Hi ladies,
Nice to ‘meet’ you billia, I go for my first FEC of 6 tomorrow…feeling very scared at the moment.
Tina, glad the SE’s are being kind to you so far…lets hope it continues…positive vibes for you.
Julie hope you are doing well and the SE’s are bearable.
My BC nurse just rang to see how I was which I thought was a nice touch to know that I am being thought of, very reassuring…either that or she was just checking that I had not run away or gone into exile or something and that I will be attending my appointment tomorrow!
Take care all
Hugs Suze xx
Suze easy to be scared but try and sleep tonight the situation will not change the only thing you can do is change your thoughts and get through the first one and things will get easier as you know what to expect.easy for me to say but it is true x
Hi all. Came back yesterday from lovely few days on the far West of Cornwall in time for second FEC today. Fab to be away walking the coast path. OH shaved off all hair when we were away which felt great - I hated the coming out stage. Nice to get ot done not on home turf too and have been happily out and about with bandana. For some reason can’t cope with the wig yet…
FEC today went smoothly but 3 hours late as the drugs hadn’t arrived. Noe popping pills and hoping for the best. Feel a bit odd now but had supper. In laws staying to amuse children as they’re on half term. Mother in law cooked supper but keeps asking advice. Can’t complain but it feels as if it’d be easier to do it myself!!!
Suze - good luck tomorrow.
Hi Sue, hope the SE’s stay well away! No. 2 done! I went out and about with the hats, bandanas first, too. Like my wig now, even though I thought I never would, maybe it’s because it makes me look so different it’s like a disguise! Suze, nice your bc nurse called, you will have a lot of support! Anyone planning to go to the YWF in Swindon end of June? I have signed up and am looking forward to it! Good luck for tomorrow! Tinaxxxx
Hi everyone hope everyone is ok whatever stage they are in their cycle. I am fine… day 6 of cycle 3, having injections which give bone pain and this time round do have a nasty taste in my mouth - a bit of indigestion too (when I eat) not sure why… otherwise ok. Enjoying the sunshine and doing a bit of easy gardening which is nice. Good news for me (might be short lived though given I’m moving to Tax) my HAIR IS GROWING!! yes, I have a short sprout of hair all over my head. I didn’t really notice it as I don’t look at myself in the mirror as I hate my look. As it has been hot I have gone around the house without any scarves etc and my husband said ‘your hair has grown’ and sure enough I can actually feel it!! its ‘white’ and its straight a bit like a crew cut - and its all over my head. I am sooo pleased. I don’t want to raise my hopes but heh its brilliant if its growing …
Congrats on the hair Saffron! Hope it lasts through Tax…
Starting to feel better (day 4 after 2nd FEC) I think, but have been sleeping badly. I keep smelling the drugs on me which gives me the creeps! Horrid taste in mouth and don’t fancy food but feel simultaneously v hungry! Hopefully will be back to more normal tomorrow. Having said that, v relaxing weekend and I’m not stressing about starting back teaching tomorrow after half term, so can’t complain!
x
How did the first one go, Suze? And how different is the Tax for you Tina?
Hi Sue, hope you are a bit better & back to teaching!!! Tax different to fec, different Se’s and probably a bit more tired. Still planning to attend the YWF? Going for the 9th June event in Swindon as well, so far not met anyone else with bc, so should be interesting!
saffron, hope your hair stays…tina, let me know what the forum is like, i am in two minds about going, think may try the newcastle one, but at the moment i don’t want to go when i feel ill after chemo, but then on my good days i want to spend all the time i can with my family. I wish there was one nearer manchester which i could just go to for the day. I really don’t feel up to staying away from my family at the moment.
Hi
I’m still planning on coming to Swindon Tina, but will be feeling grotty I suspect as having 3rd FEC on the Tuesday before. Have signed up to various interesting sounding groups and am rather fascinated as have never been to anything else like it. As Tors says though, if I was feeling good I’d rather be doing stuff with the family, so maybe it’s a good distraction and the family can have fun without me drooping around that weekend.
Tina - do we stay the night or go for the 2 separate days in Swindon? Maybe I haven’t studied the blurb carefully enough!
Gloomy day today, but the allotment needs the rain. Weather does affect my morale…
Sue
Hi, I think the forums are residential, it’s held in the Hilton hotel which is just off the junction16 on the M4, no trouble to find. I have not received any further info other than an email requesting the session confirmation. I know what you mean by being away, Vickie, I am going for the information and opportunity to meet other young women, so far I have only used the forum for contact to others affected by bc. Hope the SE’s hold off so you can attend, Sue! Hope everyone else is getting by!
hi tina, hows the tax been for you now you are further in? still tiredness main side effect?
My oncologist wont give me emend for my chemo this week, am v annoyed, have only spoken to him via his secretary so don’t know why, suspect the trust might not pay for it. I will ask him on thursday. v annoyed, hjad been psyching self up that would bebetter this time as nausea would be more controlled. He is going to give me a difft anti sickness and increase steroids. fab, not.
Annoying you can’t have the anti-sickness you know works for you. Good luck with that battle.
Normal life took over yesterday when my 11 yesr old fell over at school cutting his knee badly so I got the call to take him to A&E for stitches. I have had enough of hospitals at the moment!! I sat in A&E hardly daring to breathe in case people had horrid germs lurking. Son then didn’t sleep and was sick in the night so off school and we’re both mooching about feeling even more knackered than usual! Honestly, I’d like a period with no medical dramas and am scared of getting an infection. Feel I should be more concerned about him and less about me too. Mother guilt!
Went to BCC open day today and checked, the YWF is definitely residential but sounds like a really worthwile event. Had major wobble sat in carpark, thinking I can’t go in, never felt like that before, lack of confidence! Glad though I did, even though out of the nearly 50 women there probably 3 incl myself were under 45. Really tired now! Vickie, sorry to hear you have to fight, get your legal powers out! You should not have to suffer if there are effective treatment! Sue, don’t be guilty, however, I am not sure how to switch it off either! I hope your son is recovering! I have one of those accident prone boys, too. Probably getting more tired now as further into chemo! Not helped that we are renovating the whole house and there is no chance to rest. House full of builders all day. Hope everyone doing ok. There was a lady there today who had her 4th recurrence and still going strong. Amazing.
going to see what my onc says to me tomorrow, but he is a from christie hospital, whcih is the big specialist cancer hospital in manchester, and does satellite work for my area, and it is my trust who i don’t think pay, whereas other local trusts who christie doctors do satellite clinics for do pay, so theres that minefield to get through. To be fair, i haven’t tried the different treatment yet so it may work, fingers crossed. I have offered to pay privately for the drugs but will have to talk to him about it.
Sue, a and e when you are on chemo is scary as hell. My eldest was there a few days after my first chemo and i felt awful that i couldn’t go, his dad took him. It feels like a cave ful of germs doesn’t it! Hope he is on the mend soon.
Tina - can’t believe you’re doing the builder thing alongside chemo! I guess it might be a welcome distraction, but so knackering! I had my boy home from school yesterday and that made me more tired as I kept going all day rather than having a rest/read at some point. He’s hobbled back to school today, rather keen to show off his 6 bright blue stitches!
ANyone know if it’s ok to have indigestion remedies? Not keen to take any chemicals, but they’re quite mild aren’t they? My digestion does seem to be struggling.
Having lost the inital chemo glow of last week, I look a bit pale which reminds me to pass on a top tip from a friend who did the BC thing two years ago. Get in touch with your local Maggies centre and ask about ‘Look Good, Feel Better’ sessions they run - or do in Oxford anyway. You can book on to a make up session and get a great pack of lovely freebies apparently! She even asked my colouring so she can order the best pack. They do get booked up, so best to ask as soon as poss. I’m going at the start of July - something to look forward to!
Hi everyone I am new to this, diagnosed with breast cancer Dec, had surgery Jan, Feb and again March, followed by chemo started FEC 14th April, go for my 4th next Weds. Its been a roller coaster ride for me and reading through your postings I can relate to a lot of what is discussed, wish I had done this before.
I go to my local hospital which is a satalite for Christies, the staff have been great. Have brilliant husband, wonderful family and some fab friends who have helped me enormously. But its really good to hear about others who are going through a similar experience.
Gaviscon is ok I have been told! Unfortunately, they don’t do the make up sessions here, would have to travel to Oxford or Reading. Week five of builders in, the whole of downstairs is gutted, we knocked down walls, the kitchen is gone! We moved two weeks after my op and started after my first chemo, it keeps me busy, but no rest! Hope you get the emend sorted out, Vickie. Sue, have you decided about the forum yet?
I suffered really badly with Heartburn and Indigestion with my first chemo and my doctor prescribed me with Lansoprazole and Peptac Liquid it was such a relief. Have just seen my onc today ready for my 2nd chemo tomorrow and she will have some ready for me to take home. Really recommend you ask for something, I tried to do without but was in so much pain and found it so hard to eat or drink.
Hi everyone
You can tell the weather has been good as we all seem to go alittle quiet.
Had my 3rd FEC today was feeling rather low about it but I just think I got alittle ‘over tired’ as I have been back to work this cycle. Got told off by my boss for doing too much! Never thought I hear that! Really nice to know they are looking out for me and its not all about money.
Hope kitchen going well Tina we have been renovating house so understand what mess it causes. Not surprised you are tired being a mum is exhausting in itself! Your research is Fab! Keep it coming please!
How did it go today Tors???
Great to hear about the indigestion stuff Emily have been using
Gaviscon but doesnt seem to hit the spot! Will ask Doc for it.
Caz family really make a difference!
Scoobs I am down for a ‘Look good feeel better’ session with maggies in Inverness looking forward to it too!
Well I hope everyone else is doing well.
Will catch up again in a few days when SE’s pass.