Hi everyone,
Hope all ok today.
Good luck JoJo today & anyone else whose treatment today too.
Well I had my first EC, no F for me and all went fine. Apparently I’ve got very good veins! My appt was 12.30 & I got in the chair at 1pm, so not too much waiting around. Then my chemo nurse asked if I’d had my sickness drug, which I knew nothing about & should have had an hour before?! So only took it then, but with getting my cold cap sorted & it has to be on 30 mins before treatment, the hour was soon gone. At least I know for next time! Was a bit wary when she started putting stuff in as she was saying this & that can happen, so braced myself, but all was fine & that’s when she complimented my veins haha! Treatment done by 3 but you then have to sit for 90 mins after with cold cap on & another 15mins after that for warming up, before taking cap off.Bit of a mix up at this point with one nurse’s wrong info & I ended up with an extra 35 mins!! So finally left about 5.30ish, thought I might feel weird when I finally stood up, but was ok, just desperate for loo! So cold capping does add a lot of extra time on! It was bearable, once 10-15 mins gone it’s numb anway, but before that I was thinking can I stand this if it gets worse. The worst bit actually is the tightness of the helmet and the neck strap, as feel like someone is squeezing your head. Me & my friend were just laughing at it though! I had some butternut squash & sweet potato soup (which I had made in morning ready) when I got home. Felt fine. Had a shower to rinse stuff off hair. Started to feel shattered from 8.30ish. Had a great sleep, only waking twice for toilet (due to extra water consumption!). Alarm goes off at 6.30 for OH & I stayed in bed till 7.15 before getting kids up, felt tired but no more than usual really when getting up early. Had my tablets in bed with 2 belvita biscuits as knew you had to eat with them but wanted them as early as poss so can have steroid at 2pm, going by what others have said. Have since had a bagel and I’m feeling normal at mo, but only day1! The thing annoying me most is not being able to wash hair, which I do daily and couldn’t style it last night after rinse off, so it’s looking delighful, as dries wavy and not how i like it! Anyway 1 treatment down, 5 to go!!
Zena - Hope you feeling better soon. And sorry to hear about you & Tessa suffering with your mouths. Big hugs for your hair shaving later x
Pinkloz - Welcome x
Ann - Hi chemo buddy x. Glad went well for you yesterday too. Hope you feeling ok today. With regard to the genetics, my gran had BC at 50 & had MS but no chemo & then lived till 80 & my mum had BC in both breasts at 42, so had double MS & chemo and is 69 ths year. So positive outcomes really. Do worry on results for me though, as ok I might go for double MS and hysterectomy, which I’m fine with, but I worry for my kids. My son is 15 & daughter only 11, so when testing would start I’m not sure, but sure it will be when they get older & will be monitored very carefully. Even my son would be tested as one of the BRACA genes can be linked to prostate cancer too, if my memory is correct. My daughter is already asking will she get it now after all the family history. It shouldn’t be something she has to worry about & that upsets me.
With regard to manuka honey, is that the best way to take it in hot water (think that was you Ann?) or are there any other ways to take please? Jo, I think you mentioned taking it?
Hugs to all and take care,
Max xx
