Feeling low

Hi everyone

I hope you’re all feeling well Today!

I have just done something very silly and fallen down the stairs! At least I have tested my hip and it isn’t ready to fracture! I have done something to my arm though and over 2 hours later it is really throbbing and I can’t lift anything - fortunately we have a kitchen cupboard full of unused pain-killers, as I haven’t needed them before.

I had put a couple of my son’s books and folders on the stairs (as a hint for him to carry them up when he went up last night - which he didn’t) I then went down this morning in the half light and skidded on them, only about 4 steps, but at high speed. I lay groaning on the hallfloor for a while (no reaction! they were both still asleep!) then I went all dizzy and my ears started buzzing, so I had to stay there for a while longer. I still feel, quite weird now, but I don’t think I’ve broken anything, but I think I have pulled something in my shoulder.

Dianne - I hope you enjoyed your anniversary, 25 years - don’t think I’ll get to that, I’m feeling very positive at the moment, but think 16 more years might not be reasonable!

Mary I’m delighted about your markers.

Anne I like Dianne’s idea of moving around the country visiting everybody! perhaps you could start a ‘pilgrimage’ around where we all live, we are quite a geographically diverse group.

Love to everybody else, apologies that I have no more time for personal messages, I need to leave for work at 12! but I am thinking of you all,

Nicola xx

Hi everyone,
Nicola, hope you haven’t done yourself any real damage! Did you manage work ok?

Dianne, congrats for your anniversary, mines this month too…(.36 yrs). You sound as though you’ve been enjoying life to the max!!

Terri, I was told chest drain can irritate the lungs, meaning cough can take a while to go. I think mine took at least a week to improve, perhaps yours the same?

Mary, so pleased for you re your markers.

Anne,party sounds so lovely, pleased it all went to plan.I’ve had the first of that trilogy on order from library for ages, but there is long waiting list, perhaps I’ll buy them too!

Sarah,you sound so positive, well done you! My local hosp has just started LGFG, in fact the lady responsible for getting it up & running here has been in mags & papers about it.

Wayne,what a difference a few days makes, how upbeat do you sound?? Will you check with Maryannes medics about going on hol?

M1yu, A Liverpool fan eh?! OH is an Aston Villa fan, they’ve had their share of ups & downs so far this season too! Hope your period is being kinder now.
Julie, Roz, Loiuse, hope you are ok?

There was me thinking “so far so good”, re the chemo…that’ll teach me. I’ve been feeling awful for the last 2 days, so sick, breathless & tired.Feel a bit better this morning, have managed shower, bit of make-up, but not got dressed! The sun has just decided to shine after an awful morning weather wise, perhaps I’ll put some clothes on & have a butchers in the garden.

Speak soon, Sandra x

hi all, it is a lovely sunny day here in berkshire, its amazing how the sunshine lifts you. sarah i had fec, it did work quite quickly for me, but i large lump but they did say that they were surprised it had worked so quick so dont worry it will work it is a good treatment.nicky, i hurt my leg coming up the stairs yesterday, it felt like something just went when i got to the top stair, like you i thought of fracture but seems to be ok now. i have a problem with muscle weakness i think as everytime i do anything remotly strenuous it hurts the next day. it is so scary falling over, i hope you r ok.hi dianne i love reading your posts, you always seem so busy, although i can drive and have a car outside, i have become relutant to go out on my own,which is giving me a problem as i am lonely and bored for most of the day, i really admire you.wayne wow what a turnaround i am so pleased marianne is feeling so much better, did the lung problem get sorted out. sometimes the tablets that are taken make you feel so much more iller than than you are.Mary so glad your markers have dropped, hope you have a good day.Annie hope you get on ok with your chemo, i was always so down on chemo days my daughter had to drag me there, once there i was ok.well all i hope you have a good day, love to all and anybody that i missed.

h…i sandra didnt see your post, sorry you are not feeling to well,you have to be really lucky to get away without some side effects of chemo.what chaem are you having i forget.This is your first one isnt it. i used to have mine on the thursday and feel worse on sunday, i would just write myself off that day. you may feel worse if you still have fluid, they agreed to go ahead with the chemo, inspite of the fluid you still have then. My cough is a bit better and i dont feel so breathless but im sure that wont last. hope you feel better, take care.love teresa

HI Lovely Ladies, and Wayne,
Sorry didnt post yesterday, had a lovely lunch out with Dianne, it is great meeting up and we had a long chat, not only about BC but about family life and what we are both up to, so it was good.

Juile, I know how it feels to loose a long post, its a bummer. I am pleased it wasnt so traumatic in the chemo unit, hope not to many se’s.

Wayne, I am SO SO pleased that Maryanne has felt so much better, it will have done you both the world of good to get out for a bit, I am so happy for you. You must be so tired as I notice your posts are always very late at night when I have been tucked up in bed for hours. Why are they always trying to save money at our expense I just dont get it.Your dad sounds great,dont worry about the hair thing my OH hasnt got any either, so I agree with Anne bald men are sexier.

Anne,Hope you have got your route planned out or do you just go with the flow and try to end up somewhere nice?? I think Diannes idea of comeing to see us all in your caravan is a great one and I would delighted to see you, me and Dianne could take you out on the town!!!then wake all her neighbours up when we arrive back home at some godley hour in the morning!!! what a thought lol.Hope chemo went ok yesterday, thinking of you.

Mary,wippeeeee great news about your markers, my onc puts faith in the markers so I do to.Lets hope they continue to go down its a great indication that treatment is working.Fingers crossed you have a good app with the onc. How are the wellies doing!!!

Dianne,Yes I did throughly enjoy myself, but doesnt the time go quick when you are in good company, and yes I could quite easily have drunk another glass or two. Nov 16th is written in my diary, hopeing the sis might have stopped going there by then, its not very inspiring.Good idea about leaving the antibiotics till Sunday, you cant go all weekend watching everyone else having a drink and you not, as long as you can put up with the pain. Your Dave surely spoilt you, what with the jewellery and red roses, can you get him to give my Alan some pointers. You are defo not a nutter, just a lovely lovely person who says it as it is, and thats why we all love you xx HAVE A GREAT WEEKEND

Sarah,Glad the chemo is going ok for you,I cant comment on the time it takes to work as not had chemo, but I am sure they will keep a close eye on you, and if not working will change, but that wont happen. Its great to have things to look forward to to gives you a boost, so you carry on, lovely to hear you being so positive.

Nicola, Oh Nicola hope you dont come out all black and blue, good test for your hiplol, you will have to get your arm and shoulder checked out if it doesnt get any better.Rest, feet up, chocs and a good book is recommended, but the question is can you do all that when at worklol. Hope work went ok.

Sandra,Sorry you havnt felt to good with the se’s, lets hope they dont last to long.

Terri, Louise,m1yu,Alison hope you are all well today, love to you all Roz xxx

Hi all,

Roz, hope markers are good. Sounds like you had a fantastic weekend. Dance competition, that’s great! Glad you had a nice time with Dianne, too.

Julie, glad it’s better this time. Hoping for good results.

Wayne, it’s lovely to hear Maryanne is feeling better. I don’t have much idea about going abroad, what with me being Chinese, everywhere I go I’ll need to get a visa first, so couldn’t be bothered. Sounds like Dianne has already giving you some good advise.

Dianne, glad you had a nice time with Roz and dentist wasn’t too bad. Some lovely present for your wedding anniversary, too. Have a nice weekend. Re Fairyland. I’ve been on, just not for long. We probably missed each other. I’m more of a footie girl than a flower girl!

Sarah, I’ve only joined FB recently, persuaded by my uni friend. Use it more for games now than anything else lol!! Hope FEC shows some effectiveness soon. Go and enjoy yourself when you feel up to it, don’t overdo it though.

Anne, I bet you can’t wait for going away in your van again. Enjoy it before it gets too cold for that. Hope chemo went OK and se not too bad.

Nicola, oh dear, hope you weren’t hurt too badly. Please go to the doctors if you still feel wrong. This is certainly not the way to test how strong your hip is!!!

Mary, that’s good news about your markers - at least it’s going in the right direction!!

When I arrived at the clinic today, the nurse said to me that my right arm looks more swollen. And she was right! It has been causing a lot of discomfort in the last week. I think I’ll delay it until the start of Rads next week and see how that goes. Any worse than now, I’m calling my onc! As she was doing my PICC line and then started to dress it up. I looked at her and asked “Shouldn’t I be having my Zometa today?” She looked me at blankly and asked “haven’t you had it 2 weeks ago?” I was more puzzled than her “I thought it was Zoladex I had 2 weeks ago!” She suddenly realized that she made a mistake “But I haven’t got your Zometa!!!” So only got bloods done today and going back on Fri to get my Zometa! I thought it was only me getting Zometa and Zoladex mixed up! Never mind, going back on Fri and hope she gets it right this time….

Take care & love to you all xx

Hi Girls

Good grief Nicola that was a bit drastic – just goes to show the medics were wrong, your hip must be getting stronger!!! Take care of that arm maybe you should get it x-rayed and your head just in case - handy having the pain killers though. Hope you ok, think you should be spoilt for the evening can imagine you lying groaning and them sleeping!! Love the idea of a pilgrimage round the country to meet you all – think I’ll wait till next year so I can share all your sunshine.

Dianne how sweet of your oh with a tear and a card and a dozen red roses what more could you ask for as proof of love after 25 years, how lovely. I would love to visit you - you would definitely have to be off painkillers for that visit!!! Pleased to hear you are getting tooth sorted out and good idea to wait till Sunday so you can enjoy weekend. Alcohol probably better than pain killers and antibiotics anyway. We love you, you nutter x x My daughter’s fiancé calls me a nutter and I take it as a compliment!!

It’s lovely to hear you sound so much more upbeat Sarah and planning nice things. I haven’t had FEC so can’t advise but these things do take time. M1yu the expert on FEC and look at the amazing results she had from it. By the way where did you get your hats patterns would like to make some for Chrissie pressies. The look good feel good thingie is excellent with lots of lovely goodies. Good for you spoiling yourself. I got my hair done at last on Friday and feel so much better for it. Love the idea of facial and nails done – go for it girl!!!

Wayne how lovely if you managed to get a holiday abroad. I’m with Dianne here about insurance but I’m a bit of a risk taker. Whatever you decide I do hope you get away, will do you and Maryann the world of good.

Sandra just finished the second book when having chemo yesterday – it is brill would definitely invest in it. Sorry you have not been feeling so good oh the joys of chemo. I just find I have to do what my body tells me but a potter in the garden always helps, hope you managed it and still feeling better.

Glad sun is shining for you Teresa you are so right what a difference it makes. Hope your counselling helps boost your confidence - it does so help if you can get out a bit. I don’t like going for chemo but find sticking my head in a book does help pass the time. I agree that writing days off when you are tired is good idea as I find I get down if I mull over all the things I want to do. Now I just give in and do nothing on these days and don’t feel guilty.

Ros you & Dianne meeting up sounds lovely you never know one day I might be sharing a bottle of wine or two with you both. Haven’t planned exactly where we going yet but a week Thursday I am off work so watch out world here we come!!! Will keep you posted but will probably go to the West Coast now midgie season over.

Good grief M1yu another mix up – good job you are on the ball but shame you have to go back on Friday. Sorry to hear about your arm have you been referred to the lymphodema clinic – perhaps you should be getting a sleeve or advice about massage? Hope its better soon xx
Hope you are feeling well Mary and managed to get down to the studio today. Thinking of you.

Lots of love to everyone else, going to make tea then early night as busy shifts before we go away and needing to rest.

Have lovely evening my dear friends. Love and hugs to you all Anne xxxxxxxxxxxx

Hello My Darlings, lovely to see all your posts. Don’t know where to start - oh well, here goes.

Nicola, I’m so sorry to hear you’ve fallen and hurt yourself, I hope you get it sorted quickly - that’ll teach you to drink at lunchtime!!!

Sarah, how great to see your upbeat post, you sound so much better than a couple of weeks ago, isn’t it amazing the difference a bit of time makes, the same as Wayne. You spoil yourself hon, you’ll enjoy the Look Good, Feel Good outing. I went on one and you get a fab bag of goodies at the end. I was naughty though (no change there then!). I hate anybody else doing my makeup and as I went already made up to the eyeballs I told them I had to leave early so I didn’t have to take it all off and start again!! You’ll have a great time I promise. I just had my hair streaked again yesterday, it’s really nice and I’m very pleased with it.

Sandra, so sorry you’re getting the se’s, aren’t they a bummer? Take it easy and pamper yourself.

Teresa, glad you are enjoying the sunshine, it’s lovely here today as well, it does make you feel better. Enjoy your counselling and I’m glad you like my posts even though I just ramble on and on…

Roz, so glad you enjoyed the other day, I did too and now we’ve got the next one to look forward to.

Anne, hope you have a wonderful time on your hol wherever you decide to go, hope the weather holds out for you, although we’ve been away in November in the caravan and enjoyed it just the same as in the summer.

m1yu, can’t believe they got mixed up again. What a bunch, it’s so infuriating when you have to go back again and it should all be over already. Useless! With Fairyland, you have to keep putting food out otherwise no one will water it. I’ll keep checking yours and watering it for you. I know you love the footie game though and it’s hard to run two games at once.

Mary, hope you are ok sweetheart and having a good day.

Julie, hope all is well with you and also Alison and Louise.

Take care of yourselves everyone, love you all loads, Dianne x x x

Hi Everyone,

Lovely day here, so hope you are all getting the sunshine, it does lighten your mood!!!

Dianne, ah the old red roses trick…works every time!!! What a lovely surprise, hope you have a fab weekend,wish we were all going!!!

Sarah, don’t know what happened with the FB today,and I had to go in the end, but there will be other days when we can chat! I am so glad you are feeling better! When we get those black moods, it seems like we will never get out of them. but miraculously we do!!! We have to make the most of the good times!!!

Nicola, I do hope you are alright, and no major damage! Hope your shoulder and arm have improved! It’s a terrible shock when you have a fall,typical of the men folk to sleep through your groaning!!! I don’t think that would’ve happened the other way round, I think women are tuned into every little sound, even if we are asleep!!! Take it easy,and any doubts…have it check out!!! The moral of the story…you might as well take his books up!!!

Sandra Hope you are feeling better today, those bloody see’s !! never know when they are going to strike!!! Take it easy,and just give in to it, and rest as much as possible, xxx

Terri hope that your mood has lifted a bit, and hope the cough has continued to improve! I always try and get out for a little walk, every day, I went across the field yesterday with the dog, and had my iPod in, I was singing [ and I use the word loosely lol} at the top of my voice,and when I looked to the side,a whole herd of cows had come to the fence to listen to my concert!!! I felt like Lady Ga Ga,took a bow, and carried on chuckling to myself!!!

M1yu can’t believe they have messed you about again!!! Good job you are on the ball [ better than Liverpool! sorry couldn’t resist that lol !} I do hope your arm has settled down , I think you should mention it before the rads,you don’t want to get there and then they can’t do it if your arm is swollen!!! Hope you are enjoying the sunshine today!!

Roz glad to say since I bought my new wellies, the weather has improved!! so haven’t tried them out yet!! Isn’t it lovely that you and Dianne can meet up, I wish we didn’t live so far away from each other, but aren’t we lucky to have the internet!! It must’ve been a very lonely place for women going through BC years ago,however did they cope,I don’t know how I would be without the love and support I find on here!

Anne, hope you are taking it easy today,and not too many se’s!! thinking of you xxx

Louise not long now before your op, thinking of you a lot, this time next week it will all be over, and you will be on the road to recovery!! Lots of love and hugs xxxxx

Wayne, Julie,Alison,and anyone else I have missed, hope yo are all having a good day,lots of love and hugs, Mary xxxx

Hi all,

Just to say thanks all for replying to my post yesterday. It’s a bit confusing because due to the delay caused by BUPA and my onc didn’t write the prescription in time, I now have to have the 2 drugs on 2 different weeks. (Was planning to have them at the same time.) But this shouldn’t be an excuse. I reminded her last week!!! She was too busy to put it in her diary!!! Re my arm, did talk about it with the dr looking after my rads, he couldn’t see a prob. I don’t have trouble lifting up my arm or anything, just feels like I’ve pulled something. Anne, not been referred to the lymphodema clinic before as never needed it. Never had any trouble with it since the start of my chemo last year until last week. Spoke to my onc about sleeve and massage before, but he’s a bit unsure of course didn’t really need it before but looks like that will be the next move if it gets any worse. Just hope it isn’t an omen that things are getting worse inside me!!

Hope you are also having a fair share of the nice weather and enjoy it while it lasts xx

Hi Lovely Ladies,
Well rang the onc today and his sec told me the tumour markers have come back ‘normal’, so I am a bit relieved. Got the date for the yearly bone scan for the 28th Oct so really looking forward to that!!! It has been a lovely day here today and looks like it could be the same tmm.Not going to do much just be lazy, got a bar of Galaxy hidden away so think I will eat that!!!

m1yu, What a mess up with your meds, its a good job you know what is going on, you can really see how bad mistakes can happen it isnt good enough. Hope it goes ok tmm with the zometa and they get that right. Sorry about your arm,It maybe that you have just pulled something but beat to get it checked out.

Anne,Would love to shere a bottle or two with you.

Dianne, Can just imagine you going with your make up already done, its nice to have your hair done, mine needs cutting again it doesnt seem long since I had it done, dont think she took enough off. Have a great weekend.

Mary,well never heard of wellies being in control of the weather but it works for me so keep them near the door and we might get some more good weather.I totally agree about your thoughts on BC and the support women had years ago, I am so pleased that the progress in treatment means that we can live longer even when the prognosis isnt good. Yes the support on here is great, Dianne and I were talking about that very thing.

Love to
Louise, Terri, Sarah, Alison Wayne,Nicola, Julie and Sandra, Lots of love to you all Roz xxxx

hi all went to see the onc that was going to sort out my radiotheraphy and she talked to my main onc and they decided to leave it a couple more weeks to see if the tamoxifin will shrink it a bit. If it does they will know that the drug is working on me and treating any other things that could be lurking. Once again they didnt seem concerned about my fluid and i did my usual trick of talking to her for twenty minutes breathing normally and not coughing once and then coughing my heart out when i got out of the hospital. so once again it is a waiting game am seeing my usual onc in a couple of weeks so will try and hang on until then. It will be interesting to see if the tamoxifin does work,if not they said they will jump in ,as they interestingly said. As i have not had a scan for a while i guess this lump is the only way to guage it. Well u got to watch these medics myui messing up your tablets like that. mary wonderful to hear u were out walking and singing to the cows. This fluid only allows me to walk slowly but i can walk, i think i have actually lost some of my confidence of doing to much. This happened to me when i was first diagnosed and it took me ages to get it back. i didnt drive for ages. I am driving now but dont like to go to far. My aim this weekend is to go to our local retail park on saturday, we have .inew marks amd spencer food hall opening and a matalan, which is being opened by lawrence-lewellynbowen and linda barker. Dianne you love shopping dont you , iam a card maker and i love buying thngs for that, i am just trying to get myself primed up to make christmas cards, i have usually have started by now. i also have not started my christmas shopping yet has anybody else.i forgotten who it was but i am glad your markers have gone back to normal. Best wishes louise with your operation , u are one brave girl. Well i am sure i have missed someone out so sorry if i have love to you all
teresa

Good morning everyone,
Definition of Chemo Brain…reading Roz & Terri’s posts and wondering why their oncs can be seen / contacted on Saturday!! It took me AGES to realise it’s only Fri today!!!OMG think I’ll go back to bed!
I’m feeling much better today, less nauseous, thank goodness, I’ll let nurses know before my next treatment and hope they can change meds for me.
Roz, fantastic news re your markers, you must be so relieved (so are we!)
Terri, it’s good that the onc you saw explained their actions to you, it helps to know their reasoning for treatments etc. Retail Therapy, that sounds an ace idea! Let us know if you get to see the celebs. As for Christmas shopping I’ve got a couple of bits, nothing proper though!
The weather forecast is pretty good for the next couple of days, always a bonus, is anyone doing anything over the weekend?
Love to you all, speak soon, Sandra x

Hi Girls, lovely to see all your posts. Roz, I’m delighted that your markers are back to normal, great stuff, we’ll have to have more wine, I’m sure that’s what does it!!!

Terri, I haven’t even thought about Xmas shopping, yuck! I had to make a christmas card once and discuss and it make it while speaking to my colleagues. It was a project for the teaching course I did and it was the first one I’d ever done and it was terrifying! I also had to give them all the materials and supervise while they made one too. Don’t think I’ll ever do another one!!!

m1yu, what a performance with your meds, just as well you are on the ball as Roz says. I’ve watered your garden twice for you so get in there and water a few others and they’ll keep coming back to yours.

I am in a mad rush today as I’m getting geared up for my girlies arriving tomorrow. So I won’t be saying a lot more except to wish you all a very happy and peaceful weekend.

Forgot to say that the nurse came yesterday, she was lovely, but looked worse than I do! Love you all loads, take care, Dianne x x x

Hi Everyone,

M1yu hope your arm is better today,I have slight lymphodema, and sometimes my arm feels more swollen than before, and then the next day not so bad, don’t start thinking that it is a sign of anything sinister,that’s a separate thing altogether, just concentrate on the wonderful results you had,get the rads out of the way, and start living your life!!! I can’t understand all the messing about you have had, do they not listen, it’s not rocket science.and there shouldn’t be such a thing as too busy to put in her diary!!!

Roz, oh that is wonderful news about your markers!!! the magic word ‘normal’ That is a good sign,so hopefully your scans will be ‘normal’ as welll!

Terri that b…dly waiting game,hopefully next time you see the onc your lump will have shrunk, and they will have a better picture,and can make a decision about the Tamoxifen. I do hope you manage to get to the retail park, it would be good to see Lawrence!!! I think he’s lovely!!!

Sandra so pleased you are feeling a bit better,and as you say, maybe they can sort the sickness tabs before your next treatment.

Dianne, have a great weekend with the family and friends!!! By the way what nurse!!! did I miss something? Hope the tooth behaves itself!!!

Anne hope all well with you,take it easy today,get that much needed rest!!!

Louise thinking of you,and sending hugs!xxx

Anyone else I haven’t mentioned, I am thinking of you all, hope you manage to have a good weekend, must say it’s not a very nice day here,pretty overcast, and chilly, not what they forecast!!!

Take care dear friends, lots of love, Maryxxx

hiya all you gorgeous ladies
ok whats been happening ermmmmmm, went too lyme regis today not a cloud in the sky and again and ill stand by this !!! the simple things in life are the best fish and chips coffee and and had a mint choc chip going on sat on the cobb wall mmmmmmmmmm dam that was good!!! , maryanne and i walked for ages (well it seemed like ages) but who really cares we really enjoyed it breathing was OKish just had too take it slow,the numb chin has gone and also breathing is alittle easyer and coughing not nearly as much and thats with just the first cycle of xeloda im really pleased with that we are in the middle of the weeks rest and start again thurs i think so hopefully things may get better, she did have a couple of head aches last week which if im honest worried me for odvious reasons. also decided not too go for the holiday as im not the luckiest of people lol best be safe than sorry.

roz
sooooooo glad your markers are ok , you must be so pleased and relieved, go and treat your self go too that posh hair salon where you live and do the things ladies do best make yourself feel good, i would probaly do the same but i gave up having my hair cut about 50yrs ago lol anyway stay well,

miyu
GOD how the hell did they mix the drugs up??? and they had the brass too rip me apart the other week because i did not stop the chemo they may be doctors but again if im honest some make me sick!!! its probaly a little like holby city all they are interested in is going out and sod everything else. i hope you are ok now and well

anne
dam you make me laugh and god knows i could do with a few of those just lately, ermmm what did you say ? bruce willis and yul brenner, i look more like YODA of star wars lol!! or so maryanne says , i hope you are well,

terrie
well thats about right with the cough ,we had that trouble all the time it seems too stop just when you dont want it, dont worry you will be sorted in the end i just thought sod the doctors i went straight too accident and emergency and stood my ground and demanded that maryanne was looked at after that they HAVE too do the drain ok she was in for a couple of days but i got what i went there for try it ,it will work, stay well,

nicky
flipping hell how did you fall down the stairs? well at least one thing everything is ok and your still strong, stay off the wine lol jsut get a massive bar of choclate feet up and watch tv, glad you are ok stay well

diane
glad you met up sounds really nice too have a chat and a couple of drinks , if the nurse looked bad i rekon she went on the town or woodpecker hope your good diane

sandra
dont worrie too much about getting muddled up i do it like it is my hobbie lol!! takes me about 1 1/2 hrs too type this little bit ,probaly why im driving a skip lorry lol if i done what clint eastwood said (my dad) when i was younger and tryed hard at school id probaly be in too nuclear physics, stay well and love too you,

ok ladies if i have missed any body i do appologise love and wishes too each and everyone of you,
wayner each day passed is one closer too a cure

Hi everyone,
Hope you all had good weekends, the weather here in Essex was beautiful yesterday.
Saturday wasn’t quite as good, but not too cold which is a bonus. I went out, first time in a week, to Waitrose. I needed a couple of bits and wanted to look at the baby stuff. They had lots of lovely displays, in readiness for Christmas and I got sucked into the whole thing, buying 2 presents and spending a couple of hours in there. At one stage I’m convinced the security guy was keeping an eye on me cos I was dawdling around so much!! I thoroughly enjoyed it and got some lovely things for Lilly!

On Friday I went to chemo unit as still not feeling too good. They took bloods & I had chest xray. Outcome is, bloods ok and I’m booked in for Mon 18th to have chest drained. Notes have been made to change my meds at next chemo to help with the se’s. All in all they were really really good, feeling better just knowing someone has taken control! Chest drain has been organised so that immune system should be ok, plus it’ll be done in time for next treatment.

Hope you all have a good week, I can’t remember if anyone is having treatments, tests, etc., but I wish you well.

Sandra x

Hi Everyone, hope you all had a great weekend. I had a marvellous one and unfortunately I’m still suffering for it - entirely my own fault, I drank far too much wine and stayed up too late, but it was worth it as it was terrific. My daughter had organised balloons and table decs in the restaurant. We had a private room which I hadn’t booked and at the end they brought a cake in which she’d also organised. It had a picture of our wedding day on the top and was a great ending to the meal. She’s a star. Back at home, we ended up using the remote controls as microphones and singing and dancing round the room - god knows if the neighbours heard - we’re usually so quiet, thanks goodness there’s a lot of distance between the houses.

Sandra, sorry to hear you weren’t feeling good, but pleased they have sorted things out for you and you have a date for your chest drain. I’m sure you’ll feel better once that’s done. I also dawdle round shops, so I know what you mean about the security guard. They make you feel guilty even when you’re not!!!

Wayne, you sound as if you had a great time with Maryanne at Lyme Regis, keep it up. Don’t worry too much about the headaches, I got them all the time at the beginning of the treatment, but that’s all were, just headaches. Give it a couple of months and then think about the holiday, it gives you something to focus on and look foward to.

Roz, hope all is well with you. I’m starting on the antibiotics today for the wretched abscess - so no more drink for me for a week.

Anne, I hope you are ok, I might be coming up to Glasgow at the end of the month with Dave, but I think it’s probably when you are away. Sod’s law! I would have got a train and come to see you for the day as he will be busy at work so my days will be my own. It’s not definite yet as I was planning on seeing my mum and dad, but if I can go with him I’d prefer to do that.

Terri, hope you are ok and got to the retail park, my idea of heaven! I was reading somewhere that everyone who dies passes over into their own idea of heaven - wouldn’t that be nice?? Mine would be gorgeous rolling countryside, temperature of about 28 degrees with a bloody great big air-conditioned shopping centre right in the middle of it!!!

Louise, hope you are feeling ok today and that the sun is shining for you.

Mary, hope you are ok sweetheart and that you had a good weekend. The nurse was the district nurse who wanted to come and introduce herelf to me.

m1yu, hope you are ok hon, as Mary says it’s not a sign of anything more sinister when your arm swells, it’s just another little bonus of having this crappy illness! Get some food out in your garden…

Alison, Nicola, Julie and Sarah, hope you are all ok today and have had a good weekend. Hope I haven’t missed anyone out, but if I have, my apologies. Have a great day everyone, loads of love, Dianne x x x x x

Hi,
Just wanted to wish Louise lots of love and luck for the op tomorrow, we’ll all be thinking of you.

Sandra x

Hi all,

Roz, good to know your markers have come back normal. Hope your bone scan goes well. Will be thinking of you.

Teresa, not sure when your last scan was. But if it has been a while and you’re still worried that Tamoxifen isn’t working, why don’t you ask for a scan. How long have you been on Tamoxifen? They used my lumps to gauge whether Tamoxifen was working but they didn’t put me back on chemo until they got the scan results back even though there were clear symptoms telling me Tamoxifen wasn’t working at all - “old” lumps growing, new lumps, pain…

Wayne, that’s fantastic news about your wife. What a difference!! Hope xeloda continues to work of her and she tolerates se. I have headaches all the time, just one of those thing we have to put up with I guess.

Sandra, sorry to hear you have to get the drain done again. But good to know it will be all done before next treatment and hopefully you’ll be a lot more comfortable afterwards. Glad you’ve enjoyed your shopping.

Dianne, sounds like you had a fantastic weekend. What your daughter did was really lovely. Did you have your whole week’s drink at the weekend?? LOL!!

Louis, thinking of you tomorrow. We’ll all be holding your hands.

Mary, hope you are ok. Thanks for info re my arm. I was a bit worried only because that was what happened before my liver mets dx and it went right down once FEC was started. Isn’t this illness awful that every little bits of signs can make us very jumpy? Good news that the hormonal treatment seems to have kicked in! Getting slightly more se and the swelling in the underarm has gone right down.

OK, first rads out of the way. I didn’t know they will be marking me every session!! Goodness, is there something out there called anti-ticklish cream??

Hope you all had a nice weekend. xx