Sorry you’re feeling down, its so rubbish isn’t it. Hope the thinners are doing the trick and you have some relief from the swelling, itching and redness. Are you on week 6 now? I was due to have 6th treatment tomorrow but cancelled to give me some respite from the side effects, saw oncologist today and he’s reducing Paclitaxel by 25% moving forward from next week.
Watched Stacey Solomons ‘sort your life out’ last night and made me straighten up and pull my big girl pants on, the young girl on the programme really made me appreciate how lucky I am that I got to 58yrs without any serious health issues
Just worked out it was week 2 on both cycles for me so have just got a prescription for stronger codine ready for the next time, hope you got something? @rainbowbrite10
Hi, I’m in a March chemo starters group but reading sometimes this thread as well I think we’re on the same treatment (for tnbc)
I also got a clot in my PICC line arm this week sooo annoying! So far it’s not the chemo that gives me most troubles but the PICC line.
I’m on blood thinners as well. Today the pain has decreased but the itching is just killing me. Not sure it’s good enough reason to call the nurse though… Did you get any other advice besides blod thinners?
Always check everything with your team just to keep safe it’s what they are there for and they don’t mind they want to get you safely through use your rapid response number Shi xx
Seems like I’ll possibly be joining March/Aoril starters at this rate. After having first EC on 7th Feb (on 21 day cycles), I still haven’t had my 2nd cycle due to my chemo being cancelled again for the 2nd time. Bloods for liver function shot up an are not recovering.
I had a liver scan today and the radiologist said there doesn’t appear to be any problems with my liver. But my bloods say otherwise and my treatment has been stopped until the oncologist works out a new treatment plan.
Meanwhile I’m staring at my Frier Tuck bald spot in the mirror as a souvenir.
Gosh it sucks.
The longer this is delayed the less likely I’ll be well enough for my holiday in July., which was booked before my diagnosis.
Wishing good health,
and sending love and strength to all that are upon tough times right now xx❤️
Haven’t spoke to many others on my treatment plan as me. Yes, I’m also tnbc
On week 7 tomorrow of my 12 weeks at moment.
Followed by 4 cycles of 3 weekly EC then surgery. Is thst your treatment plan?
Yes, I’m so upset about this clot, no other advice given.
Just said wouldn’t delay my treatment. Said it could take at least 4 to 6 months for clot to go.
My oncologist gave me Zerobase cream for the itch & it worked within a few hours.
Did your picc line arm get swollen.
My arm had decreased in size but still slightly swollen
Good mornings ladies.
By the way i feel silly now but misha is actually my tumors name. Im Julija, I live in Scotland, Dundee and originally from Riga in Latvia.
So my second EC on Monday was ok. After reading all your issues with pick line ladies, i feel so lucky mine is going through my top od my hand on the day. I did not ask why. But i qas petrified about pick line for a reason.
I get quite a big dose of steroird before my EC so i only have 1 Filgastrim injection and rest of my steriors are tablets. But yeah, that injection floored me for 36 hours straight. To the point i walked 2 flights of stairs yesterday and had to go home to sleep for the rest of the day. And I dont need to tell anyone how devastating that felt. Im turning 41 next week, I bloody make curtains for a living and hang huge 3.5m drops at times. I had 2-3 jobs to make end meet and now im sleeping half the day. I have great theparipst and sooooo many supportive friends , even though I dotn mind being bald, it suit me, but seeing how easy hair were coming out yesterday got me upset too. And this is on top of me facing redundancy in the end of the month. And boss was a bit of an asshole. Like they want me to do some work for them in future but want cash for sewing machines they are selling. Like mate your redundancy pay isnt that big that I can pay bills and buy these machines and I really need them. Luckly have supportive family and will figure it out. But just needed a moan at 2am, went to bed at 21.30 as I was shuuttered now I’m not sleeping. 17 days done, 95 to go (at least). Regarding back pain. It was wierd with me. I did not have any first week but radomnly in my lower back by the week after my steroid injection. Especially when driving the car. Mood going up and down, but seicnd week last cycle was an improvement so im chatting to my psychotherapist on Friday morning. She was great help mentally last year and instrumental in my mental health this year even more. And she is from Ukraine, living in europe right now, so I feel like I got lucky I can still afford to pay her. I know its bad lucky and I know statistics too, learned all of it in uni, but fuck! This is such a shitting situation for all of us. And I feel you all. I try my fucking best every fucking day my life. I left fucking abusive relationship and im strong but when than I struggle at times too. My mother is most frustrating thing too. She is far away but I feel like she is turning all about herself in this situation. Like for fuck sake its me who has cancer not you. Feel like im shouting here. And in sorry and I know you will understand me more than anyone. Best regards. Julija
Paracetomol and a hot water bottle did the trick,Managed to get a good night sleep on Tuesday and am feeling a lot less sore today,
Last injections this afternoon x
Hi! I’m on week 3 now. Having weekly Paclitaxel and Carboplatin+ Pembrolizumab every 3 weeks. Then 4 cycles of EC+ pembro and a surgery, so it seems it the same as yours.
Only Paclitaxel weeks seem fine so far feeling almost normal (besides the issues with a PICC line). First week on 3 drugs felt much worse
Started shedding today, quite upsetting even though I thought I was ready.
Thanks for advice! I’ll call the nurse and ask for some cream as well is crazy, I had this PICC line for only 2 weeks and now will have to wait months for that clot to dissolve…it was not swallen but the vein was as hard as a stone and red under the skin + a lot of pain.
It won’t impact chemo but I decided to switch to port anyway
My energy levels dipped lots during chemo on Paclitaxel. I asked for a vitamin D check as I was told to stop my over the counter supplements. Lo and behold I was borderline deficient so I was given very high doses and a year of regular monthly capsules. My GP has continued to provide the capsules as I was told to keep out of the sun and wear spf every day as we are higher risk of skin cancer after our diagnosis. ( yet another thing to worry about
@tigertot it’s crazy how you have to chase doctors for information! This is the most frustrating part for me do far, since I don’t always know what questions to ask
@wba I’m dreading next week when I’ll have Carboplatin and pembro again… Last time felt very nauseous and weak overall
My surgery is preliminary scheduled for August, do you have a break between EC chemo and a surgery?
I have an ultrasound tomorrow to check the progress. Apparently I’ll have it after each cycle, also have quick meetings with the oncologist after each cycle
They not giving me scan after each cycle.
Waiting on date for one in April.
Have meeting with oncologist after each cycle.
I understood that I needed a gap between my chemo finishing & surgery, think they said 4 weeks. I will check at my next oncologist appointment that’s why they said September
I think we’re on the same treatment (for tnbc)
sooo annoying! So far it’s not the chemo that gives me most troubles but the PICC line.
.
is crazy, I had this PICC line for only 2 weeks and now will have to wait months for that clot to dissolve…it was not swallen but the vein was as hard as a stone and red under the skin + a lot of pain.
