Hi
It’s Secondary breast cancer awareness month (october). I am sure a lot of you know that already. I am looking forward to the time when I don’t have to see onc so much, as its difficult to but the disease on the back burner when appts keep popping up.
I had a lovely time in Solihull. Didn’t buy anything, but felt ‘normal’ in my wig! It does get hot though. very warm in restaurant, I almost whipped it off, but felt that it may have been a bit of a shock to fellow diners lol.
I have a bit of a cold, and hope chemo won’t be defered. Hope to be rid of it by Monday.
x sarah
Hi Everyone,
M1yu it was at terrible shock for you, and as you say,it does bring it home to us ,how our loved ones must feel,we sometimes tend to forget what it must be like for them, they try so hard to be strong for us! Your mum must’ve gone through hell! Your friend is lucky to have you, I know you will be very supportive,as you have been to all of us!! Take it easy,try and get a good night’s sleep tonight,I hope and pray that all goes well for you friend.
Nicola It was a lovely day here as well, decided to go shopping…not one of my favourite pastimes!! Only bought a pair of wellies…Dianne will be disgusted with me!!! What a bummer about the fire alarm!!! Hope the curly hair didn’t spoil your night out!!! I must say your hair looked fab in your holiday photos!!! A word of caution about your interview,think long and hard before going public,words can be twisted,and it does depend on the angle of the story! What do your son and husband think? Maybe you could have an off the record chat with someone on the mag,before you make your mind up! good luck! How sad that your cousin is finding things so hard,I too am glad we have this thread, I think I would be in a state, if I didn’t have all of you to lean on !!! The funeral is next Thursday.
Sandra I love books,and it depends on my mood,what I read! I have just finished a great book, ‘THE BIRTHDAY BOYS’ by Beryl Bainbridge,and I have just started ‘Murder Most Royal’ by Jean Plaidy, I read this one years ago, but fancy it again!! I also like Maeve Binchy! Glad the chemo went well ,hope not too many se’s! Enjoy the time with your daughter and little Lily !!!
Anne hope you have a quiet night,relax and take it easy,after your busy week!
Sarah Glad you enjoyed your day…those wigs are hot, I used to hate wearing mine, although everyone said how good it looked!! Hope the cold clears up!!
Alison glad the hairdo has cheered you up!! I agree with you about the reaction of different friends,I have had the same experience as you, and it is quite perplexing when some friends ignore you,but as you say maybe they are ‘cancer phobes’!
Wayne, hope you and Maryanne are having a more relaxing time!
Julie hope all is well with you!
Dianne hope you are enjoying your weekend!!
Sorry if I have missed anyone, but thinking of you all, and sending lots of love, Mary xx
Hi everyone,
Gosh, what a lot of posts! So nice that things are going ok/improving for most, hope this rubs off on all of us!
So sorry about your friend m1yu, I know how hard that is. I do hope things will go smoothly for her with treatments.
Don’t read on if you don’t want to hear me moaning!!
Had my CT scan on Thursday and it was horrible! Waited well beyond appt time, then taken to another part of hospital as scanners all in use in usual part. Couldn’t find a vein, then after several failed attempts got the needle in & did scan and then they realised contrast had gone into my tissue/muscle instead of vein! Got higher radiographers in, had 6 people trying to find another vein eventually they decided they couldn’t manage!! suggested I go over to chemo dept & get them to put a canula & then return for scan. By this time I was so upset and fed-up I burst into tears, I couldn’t face any more that day. Thursday evening my arm got more more swollen and painful so I landed up in A&E till 3am, all was ok but I was tired for the funeral on Friday. I’ve now got to go back to London tomorrow to have the CT scan done, I’m not looking forward to it but going to chemo dept first for them to sort out vein access so hopefully it will be better this time. OK RANT OVER!!
Sorry to let rip but still feeling quite emotional.
Hope you all are having good weekend. Hope tests/appts and treatments go well with you all next week. Thank you for listening dear friends. I’ll be in better mood next time I post.
Lots of love to you ALL xx
Oh Julie,
what a horrible time you had on Thursday, making your difficult week even worse.It’s unbelievable that they have such trouble with veins, when surely they must be dealing with this problem so much of the time, bearing in mind they are supposed to be the “experts!”
Hope today goes better, will be thinking of you.
Sandra x
Hi all,
So many posts, its taken me ages just to catch up.
Julie, so hope they find a vein for yur scan today, its always so stressful anyway without all the pocking around. I’m usually in tears before they start to find a vein so you did well to keep them back so long. I find tha lck of food along with the adrenaline rush form anxiety leaves me very light headed too si always keep some chocolate in my pocket for straight after.
I’m a bit manic this week as I’m desperately trying to keep busy and distracted. I have a date for my brain op, next tuesday 12th Oct but the waiting is almost unbearable. I’ve alredy been swimming this morning and now feel the need to get out the house again. One of the reasons I’ve taken this recurrence so badly is because I feel so well. I had convinced myself that I couldn’t possibly swimm and cycle so much if I was sick. Hubby too admitted that he was really shocked that it had come back as I seem so well. It is frightening and will mean that I will always worry in the future even if I feel fine.
Have a good week all
Louise
Hi Girlies and Wayne, I’ve just been trying to catch up with all the posts and to be honest there are so many I can’t remember everthing that everyone has said.
First of all, Wayne. I’m so sorry that you’ve had such a bad time with poor Maryanne. The Doctors should have given you written instructions and not just left you to it. They are bloody hopeless sometimes.
m1yu, very sorry to hear about your friend, thanks goodness that she has you to help and support her. I see you’ve joined Fairyland, I’ve left a couple of tips for you. (not that I’m an expert)
Louise, good that you have finally got your date for the op, we’ll all be thinking of you.
Roz, I’ll see you tomorrow and we can catch up on everything. Looking forward to it.
Mary, glad you found a new pair of Wellies (I think!!) Was thinking of you on Saturday morning. We went to Durham Cathedral and I lit a candle and thought of you all and you can also write a prayer and leave it in the box, so I wrote one for all of us and popped it in.
Julie, really sorry to hear about your rough time pet, I can just imagine how you felt, I would have been in tears as well. Dreadful.
Anne and Nicola, hope you are both well. Sandra, Sarah,Terri, Alison, hope all is well with you.
Sorry everyone, I can’t remember all the comments, so I’m just hoping you are all ok and that you all had a good weekend. Mine was fab, we had a really good time and Dave thoroughly enjoyed himself. It’s our 25th wedding anniversary tomorrow and as you all know I’m going to the Dentist - Oh joy!
Take care my darlings, love you all, bye for now, Dianne x x x
Morning Everyone,
Julie what an nightmare, I really felt for you!!! We have enough to put up with,without that! No wonder you were emotional!! Do hope it goes better today, will be thinking of you!
Louise oh this waiting is just so awful for you! It is a terrible shock when you think everything is good, and you are feeling so well,to find out this sneaky ba…d disease is still lurking around! You are doing the right thing trying to keep busy, but it must be difficult, thinking of you and hoping and praying everything goes well next Tuesday.
Dianne thank you so much for the candle and prayers,what a lovely lady you are!! I am glad you had a fab weekend, but what a bummer spending your anniversary at the dentist!!! Hope it doesn’t hurt too much!!
Anne hope everything is well with you, sorry if I’ve got this wrong, but I think you are having chemo today,so good luck with that,will be thinking of you xxxx
M1yu hope you had a good weekend, although your beloved Liverpool didn’t do well again, better luck next time!!
Wayne,Nicola Sandra Terrii Roz Sarah,and Alison,hope you are all okay, like Dianne, I am finding it hard to remember everyone’s comments,but you are all in my thoughts.
Take care, lots of love, Mary xx
hi all havnt posted for a couple of days because have been a bit down i have still been coughing and am sure there is some more fluid in there, i know they did not take it all. have an appointment on thursday to see about my radiothereaphy but it is not with my usual onc who doesnt deal with that. dont know what to to do , i am coping but just dont feel right, also am not sure it isnt thev tamoxifin making me feel unwell, sort of tired aand lethargic.If i call the respiratory doctor again he will wamt me in to do a proper drain and plueradosis and that seems a bit drastic. Pretty sure my breast lump is shrinking, is that possible only been taking tamoxifin for two weeks.Also am a bit sad after a week at home my son is gone again to work in a racing yard, not far away but will only see him every couple of weeks.You are all so incredible and even though i have been dealing with this for eighteen months, i am not coping at the moment. My macmillan nurse says there is a six week waiting list for counselling.I think i am so dissapointed, after been given such an optomistic outlook, that i am ill again, i just need some strength to get through this.
Hi Terri,
Sorry you are so down, I think when we feel physically unwell, it is so much harder to see the light at the end of the tunnel. I was like that a few weeks ago, I felt really down,but since changing my Zometa treatment from 3 weeks to 4, I feel a lot better, are you on Zometa? re the Tamoxifen, I think that makes you very tired and lethargic, I don’t know what time you take yours, but I have changed my time from lunchtime to dinner time, and whether it is a coincidence or not, I have been a lot less tired in the afternoon! My Tamoxifen worked really quickly when I first started taking it, so it is possible that it is working on your lump!!
It is disappointing when you where expecting to feel so much better, but it is early days, I think counseling will be good for you,shame you have to wait six weeks!!!
I have been for some blood tests this morning to see how my markers are behaving, just hoping and praying that they haven’t gone up again,but must say am not very hopeful!! I will know in the next couple of days
Sending you lots of love and hugs…stay strong!!! Mary xxxx
Morning girls
Sorry haven’t posted for few days been sooo busy with youngest’s 21st and working last two nights. Trying to catch up now – goodness me the thread’s busy which is lovely to see, all supporting each other with love and understanding so good to read, although takes ages lol.
Dianne – as you know I’m now a religious person but what a lovely thought to light a candle for our Mary and writing a prayer for us all – brings a tear to this old atheist’s eye!! Fingers crossed for dentist tomorrow you have all my love and support I am not good at dentists, really hope it goes well. Hope you have nice refreshment afterwards to celebrate your 25th wedding anniversary tomorrow - 25 years how lovely. Hope you had an absolutely fantastic weekend and I agree with your sentiments wholeheartedly.
Mary my thoughts are with you today whilst you get your bloods. I have everything crossed that last time was a blip and better results today. Sending lots of love and hugs. Love hearing about your shopping trip – wellies!!! That’s our girl x x
M1yu love the idea of you giggling on the planning table!! I am so sorry to hear about your workmate – I can’t believe that 5 years thing – if you are suffering and it needs investigated why don’t they just do it not get the stats out!! Oh M1yu I so feel for her please send her my best wishes and encourage her to join the site. If I were here I would be forever thinking ‘what if’ they investigated sooner. My heart goes out to her, really good she still has fighting spirit and a wonderful friend like you.
Sarah, good to hear you sound much more upbeat. Thanks for best wishes for my youngest – I know what you mean seems like yesterday she was just a baby – mind you she always will be. Sampler all finished at last. I did ones for my other two daughters years ago so they are all in the workshops waiting to be framed – next job. Glad you like your wig and it sounds like it has really cheered you up, great news. Good no further spread and early days for FEC. Hope you enjoyed your posh nosh and retail therapy, sometimes window shopping is best.
Sandra sorry in last post I spoke about you knitting hats and of course that’s Sarah – chemo brain!!! Great news about boiler – sorry about clearing up!! Loved your wigs analysis – I had the same relationship with my wig without seeing the old dears in the pub lol. I’m on the second book of the trilogy ‘The Girl with the Dragon Tattoo’ can highly recommend can’t put it down, totally addictive end of seat stuff. Got the trilogy off amazon for £11.30 including p&p.
Wayne you too sound a bit more upbeat. I know things are so hard for you and Maryann but you both seem to be keeping your sense of humour, so important where would we be without it. I do hope Maryann’s sickness gets better and docs give proper advice next time – honestly don’t get me started!!!
Louise know the duvet feeling well, sometimes it does you good if you need rest but sometimes just pushing to get out makes you feel so much better although so hard to do. I’m sure you will feel so much better when you get treatments started waiting is the pits.
Nicola you sound fantastic so pleased you had a great weekend and enjoying all the beauty of autumn. Having hol in caravan soon so can’t wait to get out and walk on secluded beaches – will keep you posts of plans. Don’t have a clue how to advise about your article – it would be nice for people to know the truth about bc and that it is not the ‘curable’ disease often portrayed in the media and how it really feels to live with secondary’s but how to do it – I really don’t know. I wish you luck with your decision and know you will make the right one. I get so bloody sick of the press portraying it as ‘treatment – cured – back to normal’ And even worse when they portray as it as our own faults we got it in the first place ggggggggggrrrrrrrrrrrrr. Go get em Nicola.
Oh Julie what a horrible time you have had so wish one of us could be with you to hold your hand and tell them – if you can’t bloody do it get someone who can before they reduced you to great pain and tears, honestly they make me mad, the chemo nurses are sooo good why not go for one in the first place. Oh you poor thing, I am so lucky with my veins I do wish I could lend them to all of you when you need them. At least they have it right way round next time and hopefully chemo nurses will sort you out. Will be thinking of you and holding your hand today – ready to punch anyone who hurts you!!!
Roz trying to picture your onc doing his examination with eyes shut – very strange, sorry making me giggle!!! Hope he opens them when talking to you. Pain in the neck about not doing bloods – sorry of our lives thing being forgotten. Thanks for you b day wishes for my girl, have a great time with our Dianne when you meet up wish we could all be there – maybe one day.
Alison great news about your cards – there are lots of good folk out there – the press only reports the baddies!! When are you coming up to Glasgow don’t know if I will be free with work, chemo etc but will be going down to visit friend sometime that month so you never know perhaps we could meet for coffee? Hope your cold better. is a miserable one. My oh had it for about 2 weeks, thankfully I didn’t get it despite being on chemo!!
Teresa so glad you got your lung drained at last and that it was not too painful. Great you got the head guy supervising, I have read a lot of scary stories about how painful it can be so pleased it was not too bad 1 ½ litres sounds like loads. Sorry you feeling a bit low again, I’m sure the family leaving is really affecting you, I cried for weeks each time one of mine left – still do when I go and sit on their beds! Sending big hugs and hope you feeling better soon. I agree with Mary when we are physically down it makes us mentally lower. Don’t know about tamoxifen but sounds like good advice to change times of taking it. Hope counselling helps - 6 weeks to wait but worth it.
Goodness me hope I have caught up at last they might ban this post for being too long or might post it on the ‘for insomniacs’ thread lol For anyone that is awake we had an absolutely fantastic birthday party for my wee girl’s 21st. She burst into tears when opened our pressie of a trip to London and tickets to see her favourite musical Les Miserables and couldn’t stop crying – of course that started everyone else off, especially me – what a sight we were, make up all down our faces!!! It was such a lovely evening with her surrounded by the people she loves, great meal and a beautiful birthday cake made at local bakers. So relieved it all went according to plan and worked our perfectly. Have busy shifts, chemo etc for next week but a week Wednesday I finish for 3 glorious weeks so plan to get away to the West Coast in our lovely van and totally get off the planet for a while. Well I do hope I haven’t missed everyone but sending lots of love and hugs to everyone. Sun shining her but I am relaxing today and reading my really good book.
Thinking of those having treatment and hope everyone has a good day. Lots of love and hugs as always my dear friends Anne xxxxxx
Hi all,
Sarah, glad you had a lovely time and getting used to your wig. Hope chemo goes OK.
Mary, I hope those markers behave themselves this time. I’ve no idea what’s going on with my beloved Liverpool this season, only 1 win since the opening day!!! My mum keeps telling me to switch side and support Chelsea!! Hmm… No.
Julie, Oh my goodness, what a week you’ve had! I’m so sorry. Hope they can do better today. The “hunt the vein” bit is the worst bit. Before I had my PICC line, I feared that bit more than the chemo itself. Now, with the PICC line, they can’t use it for scans. Grrr… They all say try and keep warm, drink plenty of fluid and relax will help. But I always get very nervous before scans, so my body just goes cold and my vein just vanishes!
Louis, the waiting drives us mad, doesn’t it? This time next week, you’ll be nearly there. Just hang in there…. Keep busy and be distracted… Cancer is one of those nasty diseases that can grow and progress quietly. Feeling well and looks well is a good sign that you can still fight this. We’re all frightened and worry whatever stage we’re at, just not all the time. Certain things can happen that will trigger our worst fears and send us into that “dark place” that none of us want to be in.
Dianne, poor you, spending anniversary at the dentist. Hope you and your OH will have a chance to do something together before the appt. Or you won’t be in much pain to enjoy something together afterwards. How sweet of you to light a candle and write a prayer. I’m not sure I’ll be good at that game, just something to keep me busy.
Terri, I think it’s a bit soon to get your lung drained again in such a short space of time. But if it needs done and it can make you feel better, maybe worth doing. You might need to ask the professional. Tamoxifen didn’t work for me, so can’t comment too much on that, but it did shrink my lumps slightly at the very beginning. What a pain you have to wait 6 weeks! If you really need someone to talk to a bit earlier, why don’t you try the helpline if you haven’t done so already? We’re all different, terri, so don’t be too hard on yourself that you’re not coping. In time, you WILL find what works for you and what will keep you positive and you WILL find the strength to get through this with the right help.
Anne, party, then followed by 2 nights work, you must be tired. Do take it easy and have some rest. That sounds like a fantastic party, so glad you’ve enjoyed it. That sounds like a lovely plan for holiday, to. You so deserve nice times like this.
It’s a nice day here, too. Feels like summer has returned. I’m having a really rotten day with my period. Hmm, Zoladex hasn’t kicked in just yet then! Hope this IS the last time I’ll have my period for a while, otherwise, I’m starting to worry about the effectiveness of hormonal treatment and whether my BC is still hormonal sensitive!!! “Oh, no, not again please! I really don‘t want a repeat of Tamoxifen!” Got to keep an eye on my markers, too. Got to call in my onc early if that starts to go up - that something I didn’t monitor last time!
Take care & love to you all xx
Hi Lovely Ladies, Well what a lovely day it is here, I know there is some rain in the country so I am sorry for those of you that have had it. Been to the doctors today to have another blood test so they can do the markers, lets hope they get it right this time.
Sandra, Glad to hear that they hve finished your boiler, and that you had a morning cleaning up after it all, you will need your heating on with this weather now. I know what you mean with the controls, we had our new boiler put in the loft with the control in the kitchen and they are supposed to ‘speak to each other’ but when it goes wrong my OH is in the loft not speaking but shouting at me in the kitchen, and me trying to sort the programme. Glad chemo went ok, but what a pain being so cold, have they got a problem with the heating or were they just cost cutting?? Hope you had a lovely time with your daughter and grandaughter, I know I love spending time with mine, they only live down the road but if I havnt seen them for a day or two Im on the phone asking where they are. My hair is grey to have thought about having some streaks in it but worry about having grey roots showing!!!
Nicola, Hope you got a good walk on Saturday and had some good company, {dog or OH}, OMgoodness what a carry on with the alarm, I bet the parents were pleased to get wet children,{funny though}.Hope you still managed to have a nice night out. My hair is short but I still use the staightners on my frindge, but all it takes is one hot flush and up it goes. My daughters step daughter has said she doesnt want to wait the month and has made her mind up to live with them, this is after a day spent with her mother who went on and on at her. My daughter is amazed that a child of 12 has got so much determination and is sticking to her guns, my daughter also thinks there is some underlying issues that will come out at a later date. It must be awful for your husband not being able to see his children, how old are they, the trouble is you dont know what the mother is saying to them about there father, but hopefully there will come a day that he can speak to them. I have been reading the other thread about the article they want to do, and there are a few points for you to consider, I think the most important thing is that it has to be right for you and your family, if not then dont do it. You have to be truthfull about the feelings you have when being told about seconderies and what it means, as what you felt is prob the same as us all, I dont think people know the enevatable outcome of a sec dx. Dont let them preasurise you into doing anything you dont want to. Mary does come up with some good advice, talking to the mag before hand is one of them, she is a wise owl. Good luck.
Sarah, Hope all went well today with the chemo, you made me titter with the wig, I bet the other diners would have had a good stare if you had whipped it off. I think you have to do what you want to make you feel strong to fight this BC, so I truely hope you enjoyed every mouthfull of your meal at Wagamammas, I dont envy you shopping with your OH, mine thinks a good shop is going to B&Q or any other tool shop!!!
Wayne, So now you have to be a mind reader as well as nurse, I am sure Maryanne doesnt hold it against you, she knows how much you love her. I hope the new chemo is more acceptable for her.Good idea from Mary about taking notes. So does your dad look like Uncle Albert as well as sounding like him??
Terri, I hope your bruising is going down, so to hear that you are not feeling to good, tell your onc exactly how you feel. Reading through some of the other threads Tam does seem to make people feel tiered and lathargic, in fact it does seem to be a se of all the meds, so try not to worry to much, do you take your tablet ant night, I do then go to bed, I think the tierdness can then kick in while I am asleep. Keep on to your mac nurse about counselling if you think it will help, m1yu gets good feelings from hers. Please stay strong, you will get through this.
Mary, I take Arimidex but I do take it at night as I read that tierdness is an se, and I have to say that I am not to bad during the day so it might be a good idea to take your med at night. You sound like my OH he gets up in the middle of the night for a cup of tea and reads the paper and I sleep through it. Sounds like you had a good time with your book in front of the fire, you cant beat a real fire can you. Hope that your wellies were colourfull you can get some great ones nowadays. Good luck with the results for you markers, thats us both waiting.
Alison,The article sounds very interesting so will have to hunt out a copy, I dont have trouble with my friends they are very open with talking about it, but do have a problem with some family members, I seem to have to take the lead with conversations. Having your hair defo makes you fell a bit better, I bet you look very glam.
m1yu, Once again sorry to hear about your friend, I am sure you will be able to give her support, and help answer the questions we have all asked ie; scans, meds ect, and be able to point her in the right direction where she can get some positive stories about BC and show her it is not all doom and gloom. Your mum sounds funny telling you to switch football teams. Thats the one good thing to come out of BC, no periods, I feel for you I used to have hourendous ones.
Oh Julie, what a horrible experiance to get you scan done, I cant believe that they had put the stuff in your muscle and not in your vein, its no wonder you burst into tears, I hope it went better today, the chemo dept do seem better at finding the veins, and certain people seem to be better that others, I know when I used to go for Zometa there was one nurse that got the canulla in first time no bother where others failed. I feel so sorry that you are so upset and send HUGSXX
Julie, Will be thinking of you on the 12th, only 7 more days, if you keep up this activity you will be worn out by then and wont need any anesthetic LOL. I think thats one of the main problems with a lot of us, we dont look like there is anything wrong with us, little do they know!!!
Dianne, Looking forward to meeting tmm, I will look out for you in the car park.What a lovely idea to light a candle and do a prayer. Glad you had a good weekend, tell me all about it tmm.
Anne, So pleased that your daughters birthday went off so well and that she loved her presant, I bet she cant wait to go to London. Pity we couldnt all have some birthday cake sounds lovely.Yes he does open his eyes when he talks to me, good job really or I might think he was telling me porkies. Yes it would be lovely if we could all meet up. Dont work to hard, get plenty of rest and remember no snoreing!!! Lovely to have your holiday to look forward to.
Well this is long post, but my own fault as didnt post over the weekend, didnt do much on Saturday but on Sunday went with my eldest grandaughter and daughter to a dance compitition, as my grandaughter does freestyle danceing, she came 5th out of 25 couples for Rock and Roll so was well pleased.
Hope you are all well, Hope I havnt missed anyone Lots of love Roz xxx
My dear friends,
I just did a long post and lost it! Can’t do another now (yes I know I should have done it in WP & pasted but…) so I won’t be commenting individually now but I do want to say a heartfelt thankyou to you all.
Your kind words, your support and your love really does make a difference. I can picture you all with me and I’ve got a great cartoon image of you, Anne, punching the nurse holding a giant needle! - made me chuckle!!
Things went better today still needed 3 goes at getting a vein but not as traumatic in chemo unit as it was last week and once that was done all was ok.
Hope bloods,other tests procedures and treatments go well for all of you having them. Louise, thinking of you especially and hope the 12th comes round quickly for you I know how awful waiting is, we’re all with you.
Once again, thank you all so much and love to you all xx Julie xx
good evening all you lovley ladies,
ok we started chemo again thurs evening with a new sickness drug and i got too say too you all, you would never think theres nothing wrong!!! talk about a bloody turn around we even went for a walk coffee and cake at the garden center the weekend now thats what im talking about!!! god it was soooooooooooooooooo good too feel normalish, ill keep you all up dated on that one just not going too let my gaurd down. One thing that really did p*ss me off i asked the doc why we never had this anti sickness in the first place and i QUOTE(they start everybody on the cheapest and if it dont work then we move too the next one) WHAT A BUNCH OF B*****D, my maryannes been led in bed for 3 and a bit weeks as sick as a pig well enough said, i suspect they put the money towards a painting or some crap or probaly sent it abroad god theses selfish t**ts make me sick you bet your bottom dollar ladies if it was them they would have all the best!!!
m1yu
i hope things are good with you as i do everybody else, dont give it the satisfaction of getting you down just watch loose women like i do, lol,
mary
also i hope you are ok, be good and stay strong i think of you as i do everybody, we will get there ,
terrie
sorry too hear your sons of too work, and you will only see him every couple of weeks!! , hey but then again look on the bright side at least he wants too come back, ever since i took on all the cooking my two boys cant wait too get away and stay away, probally just as well before they get poisoned!!! lol hope you are well also,
diane
so glad you had a mint weekend away, it must have been nice i must try and do the same if last weekend was anything too go by, as for the dentist well i dont envy you one bit,i hate people playing with my teeth goes right through me ,and then they got the sodding cheek too turn around and charge you for there twisted pleasure now whats all that about lol, i hope you are well and good,
sarah,
well sollihull, cant say i ever been there but i think i can safley say its cheaper than bath, you go there and it feels like you been held up!!!, dont worry too much about the hair i know its a woman thing but you are just as gorgeous either way, if your shunned by any of your so called friends like we were sod them they are not worth it, hope you are well,
anne
21st well all i can say there the plastics going too get some stick lol, still its only money not that i got any i think i just say that too make myself feel better i hope it all goes well and also hope your are doing good,
roz
your blood test WILL be good, you asked if my dad looks like uncle albert, it would probally be less embarrising if he did, i swear too god he thinks he is clint eastwood always brushing his hair back and wearing a bloody denium jacket and winkle pickers and if he dont hit my eye out with the toe sooner or later ill be suppried and he is 75 god if im like that then just shoot me lol and the thing what do really p**s me is he always got too brush his hair in front of me im sure he is trying too brake mentaly brake me as i dont have none and the cruel thing is he has more hair on the back of his hand than i got on my head!!! lol when the man delt the cards out i got the bum pack 
anyway i hope you are good,
ok if i left anybody out i apologise as my memorys is c**p just lately, i hope each and everyone of you are doing good,love and wishes too you all,
wayner each day passed is one closer too a cure
Good Morning Girlies and Wayne, Just read all the posts, can’t possibly remember everything and comment on them all, but I just want to say thanks for your good wishes re the dentist today. I couldn’t give a toss about it actually, I’ll get through it and that’ll be it for the time being. I’m really looking forward to meeting Roz first and catching up on all her news.
The bits I do remember are - Wayne, delighted that Maryanne is feeling better, marvellous news and a weekend away is just what you need.
Mary, praying your markers will be down, everything crossed for you.
m1yu, sorry about the horrid period, as if you don’t have enough to cope with. Re the game - go onto Fairyland.com and you will get loads of hints and tips.
Julie, so glad you managed to get it sorted this time, at least it’s over now.
Terri, hope you feel a bit better today, thinking of you.
Anne, glad you had a great time with Sophie and don’t work too hard, life’s too short!!!
Sarah, hope you are enjoying the wig and that your chemo goes well.
Sandra, hope you are enjoying your new boiler x x x
Louise, Nicola and Alison, hope you are ok. Just been reading one of your posts on another thread Alison and it was terrific.
Well, sorry this is a bit sketchy, but I’ve got to go and get ready to meet Roz. Spent ages opening cards and answering texts etc. Take care my darlings, love you all loads, Dianne x x x x x x
Morning all
Great you got your scan over with Julie and not as traumatic as last time. I totally know what you mean about the support being with you, when I have a difficult appointment I imagine you all there and it helps so much, so glad it helped get you through and all done and dusted now. Hope the results are good news and not too long to wait for them.
Wayne such good news about new sickness drug and I agree – why the wait – ridiculous. Must have been great for you and Maryann to get out and about I am so pleased, coffee & cake at garden centre how wonderful to feel ‘normal’ again and do ordinary things. Please tell Maryann delighted that things improving and getting under control. You really made me giggle with your description of your dad, he sounds a right character. You may not have any hair Wayne but you have a heart of gold – and bald men are sexy just look at Bruce Willis or Yul Brenner – phew having a hot flush here!!
M1yu sorry you having horrid period – I had the marina coil put in years ago as mine were so bad so I totally sympathise, hope they stop soon. Had to laugh at your mum saying to change your team allegiance lol, very sweet. Hope you feeling better today.
Dianne happy wedding anniversary - hope you have a lovely day, despite dentist. Give roz a hug from us all and have a good chin wag. Are you doing anything nice with oh later? A week Wednesday I am off for 2 ½ weeks so planning going away in our lovely van, can’t wait Dianne as you say life’s too short!!!
Mary I don’t know when you get your results but you are constantly in my thoughts I do hope good. Sending love and hugs. Hope you pleased with new wellies.
Well sun’s shining here so I have a couple of hours before due at hospital, just finger prick today then chemo an hour later so think I’ll go and pull up a few weeds.
Lots of love to everyone else and I do hope you have a nice as day as possible and sun shining for you.
Hugs & kisses my dear friends Anne x x x x
Hi Everyone,
Well I had some good news, the doc at the clinic rang this morning,and it seems my markers have stabilized!!! They have gone down from 99 to 92, not much I know, and I would’ve liked them to have dropped more, but,I am grateful for small mercies!!! I am not having any scans at the moment, I see the onc in two weeks, and see what he thinks!!! At least they didn’t go up!!!
Thank you for all your support,it is so good to know that you are all with me!!!
Julie I am pleased that things went a bit better this time, when will you get your results?..the terrible waiting game!!! Do Hope that you get good results, be thinking of you xxx
Wayne it was so good to hear that you had a ‘normal’ weekend, so pleased that Maryanne is feeling better!! Its a disgrace that she had to go through all that sickness,before she got the right tabs!!! Your description of you dad was hilarious!!! He sounds like a real character!!! Winkle pickers at 75…I love it!!!
Anne hope chemo goes well today, thinking of you!!!
Roz and Dianne hope you had fun today! Happy Anniversary Dianne…hope you got on alright at the dentist!!!
M1yu hope you are feeling better today!! You haven’t been taking the Zoladex very long, I suspect it hasn’t kicked in yet, I know some of the drugs seem to be effective straight away, but when I was talking to the doc at the clinic, she said some dugs can take a couple of months!!
Thinking of you all, and sending lots of love to everyone, Mary xxxx
hiya all you gorgeous ladies
i got a quicky if poss, maryanne has really turned a corner and well again, the question i have is have anybody dared too go abroad while on xeloda or is that just a dumb idea? thankyou for everything ladies, love and wishes too you all,
wayner each day passed is one closer too a cure
Morning My Lovely Friends, Hope you are all well today.
Wayne, delighted that Maryanne is feeling so much better, that’s made my day. As for going abroad, some people will tell you not to go, but me being me - I’d say go for it if Maryanne feels well enough. The only prob I can see is that you probably won’t get the full insurance cover. However, I went in June to Rhodes for a week and I just went with the Post Office cover. When I went on the cruise I had the full cover with MiaOnline which was £75.00 but you have to have been free of chemo for a couple of months and you have to have a letter from the Onc to say you are fit to travel. I didn’t need it anyway, so next time I go I’ll probably just get the normal one if I feel ok. It depends really on how you and Maryanne feel about it, good luck with whatever you decide.
Mary, thanks so much for your lovely text yesterday and I’m thrilled that your markers have stabilised, that’s brilliant.
Anne, I hope the chemo went well for you and you’re not having any se’s. A hol in the van sounds fab, where are you going? You should travel round the country and come and see us all. You’ll be very welcome here, I’d love to see you, there are a couple of neat caravan parks really near to us and if you’re fed up with van you can always come and spend the night here, I’ve got stacks of room.
m1yu, hope you are getting over the lousy period, haven’t seen you on Fairyland!!!
Nicola, hope you are ok, just read one of your posts on another thread and it was really good to see you sounding so upbeat. Well done hon.
Julie, Terri, Louise, Sarah, Alison and Sandra, hope you are all feeling ok today.
Roz, thanks for a wonderful lunch yesterday, I thoroughly enjoyed myself and hope you did too. (We were very good Mary, we only had one small glass of vino, although I think we would both have liked another)!! Got the antibiotics from the dentist and will see her again on November 16th so if you want to meet up again that day, that would be great. It’s a Tuesday again, so you can help your sis on the market first…
When I got home, there were two bouquets waiting for me. One from our friends in Dubai and the other was a dozen red roses from Dave. Daft old bugger!!! He bought me a lovely card and then cried when he gave it to me, bless. We got some really nice gifts and we’ve got the weekend with the girls and our friends to look forward to. I’m not going to take the antibiotics til Sunday because you can’t have a drink for 7 days with them. I reckon I’ve put up with it for this long so a few more days won’t make any difference to the pain. I said to Roz yesterday that I’ve had it so long, I’ll miss it when it goes, it’s like a little friend that pops up every morning and says ‘Here I am, back again’ …
Well, that’s it folks, I’ve just read through the rubbish I’ve written and I sound like a nutter…
Love you all loads, take care of yourselves, Dianne x x x x x x
Dianne; You are a star aren’t you!How lovely to have all that bloomage waiting for you.Hope you have a fabulous weekend.
Wayne: rats to the medics, that’s what I say! I bet if it was one of their own suffering they would get them on the right drugs pronto. Saving money my a**e! Very glad to hear that she is feeling so much better, long may it continue.
Mary: Hurrah! Glad your markers have come down in the right direction.How’s your pain at the moment? Thankyou for your support x
M1Yu: What’s this about fairyland? You a Facebook junky? Me too. Friend me? This goes to any other FB fans out there. I will PM you with my name, its going to be easy to spot me as it’s quite an unusual name x Hope you are getting on ok with treatments.
Nicola: You sound pretty chipper. excellent!!!
I am ok at moment. Day 2 after 2nd FEC. Stern warning from District nurse (GCSF injection. Too much of a wimp to do it myself lol)
not to overdo it as I will pay for it tomorrow… I am going to do the laundry and visit a friend in the afternoon. Watch this space. Am feeling upbeat in general, I reckon the onc visit and chemo treatment fill me with more forboding than I care to admit. haven’t noticed any change to lump yet, but BCN says its early days yet. I suppose it could be FEC 3 before anything occurs. What do you guys think?
Anyway, as BCN says, nowt I can do about it at the moment so I am now going to try to forget about it as much as poss and line up a few things to do. The holiday was good a few weeks ago. I am planning a few outings and I am thinking of booking a facial. Moneybags not lol. My BCN has put my name forward for one of the Look Good Feel Great thingies so that’s something to look forward too as I am one vain bunny! Actually, I may also have my nails done.
Hi also to everyone I haven’t mentioned.
x sarah