Well ff …that shows what a useless gardener I am …thought that it was a pineapple tree!!! My idea of gardening is pot of coffee and a slice of cake whilst hubby becomes a sweaty Berty pruning his plants!
Actually …he bought two tomato plants at a boot sale …they are very tall but not a hint of a tomato …I’m beginning to think they are cannabis plants or something ! So I’m hoping we don’t get raided …ha ha …only joking .
Have a good day ladies
Afternoon Ramade so sorry to hear that the e/e combo has not worked well for you. Not sure why the oncologist has kept you on the same treatment but lowered the dose. Regarding bone scans I have not had one since 2013. I often question why I don’t get one regularly. Have a good shopping day. Linda
Dear Ramade,
I am sorry to know that e/e combo failed to do its job. Will you be on 5mg everolimus for some time?My best wishes to you . The idea of money therapy is great. I am going to try that also.
Dear FF,
Happy to know that you are feeling better and your rashes are subsiding. Love and best wishes.
Ramade,FF,Linda,
Can you help with this. Everytime i have my blood test I find my haemoglobin count going down. Is this bc of Everolimus? Is this a side effect ? Is it ok to have iron supplement. My GP has prescribed iron capsules . Love and hugs
Hi Srilata
Sorry I am not able to help you regarding this as far as I am aware I have not had a low count. You could check on google whether it is ok to take iron tablets whilst on Everolimus or check with your oncologist. Hope u get sorted. Hugs Linda
First of all ladies …I’m not on this regime but in daily contact with my friend in Australia who was on it.
She suffered nose bleeds, really really dodgy tummy, rash and her haemoglobin dropped really low and had to have blood transfusion …so it didn’t suit her …she is now on letrozole / Xeloda and hoping for a better quality of life.
Hope this helps .
Dear Carolyn and Linda,
Thanks. Carolyn this really helps bc it is clear everolimus is the csuse. I also had nose bleeding but that stopped by itself. I think I have to see my onc before it becomes too serious.
Hello srilata
To be honest I dithered about whether to post that info but if it helps you and others reading …then maybe it was OK.
The more info sometimes the better …
Hugs xx
Hi
Sorry I couldn’t reply to your posts bc my mobile broke. The battery melted due to overcharging. Thanks for your support and the information was really useful. I had a check up today with my onc. He said there is nothing to worry now. But no iron supplement as I am taking calcium
FF Congratulations on your new job
Love and hugs
Hi FF ,Ramade,
Happy to know that you feel better. FF that"s a huge catfish. Do you have a picture?
Actually my immunity system totally failed. So i have to stop everolimus and start on antibiotics
Lets hope this works. I have high fever and chest infection.
Love to all
Hi Ramade
So sorry to hear e/e has failed. It is always a worry when a treatment fails. I know back in 2014 when Letrozole failed I thought what next. I have been on e/e over 3 years now eventually that will fail. I have just had my 6 monthly scan which I am still awaiting the results. Think positive there will be a treatment out there that will work.
Hi Ff/Srilata hope you are both doing ok and the side effects are not getting done.
Hugs Linda
Ramade,
I am sorry to know that the e/e combo has not worked. But I am sure there will be other remedies to try. We always count on the new medicines to work and keep us stable for some years. But if that doesn’t happen there must be some other ways to control the progress. Radiation is very effective and I am sure you will respond well to the treatment. You have been so brave and determined. You will definitely do well . So don’t worry and we are always there to share and support each other.r
I am sorry I could not reply earlier because this week had been quite hectic for me.I had a visit to my onc and because my tumor marker was going up, I had a scan and the report is due on Monday. I will have to visit my doctor again on Monday with the report. So if everything is ok I continue with the old medicines otherwise my doctor will change the line of treatment. I am trying hard to keep calm.
Lots of love and hugs for you and praying
Hi Srilata so sorry to hear you are also having problems. Did they tell you what your tumor markers have gone up to? Least you have had to wait long to get your results. Hope they are ok and you can stay on the same treatment.
I had my scan 3 weeks ago and not had my results yet. Rang them up last week and I got an appointment for 11 Sept. It is awful the waiting around.
Good luck for tomorrow. Linda
Dear Linda and Ramade,
Many thanks for your support. Yes it is a roller coaster ride and so much uncertainity. My tumour marker went up from 170 to 430 so my doctor did not want to take any risk. Linda why does it take so long for your scan report to arrive . I understand your anxiety waiting fot the results. Good luck with your scan report and I pray that you remain stable. Hugs
Hi Srilata
Regarding.scans when I have questioned why the scan results take.so long I was told they had to look at my previous scans to see whether there has been any change. The longest time I have waited was 5 weeks.
Regarding tumours markers I do get them checked every month when I go for my injection. I used ask each month but stopped when they went over a 100. Yet again I used to query when they went up slightly. I was told they don’t act unless they jump up by quite alot.
Good luck again for tomorrow.
Linda
Dear Linda, Ramade,FF,
My scan report was ok. So I continue with the same medicines. The rise in the tumour marker was probably due to some other reason
Thanks so much for your support.
I hope everything goes well for us.
Love and best wishes
Hi Srilata so pleased to hear your scans were ok and you do not have to change treatment. Will let you know when I get my results. Fingers crossed.
At hospital now waiting for injection. Running behind as normal. Usually here at least 2 hours shame GP cannot give the injections. Hugs Linda
Dear Linda
Thanks. Good luck with your scan. Yes waiting in the hospital is so tiresome. Is this denosumab injection that you have to take ? Hope you will not have any side effect. Let me know when you get your report. Love
Dear Ramade and FF
I feel much better now at least for the next six weeks till the next appointment. FF you are quite right tumour markers are not dependable. Better to have a scan every three months.
Ramade, have you started your radiation? What has your doctor advised ? My onc said there are many lines of treatment and not to worry if hormone therapy fails.
Best wishes and thanks for being there always
.