Feel like a fraud

Hi Rosie
Thanks for the message & foryour support, it’s much appreciated - hope you are ok

I am starting to feel loads better so definitely over the worst & I will get my meds changed for the next cycle
I have joined the chemo August thread & it is really useful & supportive
Attached is my latest blog - thanks for reading

dancingwithchemo.wordpress.com/2018/08/07/the-first-dance-%f0%9f%92%83/

Take care

Jude x

 Mcgee

You made me smile with your fraudulent parts…your ‘foobs’! Thank you! ? Glad they are not causing you too much discomfort.

 

Hope you are still recovering well - take care and take it gently! Enjoy the time to look after yourself.

 

Rosie xx

 

Thanks Rosie - you are lovely x

Hi Elaine

An up side of chemo is that my underarm hair has already gone but by the time I start radiotherapy it will probably have grown back ?

Good luck x

Hi Jem

I’ve got my wig appointment tomorrow, no idea why but feel a bit nervous- this hair loss is traumatic all round. My parting is getting wider!
I have got a couple of head scarves so will probably wear them around the house & wear the wig when I go out

You’ve defo struggled with the mouth ulcers, that can’t be much fun when eating & drinking

Hope you are feeling ok tonight & over the next few days

Jude x

Hi Jane
Good to hear from you. Hope all goes well with surgery tomorrow. My LD flap has been definitely the right choice for me- I’m tiny and therefore didn’t have any other option. My scarring is very neat and will be able to wear bikini if I want to. It is quite painful for a few days as 2 areas affected- take all the pain relief they give you. They will want to get you up and walking the next day.
You will find that nurses keep close eye on you for 1st 24 hours to ensure blood supply good - it felt like I was showing my new beast to everyone. I chose to look at new breast mound in my own time and just with Hubbie there- helped me that it was in my own time - was pleasantly surprised.
All the cancer has gone ? it was Invasive Durval With some DCIS. The need for chemo has been that original tumour was 2.3cm but they found another smaller one and some tiny fragments- it was therefore classed as multi focal and over 3cm in total- the NICE guidelines for chemo I think. I had margins but the skin side margins were slim therefore need for rads to help reduce local reoccurrence as much as possible - waiting for appt with new oncologist for rads.
When dressings are off use bio oil and E45 on scars and breast mound- my scarring is flat and looking good.
Please let me know how it goes, big hug today and gentle hug ready for tomorrow ?

Hi Jude
How has wig shopping been? Did you select one - I went for Audrey (just pop Audrey wig into google), she gives me confidence. Many people have commented on my new style/slightly lighter- I have just smiled and said thank you. Agree hair loss is traumatic in every way .
Didn’t sleep well- steroids are to blame ! But ok today, very fatigued. Chn off out with friend and her 2 this afternoon do I’m resting now .
Big hug ?

Hi Ladies hope you are all ok today

Jane - From hipheadwear I got 1 x jersey with a knot style & 1 x autumnal luxury turban - they are both lovely & soft & will be suitable in the house or out & about when I don’t want to wear a wig
Good luck with your operation & hope your recovery goes well

Jane & Jem - the wig appointment went really well. I’ve got a lovely expensive wig on the NHS - Dream Deluxe - in chestnut mist. It’s even got 3 different shades in it so looks really good. I’m going into the shop with the wig on Friday & they are going to cut a fringe in it for me & will cut my hair as well. I may brave the shave as it is coming out in handfuls now - bit scared I might cry but it needs doing.

Jem - those steroids are horrid aren’t they? Hope you managed to rest while you had some peace & quiet & fingers crossed you have a better night’s sleep tonight
I know I’ve only had one cycle (next one on Monday) but I admire all of you with younger children - it must be so hard to cope with the side effects & manage yours & their emotions

Take care all

Jude x

Blog alert, if anyone has a spare 2 mins

dancingwithchemo.wordpress.com/2018/08/16/hair-today-gone-tomorrow/

Jude x

Hi Jude
Again your blog was spot on.
Thinking of you today- wig cut and shave- brave and strong lady .
Big hugs ? Jem xx

Jude… Just read your blog you are an amazing lady. Fingers crossed for your next sessions I know it’s a hard road to walk but you have an amazing approach which is half the battle. Look forward to your ext post as and when your ready. Sending you lots of love Chris xx

Hi jem my lovely. Here you are talking rads, amazing and just one more chemo to go. Rads will be a breeze “Sally’s words” and true. That last stretch is in site hey? Mid August and we met in April how quick has that time gone but agree sometimes not so quick. You have done so well and as for Audrey she has done so well also I remember when you were going down the road getting a wig and how much you were dreading it and here you are being absolutely fine with her. What a journey hey? Your one amazing lady along with all on here. Will message you next week for a catch up. Back at work now so being kept busy. Love to the family. Take care. X

Hi Jude

 

Great that you’re ploughing on through, keep it up, you sound so positive despite the challenges and hair loss, but seems you’ve got it sorted on the hardware. Deffo don’t go Hilda Ogden except for a giggle!

 

All the best and for braving the shave, you’re a strong minded lady who can get through this,

 

Hugs to you Jane x 

Morning Ladies

Thank you so much for your support & kind words

Managed a quick glass of prosecco in Harvey Nicks at 10am ?, but braved the shave & to be fair it was ok. The wig is easier to put on now & it is so much better without all the hairs dropping which was more distressing than having a shaved head!

Thanks again

Jude x

Hello Lovlies

 

I’ve had a dodgy week with out internet, this last week?..don’t ask! I’m just catching up with some posts realising how much I’ve missed reading about you all.

 

I hope you are all doing well and treatment is going well. Lovely to read your blog again Jude…glad you had a little treat with the bubbles, always good for the moral. 

 

Jem I hope you’re feeling less exhausted and taking a few moments for yourselves.

 

Felt a bit sad yesterday when a friend made a thoughtless comment which made me realise I still feel quite vulnerable even now.?

 

Better for a little time on the forum though - still need you all.

sending love and positive thoughts.

 

Rosie xx

Hi Rosie

Days without the internet - sounds dreadful!
Pleased you enjoyed the blog, it is really helping me to accept what is happening treatment wise

And I have to say I don’t feel a fraud anymore - sadly ?

Sorry to hear your friend upset you, I think that they do mean well but haven’t always tried to ‘walk a mile in your shoes’ obviously mentally rather than physically

Take care

Jude x

Hi Jude

 

Yes internet has been hell this week and our problems are still not quite resolved either so I’m taking an opportunity to respond whilst I can.

 

I don’t think you were EVER a fraud and although it may have felt a bit that way in the beginning it was never the case. Your blog says everything and it’s lovely to read it - I hope you’ve had positive feedback from friends and family as well as us folk on the forum. 

I hope your treatment is going as well as can be expected and that you’re coping with the se’s.

 

Am feeling more positive today - spending some time cooking…always one of my relaxation interests???

 

Stay strong and take care.

 

Love Rosie xx

Hi Rosie & Jem

Thanks for your messages ?

Don’t feel quite as fuzzy as last time. They have changed my anti sickness & steroids meds + got a tablet for heartburn & a mouthwash so hopefully I won’t feel as bad. However now I’m starting to feel a bit yuck! Roll on next week!

I’m enjoying the blogs it’s really therapeutic & very positive response from friends & family.

I also love baking - not as bothered about cooking but have really got into baking in the last 18 months

Hope we all have a good nights sleep

Love judy x

Update!

Unfortunately the drugs don’t work ?
Had dreadfulheartburn last night & a couple of bouts of sickness. Not been sick today ?but don’t feel too good, managed some toast & just had some soup.

Hopefully will improve tomorrow x

Hi Elaine

Just thought I’d check in and see how the radiotherapy is going?

Jude x