Since having my 2nd EC 2 days ago, have noticed my sense of taste being ‘blunted’. Not fun as I love my food. Wasn’t affected the first time but lacked appetite then. Got round it by having very salty/stronger tasting dishes.
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I got given a box of saltband vinegar pringkes, usually I dont like them, but the are good now.
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@jacx70 Sorry about runny nose, one thing than come to mind if she shedding hair in the nose, it might be that runny nose is to keep it moist. I used to use sterimar salt water to arrigate my nose back in the day when I worked in restauran that had AC 24/7/365. As my nose was dry as hell. And since its salt water you can use it more frequently.
Im prepared the spray alreayd just in case.
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Good morning. Hqving my second EC today. Couldn’t dleep till 2am, nerves got better of me and been up every hour to pee cause im drinking quite a bit. And now I’m wide awake. I know I need rest but that im thinking maybe I need some food. Felt almost ok by sunday even cleaned my house in preparation for today. Food is prepped too.
Oh and hope thus might make you laugh as much as me: noticed started to shed, but since hair on my hair have been shaved its other place that sheddes and made me laugh out loud yesterday.
Hipe everyone has a fantastic week.
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Re runny nose, some previous people have recommended using Vaseline to help with the dryness.
If your nose bleeds are persistent and heavy please notify your team.
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Hi @pineapples123 had my third round of EC. like you last week. Hair had stopped shredding just before, but now it’s starting again, but not quite as bad as it was before. Hoping it’ll only go on for a few days before stopping again. I am absolutely zonked this morning, And have been for the last couple of days. Absolutely zero energy and I feel rather like one of those huge Christmas decorations that flop all over the place that has had its cork pulled out!! I hate being useless, but I really cannot raise myself to do anything this morning. Hopefully the energy levels will come back again during the week. It’s good to know others are feeling the same xx
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Thanks for responding. I can only really taste crisps and lemonade!
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Thanks Misha, great tip - thankfully it doesn’t seem as bad past few days and an odd spot of blood now and again. Reading the Filgistrim leaflet it does say it can cause nose bleeds and hair loss. I thought it was the chemo why hair is shedding but could be the injections as I have them for 5 days after chemo. I lost soooo much hair yesterday after a hair wash and then throughout the day, it was pretty traumatic but I do have thick hair so hopefully it will slow down. Also it is the culprit for broken sleep. Not slept through the night now for a week. Hope your EC goes well later.
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Had a really good weekend with very minimal side effects but been totally floored today with back pain! Anyone else have lower back spasms from the Filgrastim? I’ve loaded up with paracetemol but hardly touching it 
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@zoemac pleased you had good weekend. I have the terrible back spasms with the filgrastim and migraines. When I had my 2nd treatment last week they told me to just do 3 injections as the pain was really bad from the 4th. They said my bloods were fine last time so it was ok. Just hope it doesn’t go the other way this time.
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I had horrible bone pain in my lower back at the end of my 7 day Filgrastim. And aching joints especially upper body/spine first few days after chemo. You’ve probably tried a heat pack already.
@anb1 @sg81 thanks for the replies, I only have 3 days of filgrastrim and my count has been lowering so don’t think they’d cut it any shorter. Had pain after week 2 but this is week 5, its so random. I ended up going with some cocodomol which made me sleep for a couple of hours but it’s back again so taking it easy till I can have some more. Also used a hot wheat pack which seemed to help.
Hope everyone has a good week with minimal side effects 
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Massive hugs x
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@pineapples123 @jacx70 I’ve had shedding for 3 days now. I’m really hoping it calms down soon.
It’s so hard mentally isn’t it?
I’m now on day 5 since my second EC. So far, I feel better than I did the first round. But, I really seem to struggle for a few days after finishing the steriods.
My thoughts are so dark and scary. It’s really overwhelming.
I hope everyone doesn’t mind me asking this, but I am having a really hard time since the diagnosis. Does anyone have any advice on tips, strategies to help themselves?
I can’t switch off. It’s all I think about.
I’ve come to stay with my mum (just for a few days) as I’m feeling like a failure around my husband and children with not being able to handle this. It’s like I’m in shock still
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I started with terrible back pain and discomfort around my pelvis that woke me every hour last night after starting the Filgrastim injections on Sunday 
I was expecting to be in some discomfort,As I was when I had to have them following my first cycle,But this was something else!
I am going to ring the helpline shortly to see if they can recommend something to help 
x
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Awww I am sad you are so low, I am a reader, love doing puzzle books and diamond art. They are great relaxers and timekillers and focus my brain on something else other than cancer and symptoms. I have always got something in the diary to look forward to, other than blooming hospital appointments. None of us are failures, you are doing your best and that is all that matters, give yourself a break and do whatever you need to do to get through this. I am sure your husband wants to support you but may not know what to do/say to help - just tell him! Your kids will love you no matter what. There are so many groups and support out there and free classes etc, try it all and find something you like. I had reflexology yesterday, a nice hour of relaxation albeit she nattered non stop for an hour! The hair is still shedding but slower, just bought some headscarfs off Shein, it is traumatic but it will grow back. Big hugs xx
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Hi @zoemac - I had exactly the same last week after 1 week of injections. Sitting down and bed was worst. I ready somewhere that taking Clartyn (antihistamine) can help. Not sure when you take them but my oncologist seemed ok with it.
Mine stopped the day after last injection so hoping sane will happen thus round. Hope it gets better
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Hello everyone,
Just been caching up with the posts.
Not been in a good place for the last week. So not been on forum.
Looks like lots of you having up’s & down’s.
Hope your all doing ok, it’s hard for all
of us with all the side effects kicking in. Difficult to sometimes keep positive.
Unfortunately, I’ve now got a clot in my picc line arm. Called red card last week as my one arm was swollen.
Anyway now on blood thinners. Feeling very down about it.
Know you had your treatment suspended, really do hope you get some good news with your bloods tomorrow 
be thinking of you.
Hope they can start your treatment again.
Take care everyone x🥰
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wba sending I ended up with suspected blood clot after finishing chemo and ended up having blood thinner jabs for quite a few week. Keep 
it’s not forever but understand it feels like yet another thing to deal with. Be kind to yourself you are more amazing that you realise 
Shi xx
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Thank you
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