@jan30 it sounds like you are doing a great job already with your son.
I agree about the toilet, if you have 2 keep one to yourself for 48 hours. I remember being told to be careful with bodily fluids so kisses to cheek/ forehead in the first 48 hours, but again check with your team.
It’s a few months so you can have years with your son and family.
@pineapples123 hi xx I hope all good today at your pre-assessment sending love and good vibes for tomorrow. Xx
@wba hi x how are you feeling? I am on day 10 today and feeling a lot better, every cycle is so different isn’t it. Sending love xx
Hi @debly123
Pre assessment went fine. Just asked lots of questions. Got blood taken. Shown around unit.
Feeling strangely calm. But just feel I want it started.
Glad you feeling better. What side effects have you experienced?
I will have asked before. But what is you chemo regime.
Hope you feeling ok too@wba?
Sending love to all xxx
@pineapples123 glad you are feeling calm. I have 3 rounds of 3 weekly EC then onto paxy for weekly cycle for 3 weeks so I think 9 weeks all together, then surgery then radiotherapy. I had my MRI yesterday to see if the nasty had shrunk so going to get my results for that tomorrow, if it hasn’t shrunk they will take me off EC and move me not something different. I am just trying to take it all in bite sized chunks at the moment and trying not to get too overwhelmed by the medial details and leave it to the professionals. I am doing loads of meditation and affirmations to stay focused. Each cycle is different but had a lot of tiredness and a bit sicky. Xx
Glad your pre assessment went well and hope it all goes well tomorrow for you. I have my pre assessment tomorrow. I’ve got mri to get exact sizing before chemo starts this afternoon xx
Hi, feeling ok today thanks ,ready for the next round tomorrow.
I do keep waking up in the night and unable to get back to sleep. 
I think 3 of us will all be hooked up tomorrow for our treatent
@zoemac
@pineapples123
Hope all goes well for you tomorrow.
I’ve just got back from Primark with some of the adaptive range to try on.
Sending hugs 
@pineapples123
Pleased you feel calm after assessment, helps seeing where you will
Be.
I’m ok thanks, & thankfully only few side effects so far but it took 3 day’s for them to kick in. Felt very tired last few days not helping by because up in the night!
My treatment starts at 2.15pm tomorrow afternoon.
I Know you have a long day with your picc line going in as well tomorrow. Think you said you had an early start as well.
Hugs be thinking of you.
Keep us updated how it goes. 
I think it might be a good idea to call the BCN nurses on 0808 800 6000 to talk through your worries about lymph nodes and the levels.
I had a sentinel node biopsy and mine was clear. But I’ve never read anything about levels.
Hi February starters and those yet to join.
Just wanted to signpost to some great charities and websites that may help you through your treatment.
www.lookgoodfeelbetter.co.uk had fabulous courses online and face to face for hair, skincare/makeup and nails to name just a few. The nails is great for those on taxane eg Paclitaxel/ Docetaxel.
https://coldcap.com/ This is Paxman’s own website and shows how to use a cold cap and information about hair care. There is also a way to check your regime and the success rate. I cold capped on 12 weekly Paclitaxel and shed a bit, had two small patches above my ears ( please wear your glasses over your cap) and nobody knew I was having chemo.
www.cancerhaircare.co.uk is run by Jasmin who worked with Trevor Sorbie ( hairdresser) and she also runs some of the hair sessions for LookGoodFeel Better charity. She has numerous video with chats with Claire Paxman about cold capping. If you contact them they usually send you a small good bay with false eyelashes designed for lash loss. They have tried and tested loads of shampoos etc and guide to ones that work and best value.
A wonderful small charity who will send you a chemo goody bag if your provide you diagnosis, they destroy the information as soon as they dispatch the freebies. Sometimes they are available in some hospitals
Finally a great charity set up by Jo Tuchener-Sharp who had life saving brain surgery and decided she needed to help others.
They had a Super Scarf Mission to wrap every lady going through chemo in a free scarf. Their mission is for every one sold they donate another to a lady with cancer. They have contact with over 200 hospitals. So you may receive one from your hospital.
My hospital in Cardiff did not have contact, so while having chemo myself, I arranged with the local Maggie’s to get in contact with Scamp and Dude and after a few months the scarves arrived and they are handed out on the Look Good Feel Better makeup courses. I had finished chemo by then but was gifted a scarf for getting the contact. I have since bought another scarf or two, as well, as clothing. It’s a great gift idea for friends and family and you can help others having chemo.
I wish you all well on your treatment and will pop back to check on you.
Hi all and welcome to all our newbies 
Had a rough day today, a call from the oncologist at 9am to come in ASAP as he had some exciting news about my treatment that starts tomorrow. Obviously I was there at 9.30 to be told as my collective tumours are over 30mm I qualify for a more intense treatment of immunotherapy alongside Chemo (exciting for him)! Its a lot to take in and I’m feeling so overwhelmed, I had my head round every 21 days for 6 cycles before surgery/Radiotherapy so hoped to be finished before the end of the year but now it’s looking likely around 2 years 
I’m sorry the oncologist seemed so happy when for you it was a bit out of the blue. Yes the treatment will probably be the best for you but it would have been better to be told in another way.
What time do you start tomorrow? I ask as the BCN nurses are available from 9am on 0808 800 6000 but if you want to talk to someone else with knowledge of cancer and treatment MacMillan have a helpline from 8am - 8pm on 0808 800 000.
As far as the length of your treatment, many have more than a year. For me as HER2 + it was 17 months then 5 years of Letrozole (oestrogen suppressant) and 3 years of 6 monthly Zoledronic acid. So really that’s 5 years of treatment. What I’m trying to say is don’t worry about the time if it’s going to make you better. There will be some ups and downs but you can do this.
Thank-you for these links, will give me something to look through whilst I’m hooked up tomorrow 
I have and 1 was supposed to call back after speaking to the surgeon but didn’t and the other if she had any more info from colleagues but didn’t. I saw my surgeon today and got more info and am getting a 2nd opinion tomoz. Regardless of if levels 2 and 3 are removed the chance of se’s is the same. The lump may have been in 1/2 nodes but she couldn’t find the clip today so we will never know as the lump has gone now. She said she will def remove the right area though as she compared it to the previous ultrasounds.
Massive hug’s🤗
That must have been so overwhelming for you today, it’s hard enough as it is for you.
Here for you,. What time you going?
The staff are all very understanding, it’s a big day going into your first session.
Be thinking of you x
It sounds like you have been talking to your breast care nurse attached to the clinic you see the surgeon.
The number I quoted was for the Breast Cancer Now Nurses who are a dedicated team and tend to have more time to talk. They don’t have the pressure of working in a clinic and trying to call people back.
Hi , Not sure where to post, I am new here, but am starting my first chemo on friday. (EC). With Oestrogen + breast cancer, I have had a mastectomy over christmas. Single parent of two , both Autistic. Yep got my hands full 
Im pretty anxious.
And pretty much dealing with it alone. Hoping to get to know a few people . Feeling a little disconnected.
Greetings x
Thank-you, I know its the best treatment for my cancer TN, seems tough when I had everything so clear in my head. I suppose this is the new normal for a while. Wow almost 6 1/2 years of treatment, have you had many menopausal symptoms without Oestrogen?
Hi @tigertot welcome to the forum and you have posted in the right place as you are starting chemo.
You will find the thread very supportive through your treatment.
Telling your children is always hard not matter what age or diagnosis. I’ve worked in school for many years and depending on the spectrum of autism will depend on what you tell them and get them involved.
See my previous post re a link to appropriate books.
Being a single parents and dealing with your treatment is a challenge, do you have a support network that can help you? It’s best to be direct with the help you need.
You may benefit from signing up to Someone Like Me: Will match you with a trained volunteer who’s had a similar experience to you. They’ll be a phone call or email away to answer your questions, offer support, or simply listen. Call on 0800 138 6551 or contact our email volunteers
Thank you it was a lot to digest. I’m in at 10am till 3.30pm so will message through the day and if you’re set up and online will check in late afternoon. Hope you had success with the Primark bits you got. Be thinking of you too, sending healing hugs