!!! uncomfortable & makes stay at suite soooooo long - if fact they don’t even offer them now lisa said.
i worked thro most of chemo last time, teaching asst in primary school so millions of germs! but was ok but did have to have a whole week off with 1st taxotere as felt so poorly plus i was able to laeve classroom as when i wanted ( as work with lovely young teacher in a small school, plus they didn’t let me come in when any sickness/infectious diseases reported for our class)
portacath = no trouble & v neat by vascular surgeon j methai.
yes i’d be interested in make up day - live in braintree so can easily get train to liverpool st or drive into colchester
love to all
jk x
Hi,
Margeurite brilliant, so pleased for you and I know this will help you through the op and other treatments. Have they said what you will have yet?
Linda I hope you get your wish to stay working. It was the sofa for me ha ha. Teaching is stressful and they didn’t want me to be in and out. They wanted in every day or not at all until it was all finished.I went to the look good feel good day at Colchester and thought it was a lovely thing to do. They book up fast so best to ring sooner than later to make sure you get in. I used to work next to Barts in my hay days. Do you have a date to start chemo yet?
Kath gosh that is a long wait. I had my op April 2008 and chemo started May 2008. I have found Chelmsford to be really quick so sorry you have been hanging around a bit. How are you going so far on your first one? Hope the side effects are not too bad for you. Which chemo are you on? I had epi/cmf which lasted 28 weeks so went on forever.Very sorry to hear you were unwell too how frightening.
Take care all
Lily x
hi
hope all well as poss!!
i’m having myocet & cyclophosphamide x6
& so far side effects ok! tired but not actually sick - was given 3 days steroid along side chemo & guess that helps…was sick & felt sick lots last time ( ac x4 & taxotere x4, 2005) so relieved & have everything crossed things better this time!
had decided not to even try going to work so need to try & motivate myself to do something - poss get washed & dressed!! would be a good start!
love jk x
Hi all
off for my follow up with plastic surgeon today, but I think (certain) I have a wound infection, its red and sore, however its not hot, but if it is infected onc will put back chemo so it needs sorting.
I will call LGFB in a week or two and try and chose a date we all feel as well as we can, if we go to London we can have lunch first that would be fun.
I hope you are all doing well,
xxxxxxxxxxx
Hi everyone,
Just to let you know that the next support group at Rochelle House is next Wednesday 17th with it being a fund raiser. Scones, cream and jam £2.50. I know as I went for a massage today to destress me.
Hope all goes well for those who have just started chemo and those awaiting surgery.I hear Mr R … is the best. I see him on wednesday to discuss reconstruction. I am 3 lbs away from a stone so another 2 to go!!
Hope to see you all on Wednesday
Love Sharon2 xxxxxxx
Hi , just to let those who know me that I saw the GP adn he reckons the additional problems I have are due to the Provera which was prescribed to counterract the SE of the Zoladex/Tamoxifen. The problems should stop within 3 weeks and if not will refer me to a Gynae!!
I also saw the consultant surgeon today me R … and was at Broomfield for nearly 4 hours. HAd all sorts of tests in prep for reconstruction, been added to waiting list.
Hope everyone is well adn hope to see you next wed and may have news of our In the Pink party date.
Love n hugs sharon2 xxxxxxxx
Hope to come to Rochelle House on Wednesday… still feel a bit of a fraud (as this is not really happening to me!). More importantly, it would be great to see and meet other ladies who have battled or are battling this…
If someone could tell me what time I would appreciate it
Marguerite
Hi oscar Bailey, the meeting at Rochelle House is 7.30 - 8.30 and it would be lovely to meet you. Rochelle House also offers complimentary therapies for a donation so maybe you can book yourself in for a massage!!
Hope everyone else is well. I know the GP said give it 3 weeks but the bleeding is so heavy now may go back next week as can’t stand this for too much longer!!!
Love Sharon xxxxxxxx
hi all
hope you are all well
unfortunately I cannot make Wed I have a prior engagement, but looking forward to meeting you all soon
My wound is not healing vey well so it looks like chemo will be delayed by a couple of weeks at least
oh well
speak to you all soon
Linda
xxxx
hi
i unfortunately won’t make weds as my friend’s bday & she’s arranged a meal. didn’t go to support group last time but will try & come another time. does a bcn come too?
marguerite hope you doing ok & have managed to ask many questions & get answers! i’m a need to know person & the more i know helps me stay in ‘control’ haha!
what surgery are you having?
linda i had infection after mx this time sooo annoying! hope yours clears up soon - i had 2 lots of antibiotics
sharon hope bleeding gets sorted - sympathise as had non-stop period (from hell!) for 7 weeks when 1st dx (05) which only stopped with chemo but left me v low & had to have transfusion! horrid!!
strange for me as hadn’t even realised it was half term & i usually live my life by school hols!so enjoy break teachers! & mums!
love to all jk x
I hope to get to meet some of you on Wednesday, but unfortunately am in Bristol that afternoon - all depends on traffic driving back. If not, I hope another time.
M
hi to all of you new and old friends
I hope to see alot of you on Wed eve at the centre.Ihope all you recently diagonzed ladies carry on using this site as it is so helpful and comforting, there is always someone who can help you get through this and any problems you are having, its a great support network, alos if you want to talk to anyone who has had similar they will put you in touch with someone who had the same, they call you and help you , I found it helpful,
I had a mascetomy , a year ago nearly and now on femera tablets, had chemo and rads too, also had a reconstruction from my back tissue.if anyone is having this i can try to expain abit,
Sharon i do hope your problems get better soon , I was on that tablet when had problems with my periods about 10 years ago and remember i had a lot of break through bleeding , so hope that is all it is, keeping everything crossed for you! well done for losing a stone too!I am seeing Mr Smith next tuesday to see if e can sort anything out for the uncomfortableness!
Thinking of all the new ladies on here and hoping you all get through it and cope ok , its hard but we ladies all seem to have inner strengths, firnds say to you how did you cope ? but you do , you have to and it works! best wishes to you all
love julie,xxx