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821

Hi Lovely Ladies, What a lovely weekend weatherwise it has been here, yesterday was really nice, but didnt do much just food shopping, can think of better things to spend my money on but you have to eat!!!

Terri, Sorry you are having to play the waiting game, but at least they are keeping a close eye to see if the Tamox is working, I know there is quite a few meds they can try if one doesnt work, I still have my primary tumour in the breast and my onc uses it as a measure to make sure the meds are working, I have it checked every six months by the breast surgeon, I suppose when the Arimidex stops working they might take it out, I keep having a feel of it but it never seems to change in my opinion but according to them it has. You sound as if you had a lovely time at the retail park, shopping is the best tonic, I love it. I saw Lawerance once and couldnt get over how small he is.

Sandra, You made me laugh with your chemo brain comment, think we all get like that at times. Glad you had a nice look around the shops and started your xmas shopping. Iv got a few bits but lots still to do. Glad the chemo unit was helpfull to you, im sure your not looking forward to the drain but at least it is another thing crossed off the list, and you will be ready for your next treatment.

Wayne, What a lovely husband you are, Maryanne is lucky to have you in her corner, I am so pleased that you had a nice day out the sea air will have done you both the world of good, and fish and chips and a mint choc to, nothing better. I truelly hope that the xeloda carries on working for her as she has been through so much. I do need to get my hair cut as she didnt take enough off last time, but did treat myself to a new top at the weekend.

Mary, Hope you had a nice weekend, and not feeling to bad.xx

Dianne, What a fantastic time you sound to have had,your daughter went all out with the treats and you deserve them, I bet there wasnt a dry eye. Good job you hadnt started the antibiotics and hope the tooth didnt play up to much. You will need the rest of the week to recover.

Louise, Good luck with you op tmm, sending hugs and xxxx

m1yu,So pleased that the swelling in your arm is going down, you are right that we think that every little thing is connected to this disease.I dont understand why they are marking you again, are they changing where they are doing it?? at this rate you will look like one of those people that are covered in tattoes!!!

Love to everyone else, hope you are all keeping well and had a nice weekend, all my love Roz xxx

822

Hello all,

Will post properly tomorrow as tired and on way to bed now after long day in London for zometa and onc appt.

Just wanted to pop in and say good luck to Louise - will be thinking of you tomorrow. We’re all rooting for you. When it’s all over and you’re feeling up to it come back and let us know how you’re doing,hugs xx

Love Julie xx

823

Hi girls

Sorry haven’t posted for a few days got the dreaded cold which went to my chest so on antibiotics and waiting for them to kick in.

Dianne your party sounds wonderful well worth feeling a bit jaded for. What a star your daughter is and the cake sounds lovely I am so pleased you had such a great time. Party sounds a bit like our mad house when we let our hair down – haven’t done that for a while but think we will have to find an excuse soon!!! Have a good rest now to recover.

Thinking of you today Louise I do hope it goes well for you. Julie you sound shattered take it easy. M1yu glad arm is feeling better and hope they have everything sorted for you now. Wayne – keep smiling – Yoda I love it!! Mary thinking of you as always. Ros, Alison, Sandra, Sarah, Teresa et all catch up later.

In bed and must get some sleep as working tonight so hope to get a chance to do a proper post later and catch up with you all properly. Take care of yourselves my dear friends and speak later.

Lots of love and hugs Anne xxxxxxxxxxxxxxx

824

hi all still hanging on in there. still coughing but maybe not so bad, can walk around without getting breathless its just climbing stairs that puffs me a bit. trying not to feel my breast lump onc told me not to feel it every day as wont be able to tell difference. It was hurting a bit yesyerday so hopefully that is the tamoxifin working.
hi roz i believe thats what my onc is doing measuring to see if the tamoxifin is working .Whats worrying is took them a long time to decide arimedex was working, I wonder if i was absorbing it properly as had hardly any side effects with it but i am having them with tamoxifin. Yes u r right laurence is smaller in real life, but i found that with all famous people i have come across. I was once on brighton beach when they were filming with Robson Greene, we were asked to be extras just hanging about on the beach. When he came along with his bodyguards i was gutted, he is really short and skinny but i still like him.

miyu hope you are okay, i have only been on tamoxofin for three weeks, onc said that was too early for anything to happen so thats why they are leaving it. How long were you on it before they decided it wasnt working for you. I know hormone treatment is slower working but its so hard waiting, it makes you feel so vunrable. I remember my first lump shrunk visably after i had my first lot o Fec.

Dianne you never seem to amaze me, i think about you a lot, cant believe you have liver mets and are partying and drinking, you put me to shame. Do you have family.

hi sandra so your having your chest drained again. my onc seem to think the tamoxifin might sort it out but if your chemo isnt doing it how can hormone treatment work. i can understand them not being too worried i am not breathless whn they see me ,but it is
still there and that cant be right, it is definatly slowing me down. are you getting someone from the respiritory dept to do it, is it the quick aspiration or the two day job.i dont know what to do about mine, my family just say just do what the doctors say, but i dont feel comfortable.

Wayne it was lovely to read your posts about you and marianne walking by the sea at lyme-regis. i have been there many years ago i think we were on holiday in seaton at the time. do you live near the coast, i so wish i did, there is something so calming about looking at the sea.Any way so glad to hear she is so much better compared to a few weeks ago, did they do the pluredosis in the end.

anne so sorry to have you a cold every one around here has them i am
my daughter had it last week so she didnt visit me, i really missd seeing her but dont think i could cope with anything else at the moment, hope you feel better soon.
well love to everybody

teres

825

Hi Everyone,

Haven’t been here for a few days, unfortunately I have been down the dark tunnel!!! You know how it hits you sometimes!! I think losing Marion [oh’s cousin] a couple of weeks ago, just plunged me down into the dark place, we all know only too well. She was a very brave and dignified lady,and I will miss her.

Wayne it was good to read that you and Maryanne had such a lovely day at the seaside!! and you are right it is the simple things in life that are the best!!! Do hope things are still going well, it this bloody disease is such a rollercoaster,we never know what we are going to be like from one day to the next!!!

Sandra how lucky you are to have little Lilly to buy all those lovely things for!!! glad you got something sorted about your se’s,and hopefully after the drain you will feel much better! Be thinking of you on Monday!!

Dianne I heard you all the way down here, kept me awake, nearly called the police!!! lol !! So pleased you had a great time, and hope you are not suffering too much from the effects!!! What a lovely thoughtful daughter to organise all those great surprises!!! Quiet week for you…get that tooth sorted!!!

M1yu hope you had a good weekend, and your arm isn’t too bad. Yes all those things can make us all very jumpy!! I hope the rads go well, I don’t think you will be marked every time…at least I hope not!!! We will be able to play join the dots on you if you have any more!!!

Roz hope all well with you…it was lovely weather here too over the weekend, but it has changed today,really overcast,and cold, we have lit the fire!!!

Anne, I hope you are taking it easy with that cold, we want you better for getting away in the van!!! Not long to wait!!!

Julie poor you having to travel so far for your treatment!!! Hope you got some positive news from your onc!

Terri glad you got out and about, and managed to see Lawrence!!! I think it’s always a shock to see the celebs in real life, they are nearly always smaller than we think!!! Good news that you coughing is getting a bit better,lets hope it will go completely soon!

Nicola hope you are okay, and no nasty bruising after your fall!!! How did the interview go?

Thinking so much about Louise today,and hoping and praying that her op was successful!

Well dear friends, hope that you all have a good evening, sending lots of love and hugs to everyone, Mary xxxx

826

Hi all,

Roz, sorry, maybe didn’t make myself very clear. Those markings were done by pens, they are not tattoos. So, they can be washed off. Still don’t know why they need to do that every time, though. Sorry Mary, no joining the dots on me! It will stay at 4 dots.

Julie, sounds like you had a very tiring day. Take it easy. Hope Zometa & appt went OK.

Anne, sorry to hear you’ve got the cold. Just what you don’t want when you are on chemo.

Terri, glad you’re feeling a bit better. They usually say it takes about 3 months to decide whether hormonal is working or not. It is a long time. I guess that’s how long it takes for the chemo effects to start fading. Then we’ll be more or less totally reliant on hormonal. When I first started Tamoxifen, I couldn’t believe how powerful the tiny pill is! And now I’m an Arimidex and it is even smaller LOL!! I was on Tamoxifen for nearly 4 months, but around 2.5 months, I was feeling really bad and got this pain again I had at the very beginning of dx and there was an obvious lump on my neck. I brought my appt forward and after he check me over, he told me to wait till the 3 months was up!! But he didn’t want to see me again just in 2 weeks time, so had to wait for a month! And the by the time the scan results came back, it was nearly 4 months. Outrageous!! He did apologise though. Now I learnt I need to be forceful and stand my own ground.

Mary, sorry to hear you’ve been feeling down. We all need time when one of our loved ones is gone. It’s like we’ll never be complete again and there’s a big hole in our lives. It takes time to heal the emotional wounds. Hugs xx.

Hope you are all coping OK and have a nice week. xx

827

Hi Lovely Ladies, Well as some of you know, I had a right carryon getting on here today, it was impossible so I gave up and facebooked the ones I could. However, it seems to be ok now. What a lot of posts again.

First of all, I hope Louise’s op went ok today and that she is recovering well. At least it’s over now!

I’ve now started on the antibiotics so my mouthwash of wine and gin has to go on the shelf for this week as I can’t have a drink for 7 days. The tablets are making me feel a bit nauseous and tired but as usual I’m ignoring it and plan on going shopping tomorrow! To answer your question Terri, yes I do have family. I have two daughters, one of whom arranged all the partying last Saturday and my husband has a son and a daughter. They’re all married and between us we have 11 grandchildren!! (Hopefully they’ve now found out what causes it and they’ll stop before they bankrupt us!!!)… My parents are also still alive and kicking - in better bloody health than me.

Anne, sorry you’ve had this rotten cold, it really knocks you for six doesn’t it? Do hope you feel better soon.

Mary hon, so sorry you were feeling so down and I hope that you feel better soon. It’s natural to feel so sad after the loss of a close loved one. I’ve been there sweetheart, I know how awful and isolating it is. I’m thinking of you always.

Roz, hope you are ok and taking good care of yourself.

Wayne, hope Maryanne is continuing to do well and is feeling good.

m1yu, hope the arm is ok and so glad the rads went well.

Julie, sorry you are feeling so tired after the Zometa, hopefully you will feel a bit better tomorrow.

Nicola, haven’t heard from you for a few days so I hope you’re not suffering with after effects of the fall. How was your interview?

Sandra and Sarah, hope you are both ok and feeling good.

Don’t know if I’ve missed anyone out, I hope not. Take good care of yourselves everyone, love you all loads, Dianne xxxxxxxxxxx

828

Hello Dear friends,

If you don’t want to read a big moan please skip this post!!
Had my zometa yesterday and that went ok though she couldn’t get any blood, so after infusion they had to try to find another vein for bloods, took several attempts and arm punctured and bruised all over – again!

Had onc appt in afternoon, was last one to be seen as waiting for my CT to be reported – still hadn’t been so will get it posted to me. Onc couldn’t tell me much except that scan seems to show still only bone mets, which of course is good, but I just feel it was all a bit of an anticlimax after all the fuss and waiting! Also, the CT last time hadn’t been fully reported either and one of the thing that threw up (which the onc didn’t mention) was that there was some opacity in left (my good) breast. Asked onc about this and she examined me but could feel nothing but has agreed to ultrasound. Just a bit niggled by whole thing at moment – sorry!

OK, RANT OVER!!

Mary, I’m so sorry you’ve been in the horrible dark place, I do empathise with you. I hope that things will become easier and less painful for you over the next few weeks. Will be thinking of you as always.

Wayne you make me laugh! I’m so glad that things seem to have turned a courner for you and Maryanne, enjoy!

My1u, glad rads ok, hope arm is getting better, do keep an eye on it and get it checked if not happy.

Anne sorry about your cold – I hate them! Hope yours gets better fast and doesn’t interfere with your planned trip.

Nicola nice to chat earlier even if briefly, hope you enjoyed the wine!

Terri, Sandra, Diane, Roz thinking of you too and of course today especially Louise. Hope I haven’t missed anyone, if I have I’m sorry but love to you ALL. xx

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Hi Girls, Not many posts today. Hope you are all feeling well. Sorry you are feeling a bit down Julie, hope that horrible anticlimax feeling will soon disappear. I saw that you had seen my message on the other thread.

Anne, hope your cold is improving you are feeling better today. Mary, I know you’re ok today because I had the text from you earlier.

I’ve been shopping and bought some boots, a gorgeous long cardi and a couple of sweater and a fab glitzy belt. So I’m feeling gooooooood!!

m1yu, hope your arm is ok today, I’ve just watered your garden!!!

It will be good to hear from Louise to see how she is.

Roz, Terri, Sandra, Sarah, Wayne and Nicola, hope all is well with you. Hope I haven’t missed anyone out. Take care my darlings, lotsa love, Dianne xxxxxxxxxxxxxxx

830

Hi Lovely Ladies,
Well what a horriable day in my household, had no electric since 8.30 this morning, OH left me in bed and also left me a flask of hot water hmmmm, so stayed in bed till 11.30 reading my book, then daughter came down expectiong a cup of tea, {no electric, so used my flask} Isnt it funny about the things you think of, Oh ill put some music on {no electric}, no one ringing me {no electric} garage door is still up,wont go down, is it broken {no electric}, so gave up and lit the fire, put feet up and read my book. Its just come back on at 3.30 so thought I would come on here and see what you have all been up to.

Oh Mary I am so sorry you are feeling so down, berevement hits people at differant times, I am feeling for you right now and hope that your dark feeling lifts soon. Get those wellies on and go for a nice walk to a secluded spot and have a good scream, but make sure there are no cows listening!!!

Anne, Hope your cold is getting better, hope you got some rest ready for your shift at work xx

Terri, Know what you mean about not feeling the lump, mine often feels like it has a pulse of its own. Yes I think it does take at least 3 months to see if the meds are working, I know its awful to say but lets hope that now you are having se,s from the Tamox that it is working well, we all seem to react to differant mend in differant ways.

m1yu, Im always getting the wrong end of the stick {lach of oestrogen to the brain} so you wont be walking around looking like the most tattooed person in britain.

Dianne,Oh dear, no wine for 7 days how are you going to manage, your shopping trip sounds very succcessful, where did you go??

Wayne, Hope all is still ok with Maryanne, thinking of you both.

Julie, Hope you are feeling a bit better.

Nicola, Hope you are keeping well and not feeling to bruised, same as Dianne I was wondering how the interview went.

Sarah, Hope you are copeing with the chemo ok.

Louise, I know you wont prob see these posts for a little while, but we are all thinking of you and hope to hear from you soon xxxx

Sandra and Alison hope you are both ok, Lots of love dear friends Roz xxxx

831

Hi all,
Roz, what a nuisance,good reason to stay in bed though! Do you know what the problem was and did it stay on?

Mary, hope you are feeling better now? I’m thinking of you and wishing you light at the end of that dark horrible place.

Anne, have the anti-biotics done the trick, are you feeling better? The cold that’s doing the rounds at the mo, seems really nasty. One of my friends has it and had to cancel our meet-up.

Julie, I guess you are just fed up with what seems to be incompetence on the part of your medical people at the moment. Nothing appears to be going your way, lets hope it changes for the better asap.Feel free to rant as much as you like!

M1yu, how’s the arm? Glad your rads was ok.What does Dianne mean,“she’s watered your garden?!”

Terri, your breathing sounds much improved, stairs can be difficult normally, which is why they are good exercise, so don’t let them worry you!

Dianne, On the wagon, oh no!! Have the anti biotics started working yet, so that at least you know it’s worth it?! What are your boots like,I’m looking for some long leather ones, haven’t seen any I really like yet though.

Nicola, we are all wondering how you are re bruises and interview.

Louise, thinking of you and sending hugs, hope all is ok.

Wayne, Sarah, Alison & anyone I might have missed,how are things with you?

I’ve had a busy couple of days, catching up with friends and family.I’ve also been to a support group and done my first Sainsbury shop on line.
Grocery delivery was interesting, forgot some things (OH’s wine!)and have no idea why I ordered others (ready prepared fine beans?!). I think it took me twice as long as going to the actual store, but less tiring. OH has day off tomorrow, going to have lunch out, yum yum,…despite just spending £100 on shopping…LOL.

Be good, be happy, Sandra x

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Hi Everyone,

Thank you for all your kind comments!! I felt a bit better today, much more in control! Had quite a nice day,went to the studio, and then had a ride out,and walk around a little market town near us, weather wasn’t brilliant though quite cold and miserable!

Dianne, another successful shopping day!! got yourself some lovely stuff!!!
Where do you put it all…have you got a separate extension!! lol Hope the antibiotics are working and kicked the infection into touch!!!

Roz we get those blackouts every now and again, blooming nuisance!! It’s amazing how much we depend on the electricity !!! Hope you had a better evening!!!

Sandra I have only done the shopping online once at Tesco,and never again, the stuff they sent me was rubbish!! bit of a bummer forgetting your oh’s wine!!! Enjoy your day tomorrow, have a lovely lunch!!!

M1yu hope you are okay today, and not too tired from the rads!!!

Julie so sorry you had a rubbish time at the hospital!! I think you have every right to have a good old rant!!! I have that problem getting blood as well, have come to dread it!!! Do hope you get good results when they finally come through!

Anne, thinking of you as always, and hoping you manage to get away tomorrow. Good luck with the scan,sending you lots of positive thoughts xx

Wayne, Terri,Nicola and Sarah,and anyone else I haven’t mentioned, hope you are all okay,thinking of you,lots of love and hugs, Mary xxx

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Hi all,

Had a really busy/bad day today with line clean at the clinic and rads at the oncology centre.

Developed a skin irration with the PICC line, not sure exactly what caused it. No wonder it has been itching as mad for the last week. Never had a prob with it, now thinking it might have to come out earlier than planned if it doesn’t resolve itself :frowning: Which mean has to switch to tablet form of Zometa earlier than planned :frowning: Very annoyed. Have to wait and see what happens over the next few weeks.

BTW, heard from my friend, she’ll have all her treatment at home. (glad to know because otherwise she’ll have a long way to travel.) More mets found after more scans :frowning: Poor her, has been hit by one bad news after another. Got to go and get some sleep. Busy tomorrow. Will try to read and reply to other posts at the weekend.

Take care xx

834

Hi Girlies, Hope you are all ok today. Anne, hope you are feeling better, no post from you so hope that doesn’t mean that you are still feeling really poorly.

Mary, so glad you are feeling a bit better, to answer your question, I have clothes stashed in every wardrobe in the house. I can never bloody find anything, the trouble is I can’t bear to throw anything out. I’m a hoarder. I keep thinking I will get shot of a load of gear to the Charity shop, but when I look at it all, it defeats me before I start, so I close the doors and walk away!!

m1yu, so sorry you’re having problems with picc line, I do hope it resolves itself soon. I’m glad your friend is having her treatment at home, but bad news about the mets. When I was first diagnosed with the liver mets, I found out after the scan that I also had them in my spine and it felt like I’d been hit with a hammer. I almost gave up then, but you know me - Never say die!!!

My mouth doesn’t feel much better really, maybe a little bit. The pain is definitely subsiding, but I’ll be glad when I’ve finished with the tablets.

Roz, what a bummer about the electricity. What happened? Glad it’s sorted out for you now though as it’s a bit miserable today isn’t it?
I only went into Louth to do my shopping, there are some nice little boutiques tucked away and I know where every one is!!! I spotted a lovely mac, black and quite unusual, don’t know why I didn’t get it, (probably because I couldn’t carry anything else!!)… I might go back today and get it.

Sandra, how could you forget the wine? Have I taught you nothing!!! The boots are lovely, almost to the top of the knee, with a small heel and a bit of fancy stuff on the foot. I’m wearing them on Friday night and I don’t care if it’s 50degrees (some chance…)

To everyone else, Terri, Wayne, Sarah, Julie, Nicola and not forgetting Louise, hope you are all well today. Loads of love to you all, Dianne xxxxxxxxxxxxx

835

Hi all

Sorry that I haven’t written much recently I have been working a lot, I feel fine when I’m at work, but shattered and not fit for much apart from vegging in front of the telly in the evenings!

Just a quick up-date!
re the fall, I did something to my shoulder and could hardly move my arm last last week, it did gradually ease up and is now almost back to normal; it is still sore but I have full movement back. It was embarassing on Friday pm because I went to a business dinner with my husband and a man went to shake my hand and I couldn’t lift my arm to him, I used my other arm to push it across to him, then my handshake must have been like a wet rag.

I did the interview on Monday, the photographer came first. I thought it would be just a case of pointing the camera at me and leaving…but no! as he said the light was good, he took me into the garden and snapped away from ages! I would have rather had bad light and a soft focus lens!

The interviewer came later and she was lovely. I was fine discussing medical history and treatments etc, but when she asked me more emotional questions about my son and the future, I admit I did get quite emotional. So it might be a bit more emotionally charged than I had originally intended. I explained that the message I wanted to get across was that cancer treatments have improved and many more people survive, but due to the media only tending to only cover positive stories of recovery, the general public aren’t necessarily aware of the severity of secondaries or that many people like us live with a cancer that isn’t curable. To be fair she had researced the subject before visiting me, she had some statistics from Breakthrough. I showed her one of the interviews from the secondary campaign and gave her the BC Care website address, so hopefully she will write an accurate article. I hadn’t been sure how much personal information to include, but after watching how eloquently the ladies in the campaign spoke, I felt it was right for as many people to be aware as possible, so went with quite a full on exposure.

She couldn’t tell me whether it is going to be in the paper this Friday or next. I will keep you posted.

Anyway less of me, I hope that you are all OK, particularly Louise, has anybody heard from her?

I am sorry that I haven’t posted individual comments, but I am thinking of each and everyone of you and am sending you all my positive thoughts and best wishes,

Nicola xxx

836

Hi all,
Just scimmed through all the posts and wanted to say a big thank you for all the thoughts and hand holding that went on for me. My op was successfull in that they were able to remove a descrete lump and I was up and about the next morning. Not too much pain. By thursday I felt fine and said I wanted to go home to one of the surgical team in the morning but they said that usually people stay a 3rd night. I waited all day for my surgeon to come but at 6pm I decided to turn on the waterworks and insist that someone see me. I said I would stay if they could give me a clear reason as to why I should stay. I even played the ‘terminal’ card and didn’t want to waste the time I had in a hospital bed when I could be home. Finally at 7.30pm someone on the phone said yes I could go so I am home, slept like a baby and should start rads in about 4 weeks. Will obviously be taking it easy for a few days.
Love to all
Louise

837

Louise,

Great to hear from you! So pleased that all went well and you are sounding so well - thanks for letting us know. Don’t blame you, you use any card/ploy you can to get home, it worked, and I’m sure you’re much more comfy and happy in your own space. Be gentle with yourself, take things easy.
Smashing news, you’ve cheered my day, lots of love Julie xx

838

Hi Girls, where are you all??? Anne, I know you’re going on holiday today so have a great time and thanks for the message on FB.

Louise, so delighted that you are home and safe and feeling ok. I don’t blame you for pestering them to let you home. When I had the liver biopsy they kept me in for two night and I got absolutely no sleep because the monitors on the people who were having chemo during the night kept going off all the time. It was awful and I was up, dressed and ready to go at 6.00a.m then I had to sit and wait for someone to say ‘Yes’. You take very good care of yourself and have a lovely, painfree weekend.

Nicola, so glad your arm is feeling better, sorry you are so tired, perhaps you’re working too much. The article sounds as if it is going to be very interesting, great that you explained about the secondaries, because as you say I’m sure a lot of people have no knowledge of them. It’ll be really interesting to find out how she covers it.

Mary, Roz,Julie, m1yu, Wayne and Maryanne, Sandra, Sarah,Terri and Alison, hope you are all well and that everyone has a happy and peaceful weekend without any drama!! Loads of love to you all, Dianne x x x

839

Hi all,

Just wanted to add a comment to Nicola’s post. It sounds like you did an excellent job with the newspaper article. You seemed to strike the right tone and said what is needed to be said re secondary bc. It is, without question, an emotional issue and an increasing common one, it appears. You were courageous to do it too -I don’t think I’d have the nerve to or be able to express myself in such an articulate way.
Sending best wishes to Louise too for a good recovery after your op.
I’m glad you were able to get home reasonably quickly- I hate being in hospital too.
Love, Sarah.

840

Hi Everyone,
Just popped in to say, absolutely delighted you are home Louise, hope you make a good recovery,signs good so far…take it easy, hope you have a pain free weekend, thinking of you xxx

I am off to the hospital soon for my Zometa, so this is just a quickie, thinking of you all, hope you have a good weekend, lots of love, Mary xxxx