Hi all
Welcome @lauzloo everyone is so supportive on here.
@sg81 good to hear your feeling ok after treatment.
You should be given a voucher automatically for your wig, not wait & see!
You want to be preparedā it can take a couple of weeks to get the wig sorted.
I would ask so you can book your appointment.
@mrsjelly how lovely you met up with @dkc66 Headwrappers sounds just whatās needed. Not heard of anything local in my areas.
Hopefully meeting up with @tigertot who is not far from me in a few weeks if we both well enough.
@dkc66
See like me your still awake early hoursš
Sorry your cold capping not working for you
I went through Same stages as you, itās traumatic when our hair goes, even though we know is coming.
@oldgirl
Sorry your hair thinning too.
I started to
Put my wig on as it thinned to try & get used to it.
Canāt say I ever will properly get used to it I still stress with it.
@zoemac
Sorry about your sad news for your daughters horse
Like you also fed up not getting out like I did.
You did make me LOL about the pedicure comment
My energy level are still very low. itās gets to
me as I was always so active, not the sort who likes to sit still.
antibiotics are working but now got a rash from that. think Iāve had it all in the last week!
The chemo had already given me itchy/ hot arms. Told to take piriton.
Anyone else had rashes ?
Hi I continued to run during chemo - I was a runner pre chemo and I needed to run for my mental health. I actually managed a half marathon - all be it slowly- after every cycle of EC and then Docetaxel and herceptin. I just listened to my body and on the days I didnāt run I walked, if only round the park. Didnāt go to gym or classes as was too scared as immunosuppressed. I was an April 24 chemo starter- still on Kadcyla
Hereās to another month surviving and living through this.
Thought Iād post this as I feel Iāve learnt more reading/scrolling through these forums than I have from appointments.
Sorry to hear things are on hold at the moment. Youāll be back on track soonšŖš¼
And Iāll call them tmrw about getting that voucher/prescription and book my appointment.
Quite a lot to catch up on in the forum,Am sorry to hear of the setbacks some of you are facing with treatment
I am due to have cycle 2 on Friday, I have felt a bit of a fraud following my first cycle,Had a week of being quite tired/groggy and achy-Which I am putting down to the filgrastim injections,But once I had finished those I felt pretty much as normal.
I do still feel more fatigued than I usually would,Which at times is fustrating me as I am used to being really active and on the go all the time!But I am trying to be a good patient and listen to my body when it tells me to rest!
Had quite a busy week last week along with celebrating my youngest daughters 13th Birthday.
The dreaded hair shed has started,Exactly 2 weeks following my first cycle,Like @oldgirl1 I am hoovering what seems to be an endless amount of hair from around the house,
I had prepared myself for it to happen,And at the moment I am ok with it,I just didnt expect it to happen so soon after cycle 1
Wishing you all a restful sunday full of positive vibes
Hi @rainbowbrite10 all being well my 2nd cycle is due Friday 7th too, after, like @wba , having it postponed due to abnormal bloods.
Iām also shedding alot now, and have become so thin on top I canāt not wear a head covering now. My wig is on order but not quite ready yet.
I got to be honest , i just donāt feel like me anymore. Even my clothes feel and look wrong to me. So feeling pretty drab, and a tad tearful. It can sometimes be difficult as a single parent as I have no one at home to sound off to.
I tried to get a headwrap workshop but thereās nothing with in 50 miles for me. Looked at skin and make up work shop think they had one about 15 miles from me. I know thereās online workshops but was kind of hoping to physically meet and possibly get to know people. Yes @wba would like to meet up , we just need to time it right.
How are you feeling now @wba ?
@dkc66 oh no sorry to hear youāve come out in a rash. I hope its not too uncomfortable and that the piriton is working for you.
@sg81 Iām sure that everyone gets a voucher for money towards a wig , whether your cold capping or not. Definitely check with them. Let us know how you get on.
I am due my 3rd paxy treatment tomorrow and also suffering with anxiety and over thinking all the time, have you been prescribed anything or have you managed to settle it, I am doing loads of meditation but not feeling great, appointment with oncology on Friday so will discuss. X
It really is hard when you look in the mirror and donāt see yourself looking back at you
I have come out in a load of spots over the past few days too,Which I am finding hard as Iāve always been quite lucky had really clear skin.
I have booked onto a LGFB course on the 22nd,Am hoping that will give me a bit more confidence in dealing with physical changes going forward.
Being a single Parent is tough going when you are dealing with something like this!
I am a single Parent to 2 teenage girls,And am trying to stay positive and keep things as normal as possible for them both when at times I just want to curl up into a ball and cry.
I hope all goes well for your 2nd cycle on Friday
@rainbowbrite10 Yes thank you, fingers crossed for Friday
Hey let me know how you get on with the LGFB workshop. Are you doing face to face or online ?
My eldest is (son) 20 at Uni and youngest (daughter) is 13. Both autustic, but yhe youngest is quite severely autistic , non verbal with tic disorders. I do get some respite but can still be difficult.
Sounds like you have the right attitude with keeping things as normal as possible. Good on you.
Being a single parent can be isolating anyway , but with this on top certainly brings extra challenges.
Just remember sometimes its good to have a cry, and can actually become part of our healing. Then we become strong again. x
Update on rash. Spent day in a&e. Diagnosis went from maybe shingles to maybe cellulitis to maybe blood clot but settled on bacterial infection. Sent home with week of antibiotics. Fingers crossed Im not allergic to them like I was amoxcillan years ago. Feeling happy it wasnt worse but sorry for myself today.
Hi ladies, sorry I have been offline for a while, lack of sleep has been quite tiring. I have actually forgotten out to put a new post up so my apologies if I have posted in the wrong place. Just wandered what body and face cream you are using as I already had very dry skin but now it is really dry and uncomfortable. Sending love and healing hugs to you all xxx
Oh no @dkc66 so sorry youāve had such a rough day today.
Must have been quite worrying for you listening to them trying to figure out what the causes were.
Hope the antibiotics sort this out for you. Please keep us updated .
Big hugs
@sparkleandshine Hi there and welcome back!
Personally Iāve been using cold pressed coconut oil, just donāt get it on your clothes. It totally ruins themš .
Stick to anything that is natural that way youāre less likely to have a reaction to it.
Rosehip oil is very soothing and restorative for your face. Cheap and cheerful grape seed oil is good for body. If you want an oil. Aveeno and La Roche Posey are very gentle. La Roche has worked closely with cancer patients to help keep their skin in good condition during treatment and itās very reasonable.i already use Toleraine cleanser and cicaplast balm due to sensitivity.
I didnāt change my skin or body are too much as I generally use unperfumed. I was just advised not to use actives such as retinol or acids while having chemo.
@dkc66 sorry youāre on meds, have a rash & feel rubbish, hopefully the antibiotics do their job and you got a good nights rest @wba I used some anthisan when my PICC dressing reacted and gave an itchy rash along with some Cetraban cream to hydrate which is really gentle, maybe try a cool pack for when it gets hot?
Its so exhausting navigating side effects with appointments that Iām really struggling this week. My hair has non stop been shedding and looks so wispy I think itās time to shave the last of it off
Hugs to all
about the pedicure comment 
think Iāve had it all in the last week!
all round x
, we just need to time it right. 
welcome to the forum. X
x
after treatment this week.
