Thank you. Yeah, it was cold last night when my bestie went for the walk with me, so we wrapeed up a lot.
My taste started to change even before chemo, as I think zoladex injection to stop my ovulation has changed it prior to chemo already. My mouth is constantly dry. But chemical/metal taste is almost gone from my mouth which is good. Porridge became my staple for breakfast so far, but had to gave some icecream too first thing this morning, cause I just felt like I needed it. Otherwise its as healthy diet as possible.
Kind of doen on my mood, which I kind of expected but did jot realised it will hit me this hard. Havent been down like this since covid when i lived on my own. Good thing, my therapy session is tomorrow morning. She did wonders with me during last year and its probably one of the reasons im not tottaly 100% a mess going through this journey. Bestie flying away on Monday though and I feel like i will be struggling a bit. Want to cry half the time and its not like me.
Oh so we are in reverse! How are you feeling today? You can tell me any issues youāve experienced with Pacx and Phesgo. My oncologist was happy today with progress after just 1 EC session as the breast has softened already. Apparently the phesgo really shrinks lumps though so just got to get through EC first and see what happens. I hope your symptoms are mild and you have a good week til the next round x
Hello @tigertot
Youāre not alone, I got there today to be told mine was cancelled, consultant wanted me to have a weekās break & finish my antibiotics first.
Just no one bothered to call & tell me.
Hopefully your bloods be better next week.
Like you Iām drinking 4 pints a day now. For liver & now my UTI.
So sorry your hair is starting to shred. I know how it feels. Sending hugs 
Your reiki session relaxed you but with this news now can imagine you must be now feeling anxious.
Hope you got a rest.
Iāve actually managed a walk round the block today, first time out for a week apart from hospital.
Itās all very frustrating, like you want to get on with it.
A wonderful charity called Penny Brohn based just outside of Bristol do loads of online exercises for people living with cancer, having treatment or post cancer. You fill in a questionnaire about your health etc and they are on zoom and give lots of adaptions such as if you have a PICC line or need to sit. They continued post Covid to provide online support whereas many others are now in person. During your treatment sometimes you donāt want to go out.
There are lots of other online offerings such as a Connect group, to chat with others at different stages of their bc journey, they have a treatment support programme Iāve 4 weeks supported by doctors and other professionals such as exercise, mindfulness and nutrition.
If anyone is interested, just click on the link (Penny Brohn in pink) click the 3 lines in the top left corner and then Full Session Calendar. Some activities are online or in person.
All activities are free to access but as always charities welcome donation to help them continue to provide them.
Hope this helps.
Hi, iāll be brief.
New here, been reading through for a while now. Lovely to be able to relate to some people.
First EC tomorrow 
Welcome to the forum @squidge143 . Sorry to hear you have a bc diagnosis and are starting chemo but this thread and forum will be here for you.
I personally found my chemo starters group in 2023 such a supportive group.
Be thinking of you tomorrow. You can do this.
@wba oh no way , you too !? 
Canāt believe they didnāt call you, thatās not good.
But Iām glad to hear youāre more active this week and that you are on the mend.
To be honest it doesnāt surprise me about the chemo attacking the liver. As for the first week I felt like Iād got a massive hangover. Problem is they say there is nothing you can do dietary wise to help improve it. Just sit and wait.
Reiki was great and have booked for next Thursday this time it will be before my chemo next friday 
.
But for now Iām trying to stay positive and look at it as an extra week feeling relatively normal.
@squidge143 Wecome to the forum , and best of luck with your first EC tomorrow. Youāll be fine, the nurses are fabulous and they really look after you 
and we are a pretty friendly bunch too. All here for each other through this journey. 
Hi Ajax
Had them both on Tuesday and up to now been feeling ok, had a few 
issues but only because I was already bunged. Hope your doing ok xxxx
Thanks alot for this!
I am living alone too - good friends around but can be very tough !
Good luck today.
Hi all and welcome to all the newbies 
sorry you find yourself here but youāll find great support and info from our lovely bunch 
Sorry you had to miss a session @wba its good theyāre keeping a close eye on you, annoying they didnāt let you know itād been cancelled 
Hope youāre feeling better from the UTI, can you take cranberry juice as heard it can help?
Had a real rollercoaster week emotionally, my daughters 24yr old horse was diagnosed with mammary cancer and will have to be pts, super rare in horses and like some kind of sick joke that she was diagnosed now 
Still having waste disposal issues and was told to get my GP to put any meds through a prescription as costing lots getting various over the counter (I think we get free meds as cancer patients) Iām on a pre-pay anyway so hopefully that will help.
Feeling like I need to book some treatments too as only seem to get out the house to appointments, going a bit stir crazy 
difficult to go too far a afield when any moment my bowls could open up, that would be awkward during a pedicure!
Hope everyone elseās side effects are not too uncomfortable and youāve found meds to take the edge off and help.
Try to have a good weekend all, hopefully we can get our faces in the sunshine and enjoy some fleeting moments of the simple pleasures in life 
Hi,
Thanks for the warm welcome. One week since my first EC and Iām starting to feel nearly back to my normal self.
Asked the nurses about getting a wig but they said wait and see? But reading some responses on here, some have stated shredding even after the 2nd. Not sure quite what to do. Maybe just booking an appointment first so I know what to expectš¤·š»āāļø
Hi!
It went just as you said, one week on and nearly back to my normal self. Thank you!
Cold capping tooā¦so kind of waiting for the shedding as well.
Good very early morningā¦
You have had a week of it @zoemac. With regards to prescription charges we are exempt.
Initially during a GP consultation I was directed by the doctor to get the form from the pharmacy I use. They in turn sent me back to GP surgery. The receptionist knew all about it, gave me a form to complete. I returned it to her and a few weeks later I received the proof of exemption card. It lasts for 5 years.
Will save us over Ā£500 in that time span. If youāre still on treatment for cancer after 5 years ( perhaps hormone blockers) it can be extended.
@wba I am sorry to read that youāre unwell and that treatment has been delayed. Pleased though that despite it youāve found the energy to be signposting and supporting people. I was due my third cycle today but owing to a scratchy tickly very annoying cough itās had been delayed.
Tad annoying because I had the end date in my calender and loose thought when I might have surgery. Even estimated what date it might finish in 2026. Like @tigertot I am thinking whatās another week. Itās an extra week to recover and feel more like myself, a week longer with my eyebrows and lashes and my taste is returning so Iāll get to enjoy flavour! 
This week I met with @dkc66 at the HeadWrappers workshop. Had the long needed mutual hug on arrival, followed by workshop, leek and potato soup in the hospital canteen, lots of chat with someone who understands. Then we both bought fruit and vegetables at a stall outside the hospital doors. Who knew you could buy fresh fruit and veg at a hospital! Brilliant. X
Its 1 40 am and wide awake still. It really was lovely to meet @mrsjelly this week and I am hoping to have found a lovely new friend. It was so great to talk about our experiences so far and at headwrappers meet others than ourselves who were baldies like us. Ive gone from being totally devastated about hairloss to accepting now, even not wearing anything on my head at home which i thought I would never do. I wont be continuing with cold capping and am looking forward to a much shorter time my next chemo. Time for a cuppa now and maybe even a few sneaky cheese and biscuits!
@dkc66 and @mrsjelly how lovely to hear your positive experiences at headwrappers and that you got to meet in person and share your experiences.
@dkc66 I know how much youāve struggled with your hair loss and itās great to hear you feel so much more happy and confident. Good on you both 
!
My hair is now beginning to shed after having a really sore scalp for the last few days. Something that I knew was inevitable despite doing cold capping. Itās not a nice experience , but listening to others like yourselves gives me hope and positivity what ever the out come.
So thank you for that . x
About to have 3rd EC this coming week. My house is being hoovered hourly to pick up my hair. Even though Iām cold capping I am thinning rapidly. Bought a wig but canāt even face taking it out of the box yet. Dreadful situation, but I just could not imagine shaving my head. Just too awful to think about. Following @pineapples123 as we seem to be on the same path. Energy levels improving slightly just in time for another EC to set them back again. Itās so difficult for me to get to grips with being a couch potato, as I am normally so active. Sort of in control of sleep and bowels patterns. I wish all those undergoing chemotherapy this week the best of luck. xx
Hi @oldgirl1
Yes I have had 2 ECs so far and I hate it that I am so tired and just lying around and sleeping. Iām feeling almost normal today and want to do something productive. My goal is to tidy a drawer out. But Iām still on settee where Iāve been for last couple of hrs.
Welcome @sg81 i am on EC and have had my 2nd session over a week ago. Iām cold capping and not had shed yet but just waiting for it to come. There doesnāt seem to be any pattern when it happens. Iām on this Facebook paxman cooling group. It seems to vary for everyone. Some shed straight away others not till the end.
I bought a wig. It looks ok. But donāt really want to wear it.
Sorry @tigertot and @wba that your treatment was cancelled.
Hope you both feeling ok now.
Hope you feeling better also
@zoemac and you getting out a bit more. Iām having to force myself to do anything at the moment apart from lie under my heated blanket. So lovely @mrsjelly and @dkc66 that you got to meet up. I wish I lived near to someone on here . But Iām all the way up in the north east near Newcastle.
Love to all of you xxxx
Hey everyone, new to the forum and thought Iād post to say hi
I had my first EC on the 19th Feb.
Going to have a read through now and hope to speak to you all soon.
I sure could do with some support!
I hope everyone is doing okay